title: A Home and Ambulatory Artificial Nutrition (NADYA) group report, Home Parenteral Nutrition in Spain, 2013.
abstract: OBJECTIVE
  To communicate the results of the Spanish Home Parenteral Nutrition (HPN) registry of the NADYA-SENPE group for the year 2013.
  
  
  METHODS
  Data was recorded online by NADYA group collaborators that were responsible of the HPN follow-up from 1st January to 31st December 2013.
  
  
  RESULTS
  A total of 197 patients and 202 episodes of HPN were registered from 35 hospitals that represents a rate of 4,22 patients/million habitants/year 2013. The median age was 53 years (IQR 40-64) for 189 adult patients and 7 months (IQR 6-35,5) for children. The most frequent disease in adults was neoplasm (30,7%) followed by other diseases (20,1%) and mesenteric ischemia (12,7%). Short bowel syndrome and intestinal obstruction (25,9%) were in 35.7% cases the indications for HPN. The most frequent diagnosis for children were the congenital intestinal disorders and other diagnosis, both with a (37,5%) and short bowel syndrome and intestinal obstruction were the indication for treatment, each was present in 50% of the sample. Tunneled catheters (50%) and subcutaneous reservoirs (27,7%) were frequently used. The septic complications related with catheter were commonly frequent with a rate of 0.74 infections/1000 HPN days. HPN duration presented a median of 1,69 days. A total of 86 episodes finalized during the year, death was the principal reason (45%), followed by "resumed oral via" (43,75%) while it happened inversely for children, 66,7% of them resumed oral via and 16,7% deceased. Fifteen per cent were considered for intestinal transplant, children were proportionally candidates, p-value 0.002.
  
  
  CONCLUSIONS
  The number of participating centers and registered patients increased progressively respect to preceding years. Since 2003 Neoplasm is still being the principal pathological group. Death is adult's principal reason for finalizing HPN and "resuming oral via" for children. Despite that NADYA registry is consolidate as a essential source of relevant information about the advances in Home Artificial Nutrition in our country, currently is in an improvement process of the available information about patients characteristics with a special emphasis on children even though they still being a minority group.
authors.affiliation: FISABIO-Hospital General Universitario de Alicante. Universidad Miguel Hernández (Elche), Alicante.. carminaw@telefonica.net.
authors.forename: Carmina
authors.initials: C
authors.lastname: Wanden-Berghe
authors.affiliation: Hospital Gregorio Marañón.. carminaw@telefonica.net.
authors.forename: J Cristina
authors.initials: JC
authors.lastname: Cuerda Compes
authors.affiliation: Hospital Vall d'Hebrón, Barcelona.. carminaw@telefonica.net.
authors.forename: Rosa
authors.initials: R
authors.lastname: Burgos Peláez
authors.affiliation: Hospital La Paz.. carminaw@telefonica.net.
authors.forename: Carmen
authors.initials: C
authors.lastname: Gómez Candela
authors.affiliation: Hospital Universitario Bellvitge (L'Hospitalet de Llobregat), Barcelona.. carminaw@telefonica.net.
authors.forename: Nuria
authors.initials: N
authors.lastname: Virgili Casas
authors.affiliation: Hospital Virgen de las Nieves, Granada.. carminaw@telefonica.net.
authors.forename: Antonio
authors.initials: A
authors.lastname: Pérez de la Cruz
authors.affiliation: Hospital Universitario 12 de Octubre, Madrid.. carminaw@telefonica.net.
authors.forename: José Manuel
authors.initials: JM
authors.lastname: Moreno Villares
authors.affiliation: Hospital Ramón y Cajal, Madrid.. carminaw@telefonica.net.
authors.forename: Fátima
authors.initials: F
authors.lastname: Carabaña Pérez
authors.affiliation: Hospital Universitario Donostia, Guipuzkoa.. carminaw@telefonica.net.
authors.forename: Carmen
authors.initials: C
authors.lastname: Garde Orbaiz
authors.affiliation: Hospital Universitario Central de Asturias.. carminaw@telefonica.net.
authors.forename: Ceferino
authors.initials: C
authors.lastname: Martínez Faedo
authors.affiliation: Hospital El Bierzo (Ponferrada), León.. carminaw@telefonica.net.
authors.forename: Ma Ángeles
authors.initials: MÁ
authors.lastname: Penacho Lázaro
authors.affiliation: Hospital Universitario Carlos Haya. Málaga.. carminaw@telefonica.net.
authors.forename: Montserrat
authors.initials: M
authors.lastname: Gonzalo Marín
authors.affiliation: Hospital Universitario Virgen del Rocío, Sevilla.. carminaw@telefonica.net.
authors.forename: Pedro Pablo
authors.initials: PP
authors.lastname: García Luna
authors.affiliation: Hospital Clínico San Carlos, Madrid.. carminaw@telefonica.net.
authors.forename: Pilar
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authors.lastname: Matía Martín
authors.affiliation: Hospital Universitario Miguel Servet, Zaragoza.. carminaw@telefonica.net.
authors.forename: Alejandro
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authors.lastname: Sanz Paris
authors.affiliation: Hospital Infanta Cristina, Badajoz.. carminaw@telefonica.net.
authors.forename: Luis Miguel
authors.initials: LM
authors.lastname: Luengo Pérez
authors.affiliation: Complejo Hospitalario Universitario de Canarias, Santa Cruz de Tenerife.. carminaw@telefonica.net.
authors.forename: Tomás
authors.initials: T
authors.lastname: Martín Folgueras
authors.affiliation: Hospital Universitario Virgen de la Arrixaca, Murcia.. carminaw@telefonica.net.
authors.forename: María Victoria
authors.initials: MV
authors.lastname: García Zafra
authors.affiliation: Hospital Príncipe de Asturias (Alcalá de Henares), Madrid.. carminaw@telefonica.net.
authors.forename: Álvarez
authors.initials: Á
authors.lastname: Hernández
authors.affiliation: Hospital Universitario Virgen Macarena, Sevilla.. carminaw@telefonica.net.
authors.forename: Cristina
authors.initials: C
authors.lastname: Campos Martín
authors.affiliation: Hospital Universitario Nuestra Señora de la Candelaria, Santa Cruz de Tenerife.. carminaw@telefonica.net.
authors.forename: José Pablo
authors.initials: JP
authors.lastname: Suárez Llanos
authors.affiliation: Hospital Virgen del Camino, Pamplona.. carminaw@telefonica.net.
authors.forename: Ana
authors.initials: A
authors.lastname: Zugasti
authors.affiliation: Hospital Basurto, Bilbao.. carminaw@telefonica.net.
authors.forename: Antxón
authors.initials: A
authors.lastname: Apezetxea Celaya
authors.affiliation: Hospital Universitario Son Espases, Palma de Mallorca.. carminaw@telefonica.net.
authors.forename: Juan Ramon
authors.initials: JR
authors.lastname: Urgeles Planella
authors.affiliation: Hospital de Cruce, Bilbao.. carminaw@telefonica.net.
authors.forename: Lucía
authors.initials: L
authors.lastname: Laborda González
authors.affiliation: Fundación Jiménez Díaz, Madrid.. carminaw@telefonica.net.
authors.forename: Olga
authors.initials: O
authors.lastname: Sánchez-Vilar Burdiel
authors.affiliation: Hospital Germans Trias i Pujol, Barcelona.. carminaw@telefonica.net.
authors.forename: Clara
authors.initials: C
authors.lastname: Joaquín Ortiz
authors.affiliation: Hospital Clínico Universitario, Valencia.. carminaw@telefonica.net.
authors.forename: Cecilia
authors.initials: C
authors.lastname: Martínez Costa
authors.affiliation: Complejo Asistencial de León.. carminaw@telefonica.net.
authors.forename: Alfonso
authors.initials: A
authors.lastname: Vidal Casariego
authors.affiliation: Hospital Clinic, Barcelona.. carminaw@telefonica.net.
authors.forename: Pere
authors.initials: P
authors.lastname: Leyes García
authors.affiliation: Hospital Universitario Dr Negrín, Gran Canaria.. carminaw@telefonica.net.
authors.forename: Miguel Angel
authors.initials: MA
authors.lastname: Ponce González
authors.affiliation: Hospital Central de la Defensa Gomez Ulla, Madrid.. carminaw@telefonica.net.
authors.forename: Ma Carmen
authors.initials: MC
authors.lastname: Gil Martínez
authors.affiliation: Corporació Sanitària Parc Taulí, Barcelona.. carminaw@telefonica.net.
authors.forename: Eva Ángeles
authors.initials: EÁ
authors.lastname: Sánchez Martos
authors.affiliation: Hospital Universitario Severo Ochoa (Leganés), Madrid.. carminaw@telefonica.net.
authors.forename: Ma Dolores
authors.initials: MD
authors.lastname: del Olmo García
authors.affiliation: Hospital Infanta Sofía (San Sebastian de los Reyes), Madrid. Spain.. carminaw@telefonica.net.
authors.forename: Patricia
authors.initials: P
authors.lastname: Díaz Guardiola
mesh_terms: D000293:Adolescent; D000328:Adult; D000367:Age Factors; D000368:Aged; D000369:Aged, 80 and over; D000553:Ambulatory Care / Q000706:statistics & numerical data*; D002648:Child; D002675:Child, Preschool; D005260:Female; D006801:Humans; D007223:Infant; D008297:Male; D008875:Middle Aged; D016331:Parenteral Nutrition, Home / Q000706:statistics & numerical data*; D012042:Registries; D013030:Spain / Q000453:epidemiology; D055815:Young Adult