title: Prioritization of therapy uncertainties in congenital ichthyosis: results from a Priority Setting Partnership.
authors.affiliation: Department of Dermatology, Hospital Infantil Niño Jesús, Madrid, Spain. ahernandez_hnj@yahoo.es.
authors.forename: A
authors.initials: A
authors.lastname: Hernández-Martín
authors.affiliation: Dermatology and Venereology Department, Umeå University Hospital, Umeå, Sweden.
authors.forename: P
authors.initials: P
authors.lastname: Dávila-Seijo
authors.affiliation: Department of Dermatology, Hospital Universitario La Paz, Madrid, Spain.
authors.forename: R
authors.initials: R
authors.lastname: de Lucas
authors.affiliation: Department of Dermatology, Hospital Santa Creu y Sant Pau, Barcelona, Spain.
authors.forename: E
authors.initials: E
authors.lastname: Baselga
authors.affiliation: Department of Dermatology, Clínica Universidad de Navarra, Pamplona, Spain.
authors.forename: P
authors.initials: P
authors.lastname: Redondo
authors.affiliation: Department of Dermatology, Hospital Son Espases, Palma de Mallorca, Spain.
authors.forename: A
authors.initials: A
authors.lastname: Martín-Santiago
authors.affiliation: Department of Dermatology, Complejo Hospitalario Universitario, Albacete, Spain.
authors.forename: J M
authors.initials: JM
authors.lastname: Azaña-Defez
authors.affiliation: Department of Ophthalmology, Hospital Universitario Miguel Servet, Zaragoza, Spain.
authors.forename: I
authors.initials: I
authors.lastname: González-Viejo
authors.affiliation: Department of Ear-Nose-and-Throat, Hospital San Rafael, Madrid, Spain.
authors.forename: L
authors.initials: L
authors.lastname: Jiménez-Ferreres
authors.affiliation: Department of Dermatology, Hospital Sant Joan de Deu, Barcelona, Spain.
authors.forename: M A
authors.initials: MA
authors.lastname: González-Enseñat
authors.affiliation: Centro de Referencia Estatal de Atención a personas con Enfermedades Raras y sus familias, Burgos, Spain.|ASIC (Spanish Association of Ichthyosis Patients), Madrid, Spain.
authors.forename: M I
authors.initials: MI
authors.lastname: Arroyo-Manzanal
authors.affiliation: ASIC (Spanish Association of Ichthyosis Patients), Madrid, Spain.
authors.forename: J M
authors.initials: JM
authors.lastname: Soria
authors.affiliation: Research Unit, Fundación Academia Española de Dermatología y Venereología, Madrid, Spain.
authors.forename: I
authors.initials: I
authors.lastname: Garcia-Doval
mesh_terms: D000505:Alopecia / Q000517:prevention & control; D015316:Genetic Therapy / Q000379:methods; D006292:Health Priorities; D006801:Humans; D017490:Ichthyosis, Lamellar / Q000628:therapy*; D007231:Infant, Newborn; D007400:Interprofessional Relations; D007641:Keratolytic Agents / Q000627:therapeutic use; D018743:Perinatal Care / Q000458:organization & administration; D011537:Pruritus / Q000209:etiology; D011788:Quality of Life; D012176:Retinoids / Q000009:adverse effects
chemical_list: D007641:Keratolytic Agents; D012176:Retinoids