title: Standardization of Research-Quality Anthropometric Measurement of Infants and Implementation in a Multicenter Study.
abstract: Malnutrition is one of the earliest clinical manifestations of cystic fibrosis (CF) and is associated with poorer pulmonary and cognitive outcomes and survival later in life. Infant growth can be a responsive measure for clinical research in this age group if obtained and characterized accurately. We report here the methods to standardize and implement research-quality anthropometric measurement of infants with cystic fibrosis in the Baby Observational Nutrition Study multicenter trial.
authors.affiliation: Women and Children's Hospital of Buffalo, Buffalo, New York, USA.
authors.forename: Christine
authors.initials: C
authors.lastname: Coburn-Miller
authors.affiliation: Seattle Children's Hospital, Seattle, Washington, USA.
authors.forename: Susan
authors.initials: S
authors.lastname: Casey
authors.affiliation: Therapeutics Development Network Coordinating Center, Seattle, Washington, USA.
authors.forename: Quynh
authors.initials: Q
authors.lastname: Luong
authors.affiliation: Therapeutics Development Network Coordinating Center, Seattle, Washington, USA.
authors.forename: Natalia
authors.initials: N
authors.lastname: Cameron
authors.affiliation: Therapeutics Development Network Coordinating Center, Seattle, Washington, USA.
authors.forename: Jasna
authors.initials: J
authors.lastname: Hocevar-Trnka
authors.affiliation: Texas Children's Hospital, Baylor College of Medicine, Houston, Texas, USA.
authors.forename: Daniel H
authors.initials: DH
authors.lastname: Leung
authors.affiliation: University of Rochester, Rochester, New York, USA.
authors.forename: Daniel
authors.initials: D
authors.lastname: Gelfond
authors.affiliation: Cincinnati Children's Hospital, Cincinnati, Ohio, USA.
authors.forename: James E
authors.initials: JE
authors.lastname: Heubi
authors.affiliation: Seattle Children's Hospital, Seattle, Washington, USA.|Therapeutics Development Network Coordinating Center, Seattle, Washington, USA.|University of Washington, Seattle, Washington, USA.
authors.forename: Bonnie
authors.initials: B
authors.lastname: Ramsey
authors.affiliation: Women and Children's Hospital of Buffalo, Buffalo, New York, USA.|State University of New York at Buffalo, Buffalo, New York, USA.
authors.forename: Drucy
authors.initials: D
authors.lastname: Borowitz
mesh_terms: D035843:Biomedical Research / Q000592:standards; D001827:Body Height; D001835:Body Weight; D003550:Cystic Fibrosis / Q000503:physiopathology*; D006257:Head / Q000033:anatomy & histology; D006801:Humans; D007223:Infant
keywords: anthropometrics; cystic fibrosis; infants; methodology; nutrition