title: Self-reports versus parental perceptions of health-related quality of life among deaf children and adolescents.
abstract: The aim of this study was to assess the agreement between deaf children's and adolescents' self-ratings of health-related quality of life (HRQoL) and their parents' proxy reports. This observational cross-sectional study included 114 deaf 8- to 18-years-old students and proxy family members. HRQoL was measured using the KIDSCREEN-27 questionnaire, which was adapted to Spanish sign language for children, with a written version for parents. Respondents completed a self-administered paper questionnaire. Parents' and children's mean scores differences were not significant, except for the "Autonomy and Parents" and "Peers and Social Support" dimensions. Children aged 8-11 years scored higher in some domains of QoL compared to those aged 12-18 years. The level of agreement between children/adolescents' and parents/proxies' responses was acceptable, except for the dimension "Autonomy and Parents." Overall, deaf children/adolescents' self-ratings of HRQoL did not differ from their parents' proxy reports; however, differences were found in the dimensions that explored the quality of the interaction of children/adolescents and parents, the perceived level of autonomy, and social relations and support.
authors.affiliation: Universidad de Castilla-La Mancha and.
authors.forename: María Jesús
authors.initials: MJ
authors.lastname: Pardo-Guijarro
authors.affiliation: Universidad de Castilla-La Mancha and.
authors.forename: María
authors.initials: M
authors.lastname: Martínez-Andrés
authors.affiliation: Universidad de Castilla-La Mancha and.
authors.forename: Blanca
authors.initials: B
authors.lastname: Notario-Pacheco
authors.affiliation: Universidad de Castilla-La Mancha and.
authors.forename: Montserrat
authors.initials: M
authors.lastname: Solera-Martínez
authors.affiliation: Universidad de Castilla-La Mancha and.
authors.forename: Mairena
authors.initials: M
authors.lastname: Sánchez-López
authors.affiliation: Universidad de Castilla-La Mancha and Universidad Autónoma de Chile vicente.martinez@uclm.es.
authors.forename: Vicente
authors.initials: V
authors.lastname: Martínez-Vizcaíno
mesh_terms: D000293:Adolescent; D002648:Child; D003430:Cross-Sectional Studies; D003638:Deafness / Q000523:psychology*; D005260:Female; D006304:Health Status; D006801:Humans; D008297:Male; D010290:Parents / Q000523:psychology*; D019986:Persons with Hearing Disabilities / Q000523:psychology*; D011788:Quality of Life / Q000523:psychology*; D057566:Self Report