title: Association between information provision and decisional conflict in cancer patients.
abstract: BACKGROUND
  In this study, we aimed to identify demographic and clinical variables that correlate with perceived information provision among cancer patients and determine the association of information provision with decisional conflict (DC).
  
  
  METHODS
  We enrolled a total of 625 patients with cancer from two Korean hospitals in 2012. We used the European Organization for Research and Treatment of Cancer (EORTC) quality-of-life questionnaire (QLQ-INFO26) to assess patients' perception of the information received from their doctors and the Decisional Conflict Scale (DCS) to assess DC. To identify predictive sociodemographic and clinical variables for adequate information provision, backward selective logistic regression analyses were conducted. In addition, adjusted multivariate logistic regression analyses were carried out to identify clinically meaningful differences of perceived level of information subscales associated with high DC.
  
  
  RESULTS
  More than half of patients with cancer showed insufficient satisfaction with medical information about disease (56%), treatment (73%), other services (83%), and global score (80%). In multiple logistic regression analyses, lower income and education, female, unmarried status, type of cancer with good prognosis, and early stage of treatment process were associated with patients' perception of inadequate information provision. In addition, Information about the medical tests with high DCS values clarity [adjusted odds ratio (aOR), 0.54; 95% confidence interval (CI) 0.30-0.97] and support (aOR, 0.53; 95% CI 0.33-0.85) showed negative significance. For inadequate information perception about treatments and other services, all 5 DCS scales (uncertainty, informed, values clarity, support, and effective decision) were negatively related. Global score of inadequate information provision also showed negative association with high DCS effective decision (aOR, 0.43; 95% CI 0.26-0.71) and DCS uncertainty (aOR, 0.46; 95% CI 0.27-0.77).
  
  
  CONCLUSIONS
  This study found that inadequate levels of perceived information correlated with several demographic and clinical characteristics. In addition, sufficient perceived information levels may be related to low levels of DC.
authors.affiliation: Department of Biomedical Science, Seoul National University College of Medicine, Seoul.
authors.forename: J A
authors.initials: JA
authors.lastname: Sim
authors.affiliation: Department of Biomedical Science, Seoul National University College of Medicine, Seoul; Department of Education & Human Resources Development, Seoul National University Hospital, Seoul, Korea.
authors.forename: J S
authors.initials: JS
authors.lastname: Shin
authors.affiliation: Department of Biomedical Science, Seoul National University College of Medicine, Seoul.
authors.forename: S M
authors.initials: SM
authors.lastname: Park
authors.affiliation: Research Institute and Hospital, National Cancer Center, Goyang-si.
authors.forename: Y J
authors.initials: YJ
authors.lastname: Chang
authors.affiliation: Department of Preventive Medicine.
authors.forename: A
authors.initials: A
authors.lastname: Shin
authors.affiliation: Department of Cancer Research Institute, Seoul National University College of Medicine, Seoul;; Department of Surgery.
authors.forename: D Y
authors.initials: DY
authors.lastname: Noh
authors.affiliation: Department of Cancer Research Institute, Seoul National University College of Medicine, Seoul;; Department of Surgery.
authors.forename: W
authors.initials: W
authors.lastname: Han
authors.affiliation: Department of Cancer Research Institute, Seoul National University College of Medicine, Seoul;; Department of Surgery.
authors.forename: H K
authors.initials: HK
authors.lastname: Yang
authors.affiliation: Department of Cancer Research Institute, Seoul National University College of Medicine, Seoul;; Department of Surgery.
authors.forename: H J
authors.initials: HJ
authors.lastname: Lee
authors.affiliation: Department of Internal Medicine, Seoul National University College of Medicine and Hospital, Seoul.
authors.forename: Y W
authors.initials: YW
authors.lastname: Kim
authors.affiliation: Department of Cancer Research Institute, Seoul National University College of Medicine, Seoul;; Department of Thoracic and Cardiovascular Surgery, Seoul National University Hospital, Seoul.
authors.forename: Y T
authors.initials: YT
authors.lastname: Kim
authors.affiliation: Department of Cancer Research Institute, Seoul National University College of Medicine, Seoul;; Department of Surgery.
authors.forename: S Y
authors.initials: SY
authors.lastname: Jeong
authors.affiliation: Department of Internal Medicine, Seoul National University College of Medicine and Hospital, Seoul; Liver Research Institute, Seoul National University College of Medicine, Seoul.
authors.forename: J H
authors.initials: JH
authors.lastname: Yoon
authors.affiliation: Department of Internal Medicine, Seoul National University College of Medicine and Hospital, Seoul; Liver Research Institute, Seoul National University College of Medicine, Seoul.
authors.forename: Y J
authors.initials: YJ
authors.lastname: Kim
authors.affiliation: Department of Cancer Research Institute, Seoul National University College of Medicine, Seoul;; Department of Internal Medicine, Seoul National University College of Medicine and Hospital, Seoul.
authors.forename: D S
authors.initials: DS
authors.lastname: Heo
authors.affiliation: Department of Cancer Research Institute, Seoul National University College of Medicine, Seoul;; Department of Internal Medicine, Seoul National University College of Medicine and Hospital, Seoul.
authors.forename: T Y
authors.initials: TY
authors.lastname: Kim
authors.affiliation: Department of Cancer Research Institute, Seoul National University College of Medicine, Seoul.
authors.forename: D Y
authors.initials: DY
authors.lastname: Oh
authors.affiliation: Department of Cancer Research Institute, Seoul National University College of Medicine, Seoul;; Departments of Radiation Oncology.
authors.forename: H G
authors.initials: HG
authors.lastname: Wu
authors.affiliation: Departments of Radiation Oncology.
authors.forename: H J
authors.initials: HJ
authors.lastname: Kim
authors.affiliation: Departments of Radiation Oncology.
authors.forename: E K
authors.initials: EK
authors.lastname: Chie
authors.affiliation: Department of Biomedical Science, Seoul National University College of Medicine, Seoul; Department of Cancer Research Institute, Seoul National University College of Medicine, Seoul;; Nuclear Medicine, Seoul National University College of Medicine and Hospital, Seoul.
authors.forename: K W
authors.initials: KW
authors.lastname: Kang
authors.affiliation: Department of Biomedical Science, Seoul National University College of Medicine, Seoul; Department of Cancer Research Institute, Seoul National University College of Medicine, Seoul;. Electronic address: lawyun@snu.ac.kr.
authors.forename: Y H
authors.initials: YH
authors.lastname: Yun
mesh_terms: D003142:Communication; D003220:Conflict, Psychological; D003657:Decision Making; D004522:Educational Status; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000628:therapy; D010353:Patient Education as Topic; D010817:Physician-Patient Relations; D011788:Quality of Life; D012959:Socioeconomic Factors; D011795:Surveys and Questionnaires
keywords: cancer; decisional conflict; information; quality of care