title: Living Donor Kidney Transplantation: Improving Education Outside of Transplant Centers about Live Donor Transplantation--Recommendations from a Consensus Conference.
abstract: Living donor kidney transplantation (LDKT) offers better quality of life and clinical outcomes, including patient survival, compared with remaining on dialysis or receiving a deceased donor kidney transplant. Although LDKT education within transplant centers for both potential recipients and living donors is very important, outreach and education to kidney patients in settings other than transplant centers and to the general public is also critical to increase access to this highly beneficial treatment. In June 2014, the American Society of Transplantation's Live Donor Community of Practice, with the support of 10 additional sponsors, convened a consensus conference to determine best practices in LDKT, including a workgroup focused on developing a set of recommendations for optimizing outreach and LDKT education outside of transplant centers. Members of this workgroup performed a structured literature review, conducted teleconference meetings, and met in person at the 2-day conference. Their efforts resulted in consensus around the following recommendations. First, preemptive transplantation should be promoted through increased LDKT education by primary care physicians and community nephrologists. Second, dialysis providers should be trained to educate their own patients about LDKT and deceased donor kidney transplantation. Third, partnerships between community organizations, organ procurement organizations, religious organizations, and transplant centers should be fostered to support transplantation. Fourth, use of technology should be improved or expanded to better educate kidney patients and their support networks. Fifth, LDKT education and outreach should be improved for kidney patients in rural areas. Finally, a consensus-driven, evidence-based public message about LDKT should be developed. Discussion of the effect and potential for implementation around each recommendation is featured, particularly regarding reducing racial and socioeconomic disparities in access to LDKT. To accomplish these recommendations, the entire community of professionals and organizations serving kidney patients must work collaboratively toward ensuring accurate, comprehensive, and up-to-date LDKT education for all patients, thereby reducing barriers to LDKT access and increasing LDKT rates.
authors.affiliation: Due to the number of contributing authors,the affiliations are provided in the Supplemental Material. awaterman@mednet.ucla.edu.
authors.forename: Amy D
authors.initials: AD
authors.lastname: Waterman
authors.affiliation: Due to the number of contributing authors,the affiliations are provided in the Supplemental Material.
authors.forename: Marie
authors.initials: M
authors.lastname: Morgievich
authors.affiliation: Due to the number of contributing authors,the affiliations are provided in the Supplemental Material.
authors.forename: David J
authors.initials: DJ
authors.lastname: Cohen
authors.affiliation: Due to the number of contributing authors,the affiliations are provided in the Supplemental Material.
authors.forename: Zeeshan
authors.initials: Z
authors.lastname: Butt
authors.affiliation: Due to the number of contributing authors,the affiliations are provided in the Supplemental Material.
authors.forename: Harini A
authors.initials: HA
authors.lastname: Chakkera
authors.affiliation: Due to the number of contributing authors,the affiliations are provided in the Supplemental Material.
authors.forename: Carrie
authors.initials: C
authors.lastname: Lindower
authors.affiliation: Due to the number of contributing authors,the affiliations are provided in the Supplemental Material.
authors.forename: Rebecca E
authors.initials: RE
authors.lastname: Hays
authors.affiliation: Due to the number of contributing authors,the affiliations are provided in the Supplemental Material.
authors.forename: Janet M
authors.initials: JM
authors.lastname: Hiller
authors.affiliation: Due to the number of contributing authors,the affiliations are provided in the Supplemental Material.
authors.forename: Krista L
authors.initials: KL
authors.lastname: Lentine
authors.affiliation: Due to the number of contributing authors,the affiliations are provided in the Supplemental Material.
authors.forename: Arthur J
authors.initials: AJ
authors.lastname: Matas
authors.affiliation: Due to the number of contributing authors,the affiliations are provided in the Supplemental Material.
authors.forename: Emilio D
authors.initials: ED
authors.lastname: Poggio
authors.affiliation: Due to the number of contributing authors,the affiliations are provided in the Supplemental Material.
authors.forename: Michael A
authors.initials: MA
authors.lastname: Rees
authors.affiliation: Due to the number of contributing authors,the affiliations are provided in the Supplemental Material.
authors.forename: James R
authors.initials: JR
authors.lastname: Rodrigue
authors.affiliation: Due to the number of contributing authors,the affiliations are provided in the Supplemental Material.
authors.forename: Dianne
authors.initials: D
authors.lastname: LaPointe Rudow
mesh_terms: D000554:Ambulatory Care Facilities; D032921:Consensus; D003299:Cooperative Behavior; D006801:Humans; D016030:Kidney Transplantation / Q000193:education*; D019520:Living Donors / Q000193:education*; D009398:Nephrology; D009938:Organizations; D010353:Patient Education as Topic / Q000379:methods / Q000592:standards*; D011320:Primary Health Care; D006435:Renal Dialysis; D019035:Rural Health Services / Q000592:standards*; D066027:Transplant Recipients / Q000193:education*
keywords: consensus conference; live donor kidney transplantation; outreach; patient education; recommendations