[A childhood and adolescence cancer survivors' association: Les Aguerris].
In France, we can estimate that 50,000 adults are childhood or adolescence cancer survivors. Not all of them will experience late effects but they should be informed about their previous disease and should get a detailed summary of treatment information including a personal plan for late effects screening. They also should have access to appropriate follow-up care including detection and treatment of late effects and provision of support and advice. From a follow-up clinic experience, the need of a survivor association has emerged and "Les Aguerris" has been created with several objectives: to improve the quality of life of survivors providing them information about the possible physical, social and psychological consequences of childhood cancer, to raise awareness of public authorities and other actors on questions regarding the need of long-term follow-up of the patients in dedicated clinics, to support researches about late effects of cancer and treatments and to create a network of adult survivors of childhood cancer in relation with other European survivors or parents associations. This paper describes the activities of the association to fulfill its objectives and the annual national meetings they are organizing.
Association Les Aguerris, 52, rue Pernety, 75014 Paris, France. Electronic address: lesaguerris@gmail.com.
Kai Yan
KY
Ly
Association Les Aguerris, 52, rue Pernety, 75014 Paris, France.
Élodie
É
Vélius
Association Les Aguerris, 52, rue Pernety, 75014 Paris, France.
Maxime
M
Pitot
Association Les Aguerris, 52, rue Pernety, 75014 Paris, France.
Lionel
L
Rivieri
Association Les Aguerris, 52, rue Pernety, 75014 Paris, France.
Morvan
M
Dupont
D000293:Adolescent; D000328:Adult; D002648:Child; D005602:France; D006801:Humans; D009369:Neoplasms / Q000150:complications / Q000523:psychology / Q000628:therapy*; D012657:Self-Help Groups / Q000458:organization & administration*; D017741:Survivors / Q000523:psychology
Adulte; Adults; Association de patients; Cancer; Children; Enfant; Follow-up; Suivi après-cancer; Survivors’ association