title: [Objectives and organization for the long-term follow-up after childhood cancer].
abstract: Increased survival of patients with childhood cancer has resulted in a growing population of survivors. In France approximately 50,000 alive people have been treated before 20 years old and, as survivors, are at risk for health problems due to disease or cancer therapy (surgery, chemotherapy, radiotherapy). Complications such as cardiovascular or cerebrovascular disease (after radiotherapy or chemotherapy), neurocognitive deficiency, endocrine disorders (hypopituitary axis, or thyroid dysfunction), gonadal function, and second malignancy can be life-threatening and seriously affect quality of life. Upon discharge former patients should be given 'passport', containing a summary of their medical history, treatment (surgery, chemotherapy cumulative doses, characteristics of radiotherapy and organs involved), methods used to preserve fertility, and complications during treatment. Treatments can then be linked to individualized recommendations for follow-up care. The risk of developing long-term complications increases with time and can be aggravated by age-related comorbidity and environmental factors (tobacco, alcohol, obesity). Many regions and treatment centres in France have in place organised long-term follow-up procedures.
authors.affiliation: CHU Hôpital Nord, service de pédiatrie, 42055 Saint-Étienne cedex, France. Electronic address: claire.berger@chu-st-etienne.fr.
authors.forename: Claire
authors.initials: C
authors.lastname: Berger
authors.affiliation: Département de cancérologie de l'enfant et de l'adolescent, Gustave-Roussy, 94800 Villejuif, France. Electronic address: chiraz.fayech@igr.fr.
authors.forename: Chiraz
authors.initials: C
authors.lastname: El Fayech
authors.affiliation: Institut Curie, département de pédiatrie, adolescents-jeunes adultes, 26, rue d'Ulm, 75248 Paris cedex 05, France. Electronic address: helene.pacquement@curie.fr.
authors.forename: Hélène
authors.initials: H
authors.lastname: Pacquement
authors.affiliation: ICO René-Gauducheau, service de radiothérapie et service du suivi à long terme, boulevard J.-Monod, 44805 Saint-Herblain, France. Electronic address: charlotte.demoor@ico.unicancer.fr.
authors.forename: Charlotte
authors.initials: C
authors.lastname: Demoor-Goldschmidt
authors.affiliation: CHU de Bordeaux, service d'hémato-oncologie pédiatrique, place Amélie-Raba-Léon, 33076 Bordeaux cedex, France. Electronic address: stephane.ducassou@chu-bordeaux.fr.
authors.forename: Stéphane
authors.initials: S
authors.lastname: Ducassou
authors.affiliation: CHU de Bordeaux, service d'hémato-oncologie pédiatrique, place Amélie-Raba-Léon, 33076 Bordeaux cedex, France. Electronic address: sophie.ansoborlo@chu-bordeaux.fr.
authors.forename: Sophie
authors.initials: S
authors.lastname: Ansoborlo
authors.affiliation: Centre Oscar-Lambret, service d'oncologie pédiatrique, 3, rue Frédéric-Combemale, BP 307, 59020 Lille cedex, France. Electronic address: as-defachelles@o-lambret.fr.
authors.forename: Anne-Sophie
authors.initials: AS
authors.lastname: Defachelles
mesh_terms: D000293:Adolescent; D002648:Child; D003266:Continuity of Patient Care / Q000458:organization & administration*; D005602:France; D006801:Humans; D008501:Medical Records, Problem-Oriented; D009369:Neoplasms / Q000628:therapy*; D010353:Patient Education as Topic; D010819:Physician's Role; D017741:Survivors
keywords: General practitioner; Internal medicine; Long-term follow-up; Médecin généraliste; Médecine interne; Oncologie pédiatrique; Paediatric oncology; Quality of life; Qualité de vie; Suivi à long terme; Therapeutic education; Éducation thérapeutique