title: [From being given a voice to representation, the role of the users in the health care system].
abstract: The last thirty years have been marked by the distinct maturing and mobilisation of patient associations, as well as by the recognition of their expertise, enabling them to legitimately interact with public authorities and professionals. However, the representation system, built essentially around the defence of patients' rights, is struggling to implement the cultural changes necessary to ensure organisations and practices evolve towards a real exercising of these rights.
authors.affiliation: Hôpital europeen Georges-Pompidou, 20, Rue Leblanc, 75015 Paris, France. Electronic address: c.compagnon.conseil@gmail.com.
authors.forename: Claire
authors.initials: C
authors.lastname: Compagnon
mesh_terms: D005602:France; D006291:Health Policy; D006801:Humans; D009313:National Health Programs; D010342:Patient Acceptance of Health Care; D028701:Patient Rights / Q000331:legislation & jurisprudence
keywords: association de malades; démocratie sanitaire; health democracy; healthcare system; participation; patients’ associations; représentation des usagers; système de santé; usager; user; user representation