title: Quality of life of patients on chronic parenteral nutrition before and after gastrointestinal tract continuity restoration.
abstract: The issue of the quality of life considering patients with a temporary or permanent intestinal stoma, as well as the necessity for chronic parenteral nutrition at home remain a poorly understood problem. Daily care of the intestinal stoma and the need to comply with sterile procedures required for parenteral nutrition require such patients to commit their time, which secondarily is associated with the broad aspects of social and personal life. The aim of the study was to analyse the quality of life considering patients with intestinal stomas subjected to chronic parenteral nutrition, before and after gastrointestinal tract continuity restoration.
  
  
  METHODS
  The survey was conducted between May and July, 2014 on a group of 71 patients (33 female and 38 male) who were under the care of the Department of General Surgery and Clinical Nutrition, Warsaw Medical University, operated during the period between 2007 and July, 2014 with a present stoma (32 patients - 45%), as well as after stoma closure (39 patients - 55%). The analysed questionnaire contained 31 questions, and the SF-36 questionnaire was additionally used, determining the quality of life.
  
  
  RESULTS
  Analysis of the study material showed differences in the quality of life, considering three most important determinants. Significantly worse assessment of the quality of life was reported by patients with a stoma and subject to intravenous nutrition (83.2±30.5), as compared to those after stoma closure subject to normal nutrition (52.3±33.8). Based on the SF-36 questionnaire differences between patients with a stoma and those without amounted to t(69)=2.84 (p=0.006) demonstrating that those with a stoma reported a lower quality of life. Analysis between younger and older patients, based on the SF-36 questionnaire (t(62.87)=2.49; p=0.016) showed that younger patients achieved lower results, considering dissatisfaction with life (61.55±27.5), as compared to the elderly (80.8±36.9).
  
  
  CONCLUSIONS
  The group of patients without a stoma seem to be more independent- the vast majority do not use the help of family members (43.6%), or friends (64.1%). Patients with a stoma more often withdraw from social life. The factor that mostly reduces the quality of life is the presence of a stoma, which impairs daily functioning a lot more than the sterile procedures associated with parenteral nutrition. All patients after stoma closure consider that their overall functioning has significantly improved.
authors.forename: Michał
authors.initials: M
authors.lastname: Ławiński
authors.forename: Edyta
authors.initials: E
authors.lastname: Kot-Mielczarska
authors.forename: Aleksandra
authors.initials: A
authors.lastname: Gradowska
mesh_terms: D005260:Female; D005767:Gastrointestinal Diseases / Q000523:psychology* / Q000601:surgery; D006801:Humans; D008297:Male; D016331:Parenteral Nutrition, Home / Q000523:psychology*; D011044:Poland; D011184:Postoperative Period; D011788:Quality of Life / Q000523:psychology*; D054047:Surgical Stomas; D011795:Surveys and Questionnaires