Needs and requests--patients and physicians voices about improving the management of spinal cord injury neuropathic pain.
OBJECTIVE
The present purpose was to explore patients' and involved physicians' needs and requests for improving their management of neuropathic pain following spinal cord injury (SCI).


METHODS
Sixteen patients with SCI and neuropathic pain, and nine physicians, were interviewed in focus-groups or individual interviews. An emergent design was used and the interviews and analyses were carried out in parallel, making it possible to use and deepen new emerging knowledge. The interviews were transcribed verbatim and processed according to content analysis.


RESULTS
A final model with four themes described the results. Three themes covered the current situation: limitations in structure, lack of knowledge and competence, and frustrations. A fourth theme, needs and requests, described suggestions by patients and physicians for future improvements. Suggestions included increased participation, increased patient involvement in the pain rehabilitation process, support in the process of learning to live with pain, implementation of multi-modal pain rehabilitation, and the use of complementary treatments for neuropathic pain.


CONCLUSIONS
Neuropathic pain following SCI needs to be assessed and treated using a structured, inter-disciplinary, multi-modal rehabilitation approach involving patients in planning and decision-making.


CONCLUSIONS
For improving SCI neuropathic pain management, there is a great need for individually-tailored management, planned in a dialogue on equal terms between health care and the patient. Patients desire continuity and regularity and the possibility of receiving complementary treatments for SCI neuropathic pain. Access to structured pain rehabilitation is needed. Support and tools need to be provided in the learning-to-live with pain process.
a Department of Clinical Sciences , Danderyd Hospital, Karolinska Institute , Stockholm , Sweden .|b Department of Neurobiology , Care sciences and Society, Karolinska Institute , Stockholm , Sweden , and.
Cecilia
C
Norrbrink
a Department of Clinical Sciences , Danderyd Hospital, Karolinska Institute , Stockholm , Sweden .|c Department of Rehabilitation Medicine Stockholm , Danderyd Hospital , Stockholm , Sweden.
Monika
M
Löfgren
D000328:Adult; D000368:Aged; D005260:Female; D017144:Focus Groups; D007722:Health Knowledge, Attitudes, Practice; D006301:Health Services Needs and Demand; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D008875:Middle Aged; D009437:Neuralgia / Q000534:rehabilitation*; D059408:Pain Management / Q000592:standards*; D010358:Patient Participation; D010820:Physicians; D036301:Qualitative Research; D013119:Spinal Cord Injuries / Q000534:rehabilitation*
Experiences; pain; pain management; pain rehabilitation; qualitative interviews; spinal cord injury