title: Development of an Interactive Decision Aid for Female BRCA1/BRCA2 Carriers.
abstract: Shared decision making between patients and providers is becoming increasingly common, particularly when there is no clear preferred course of action. As a result, decision aids are being adopted with growing frequency and have been applied to many medical decision-making issues. One such issue where there is uncertainty is breast cancer risk management among BRCA1/BRCA2 carriers. We present the development of a CD-ROM decision aid to facilitate risk management decision making in this population. Our decision aid was developed with the intention of providing it through a randomized clinical trial. The CD-ROM is a multimedia, interactive intervention which provides information about breast cancer, risks associated with BRCA1 and BRCA2 mutations, risk management options for hereditary breast cancer, and a breast cancer risk management decision aid. The goal of this CD-ROM, offered as an adjunctive intervention, is to reduce decisional conflict and psychological distress and improve comprehension of risk information, decisional satisfaction, medical adherence, and quality of life for this population of women at increased risk for breast cancer.
authors.affiliation: Division of Cancer Control, Department of Oncology, Georgetown University - Lombardi Cancer Center, Washington, District of Columbia, emk6@georgetown.edu.
authors.forename: Elizabeth M
authors.initials: EM
authors.lastname: Kaufman
authors.forename: Beth N
authors.initials: BN
authors.lastname: Peshkin
authors.forename: William F
authors.initials: WF
authors.lastname: Lawrence
authors.forename: Rebecca
authors.initials: R
authors.lastname: Shelby
authors.forename: Claudine
authors.initials: C
authors.lastname: Isaacs
authors.forename: Karen
authors.initials: K
authors.lastname: Brown
authors.forename: Jessica
authors.initials: J
authors.lastname: Rispoli
authors.forename: Suzanne
authors.initials: S
authors.lastname: O'Neill
authors.forename: Karen
authors.initials: K
authors.lastname: Hurley
authors.forename: Tiffani
authors.initials: T
authors.lastname: DeMarco
authors.forename: Barbara
authors.initials: B
authors.lastname: Brogan
authors.forename: Sherry
authors.initials: S
authors.lastname: Grumet
authors.forename: Lina
authors.initials: L
authors.lastname: Jandorf
authors.forename: Kristine
authors.initials: K
authors.lastname: McKenna
authors.forename: Heiddis
authors.initials: H
authors.lastname: Valdimarsdottir
authors.forename: Marc D
authors.initials: MD
authors.lastname: Schwartz