title: The Norwegian Multiple Sclerosis Registry and Biobank.
abstract: Multiple sclerosis (MS) is a chronic inflammatory disease of the central nervous system with unknown cause and various benefits from disease modifying therapies. Systematic recording of data into national MS registries is therefore needed to optimize treatment and define the pathogenesis of the disease. The Norwegian MS Registry and Biobank was established for systematic collection of clinical and epidemiological data, as well as biological samples. Data collection is based on informed consent from the individual patients and recordings by treating neurologists. All researchers have, by application, access to data and biological samples from the Norwegian Multiple Sclerosis Registry and Biobank. By this combined effort from both patients and healthcare personnel, the Registry and Biobank aims to facilitate research for improved understanding of disease mechanisms and improved health care in MS.
authors.affiliation: Norwegian Multiple Sclerosis Registry and Biobank, Department of Neurology, Haukeland University Hospital, Bergen, Norway.|KG Jebsen MS Research Centre, Department of Clinical Medicine, University of Bergen, Bergen, Norway.
authors.forename: K-M
authors.initials: KM
authors.lastname: Myhr
authors.affiliation: KG Jebsen MS Research Centre, Department of Clinical Medicine, University of Bergen, Bergen, Norway.|Norwegian Multiple Sclerosis Competence Centre, Department of Neurology, Haukeland University Hospital, Bergen, Norway.
authors.forename: N
authors.initials: N
authors.lastname: Grytten
authors.affiliation: KG Jebsen MS Research Centre, Department of Clinical Medicine, University of Bergen, Bergen, Norway.|Norwegian Multiple Sclerosis Competence Centre, Department of Neurology, Haukeland University Hospital, Bergen, Norway.
authors.forename: Ø
authors.initials: Ø
authors.lastname: Torkildsen
authors.affiliation: KG Jebsen MS Research Centre, Department of Clinical Medicine, University of Bergen, Bergen, Norway.|Norwegian Multiple Sclerosis Competence Centre, Department of Neurology, Haukeland University Hospital, Bergen, Norway.
authors.forename: S
authors.initials: S
authors.lastname: Wergeland
authors.affiliation: KG Jebsen MS Research Centre, Department of Clinical Medicine, University of Bergen, Bergen, Norway.|Norwegian Multiple Sclerosis Competence Centre, Department of Neurology, Haukeland University Hospital, Bergen, Norway.
authors.forename: L
authors.initials: L
authors.lastname: Bø
authors.affiliation: Norwegian Multiple Sclerosis Registry and Biobank, Department of Neurology, Haukeland University Hospital, Bergen, Norway.|KG Jebsen MS Research Centre, Department of Clinical Medicine, University of Bergen, Bergen, Norway.
authors.forename: J H
authors.initials: JH
authors.lastname: Aarseth
mesh_terms: D018070:Biological Specimen Banks / Q000706:statistics & numerical data*; D030561:Databases, Nucleic Acid / Q000706:statistics & numerical data*; D006801:Humans; D009103:Multiple Sclerosis / Q000453:epidemiology*; D009664:Norway / Q000453:epidemiology; D012042:Registries
keywords: biobank; multiple sclerosis; registry