title: A New Measure of Research Participant  Burden: Brief Report.
abstract: Effective conceptualizations of research burden should address indirect burdens related to research duration, intensity, and invasiveness. Introducing the concept of perceived research burden, we developed, tested, and validated a new instrument, the Perceived Research Burden Assessment (PeRBA). Initial psychometric evaluation of PeRBA reveals good internal consistency, evidence of face validity, and acceptable convergent and discriminant validity.
authors.affiliation: University of Pittsburgh, PA, USA.  linglerj@pitt.edu
authors.forename: Jennifer H
authors.initials: JH
authors.lastname: Lingler
authors.forename: Karen L
authors.initials: KL
authors.lastname: Schmidt
authors.forename: Amanda L
authors.initials: AL
authors.lastname: Gentry
authors.forename: Lu
authors.initials: L
authors.lastname: Hu
authors.forename: Lauren A
authors.initials: LA
authors.lastname: Terhorst
mesh_terms: D000368:Aged; D000369:Aged, 80 and over; D001290:Attitude; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D011594:Psychometrics; D015203:Reproducibility of Results; D012106:Research; D035842:Research Subjects; D012306:Risk; D011795:Surveys and Questionnaires