title: Patients' and Family Members' Decision-Making and Information Disclosure Preferences in a Single-Center Survey in China: A Pilot Study.
abstract: BACKGROUND
  Understanding the medical decision-making and information disclosure preferences is important for care quality.
  
  
  OBJECTIVE
  To examine the feasibility of using the questionnaires and to identify modifications needed in the following study.
  
  
  METHODS
  Thirty-three pairs of patients with advanced cancers and their caregivers were asked to complete the questionnaires.
  
  
  RESULTS
  More than 60% of patients and caregivers had an educational level of middle school and below. The active, passive, or shared decision-making preferences for patients were 33.3%, 39.4%, and 27.3%, respectively. Twenty of 33 patients and 24 of 33 caregivers misunderstood the questions.
  
  
  CONCLUSIONS
  Low educational levels may be the reason for poor understanding imprecision. It is necessary to use the modification version of the questionnaires in developing countries.
authors.affiliation: Department of Gastroenterology, Xinqiao Hospital, Third Military Medical University, Shapingba District, Chongqing, China.
authors.forename: Shanshan
authors.initials: S
authors.lastname: Wei
authors.affiliation: Cancer Institute of People's Liberation Army, Xinqiao Hospital, Third Military Medical University, Shapingba District, Chongqing, China.
authors.forename: Fanglin
authors.initials: F
authors.lastname: Chen
authors.affiliation: Department of Gastroenterology, Xinqiao Hospital, Third Military Medical University, Shapingba District, Chongqing, China.
authors.forename: Hongyan
authors.initials: H
authors.lastname: Chen
authors.affiliation: Department of Palliative Care and Rehabilitation Medicine, The University of Texas MD Anderson Cancer Center, Houston, TX, USA.
authors.forename: Ying
authors.initials: Y
authors.lastname: Guo
authors.affiliation: Department of Palliative Care and Rehabilitation Medicine, The University of Texas MD Anderson Cancer Center, Houston, TX, USA.
authors.forename: David
authors.initials: D
authors.lastname: Hui
authors.affiliation: Department of Palliative Care and Rehabilitation Medicine, The University of Texas MD Anderson Cancer Center, Houston, TX, USA.
authors.forename: Sriram
authors.initials: S
authors.lastname: Yennurajalingam
authors.affiliation: Department of Biostatistics, The University of Texas MD Anderson Cancer Center, Houston, TX, USA.
authors.forename: Gary
authors.initials: G
authors.lastname: Chisholm
authors.affiliation: Department of Gastroenterology, Xinqiao Hospital, Third Military Medical University, Shapingba District, Chongqing, China.
authors.forename: En
authors.initials: E
authors.lastname: Liu
authors.affiliation: Department of Gastroenterology, Xinqiao Hospital, Third Military Medical University, Shapingba District, Chongqing, China.
authors.forename: Zhongli
authors.initials: Z
authors.lastname: Liao
authors.affiliation: Department of Gastroenterology, Xinqiao Hospital, Third Military Medical University, Shapingba District, Chongqing, China.
authors.forename: Li
authors.initials: L
authors.lastname: Yang
authors.affiliation: Department of Gastroenterology, Xinqiao Hospital, Third Military Medical University, Shapingba District, Chongqing, China.
authors.forename: Heng
authors.initials: H
authors.lastname: Cheng
authors.affiliation: Department of Gastroenterology, Xinqiao Hospital, Third Military Medical University, Shapingba District, Chongqing, China.
authors.forename: Yuanyuan
authors.initials: Y
authors.lastname: Zhou
authors.affiliation: Department of Gastroenterology, Xinqiao Hospital, Third Military Medical University, Shapingba District, Chongqing, China hguoxqyy@163.com ebruera@mdanderson.org.
authors.forename: Hong
authors.initials: H
authors.lastname: Guo
authors.affiliation: Department of Palliative Care and Rehabilitation Medicine, The University of Texas MD Anderson Cancer Center, Houston, TX, USA hguoxqyy@163.com ebruera@mdanderson.org.
authors.forename: Eduardo
authors.initials: E
authors.lastname: Bruera
mesh_terms: D017028:Caregivers / Q000523:psychology*; D002681:China; D003657:Decision Making; D003906:Developing Countries; D030881:Disclosure; D004522:Educational Status; D005190:Family / Q000523:psychology*; D005260:Female; D006801:Humans; D008297:Male; D009369:Neoplasms / Q000523:psychology*; D010865:Pilot Projects; D012959:Socioeconomic Factors; D011795:Surveys and Questionnaires / Q000592:standards
keywords: cancer; decision-making preference; family caregivers; information disclosure preference; patients; questionnaire modification