title: Working with uncertainty: A grounded theory study of health-care professionals' experiences of working with children and adolescents with chronic fatigue syndrome.
abstract: This grounded theory study explores conceptualisations of chronic fatigue syndrome/myalgic encephalomyelitis from semi-structured interviews with 10 health-care professionals working with children and adolescents. The findings suggest that a lack of a clear empirical understanding of chronic fatigue syndrome/myalgic encephalomyelitis leads to 'working with uncertainty', whereby health-care professionals utilise previous experiences to make sense of the condition and inform their clinical practice. How health-care professionals make sense of chronic fatigue syndrome/myalgic encephalomyelitis may influence the labels given to young people and the interventions they receive. The findings provide insight into a currently understudied area, and highlight potential avenues for further research and clinical practice.
authors.affiliation: 1 Betsi Cadwaladr University Health Board, UK.
authors.forename: Megan R
authors.initials: MR
authors.lastname: Marks
authors.affiliation: 2 Bangor University, UK.
authors.forename: Jaci C
authors.initials: JC
authors.lastname: Huws
authors.affiliation: 1 Betsi Cadwaladr University Health Board, UK.
authors.forename: Liz
authors.initials: L
authors.lastname: Whitehead
keywords: adolescence; children; chronic fatigue syndrome; grounded theory; health care