title: [Fragile as a butterfly].
authors.forename: Pia
authors.initials: P
authors.lastname: Bagnaschi
mesh_terms: D004820:Epidermolysis Bullosa / Q000451:nursing* / Q000523:psychology*; D006801:Humans; D007558:Italy; D035583:Rare Diseases / Q000451:nursing* / Q000523:psychology*; D012803:Sick Role