title: A Qualitative Study of Family Caregiver Experiences of Managing Incontinence in Stroke Survivors.
abstract: BACKGROUND
  Incontinence is a common problem faced by family caregivers that is recognized as a major burden and predictor of institutionalization. However, few studies have evaluated the experiences of family caregivers caring for stroke survivors with incontinence.
  
  
  OBJECTIVE
  To describe experiences of caregivers managing incontinence in stroke survivors.
  
  
  METHODS
  This qualitative descriptive study employed a grounded-theory approach.
  
  
  METHODS
  Semi-structured in-depth interviews with ten family caregivers of stroke survivors with incontinence were conducted during 2011. Audiotaped interviews were transcribed and analyzed using content analysis.
  
  
  RESULTS
  Data analysis identified four themes: chaos, hypervigilance, exhaustion, and creating a new life. There were nine related subcategories: fluster, dirtiness, urgency, fear of potential health-hazard, physically demanding and time-consuming, mentally draining, financial burden, learning by doing, and attitude adjustment. Together, these described a process of struggling to cope with the care of stroke survivors with urinary/fecal incontinence. Of the four categories, "creating a new life" developed gradually over time to orient caregivers to their new life, while the other three categories occurred in a chronological order.
  
  
  CONCLUSIONS
  The research highlighted unique caring experiences of family caregivers of stroke patients, which focused solely on the 'incontinence issue'. Understanding these experiences may help nurses provide better support and resources for family caregivers when caring for stroke survivors with incontinence.
authors.affiliation: Department of Nursing, Cardinal Tien College of Healthcare and Management, New Taipei City, Taiwan.
authors.forename: Chien-Ning
authors.initials: CN
authors.lastname: Tseng
authors.affiliation: School of Nursing, College of Medicine, National Taiwan University, Taipei, Taiwan.
authors.forename: Guey-Shiun
authors.initials: GS
authors.lastname: Huang
authors.affiliation: School of Nursing, College of Medicine, National Taiwan University, Taipei, Taiwan.
authors.forename: Po-Jui
authors.initials: PJ
authors.lastname: Yu
authors.affiliation: School of Nursing, College of Medicine, National Taiwan University, Taipei, Taiwan.
authors.forename: Meei-Fang
authors.initials: MF
authors.lastname: Lou
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D017028:Caregivers / Q000523:psychology*; D005242:Fecal Incontinence / Q000209:etiology / Q000523:psychology*; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D020521:Stroke / Q000150:complications* / Q000523:psychology; D014549:Urinary Incontinence / Q000209:etiology / Q000523:psychology*