title: The current trend of administering a patient-generated index in the oncological setting: a systematic review.
abstract: The patient-generated index (PGI) is a more novel approach to evaluating health-related quality of life (HRQOL) that allows patients to formulate their own responses in an open-ended format in order to measure HRQOL based on each patient's own stated goals and expectations. To date the use of PGI in the setting of patients diagnosed with cancer remains relatively less common compared to other health conditions. This systematic review primarily aims to identify current literature in which PGI has been used as a tool to assess quality of life in cancer patients. A systematic review using the MEDLINE database from January 1990 to July 2013 was performed with the following search terms to identify the implementation of PGI in oncology settings: (PGI OR patient generated index OR patient-generated OR patient-reported OR patient generated OR patient reported) AND (cancer OR oncology OR tumor OR neoplasm OR malignancy). Of the 2167 papers initially identified, 10 papers evaluated quality of life in oncology patients by collecting free-form responses from the patient, 4 of which actually used PGI. An overarching theme observed in these studies highlighted the concerns mentioned by patients that were not targeted or detected by standardized quality of life measures. While implementing the PGI may require slightly more investment of resources in the beginning, the potential implications of allowing patients to characterize their quality of life on their own terms are tremendous.
authors.affiliation: Department of Neurological Surgery, Northwestern University , Chicago, IL, USA.
authors.forename: Jessica A
authors.initials: JA
authors.lastname: Tang
authors.affiliation: Department of Neurological Surgery, Northwestern University , Chicago, IL, USA.
authors.forename: Taemin
authors.initials: T
authors.lastname: Oh
authors.affiliation: Department of Neurological Surgery, Northwestern University , Chicago, IL, USA.
authors.forename: Justin K
authors.initials: JK
authors.lastname: Scheer
authors.affiliation: Department of Neurological Surgery, Northwestern University , Chicago, IL, USA.
authors.forename: Andrew T
authors.initials: AT
authors.lastname: Parsa
keywords: health-related quality of life; oncology; patient-generated index