title: The cancer experience map: an approach to including the patient voice in supportive care solutions.
abstract: The perspective of the patient, also called the "patient voice", is an essential element in materials created for cancer supportive care. Identifying that voice, however, can be a challenge for researchers and developers. A multidisciplinary team at a health information company tasked with addressing this issue created a representational model they call the "cancer experience map". This map, designed as a tool for content developers, offers a window into the complex perspectives inside the cancer experience. Informed by actual patient quotes, the map shows common overall themes for cancer patients, concerns at key treatment points, strategies for patient engagement, and targeted behavioral goals. In this article, the team members share the process by which they created the map as well as its first use as a resource for cancer support videos. The article also addresses the broader policy implications of including the patient voice in supportive cancer content, particularly with regard to mHealth apps.
authors.affiliation: Healthwise, Boise, ID, United States.
authors.forename: Leslie Kelly
authors.identifier: http://orcid.org/0000-0002-1056-0453
authors.initials: LK
authors.lastname: Hall
authors.forename: Breanne F
authors.identifier: http://orcid.org/0000-0002-2959-7416
authors.initials: BF
authors.lastname: Kunz
authors.forename: Elizabeth V
authors.identifier: http://orcid.org/0000-0001-8307-0466
authors.initials: EV
authors.lastname: Davis
authors.forename: Rose I
authors.identifier: http://orcid.org/0000-0002-6380-9347
authors.initials: RI
authors.lastname: Dawson
authors.forename: Ryan S
authors.identifier: http://orcid.org/0000-0002-0381-6844
authors.initials: RS
authors.lastname: Powers
mesh_terms: D001294:Attitude to Health; D015438:Health Behavior; D006801:Humans; D020407:Internet; D007398:Interpersonal Relations; D063731:Mobile Applications; D009369:Neoplasms / Q000523:psychology* / Q000628:therapy; D010817:Physician-Patient Relations; D012108:Research Personnel; D012944:Social Support; D017216:Telemedicine / Q000379:methods*
keywords: Internet intervention; cancer survivors; mHealth; neoplasm; online interventions; patient participation; public policy