title: Parents' learning needs and preferences when sharing management of their child's long-term/chronic condition: A systematic review.
abstract: OBJECTIVE
  This review aimed to (1) identify parents' learning needs and preferences when sharing the management of their child's long-term/chronic (long-term) condition and (2) inform healthcare professional support provided to parents across the trajectory.
  
  
  METHODS
  We conducted a literature search in seven health databases from 1990 to 2013. The quality of included studies was assessed using a critical appraisal tool developed for reviewing the strengths and weaknesses of qualitative, quantitative and mixed methods studies.
  
  
  RESULTS
  Twenty-three studies met our criteria and were included in the review. Three themes emerged from synthesis of the included studies: (1) parents' learning needs and preferences (2) facilitators to parents' learning, and (3) barriers to parents' learning.
  
  
  CONCLUSIONS
  Asking parents directly about their learning needs and preferences may be the most reliable way for healthcare professionals to ascertain how to support and promote individual parents' learning when sharing management of their child's long-term condition.
  
  
  CONCLUSIONS
  With the current emphasis on parent-healthcare professional shared management of childhood long-term conditions, it is recommended that professionals base their assessment of parents' learning needs and preferences on identified barriers and facilitators to parental learning. This should optimise delivery of home-based care, thereby contributing to improved clinical outcomes for the child.
authors.affiliation: NIHR Clinical Research Network: North Thames, Great Ormond Street Hospital for Children NHS Foundation Trust, London WC1N 3JH, UK. Electronic address: ruth.nightingale@gosh.nhs.uk.
authors.forename: Ruth
authors.initials: R
authors.lastname: Nightingale
authors.affiliation: Department of Clinical and Health Psychology, St. James's University Hospital, Leeds LS9 7TF, UK. Electronic address: simone.friedl@leedsth.nhs.uk.
authors.forename: Simone
authors.initials: S
authors.lastname: Friedl
authors.affiliation: School of Healthcare, Baines Wing, Woodhouse Lane, University of Leeds, Leeds LS2 9JT, UK. Electronic address: v.m.swallow@leeds.ac.uk.
authors.forename: Veronica
authors.initials: V
authors.lastname: Swallow
mesh_terms: D002648:Child; D002908:Chronic Disease; D003258:Consumer Behavior; D006801:Humans; D010290:Parents / Q000193:education*; D005791:Patient Care
keywords: Child; Chronic illness; Healthcare professionals; Information; Long-term; Parent; Systematic review