title: Mortality of People with Intellectual and Developmental Disabilities from Select US State Disability Service Systems and Medical Claims Data.
abstract: BACKGROUND
  Monitoring population trends including mortality within subgroups such as people with intellectual and developmental disabilities and between countries provides crucial information about the population's health and insights into underlying health concerns and the need for and effectiveness of public health efforts.
  
  
  METHODS
  Data from both US state intellectual and developmental disabilities service system administrative data sets and de-identified state Medicaid claims were used to calculate average age at death and crude mortality rates.
  
  
  RESULTS
  Average age at death for people in state intellectual and developmental disabilities systems was 50.4-58.7 years and 61.2-63.0 years in Medicaid data, with a crude adult mortality rate of 15.2 per thousand.
  
  
  CONCLUSIONS
  Age at death remains lower and mortality rates higher for people with intellectual and developmental disabilities. Improved case finding (e.g. medical claims) could provide more complete mortality patterns for the population with intellectual and developmental disabilities to inform the range of access and receipt of supportive and health-related interventions and preventive care.
authors.affiliation: Center for Developmental Disabilities Evaluation and Research, Eunice Kennedy Shriver Center, University of Massachusetts Medical School, Charlestown, MA, USA.
authors.forename: Emily
authors.initials: E
authors.lastname: Lauer
authors.affiliation: Center for Excellence in Aging Services, School of Social Welfare, University at Albany, Albany, NY, USA.
authors.forename: Philip
authors.initials: P
authors.lastname: McCallion
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D002423:Cause of Death / Q000639:trends*; D002658:Developmental Disabilities / Q000401:mortality*; D006233:Persons with Disabilities / Q000706:statistics & numerical data*; D005260:Female; D006801:Humans; D007348:Insurance, Health / Q000706:statistics & numerical data; D008607:Intellectual Disability / Q000401:mortality*; D008017:Life Expectancy / Q000639:trends*; D008297:Male; D008483:Medical Assistance / Q000706:statistics & numerical data; D008875:Middle Aged; D061213:Mortality, Premature / Q000639:trends; D009518:New York / Q000453:epidemiology; D012307:Risk Factors; D014481:United States / Q000453:epidemiology; D055815:Young Adult
keywords: United States; developmental disabilities; health inequalities; intellectual disabilities; mortality