title: Nurse-led outpatient clinics in oncology care - Patient satisfaction, information and continuity of care.
abstract: OBJECTIVE
  The aims of the present study were to investigate patients' satisfaction with nurse-led clinics, patients' perception of received information and associations between continuity of care and satisfaction with information.
  
  
  METHODS
  Questionnaires on patient satisfaction were sent to consecutive samples of patients after they attended a nurse-led clinic at the Department of Oncology, Karolinska University Hospital in 2007, 2009, 2011 and 2013. Patients' perceptions of received information were evaluated in 2011 and 2013, by the EORTC QLQ-INFO25. Data on registered continuity of care were retrieved from the patients' medical record.
  
  
  RESULTS
  A total of 962 patients responded (79%) to one of the four surveys. Patients' satisfaction with nurse-led clinics was stable over time. More than 90% rated nurses' interpersonal manners and the care at the clinic as "good", the waiting time as "acceptable", and the length of appointments as "sufficient". Over 90% responded that it was important to meet the same nurse and 62% reported they actually did so and 52% stated they were assigned a named nurse navigator. More than 75% rated the information at their latest visit at a nurse-led clinic as "completely" sufficient. However, 48% expressed wish for more information "during the current disease". No statistical significant associations were found between "satisfaction with information" and continuity of care.
  
  
  CONCLUSIONS
  Patients' satisfaction with nurse-led clinics was stable over time with generally high figures with the exception for continuity of care and information, areas in which improvements are needed. The wide variety in information needs might require a person-centred approach.
authors.affiliation: Department of Oncology, Karolinska University Hospital, SE-171 76 Stockholm, Sweden. Electronic address: catharina.bau-berglund@karolinska.se.
authors.forename: Catharina Bau
authors.initials: CB
authors.lastname: Berglund
authors.affiliation: Department of Oncology, Karolinska University Hospital, SE-171 76 Stockholm, Sweden. Electronic address: eva.g.gustafsson@karolinska.se.
authors.forename: Eva
authors.initials: E
authors.lastname: Gustafsson
authors.affiliation: Department of Oncology, Karolinska University Hospital, SE-171 76 Stockholm, Sweden; Department of Oncology-Pathology, Karolinska Institutet, Karolinska University Hospital, SE-171 78 Stockholm, Sweden. Electronic address: hemming.johansson@karolinska.se.
authors.forename: Hemming
authors.initials: H
authors.lastname: Johansson
authors.affiliation: Department of Oncology, Karolinska University Hospital, SE-171 76 Stockholm, Sweden; Department of Oncology-Pathology, Karolinska Institutet, Karolinska University Hospital, SE-171 78 Stockholm, Sweden. Electronic address: mia.bergenmar@ki.se.
authors.forename: Mia
authors.initials: M
authors.lastname: Bergenmar
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D000554:Ambulatory Care Facilities; D003266:Continuity of Patient Care / Q000458:organization & administration*; D003430:Cross-Sectional Studies; D005260:Female; D005500:Follow-Up Studies; D006801:Humans; D008297:Male; D008875:Middle Aged; D024802:Nurse's Role; D009723:Nurse-Patient Relations; D009859:Oncology Nursing / Q000379:methods; D010045:Outpatients / Q000706:statistics & numerical data; D010353:Patient Education as Topic / Q000379:methods*; D017060:Patient Satisfaction / Q000706:statistics & numerical data*; D057184:Practice Patterns, Nurses' / Q000458:organization & administration*; D011795:Surveys and Questionnaires; D013548:Sweden; D016896:Treatment Outcome
keywords: Continuity of care; EORTC QLQ-INFO25; Nurse-led clinics; Oncology care; Patient information; Patient satisfaction; Questionnaire