title: Oncologic Patients' Knowledge Expectations and Cognitive Capacities During Illness Trajectory: Analysis of Critical Moments and Factors.
abstract: Cancer and its management affect patients' cognitive resources and education needs in several ways. The objective of this study is to identify significant factors affecting cognitive resources and knowledge expectations of adult patients with cancer during the course of their illness trajectory. Current or former patients with cancer (n = 53) were recruited to focus group interviews and individual in-depth interviews. The informants' knowledge expectations vary during their illness trajectory and are affected by personal, situational, and clinical factors. These should be acknowledged to provide person-centered, holistic nursing care and patient education.
authors.affiliation: Department of Nursing Science (Drs Vaartio-Rajalin, Leino-Kilpi) and Department of Education Science (Dr Lehtonen), University Hospital of Turku, Oncology Clinic (Drs Iire, Minn).
authors.forename: Vaartio-Rajalin
authors.initials: VR
authors.lastname: Heli
authors.forename: Leino-Kilpi
authors.initials: LK
authors.lastname: Helena
authors.forename: Iire
authors.initials: I
authors.lastname: Liisa
authors.forename: Lehtonen
authors.initials: L
authors.lastname: Kimmo
authors.forename: Minn
authors.initials: M
authors.lastname: Heikki
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D019091:Critical Pathways; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D008962:Models, Theoretical; D009369:Neoplasms / Q000451:nursing / Q000523:psychology / Q000628:therapy; D009723:Nurse-Patient Relations; D009859:Oncology Nursing; D010353:Patient Education as Topic; D010358:Patient Participation; D018802:Patient-Centered Care; D036301:Qualitative Research; D055815:Young Adult