title: Culturally competent bioethics: analysis of a case study.
abstract: This paper discusses the Saudi Arabian case by Abdallah Adlan and Henk ten Have, published in a 2012 issue of the Journal of Bioethical Inquiry, regarding a congenitally disabled child enrolled in a research project examining the genetics of her condition. During the course of the study, her father was found not to be genetically related, and the case discussed the dilemma between disclosing to the family all findings as promised in consent documents or withholding paternity information because of the likely severe social repercussions. Using Adlan and ten Have's example, this paper proposes a framework to consider cases outside of the conventional bioethics frame of reference, splitting the bioethical task into three elements: understanding the problem from the patient's and the clinician's perspective and then engaging in dialogue to decide what to do next. The process of dialogue between affected parties is vital. Presuming that there is a common morality undermines the effectiveness of the dialogue needed to find a resolution.
authors.affiliation: Department of Primary Health Care and General Practice, University of Otago, Wellington, P.O. Box 7343, Wellington South, 6021, New Zealand, ben.gray@otago.ac.nz.
authors.forename: Ben
authors.initials: B
authors.lastname: Gray
mesh_terms: D001675:Bioethics; D035843:Biomedical Research / Q000941:ethics*; D002648:Child; D054521:Cultural Competency; D003657:Decision Making; D019988:Children with Disabilities; D030881:Disclosure / Q000941:ethics*; D032984:Ethics, Research; D005220:Fathers; D030342:Genetic Diseases, Inborn; D036281:Genetic Research / Q000941:ethics*; D006801:Humans; D007258:Informed Consent / Q000941:ethics*; D010334:Paternity; D012529:Saudi Arabia; D012931:Social Environment