title: Public advocacy and community engagement: interventions for individuals with young-onset dementia and their families.
abstract: Individuals and families affected by young-onset dementia (YOD) deal with multiple difficulties related to the altered timing of the dementias. These individuals and families are overlooked by the health care and social support systems because there are few tailored services/policies for younger people affected by dementia. This article suggests how public advocacy and interventions at the clinical and community levels can support people living with YOD, in particular the spouses, who provide most of the care.
authors.affiliation: Factor-Inwentash Faculty of Social Work, University of Toronto, 246 Bloor Street W, Toronto, ON M5S1A1, Canada; Sam and Ida Ross Memory Clinic, Baycrest Health Sciences, 3560 Bathurst, ON M6A 2E1, Canada. Electronic address: ashnall@baycrest.org.
authors.forename: Adriana
authors.initials: A
authors.lastname: Shnall
mesh_terms: D017668:Age of Onset; D017028:Caregivers / Q000193:education / Q000331:legislation & jurisprudence / Q000523:psychology; D003156:Community Mental Health Services / Q000379:methods*; D003254:Consumer Advocacy; D003704:Dementia / Q000523:psychology / Q000534:rehabilitation; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D008875:Middle Aged; D000067250:Psychiatric Rehabilitation / Q000379:methods / Q000523:psychology; D012944:Social Support
keywords: Community engagement; Dementia caregiving; Early-onset dementia; Family caregiving; Psychosocial interventions; Public advocacy; Spousal caregiving; Young-onset dementia