title: 206th ENMC International Workshop: Care for a novel group of patients - adults with Duchenne muscular dystrophy Naarden, The Netherlands, 23-25 May 2014.
authors.affiliation: The National Rehabilitation Centre for Neuromuscular Diseases, Aarhus, Denmark. Electronic address: jera@rcfm.dk.
authors.forename: Jes
authors.initials: J
authors.lastname: Rahbek
authors.affiliation: The National Rehabilitation Centre for Neuromuscular Diseases, Aarhus, Denmark.
authors.forename: Birgit F
authors.initials: BF
authors.lastname: Steffensen
authors.affiliation: Newcastle University, Newcastle upon Tyne, UK.
authors.forename: Kate
authors.initials: K
authors.lastname: Bushby
authors.affiliation: Radboud University Medical Centre, Nijmegen, The Netherlands.
authors.forename: Imelda J M
authors.initials: IJ
authors.lastname: de Groot
mesh_terms: D000328:Adult; D000367:Age Factors; D006801:Humans; D008297:Male; D020388:Muscular Dystrophy, Duchenne / Q000453:epidemiology / Q000534:rehabilitation / Q000628:therapy*; D020380:Needs Assessment; D009426:Netherlands; D059039:Standard of Care; D055815:Young Adult