title: A Narrative Synthesis of the Components of and Evidence for Patient- and Family-Centered Care.
abstract: A narrative synthesis was conducted to determine typical patient- and family-centered care (PFCC) components and their link to outcomes in pediatric populations. 68 studies with PFCC interventions and experimental designs were included. Study features were synthesized based on 5 core PFCC components (i.e., education from the provider to the patient and/or family, information sharing from the family to the provider, social-emotional support, adapting care to match family background, and/or s decision-making) and 4 outcome categories (health status; the experience, knowledge, and attitudes of the patient/family; patient/family behavior; or provider behavior). The most common PFCC component was education; the least common was adapting care to family background. The presence of social-emotional support alone, as well as educational interventions augmented with shared decision-making, social-emotional support, or adaptations of care based on family background, predicted improvements in families' knowledge, attitudes, and experience. Interventions that targeted the family were associated with positive outcomes.
authors.affiliation: The Child Study Center at NYU Langone Medical Center, New York, NY, USA kgallo@post.harvard.edu.
authors.forename: Kaitlin P
authors.initials: KP
authors.lastname: Gallo
authors.affiliation: Tufts University School of Medicine, Boston, MA, USA.
authors.forename: Laura Campbell
authors.initials: LC
authors.lastname: Hill
authors.affiliation: The Child Study Center at NYU Langone Medical Center, New York, NY, USA.
authors.forename: Kimberly Eaton
authors.initials: KE
authors.lastname: Hoagwood
authors.affiliation: The Child Study Center at NYU Langone Medical Center, New York, NY, USA.
authors.forename: Su-chin Serene
authors.initials: SC
authors.lastname: Olin
mesh_terms: D002648:Child; D003695:Delivery of Health Care / Q000379:methods*; D005190:Family; D006801:Humans; D033262:Narration; D018802:Patient-Centered Care / Q000379:methods*; D010372:Pediatrics / Q000379:methods*; D011368:Professional-Family Relations
keywords: patient- and family-centered care; shared decision-making