title: Necessity of Systematic HIV Disclosure in HIV-infected Families: Committed Communities Development Trusts Approach and Intervention.
abstract: Due to greater access to antiretroviral therapy, telling adolescents that they are HIV-infected and/or affected has become an integral and intricate part of the treatment protocol. Despite growing treatment resources from public and private sectors, there is a lack of systematic disclosure for children and adolescents affected and living with HIV/AIDS. Committed Communities Development Trust, a non-government organization working with children and adults infected with and/or affected by HIV, conducted a mixed-methods, cross-sectional study with 33 families in their home-based care program to evaluate their current disclosure protocol. The findings indicate that these experiences implementing and fine-tuning this protocol provide useful lessons for other Indian non-government organizations working with HIV-positive families.
authors.affiliation: Committed Communities Development Trust, Boston University School of Public Health, Boston, US. Correspondence to: Pavitri Dwivedi, Public Health Program Manager, Hepatitis B Foundation, Doylestown, Pennsylvania, US. pavitri143@gmail.com.
authors.forename: Pavitri
authors.initials: P
authors.lastname: Dwivedi
authors.forename: Poonam
authors.initials: P
authors.lastname: Patkar
authors.forename: Jennifer
authors.initials: J
authors.lastname: Beard
mesh_terms: D000293:Adolescent; D017028:Caregivers; D002648:Child; D003376:Counseling / Q000379:methods / Q000592:standards; D003430:Cross-Sectional Studies; D030881:Disclosure; D015658:HIV Infections / Q000523:psychology*; D006266:Health Education; D006801:Humans; D010290:Parents; D017410:Practice Guidelines as Topic