World Workshop on Oral Medicine VI: Patient-reported outcome measures and oral mucosal disease: current status and future direction.
OBJECTIVE
This systematic review aimed to (1) explore the patient-reported outcome measures (PROMs) currently used in the oral mucosal disease literature and report on the type and context of the use of these instruments and (2) provide a future direction for PROMs in Oral Medicine practice and research.


METHODS
A systematic review of published English-language articles relating to the use of PROMs in the oral mucosal diseases literature was performed in November 2013.


RESULTS
In total, 131 articles met the inclusion criteria; these articles addressed the following oral mucosal conditions: lichen planus (75); recurrent aphthous stomatitis (30); mucous membrane pemphigoid/pemphigus vulgaris (14); orofacial granulomatosis (1); and multiple oral mucosal diseases (11). The most commonly used instruments were visual analog scales (VAS) and the oral health impact profile (OHIP).


CONCLUSIONS
Limited progress has been achieved with use of PROMs in Oral Medicine in the last few decades in both clinical practice and a research setting. With the engagement of allied medical disciplines in PROM usage and the promotion of PROMs by national health care bodies globally, advancement of PROMs is imperative for Oral Medicine. Exposure through the World Workshop on Oral Medicine (WWOM), along with potential involvement in the Core Outcome Measures in Effectiveness Trials (COMET) or other such initiatives, will enable worldwide collaboration to promote the development and utilization of valid and reliable PROMs in oral medicine, and improve patient care.
Department of Oral Medicine, UCL Eastman Dental Hospital, University College London Hospitals NHS Foundation Trust, London, UK. Electronic address: richeal.niriordain@gmail.com.
Rícheal
R
Ní Ríordáin
Department of Oral Medicine, Guys and St Thomas' NHS Foundation Trust, London, UK.
Penelope
P
Shirlaw
Department of Oral Medicine, University of Zagreb School of Dental Medicine, Zagreb, Croatia; University Hospital Centre Zagreb, Croatia.
Ivan
I
Alajbeg
University of Pennsylvania School of Dental Medicine, Philadelphia, PA, USA.
Ghada Y
GY
Al Zamel
University College London, UCL Eastman Dental Institute, London, UK.
Pok Lam
PL
Fung
Division of Oral Medicine, Brigham & Women's Hospital, Boston, MA; Department of Oral Medicine, Infection and Immunity, Harvard School of Dental Medicine, Boston, MA, USA.
Anna D
AD
Yuan
Department of Oral Medicine, Cork University Dental School and Hospital, Cork, Ireland.
Christine
C
McCreary
Department of Oral Medicine, University of Pennsylvania School of Dental Medicine, Philadelphia, PA, USA.
Eric T
ET
Stoopler
Georgia Regents University, Augusta, GA, USA.
Scott S
SS
De Rossi
Dipartimento di Scienze Biomediche, Chirurgiche e Odontoiatriche, Università degli Studi di Milano Milan, Italy.
Giovanni
G
Lodi
Department of Oral Medicine, Hospital Affairs, School of Dental Medicine, University of Pennsylvania, Philadelphia, PA, USA.
Martin S
MS
Greenberg
Department of Oral Medicine, Carolinas Medical Center, Charlotte, NC, USA.
Michael T
MT
Brennan
D006801:Humans; D009059:Mouth Diseases / Q000628:therapy*; D017063:Outcome Assessment, Health Care; D057566:Self Report