title: Good validity of the international spinal cord injury quality of life basic data set.
abstract: METHODS
  Cross-sectional validation study.
  
  
  OBJECTIVE
  To examine the construct and concurrent validity of the International Spinal Cord Injury (SCI) Quality of Life (QoL) Basic Data Set.
  
  
  METHODS
  Dutch community.
  
  
  METHODS
  People 28-65 years of age, who obtained their SCI between 18 and 35 years of age, were at least 10 years post SCI and were wheelchair users in daily life. MEASURE(S): The International SCI QoL Basic Data Set consists of three single items on satisfaction with life as a whole, physical health and psychological health (0=complete dissatisfaction; 10=complete satisfaction). Reference measures were the Mental Health Inventory-5 and three items of the World Health Organization Quality of Life measure.
  
  
  RESULTS
  Data of 261 participants were available. Mean time after SCI was 24.1 years (s.d. 9.1); 90.4% had a traumatic SCI, 81.5% a motor complete SCI and 40% had tetraplegia. Mean age was 47.9 years (s.d. 8.8) and 73.2% were male. Mean scores were 6.9 (s.d. 1.9) for general QoL, 5.8 (s.d. 2.2) for physical health and 7.1 (s.d. 1.9) for psychological health. No floor or ceiling effects were found. Strong inter-correlations (0.48-0.71) were found between the items, and Cronbach's alpha of the scale was good (0.81). Correlations with the reference measures showed the strongest correlations between the WHOQOL general satisfaction item and general QoL (0.64), the WHOQOL health and daily activities items and physical health (0.69 and 0.60) and the Mental Health Inventory-5 and psychological health (0.70).
  
  
  CONCLUSIONS
  This first validity study of the International SCI QoL Basic Data Set shows that it appears valid for persons with SCI.
authors.affiliation: Brain Center Rudolf Magnus and Center of Excellence in Rehabilitation Medicine, University Medical Center Utrecht and De Hoogstraat, Utrecht, the Netherlands.|Department of Rehabilitation Medicine, Center for Rehabilitation, University of Groningen, University Medical Center Groningen, Groningen, the Netherlands.
authors.forename: M W M
authors.initials: MW
authors.lastname: Post
authors.affiliation: Brain Center Rudolf Magnus and Center of Excellence in Rehabilitation Medicine, University Medical Center Utrecht and De Hoogstraat, Utrecht, the Netherlands.
authors.forename: J J E
authors.initials: JJ
authors.lastname: Adriaansen
authors.affiliation: Craig Hospital, Englewood, CO, USA.
authors.forename: S
authors.initials: S
authors.lastname: Charlifue
authors.affiliation: Clinic for Spinal Cord Injuries, Rigshospitalet, University of Copenhagen, Copenhagen, Denmark.
authors.forename: F
authors.initials: F
authors.lastname: Biering-Sørensen
authors.affiliation: Department of Spinal Cord Injury rehabilitation and Center of Excellence in Rehabilitation Medicine, De Hoogstraat, Utrecht, the Netherlands.
authors.forename: F W A
authors.initials: FW
authors.lastname: van Asbeck
mesh_terms: D000328:Adult; D000368:Aged; D003430:Cross-Sectional Studies; D016208:Databases, Factual / Q000706:statistics & numerical data; D005260:Female; D006801:Humans; D008297:Male; D008603:Mental Health; D008875:Middle Aged; D011594:Psychometrics; D011788:Quality of Life / Q000523:psychology*; D015203:Reproducibility of Results; D013119:Spinal Cord Injuries / Q000503:physiopathology / Q000523:psychology*; D013223:Statistics as Topic; D011795:Surveys and Questionnaires; D014910:Wheelchairs