title: The CARE pathway model for dementia: psychosocial and rehabilitative strategies for care in young-onset dementias.
abstract: The goal of the Care Pathway Model for Dementia (CARE-D) is to improve quality of life and daily functioning both for individuals diagnosed with dementia and for their families or other caregivers. This is accomplished by developing individualized recommendations focused on a person's strengths and weaknesses as determined by formal neurocognitive and psychosocial evaluations. Careful attention is given to the stage of illness and an individual's stage in life, to connecting families with services that target an individual's cognitive and behavioral symptoms, and to providing education and emotional support specific to symptoms, clinical diagnosis, and prognosis.
authors.affiliation: Cognitive Neurology and Alzheimer's Disease Center, Northwestern University Feinberg School of Medicine, 320 East Superior Street, Searle Building 11th Floor, Chicago, IL 60611, USA.
authors.forename: Darby
authors.initials: D
authors.lastname: Morhardt
authors.affiliation: Cognitive Neurology and Alzheimer's Disease Center, Northwestern University Feinberg School of Medicine, 320 East Superior Street, Searle Building 11th Floor, Chicago, IL 60611, USA; Department of Psychiatry and Behavioral Sciences, Northwestern University Feinberg School of Medicine, 446 East Ontario, Chicago, IL 60611, USA; Department of Neurology, Northwestern University Feinberg School of Medicine, 710 North Lake Shore Drive, Chicago, IL 60611, USA.
authors.forename: Sandra
authors.initials: S
authors.lastname: Weintraub
authors.affiliation: MemoryCare Corporation, 634 Brooklyn Drive, Aurora, IL 60502, USA.
authors.forename: Becky
authors.initials: B
authors.lastname: Khayum
authors.affiliation: Christ Hospital Cancer Center, 2139 Auburn Avenue, Cincinnati, OH 45219, USA.
authors.forename: Jaimie
authors.initials: J
authors.lastname: Robinson
authors.affiliation: Cognitive Neurology and Alzheimer's Disease Center, Northwestern University Feinberg School of Medicine, 320 East Superior Street, Searle Building 11th Floor, Chicago, IL 60611, USA.
authors.forename: Jennifer
authors.initials: J
authors.lastname: Medina
authors.affiliation: Cognitive Neurology and Alzheimer's Disease Center, Northwestern University Feinberg School of Medicine, 320 East Superior Street, Searle Building 11th Floor, Chicago, IL 60611, USA.
authors.forename: Mary
authors.initials: M
authors.lastname: O'Hara
authors.affiliation: Cognitive Neurology and Alzheimer's Disease Center, Northwestern University Feinberg School of Medicine, 320 East Superior Street, Searle Building 11th Floor, Chicago, IL 60611, USA; Department of Neurology, Northwestern University Feinberg School of Medicine, 710 North Lake Shore Drive, Chicago, IL 60611, USA.
authors.forename: Marsel
authors.initials: M
authors.lastname: Mesulam
authors.affiliation: Cognitive Neurology and Alzheimer's Disease Center, Northwestern University Feinberg School of Medicine, 320 East Superior Street, Searle Building 11th Floor, Chicago, IL 60611, USA. Electronic address: erogalski@gmail.com.
authors.forename: Emily J
authors.initials: EJ
authors.lastname: Rogalski
mesh_terms: D017668:Age of Onset; D000544:Alzheimer Disease / Q000175:diagnosis / Q000523:psychology / Q000534:rehabilitation / Q000628:therapy; D001526:Behavioral Symptoms / Q000175:diagnosis / Q000628:therapy; D017028:Caregivers / Q000523:psychology; D056348:Emotional Intelligence; D057180:Frontotemporal Dementia / Q000175:diagnosis / Q000523:psychology / Q000534:rehabilitation / Q000628:therapy; D006801:Humans; D009483:Neuropsychological Tests; D011580:Psychological Techniques; D011788:Quality of Life; D012944:Social Support
keywords: Behavioral variant frontotemporal dementia; Clinical care model; Dementia of the Alzheimer type; Neurocognitive profile; Posterior cortical atrophy; Primary progressive aphasia; Quality of life; Symptom-specific strategies