title: p-medicine: A Medical Informatics Platform for Integrated Large Scale Heterogeneous Patient Data.
abstract: Secure access to patient data is becoming of increasing importance, as medical informatics grows in significance, to both assist with population health studies, and patient specific medicine in support of treatment. However, assembling the many different types of data emanating from the clinic is in itself a difficulty, and doing so across national borders compounds the problem. In this paper we present our solution: an easy to use distributed informatics platform embedding a state of the art data warehouse incorporating a secure pseudonymisation system protecting access to personal healthcare data. Using this system, a whole range of patient derived data, from genomics to imaging to clinical records, can be assembled and linked, and then connected with analytics tools that help us to understand the data. Research performed in this environment will have immediate clinical impact for personalised patient healthcare.
authors.affiliation: University College London, London, United Kingdom.
authors.forename: J
authors.initials: J
authors.lastname: Marés
authors.affiliation: University College London, London, United Kingdom.
authors.forename: L
authors.initials: L
authors.lastname: Shamardin
authors.affiliation: Fraunhofer Institute for Biomedical Engineering, St. Ingbert, Germany.
authors.forename: G
authors.initials: G
authors.lastname: Weiler
authors.affiliation: Universidad Politécnica de Madrid, Madrid, Spain.
authors.forename: A
authors.initials: A
authors.lastname: Anguita
authors.affiliation: ICS-FORTH, Heraklion, Greece.
authors.forename: S
authors.initials: S
authors.lastname: Sfakianakis
authors.affiliation: Custodix, Sint-Martens-Latem, Belgium.
authors.forename: E
authors.initials: E
authors.lastname: Neri
authors.affiliation: University College London, London, United Kingdom.
authors.forename: S J
authors.initials: SJ
authors.lastname: Zasada
authors.affiliation: University of Saarland, Saarland, Germany.
authors.forename: N
authors.initials: N
authors.lastname: Graf
authors.affiliation: University College London, London, United Kingdom.
authors.forename: P V
authors.initials: PV
authors.lastname: Coveney
mesh_terms: D003219:Confidentiality; D066264:Datasets as Topic; D057286:Electronic Health Records; D006801:Humans; D007256:Information Systems; D008490:Medical Informatics; D012984:Software