The experiential impact of hospitalisation: Parents' accounts of caring for young people with early psychosis.
This research examines the experiential impact of hospitalisation on the parents of young people with early psychosis. In-depth interviews were conducted with a small sample of parents, and the resulting transcripts were analysed using Interpretative Phenomenological Analysis. Five themes emerged from the data: Accepting and blaming, Feeling out of control, Hospitalisation as temporary containment, Feeling let down by services and Stigma. Aspects of the hospitalisation process were characterised by parents as generally negative, but a number of positive affirmations were also offered regarding the containing, supportive and crucial role of services. Parents' perceptions of hospitalisation as a difficult, and sometimes distressing, experience are exacerbated by the complexity of being the carer of a young person. Negotiating services and boundaries within the context of this relationship contributes to feelings of exclusion and disregard by professionals and services. The implications of this study resonate with the current government mental health strategy with regard to how services can engage and include carers in the mental health system, and equip and enable them to support their relatives with early psychosis.
School of Psychology, University of Birmingham, UK Coventry and Warwickshire Partnership Trust, UK.
Gareth
G
Hickman
School of Psychology, University of Birmingham, UK Coventry and Warwickshire Partnership Trust, UK.
Elizabeth
E
Newton
School of Psychology, University of Birmingham, UK Birmingham and Solihull Mental Health Foundation Trust, UK.
Kelly
K
Fenton
School of Psychology, University of Birmingham, UK St Andrew's Healthcare, Birmingham, UK.
Jessica
J
Thompson
School of Psychology, University of Birmingham, UK.
Zoë V R
ZV
Boden
School of Psychology, University of Birmingham, UK m.larkin@bham.ac.uk.
Michael
M
Larkin
D000293:Adolescent; D017028:Caregivers / Q000523:psychology*; D005260:Female; D006760:Hospitalization; D006801:Humans; D008297:Male; D008605:Mental Health Services; D010290:Parents / Q000523:psychology*; D011618:Psychotic Disorders / Q000523:psychology / Q000628:therapy*; D057545:Social Stigma
Early intervention; Interpretative Phenomenological Analysis; early psychosis; family caregiver experiences; first episode psychosis; hospitalisation; qualitative; sectioning