title: Caregiver distress and associated factors in dementia care in the community setting in China.
abstract: The aim of this study was to investigate caregiver distress in reacting to the care recipient's behavioral and psychological symptoms of dementia (BPSD) and factors contributing to caregiver distress in the community setting in China. One hundred and fifty-two family caregivers of people with dementia in community settings were assessed using the Chinese version of the Neuropsychiatric Inventory-Questionnaire and the Social Support Rating Scale. The prevalence of BPSD and caregiver distress in reacting to BPSD was higher in China than those reported in high income countries. The most common individual BPSD were apathy/indifference, depression/dysphoria and night-time behaviors. Delusions, hallucinations and apathy/indifference were rated as the most distressing to caregivers. BPSD contributed most to caregiver distress. The high level of caregiver distress identified in this study suggests that dementia services and caregiver support should be established in the public healthcare system to target the needs of people with dementia and their caregivers.
authors.affiliation: Faculty of Nursing, Health Science Center, Xi'an Jiaotong University, No. 76 Yanta West Road, Xi'an City, Shaanxi Province 710061, China; School of Nursing and Midwifery, Faculty of Medicine, Nursing and Health Sciences, Flinders University, GPO Box 2100, Adelaide, SA 5001, Australia. Electronic address: novowj@163.com.
authors.forename: Jing
authors.initials: J
authors.lastname: Wang
authors.affiliation: School of Nursing and Midwifery, Faculty of Medicine, Nursing and Health Sciences, Flinders University, GPO Box 2100, Adelaide, SA 5001, Australia.
authors.forename: Lily Dongxia
authors.initials: LD
authors.lastname: Xiao
authors.affiliation: Faculty of Nursing, Health Science Center, Xi'an Jiaotong University, No. 76 Yanta West Road, Xi'an City, Shaanxi Province 710061, China.
authors.forename: Xiaomei
authors.initials: X
authors.lastname: Li
authors.affiliation: School of Nursing and Midwifery, Faculty of Medicine, Nursing and Health Sciences, Flinders University, GPO Box 2100, Adelaide, SA 5001, Australia.
authors.forename: Anita
authors.initials: A
authors.lastname: De Bellis
authors.affiliation: School of Nursing and Midwifery, Faculty of Medicine, Nursing and Health Sciences, Flinders University, GPO Box 2100, Adelaide, SA 5001, Australia; Flinders Centre for Epidemiology and Biostatistics, Faculty of Medicine, Nursing and Health Sciences, Flinders University, GPO Box 2100, Adelaide, SA 5001, Australia.
authors.forename: Shahid
authors.initials: S
authors.lastname: Ullah
mesh_terms: D000368:Aged; D000369:Aged, 80 and over; D017028:Caregivers / Q000706:statistics & numerical data*; D002681:China / Q000453:epidemiology; D003430:Cross-Sectional Studies; D003704:Dementia / Q000628:therapy*; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D013315:Stress, Psychological / Q000453:epidemiology*
keywords: Behavioral and psychological symptoms; Caregiver distress; Cross-sectional study; Dementia; Dementia services