title: In focus: The everyday lives of families of adult individuals with epilepsy.
abstract: Epilepsy is a multifaceted chronic neurological disorder with diverse effects on a patient's psychosocial well-being. The impact on quality of life has been well documented, and many studies have addressed the detrimental influences epilepsy has on an individual. However, the emotional impact and the influence of the condition on family members have not been well studied. Furthermore, the majority of the studies on this topic have been confined to childhood epilepsy, and there is only scarce literature that discusses the effects on family members caring for adult patients. The purpose of this literature review was to examine the influence of adult epilepsy on the psychological and social well-being of individual family members. We explored the psychological and physical well-being, satisfaction with social circumstances, and perceived level of support in families of adult patients with intractable epilepsy. The paper also suggests best practices on how to improve the family's quality of life, as well as future directions for research. Superior medical care and a positive family support system are important conditions that can help adult individuals with epilepsy best deal with their condition.
authors.affiliation: Comprehensive Epilepsy Program, University of Florida Health Sciences Center/Jacksonville, Jacksonville, FL, USA.
authors.forename: Fahed
authors.initials: F
authors.lastname: Saada
authors.affiliation: Comprehensive Epilepsy Program, University of Florida Health Sciences Center/Jacksonville, Jacksonville, FL, USA.
authors.forename: Zizhao Selina
authors.initials: ZS
authors.lastname: Wang
authors.affiliation: Comprehensive Epilepsy Program, University of Florida Health Sciences Center/Jacksonville, Jacksonville, FL, USA. Electronic address: ramon.bautista@jax.ufl.edu.
authors.forename: Ramon Edmundo D
authors.initials: RE
authors.lastname: Bautista
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D002908:Chronic Disease; D004827:Epilepsy / Q000523:psychology*; D005190:Family / Q000523:psychology*; D005192:Family Health; D006801:Humans; D001523:Mental Disorders / Q000523:psychology; D011788:Quality of Life; D013315:Stress, Psychological / Q000209:etiology*
keywords: Coping; Epilepsy; Family; Quality of life; Seizures; Siblings; Spouses