title: Participatory Design and Development of a Patient-centered Toolkit to Engage Hospitalized Patients and Care Partners in their Plan of Care.
abstract: Patient engagement has been identified as a key strategy for improving patient outcomes. In this paper, we describe the development and pilot testing of a web-based patient centered toolkit (PCTK) prototype to improve access to health information and to engage hospitalized patients and caregivers in the plan of care. Individual and group interviews were used to identify plan of care functional and workflow requirements and user interface design enhancements. Qualitative methods within a participatory design approach supported the development of a PCTK prototype that will be implemented on intensive care and oncology units to engage patients and professional care team members developing their plan of care during an acute hospitalization.
authors.affiliation: Brigham and Women's Hospital, Boston, MA ; Harvard Medical School, Boston, MA.
authors.forename: Patricia C
authors.initials: PC
authors.lastname: Dykes
authors.affiliation: Brigham and Women's Hospital, Boston, MA.
authors.forename: Diana
authors.initials: D
authors.lastname: Stade
authors.affiliation: Partners HealthCare, Boston, MA.
authors.forename: Frank
authors.initials: F
authors.lastname: Chang
authors.affiliation: Brigham and Women's Hospital, Boston, MA ; Harvard Medical School, Boston, MA.
authors.forename: Anuj
authors.initials: A
authors.lastname: Dalal
authors.affiliation: Partners HealthCare, Boston, MA.
authors.forename: George
authors.initials: G
authors.lastname: Getty
authors.affiliation: Partners HealthCare, Boston, MA.
authors.forename: Ravali
authors.initials: R
authors.lastname: Kandala
authors.affiliation: Brigham and Women's Hospital, Boston, MA.
authors.forename: Jaeho
authors.initials: J
authors.lastname: Lee
authors.affiliation: Brigham and Women's Hospital, Boston, MA ; Harvard Medical School, Boston, MA.
authors.forename: Lisa
authors.initials: L
authors.lastname: Lehman
authors.affiliation: Brigham and Women's Hospital, Boston, MA.
authors.forename: Kathleen
authors.initials: K
authors.lastname: Leone
authors.affiliation: Brigham and Women's Hospital, Boston, MA ; Harvard Medical School, Boston, MA.
authors.forename: Anthony F
authors.initials: AF
authors.lastname: Massaro
authors.affiliation: Brigham and Women's Hospital, Boston, MA.
authors.forename: Marsha
authors.initials: M
authors.lastname: Milone
authors.affiliation: Brigham and Women's Hospital, Boston, MA.
authors.forename: Kelly
authors.initials: K
authors.lastname: McNally
authors.affiliation: Brigham and Women's Hospital, Boston, MA.
authors.forename: Kumiko
authors.initials: K
authors.lastname: Ohashi
authors.affiliation: Brigham and Women's Hospital, Boston, MA.
authors.forename: Katherine
authors.initials: K
authors.lastname: Robbins
authors.affiliation: Brigham and Women's Hospital, Boston, MA ; Harvard Medical School, Boston, MA ; Partners HealthCare, Boston, MA.
authors.forename: David W
authors.initials: DW
authors.lastname: Bates
authors.affiliation: Harvard Medical School, Boston, MA ; Partners HealthCare, Boston, MA.
authors.forename: Sarah
authors.initials: S
authors.lastname: Collins
mesh_terms: D017028:Caregivers; D005190:Family; D006760:Hospitalization; D006801:Humans; D020407:Internet; D007407:Interviews as Topic; D048108:Nursing Informatics; D010347:Patient Care Planning; D010358:Patient Participation
keywords: communication; health information technology; nursing informatics; participatory design; patient engagement; plan of care