title: An Assessment to Inform Pediatric Cancer Provider Development and Delivery of Survivor Care Plans.
abstract: Current guidelines recommend all pediatric cancer survivors receive a survivor care plan (SCP) for optimal health management, yet clinical delivery of SCPs varies. We evaluated oncology providers' familiarity with and preferences for delivering SCPs to inform the implementation of a future SCP program at our institution. From November 2013 to April 2014, oncology providers from the Primary Children's Hospital in Salt Lake City, UT, completed a survey (n=41) and a 45-min focus group (n=18). Participants reported their familiarity with and training in SCP guidelines, opinions on SCPs, and barriers to delivering SCPs. As a secondary analysis, we examined differences in survey responses between physicians and nurses with Fisher's exact tests. Focus group transcripts and open-ended survey responses were content analyzed. Participants reported high familiarity with late effects of cancer treatment (87.8%) and follow-up care that cancer survivors should receive (82.5%). Few providers had delivered an SCP (oncologists 35.3% and nurses 5.0%; p=0.03). Barriers to providing SCPs included lack of knowledge (66.7%), SCP delivery is not expected in their clinic (53.9%), and no champion (48.7%). In qualitative comments, providers expressed that patient age variation complicated SCP delivery. Participants supported testing an SCP intervention program (95.1%) and felt this should be a team-based approach. Strategies for optimal delivery of SCPs are needed. Participants supported testing an SCP program to improve the quality of patient care. Team-based approaches, including nurses and physicians, that incorporate provider training on and support for SCP delivery are needed to improve pediatric cancer care.
authors.affiliation: Cancer Control and Population Sciences Research Program, Huntsman Cancer Institute, 2000 Circle of Hope, Rm 4125, Salt Lake City, UT, 84112, USA. Echo.Warner@hci.utah.edu.
authors.forename: Echo L
authors.initials: EL
authors.lastname: Warner
authors.affiliation: Cancer Control and Population Sciences Research Program, Huntsman Cancer Institute, 2000 Circle of Hope, Rm 4125, Salt Lake City, UT, 84112, USA.|Division of Public Health, University of Utah, 375 Chipeta Way, Salt Lake City, UT, 84108, USA.
authors.forename: Yelena P
authors.initials: YP
authors.lastname: Wu
authors.affiliation: Cancer Control and Population Sciences Research Program, Huntsman Cancer Institute, 2000 Circle of Hope, Rm 4125, Salt Lake City, UT, 84112, USA.
authors.forename: Claire C
authors.initials: CC
authors.lastname: Hacking
authors.affiliation: Department of Pediatrics, University of Utah, 295 Chipeta Way, Salt Lake City, UT, 84108, USA.|Huntsman Cancer Institute Pediatric Cancer Late Effects Clinic, 1950 Circle of Hope, Salt Lake City, UT, 84112, USA.|Primary Children's Hospital, 100 No. Mario Capecchi Dr., Salt Lake City, UT, 84113, USA.
authors.forename: Jennifer
authors.initials: J
authors.lastname: Wright
authors.affiliation: Department of Pediatrics, University of Utah, 295 Chipeta Way, Salt Lake City, UT, 84108, USA.|Primary Children's Hospital, 100 No. Mario Capecchi Dr., Salt Lake City, UT, 84113, USA.
authors.forename: Holly L
authors.initials: HL
authors.lastname: Spraker-Perlman
authors.affiliation: Intermountain Healthcare, 36 S State Street, Salt Lake City, UT, 84111, USA.
authors.forename: Emmie
authors.initials: E
authors.lastname: Gardner
authors.affiliation: Cancer Control and Population Sciences Research Program, Huntsman Cancer Institute, 2000 Circle of Hope, Rm 4125, Salt Lake City, UT, 84112, USA.|Department of Pediatrics, University of Utah, 295 Chipeta Way, Salt Lake City, UT, 84108, USA.
authors.forename: Anne C
authors.initials: AC
authors.lastname: Kirchhoff
mesh_terms: D002648:Child; D003266:Continuity of Patient Care; D005260:Female; D005500:Follow-Up Studies; D006301:Health Services Needs and Demand; D006801:Humans; D008297:Male; D009369:Neoplasms / Q000451:nursing / Q000523:psychology / Q000628:therapy*; D010347:Patient Care Planning; D010353:Patient Education as Topic; D010564:Personnel, Hospital; D010818:Practice Patterns, Physicians'; D011320:Primary Health Care; D017741:Survivors
keywords: Pediatric; Provider education; Survivor care plan; Survivorship; Survivorship care plan