title: The Spirit of "Ubuntu" in Children's Palliative Care.
abstract: The concept of "ubuntu," a Nguni word, is found in many southern African cultures and means that we are part of all humanity and we are who we are through our interconnectedness with others. Children with life-limiting conditions often become isolated and take on a new identity in the eyes of others, linked to their illness and treatment. Terms that are used can dehumanize the child. The concept of ubuntu can help the child, the family, and the community to ensure the child remains connected to society. Programs providing palliative care for children often say they feel isolated; ubuntu principles are relevant to effective network development.
authors.affiliation: International Children's Palliative Care Network, Bloemfontein, South Africa. Electronic address: joan.marston@icpcn.co.za.
authors.forename: Joan M
authors.initials: JM
authors.lastname: Marston
mesh_terms: D000293:Adolescent; D001932:Brain Neoplasms / Q000523:psychology / Q000628:therapy; D002648:Child; D003643:Death; D017809:Fatal Outcome; D005260:Female; D006801:Humans; D010166:Palliative Care / Q000379:methods*; D010372:Pediatrics / Q000379:methods*; D013019:South Africa; D009626:Terminology as Topic
keywords: Ubuntu; children; connectedness; life limiting; palliative care; resilience