title: Preventing complications in celiac disease: our experience with managing adult celiac disease.
abstract: Celiac disease is, as we know it, rather than being a rare and incurable disease until the 1950's, both quite common in screening studies and readily treatable. Three conditions are triggered by gluten consumption: celiac disease, the skin rash dermatitis herpetiformis and gluten ataxia. We describe our follow up for out clinic management, as evidence based data about such an approach are lacking in current literature. No food, beverages or medications containing any amount of gluten can be taken. Compliance is often difficult especially when patients are asymptomatic. We control a cohort, in daily practice, of over 700 adult patients. The majority of patients manage the diet without any problems. We describe our follow up in general, for serology, laboratory and histology. Forty percent of our newly diagnosed celiac patients do have a BMI over 25 kg/m(2). An appropriate attitude for this problem is lacking. The problem of slowly weaning off Dapsone over 5-10 years in DH is recognized. The bone density is checked in all newly diagnosed celiac patients. We control, if necessary, by telephone and lab controls done in local cities and see our patients only every two years face-to-face for follow up. The main question is if the adherence to a GFD, quality of life and prevention of complications is improved by visiting a dedicated celiac clinic. We hope to standardize this attitude on evidence data in the years to come.
authors.affiliation: Department of Gastroenterology, VU University Medical Centre, Amsterdam, The Netherlands. Electronic address: cjmulder@vumc.nl.
authors.forename: C J
authors.initials: CJ
authors.lastname: Mulder
authors.affiliation: Department of Dietetics, VU University Medical Centre, Amsterdam, The Netherlands.
authors.forename: N J
authors.initials: NJ
authors.lastname: Wierdsma
authors.affiliation: Department of Dietetics, VU University Medical Centre, Amsterdam, The Netherlands.
authors.forename: M
authors.initials: M
authors.lastname: Berkenpas
authors.affiliation: Department of Gastroenterology, VU University Medical Centre, Amsterdam, The Netherlands.
authors.forename: M A J M
authors.initials: MA
authors.lastname: Jacobs
authors.affiliation: Department of Gastroenterology, VU University Medical Centre, Amsterdam, The Netherlands.
authors.forename: G
authors.initials: G
authors.lastname: Bouma
mesh_terms: D000328:Adult; D002446:Celiac Disease / Q000150:complications* / Q000175:diagnosis* / Q000178:diet therapy*; D006801:Humans; D010349:Patient Compliance; D011788:Quality of Life
keywords: Antibodies; Celiac disease; Follow up; Gluten free diet; Laboratory; Management; Observational studies