title: The DNA Bank: High-Security Bank Accounts to Protect and Share Your Genetic Identity.
abstract: With the cost of genome sequencing decreasing every day, DNA information has the potential of affecting the lives of everyone. Surprisingly, an individual has little knowledge about his own DNA information, can rarely access it, and has hardly any control over its use. This may result in preventable, life-threatening situations, and also significantly inhibits scientific progress. What we urgently need is a "DNA bank," a resource providing a secure personal account where, similar to a financial institution, you can store your DNA sequence. Using this private and secure DNA bank account, you govern your sequence-related business. For any genetic study performed, the data generated must be transferred (paid) to your DNA account. Using your account, you regulate access, knowing for what purpose (informed consent) and only for the genetic data you are willing to share. The DNA account ensures you are in the driver's seat, know what is known, and control what is happening with it.
authors.forename: Johan T
authors.initials: JT
authors.lastname: den Dunnen
mesh_terms: D030561:Databases, Nucleic Acid; D030661:Genetic Privacy; D015894:Genome, Human; D006801:Humans; D007258:Informed Consent; D017422:Sequence Analysis, DNA
keywords: database; genome sequencing; personalized medicine; variant