title: Congruence of Transition Perspectives Between Adolescents With Perinatally-Acquired HIV and Their Guardians: An Exploratory Qualitative Study.
abstract: Youth with perinatally-acquired HIV infection (PHIV) routinely survive into adulthood requiring transition to adult care. Research underscores the importance of assessing transition perspective congruence between adolescents and guardians. Interviews focused on transition decisions were conducted with 18 adolescents with PHIV and their guardians recruited from a southeastern US pediatric infectious disease clinic. Transcribed responses were coded as congruent or divergent. Adolescents and guardians held congruent views that the transition process had not started. Fewer dyads agreed upon the level of adolescent and guardian involvement in transition decisions. Providers should assess congruence of adolescent and guardian perspectives regarding transition-related decisions.
authors.affiliation: Elon University, NC. Electronic address: cfair@elon.edu.
authors.forename: Cynthia D
authors.initials: CD
authors.lastname: Fair
authors.affiliation: Elon University, NC.
authors.forename: Becca
authors.initials: B
authors.lastname: Goldstein
authors.affiliation: Pediatric Infectious Disease, University Medical Center, NC.
authors.forename: Rachel
authors.initials: R
authors.lastname: Dizney
mesh_terms: D000293:Adolescent; D005260:Female; D015658:HIV Infections / Q000175:diagnosis / Q000628:therapy* / Q000635:transmission*; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D007231:Infant, Newborn; D018445:Infectious Disease Transmission, Vertical; D007398:Interpersonal Relations; D007407:Interviews as Topic; D007872:Legal Guardians / Q000523:psychology; D008297:Male; D010349:Patient Compliance / Q000706:statistics & numerical data; D010353:Patient Education as Topic / Q000458:organization & administration; D015397:Program Evaluation; D036301:Qualitative Research; D018570:Risk Assessment; D060305:Transition to Adult Care / Q000458:organization & administration*; D000069341:Transitional Care / Q000458:organization & administration*; D014481:United States
keywords: Adolescents; Congruence; Perinatally-acquired HV; Transition