title: The patient perspective of the diagnostic process for leprosy in Brazil. An exploratory study.
abstract: OBJECTIVE
  To explore the patient experience of being diagnosed with leprosy and the support provided during this process in selected populations in Brazil. To understand the information needs of patients during diagnosis. To identify characteristics of patients with different diagnostic experiences. To add to the evidence base used for improving the diagnostic process for leprosy patients.
  
  
  METHODS
  A self-constructed questionnaire delivered to 116 participants, at three leprosy health centres, across three states in Brazil.
  
  
  RESULTS
  Most participants felt under-informed during diagnosis; 68.1% wanted more information about leprosy. Nearly one-quarter of patients reported feeling unable to ask questions at diagnosis. Almost half of patients reported being worried about treatment, yet 43.3% reported not having the chance to talk about their concerns. Younger participants were significantly more likely to report feeling unable to ask questions and talk about their worries. The majority of participants (59.5%) reported not being given any written information to take away with them. 36.5% reported not being given advice about how to reduce the chance of other family members becoming ill with leprosy. Older males were most likely to be given this advice despite females being in most contact with family members in most cultures.
  
  
  CONCLUSIONS
  It is recommended that patients are encouraged to ask questions and invited to talk about their concerns, particularly younger patients. It is recommended that a simple information leaflet be provided to all patients. These suggestions may require some financial input, more staff and longer consultations but should significantly improve the diagnostic process.
authors.forename: Katherine
authors.initials: K
authors.lastname: Teasdale
authors.forename: Gilles
authors.initials: G
authors.lastname: De Wildt
authors.forename: Kumar
authors.initials: K
authors.lastname: Das Pranab
authors.forename: Marcos da Cunha Lopes
authors.initials: Mda C
authors.lastname: Virmond
authors.forename: Noemi Garcia De Almeida
authors.initials: NG
authors.lastname: Galan
authors.forename: Renata Bilion Ruiz
authors.initials: RB
authors.lastname: Prado
authors.forename: Mary
authors.initials: M
authors.lastname: Henry
authors.forename: Harpreet
authors.initials: H
authors.lastname: Amar
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001938:Brazil; D005260:Female; D006801:Humans; D019359:Knowledge; D007918:Leprosy / Q000175:diagnosis* / Q000523:psychology*; D008297:Male; D008875:Middle Aged; D010361:Patients / Q000523:psychology*; D011795:Surveys and Questionnaires; D055815:Young Adult