title: Parents' experiences, needs, and preferences in pediatric diabetes care: Suggestions for improvement of care and the possible role of the Internet. A qualitative study.
abstract: OBJECTIVE
  To investigate the needs and preferences of parents of children with type 1 diabetes (T1D) concerning pediatric diabetes care and use of Internet in care.
  
  
  METHODS
  Parents of 34 children, aged 2-12, with T1D participated in seven focus group interviews.
  
  
  RESULTS
  Analysis revealed provision of tailored care, disease information, peer support, and accessibility of healthcare professionals as major needs in parents. Internet could be used to satisfy these needs.
  
  
  CONCLUSIONS
  According to parents, diabetes teams should focus on the impact of the disease, parents' experience, and the child's development, and provide online professional and peer support.
authors.affiliation: Department of Medical Psychology, Radboud university medical center, Nijmegen, the Netherlands.
authors.forename: Emiel A
authors.initials: EA
authors.lastname: Boogerd
authors.affiliation: Department of Medical Psychology, Radboud university medical center, Nijmegen, the Netherlands.
authors.forename: Nienke M
authors.initials: NM
authors.lastname: Maas-van Schaaijk
authors.affiliation: Department of Pediatrics, Radboud university medical center, Nijmegen, the Netherlands.|Children's Diabetes Center Nijmegen, Nijmegen, the Netherlands.
authors.forename: Cees
authors.initials: C
authors.lastname: Noordam
authors.affiliation: Department of Cultural Anthropology and Development Studies, Radboud University, Nijmegen, the Netherlands.
authors.forename: Hans J G
authors.initials: HJ
authors.lastname: Marks
authors.affiliation: Department of Medical Psychology, Radboud university medical center, Nijmegen, the Netherlands.
authors.forename: Chris M
authors.initials: CM
authors.lastname: Verhaak
mesh_terms: D000328:Adult; D002648:Child; D002675:Child, Preschool; D003922:Diabetes Mellitus, Type 1 / Q000451:nursing* / Q000523:psychology; D005260:Female; D006801:Humans; D057226:Information Seeking Behavior; D020407:Internet / Q000706:statistics & numerical data*; D008297:Male; D008875:Middle Aged; D010287:Parent-Child Relations; D016487:Parenting / Q000523:psychology*; D010290:Parents / Q000193:education / Q000523:psychology*; D036301:Qualitative Research; D011795:Surveys and Questionnaires
keywords: Diabetes mellitus type 1; Internet; parenting; pediatrics; qualitative research; quality of health care