title: Client-centred ADL intervention after stroke: Significant others' experiences.
abstract: BACKGROUND
  Client-centredness is a prominent contemporary concept in rehabilitation. However, there is a lack of knowledge on if and how a client-centred rehabilitation approach is incorporated in the everyday life of significant others of people who receive such rehabilitation.
  
  
  OBJECTIVE
  Explore and describe if and how a client-centred ADL intervention (CADL) was integrated in the everyday lives of significant others of people with stroke.
  
  
  METHODS
  Qualitative longitudinal design, with a grounded theory approach. Seven significant others, who cohabited with persons receiving a CADL intervention, were interviewed during the first year.
  
  
  RESULTS
  One core category was identified: "Taking responsibility and achieving balance with respect to self-esteem in order to get on with everyday life". The integration of the CADL was a process. A key aspect was that as the person with stroke acted upon his/her own desired activity goals the significant others were encouraged to act on their own needs.
  
  
  CONCLUSIONS
  Enablement is important also for the significant others of people with stroke. One way of enabling significant others to maintain an active lifestyle and find respite in everyday life might be to enable people with stroke to formulate and act upon their desired activity goals.
authors.affiliation: Department of Neurobiology, Care Sciences and Society, Division of Occupational Therapy, Karolinska Institutet , Stockholm , Sweden.
authors.forename: Ann-Sofie
authors.initials: AS
authors.lastname: Bertilsson
authors.forename: Lena
authors.initials: L
authors.lastname: von Koch
authors.forename: Kerstin
authors.initials: K
authors.lastname: Tham
authors.forename: Ulla
authors.initials: U
authors.lastname: Johansson
mesh_terms: D000203:Activities of Daily Living; D000368:Aged; D017028:Caregivers / Q000523:psychology*; D005260:Female; D066296:Grounded Theory; D006801:Humans; D008137:Longitudinal Studies; D008297:Male; D008875:Middle Aged; D018802:Patient-Centered Care; D012944:Social Support; D018454:Spouses; D000071939:Stroke Rehabilitation; D011795:Surveys and Questionnaires
keywords: caregiver burden; goal; grounded theory; occupational therapy; personal autonomy; problem-solving; social support; spouses