title: Supporting families with Cancer: A patient centred survivorship model of care.
abstract: In 2011, the Leicestershire Clinical Genetics Department in collaboration with Macmillan Cancer Support initiated a project called Supporting Families with Cancer (SFWC). The project aimed to raise awareness of inherited cancers amongst both healthcare professionals and the general public and develop a patient-centred collaborative approach to cancer treatment and support services. This paper describes the project's development of a range of community outreach events and a training scheme for primary healthcare professionals designed to improve familial cancer referral rates in Leicester. Following consultation with patients and support groups, a series of interactive 'medical supermarket' events were held in Leicester. These events focused on providing patients with a forum for sharing research data, information about diagnosis and treatments and access to support groups and other allied healthcare services with additional information being made available digitally via SFWC webpages and a series of short videos available on a YouTube channel. Qualitative and quantitative data presented here indicate that the SFWC medical supermarket model has been well received by patients and offers a patient-centred, holistic approach to cancer treatment.
authors.affiliation: Department of Clinical Genetics, Leicester Royal Infirmary, Leicester, UK. emilycraft@me.com.
authors.forename: Emily Victoria
authors.identifier: http://orcid.org/0000-0002-5382-3225
authors.initials: EV
authors.lastname: Craft
authors.affiliation: Genie Office, University of Leicester, Leicester, UK.
authors.forename: Caron
authors.initials: C
authors.lastname: Billington
authors.affiliation: Genie Office, University of Leicester, Leicester, UK.
authors.forename: Rory
authors.initials: R
authors.lastname: O'Sullivan
authors.affiliation: National Hereditary Breast Cancer.
authors.forename: Wendy
authors.initials: W
authors.lastname: Watson
authors.affiliation: Genie Office, University of Leicester, Leicester, UK.
authors.forename: Nicola
authors.initials: N
authors.lastname: Suter-Giorgini
authors.affiliation: Genie Office, University of Leicester, Leicester, UK.
authors.forename: Joanne
authors.initials: J
authors.lastname: Singletary
authors.affiliation: Genie Office, University of Leicester, Leicester, UK.
authors.forename: Elizabeth
authors.initials: E
authors.lastname: King
authors.affiliation: Genie Office, University of Leicester, Leicester, UK.
authors.forename: Matthew
authors.initials: M
authors.lastname: Perfirgines
authors.affiliation: Genie Office, University of Leicester, Leicester, UK.
authors.forename: Annette
authors.initials: A
authors.lastname: Cashmore
authors.affiliation: Department of Clinical Genetics, Leicester Royal Infirmary, Leicester, UK.
authors.forename: Julian
authors.initials: J
authors.lastname: Barwell
mesh_terms: D019033:Delivery of Health Care, Integrated / Q000458:organization & administration*; D005190:Family; D015438:Health Behavior; D006282:Health Personnel / Q000592:standards*; D006296:Health Services / Q000706:statistics & numerical data*; D006801:Humans; D009369:Neoplasms / Q000401:mortality* / Q000628:therapy*; D017060:Patient Satisfaction; D018802:Patient-Centered Care; D011379:Prognosis; D015996:Survival Rate
keywords: Familial cancer support; Holistic care; Medical supermarket; Patient centred commissioning; Survivorship