title: The Value of Patient Reported Outcomes and Other Patient-Generated Health Data in Clinical Hematology.
abstract: With cures and long-term survival rates increasing in hematologic malignancies, increased focus has been placed on gaining a better understanding of the patient experience from disease and treatment effects. This has been the basis for the utilization of patient reported outcomes (PRO) and other patient-generated health data (PGHD) in efforts to improve long-term health-related quality of life (HRQOL). This review will summarize the impact PROs have had on the evolving standard of care for patients with hematologic malignant conditions and will conclude with a template for the integration of PRO and PGHD to enhance the patient experience, using stem cell transplantation as an example.
authors.affiliation: Brody School of Medicine, East Carolina University, 600 Moye Blvd, Greenville, NC, 27834, USA, murthyh@ecu.edu.
authors.forename: Hemant S
authors.initials: HS
authors.lastname: Murthy
authors.forename: William A
authors.initials: WA
authors.lastname: Wood
mesh_terms: D003695:Delivery of Health Care; D019468:Disease Management; D019337:Hematologic Neoplasms / Q000175:diagnosis / Q000453:epidemiology* / Q000628:therapy; D006405:Hematology / Q000706:statistics & numerical data*; D018380:Hematopoietic Stem Cell Transplantation / Q000009:adverse effects / Q000379:methods; D006801:Humans; D009369:Neoplasms / Q000175:diagnosis / Q000453:epidemiology / Q000628:therapy; D063868:Patient Outcome Assessment; D011379:Prognosis; D011788:Quality of Life; D057566:Self Report