title: "A Lot of Things Passed Me by": Rural Stroke Survivors' and Caregivers' Experience of Receiving Education From Health Care Providers.
abstract: OBJECTIVE
  The purpose of this study is to examine rural Appalachian Kentucky stroke survivors' and caregivers' experiences of receiving education from health care providers with the long-term goal of optimizing educational interactions and interventions for an underserved population.
  
  
  METHODS
  An interprofessional research team, representing nursing, occupational therapy, physical therapy, and speech language pathology, conducted a qualitative descriptive study involving semistructured interviews with 13 stroke survivors and 12 caregivers. Qualitative content analysis included predetermined and emerging coding. This article presents an in-depth analysis of a subset of data from the coding scheme of a larger study that examined the overall experience of stroke for participants.
  
  
  RESULTS
  Findings are presented within a developing model of patient and caregiver education constructs including providers and receivers of education and the content, timing, and delivery of information.
  
  
  CONCLUSIONS
  Understanding the experience of receiving education for survivors and caregivers will help practitioners provide the right education, to the right people, at the right time, and in the right way to better support underserved groups. Improving patient and caregiver education is paramount to supporting health behavior change to optimize life poststroke and prevent future strokes. Our results suggest the need for improved access to educational providers, proactive identification of informational needs by providers, greater inclusion of caregivers in education, enhanced communication with information provision, and education from multiple providers using multiple delivery methods at multiple time points.
authors.affiliation: Physical Therapy Program, Bellarmine University, Louisville, Kentucky.
authors.forename: Megan M
authors.initials: MM
authors.lastname: Danzl
authors.affiliation: Department of Rehabilitation Sciences, University of Kentucky, Lexington, Kentucky.
authors.forename: Anne
authors.initials: A
authors.lastname: Harrison
authors.affiliation: Graduate Center for Gerontology, University of Kentucky, Lexington, Kentucky.
authors.forename: Elizabeth G
authors.initials: EG
authors.lastname: Hunter
authors.affiliation: Department of Rehabilitation Sciences, University of Kentucky, Lexington, Kentucky.
authors.forename: Janice
authors.initials: J
authors.lastname: Kuperstein
authors.affiliation: Appalachian Regional Healthcare Inc, Lexington, Kentucky.
authors.forename: Violet
authors.initials: V
authors.lastname: Sylvia
authors.affiliation: Department of Rehabilitation Sciences, University of Kentucky, Lexington, Kentucky.
authors.forename: Katherine
authors.initials: K
authors.lastname: Maddy
authors.affiliation: Department of Rehabilitation Sciences, University of Kentucky, Lexington, Kentucky.
authors.forename: Sarah
authors.initials: S
authors.lastname: Campbell
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001061:Appalachian Region; D001291:Attitude of Health Personnel; D017028:Caregivers / Q000523:psychology*; D003266:Continuity of Patient Care / Q000706:statistics & numerical data; D005260:Female; D006266:Health Education / Q000379:methods; D006801:Humans; D007629:Kentucky / Q000453:epidemiology; D008297:Male; D036301:Qualitative Research; D012424:Rural Population / Q000706:statistics & numerical data*; D020521:Stroke / Q000523:psychology*; D000071939:Stroke Rehabilitation / Q000523:psychology*
keywords: caregiver; patient education; qualitative research; rural; stroke