title: Health Care Transition Experiences of Young Adults With Cerebral Palsy.
abstract: Health care transition (HCT) describes the purposeful, planned movement of adolescents from child to adult-orientated care. The purpose of this qualitative study is to uncover the meaning of transition to adult-centered care as experienced by young adults with cerebral palsy (YA-CP) through the research question: What are the lived experiences of young adults with cerebral palsy transitioning from pediatric to adult healthcare? Six females and 3 males, aged 19-25 years of age, who identified as carrying the diagnosis of cerebral palsy without cognitive impairment, were interviewed. Giorgi's (1985) method for analysis of phenomenology was the framework for the study and guided the phenomenological reduction. The meaning of the lived experiences of YA-CPs transition to adult health care is expert novices with evidence and experience-based expectations, negotiating new systems interdependently and accepting less than was expected. More information and support is needed for the YA-CP during transition to ensure a well-organized move to appropriate adult-oriented health care that is considerate of the lifelong impact of the disorder. The nurses' role as advocate, mentor and guide can optimize the individual's response to the transition process.
authors.affiliation: Greenwich, Connecticut. Electronic address: ellencarroll@mac.com.
authors.forename: Ellen McLaughlin
authors.initials: EM
authors.lastname: Carroll
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D002547:Cerebral Palsy / Q000175:diagnosis / Q000523:psychology* / Q000628:therapy*; D004185:Disability Evaluation; D005260:Female; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D009723:Nurse-Patient Relations; D017060:Patient Satisfaction / Q000706:statistics & numerical data; D036301:Qualitative Research; D018570:Risk Assessment; D060305:Transition to Adult Care / Q000458:organization & administration*; D016896:Treatment Outcome; D014481:United States; D055815:Young Adult
keywords: Cerebral palsy; Health care transition; Qualitative; Young adult