title: Perspectives from health, social care and policy stakeholders on the value of a single self-report outcome measure across long-term conditions: a qualitative study.
abstract: OBJECTIVE
  To explore the views of a range of stakeholders regarding whether patient-reported outcome measures (PROMs) can be developed to measure key attributes of long-term conditions (LTCs) care in England, and the potential value of a single generic measure.
  
  
  METHODS
  Qualitative semistructured interview study, analysed using a framework approach.
  
  
  METHODS
  Interviews with 31 stakeholders from primary care, secondary care, social care, policy and patient-focused voluntary organisations in England.
  
  
  RESULTS
  There was broad support for a single PROM that could be used to measure outcomes for patients with any LTCs in any health or social care setting. Interviewees identified three desired uses for a PROM: to improve the quality of individual care; to increase people's engagement in their own care; and to monitor the performance of services. Interviewees felt that a PROM for LTCs should incorporate a mixture of traditional and non-traditional domains, such as functioning, empowerment and social participation, and be codesigned with patients and professional end-users. Stakeholders emphasised the need for a PROM to be feasible for practical implementation at the individual clinical level as a first priority. A number of concerns and potential problems were identified in relation to the application and interpretation of an LTC PROM.
  
  
  CONCLUSIONS
  This study has demonstrated support for a single self-report outcome measure that reflects the priorities of people with LTCs, if such a measure can be shown to be meaningful and useful at the individual level. People with LTCs and professional end-users in health and social care should be involved in the development and evaluation of such a measure.
authors.affiliation: Academic Unit of Primary Care, Leeds Institute of Health Sciences, University of Leeds, Leeds, England.
authors.forename: Cheryl
authors.initials: C
authors.lastname: Hunter
authors.affiliation: Health Services Research Unit, Nuffield Department of Population Health, University of Oxford, Oxford, England.
authors.forename: Ray
authors.initials: R
authors.lastname: Fitzpatrick
authors.affiliation: Health Services Research Unit, Nuffield Department of Population Health, University of Oxford, Oxford, England.
authors.forename: Crispin
authors.initials: C
authors.lastname: Jenkinson
authors.affiliation: Faculty of Health Sciences, University of Southampton, Southampton, England.
authors.forename: Anne-Sophie Emma
authors.initials: AS
authors.lastname: Darlington
authors.affiliation: Health Services Research Unit, Nuffield Department of Population Health, University of Oxford, Oxford, England.
authors.forename: Angela
authors.initials: A
authors.lastname: Coulter
authors.affiliation: PSSRU, University of Kent, Canterbury, England PSSRU, London School of Economics and Political Science, London, England.
authors.forename: Julien E
authors.initials: JE
authors.lastname: Forder
authors.affiliation: Health Services Research Unit, Nuffield Department of Population Health, University of Oxford, Oxford, England.
authors.forename: Michele
authors.initials: M
authors.lastname: Peters
mesh_terms: D002908:Chronic Disease / Q000628:therapy*; D003266:Continuity of Patient Care; D004739:England / Q000453:epidemiology; D019317:Evidence-Based Medicine; D005240:Feasibility Studies; D006801:Humans; D010347:Patient Care Planning / Q000458:organization & administration* / Q000592:standards; D011050:Policy Making; D011320:Primary Health Care / Q000458:organization & administration* / Q000592:standards; D011369:Professional-Patient Relations; D036301:Qualitative Research; D058996:Quality Improvement; D011787:Quality of Health Care / Q000458:organization & administration* / Q000592:standards; D012017:Referral and Consultation / Q000458:organization & administration; D063127:Secondary Health Care / Q000458:organization & administration* / Q000592:standards; D057566:Self Report; D012944:Social Support; D011795:Surveys and Questionnaires
keywords: PRIMARY CARE; QUALITATIVE RESEARCH