Activity of the alpha-1 antitrypsin deficiency registry in Belgium.
A Belgian alpha-1-antitrypsin (AAT) deficiency registry has been established in 2003. Currently 55 patients are included. At the same time, a working group has been set up for publishing national guidelines. In 2014, several Belgian patients founded Alpha-1 Global. We hope that the integrated activities of all the stakeholders involved in AAT deficiency will permit a high quality care for all patients suffering from this disabling disease.
Hôpitaux Iris Sud, Département de Médecine Interne, Service de Pneumologie , Brussels , Belgium.
Jacques
J
Hutsebaut
Wim
W
Janssens
Renaud
R
Louis
Frank
F
Willersinn
Xavier
X
Stephenne
Etienne
E
Sokal
Eric
E
Derom
D001530:Belgium / Q000453:epidemiology; D005260:Female; D006801:Humans; D008103:Liver Cirrhosis / Q000209:etiology / Q000601:surgery; D016031:Liver Transplantation; D016040:Lung Transplantation; D008297:Male; D015995:Prevalence; D029424:Pulmonary Disease, Chronic Obstructive / Q000209:etiology / Q000628:therapy; D011656:Pulmonary Emphysema / Q000209:etiology / Q000628:therapy; D012042:Registries; D014361:Trypsin Inhibitors / Q000627:therapeutic use; D000515:alpha 1-Antitrypsin / Q000627:therapeutic use; D019896:alpha 1-Antitrypsin Deficiency / Q000150:complications / Q000175:diagnosis / Q000453:epidemiology / Q000628:therapy
D014361:Trypsin Inhibitors; D000515:alpha 1-Antitrypsin
COPD; alpha-1 antitrypsin deficiency; registry