title: [COLIBRI: Improving clinical practice and producing relevant scientific data].
abstract: COLIBRI-COPD is a francophone consultation web portal accessible to pulmonologists in the hospital and in the community. We present this observation which describes the phenotype of COPD patients entered (anthropometry, exposures, addictions, functional impairments, questionnaires: MRC, DIRECT, CAT, HAD, Epworth, co-morbidities, incidence of exacerbations, drug treatment or other treatments). The results of the first 1079 patients show a high level of completeness for the main data items. A comparison of patients seen in outpatient consultations shows significant variability between patients with the same GOLD stage, regarding the incidence of exacerbations, signs of anxiety-depression, of diabetes mellitus, or the prescriptions of anticholinergics and inhaled corticosteroids. These initial results suggest that data collection in real life gives a reliable database to obtain longitudinal data on various aspects of COPD. The data quality (completeness, reliability) is partly related to the usability of the web tool and to the possibility of doing self-assessment of practitioners' own recorded data.
authors.affiliation: Service de pneumologie, centre hospitalier de Chambéry, 73000 Chambéry, France.
authors.forename: E
authors.initials: E
authors.lastname: Kelkel
authors.affiliation: Centre de réhabilitation cardiorespiratoire, 26220 Dieulefit, France.
authors.forename: F
authors.initials: F
authors.lastname: Herengt
authors.affiliation: 38000 Grenoble, France.
authors.forename: H
authors.initials: H
authors.lastname: Ben Saidane
authors.affiliation: Centre Henri-Bazire, 38134 St-Julien-de-Ratz, France.
authors.forename: D
authors.initials: D
authors.lastname: Veale
authors.affiliation: 38000 Grenoble, France.
authors.forename: C
authors.initials: C
authors.lastname: Jeanjean
authors.affiliation: Service de pneumologie, CHU de Grenoble, 38700 La Tronche, France.
authors.forename: C
authors.initials: C
authors.lastname: Pison
authors.affiliation: Service de pneumologie, centre hospitalier de Chambéry, 73000 Chambéry, France.
authors.forename: J
authors.initials: J
authors.lastname: Pernot
authors.affiliation: Service de physiologie sommeil et exercice, CHU de Grenoble, 38700 La Tronche, France.
authors.forename: J-L
authors.initials: JL
authors.lastname: Pépin
authors.affiliation: 73300 Saint-Jean-de-Maurienne, France.
authors.forename: B
authors.initials: B
authors.lastname: Guillaud-Segard
authors.affiliation: Service de pneumologie et réanimation, Assistance publique-Hôpitaux de Paris, groupe hospitalier Pitié-Salpêtrière, 75013 Paris, France.
authors.forename: J
authors.initials: J
authors.lastname: Gonzalez-Bermejo
authors.affiliation: Faculté de médecine, université Joseph-Fourrier, 38700 La Tronche, France. Electronic address: b.aguilaniu@me.com.
authors.forename: B
authors.initials: B
authors.lastname: Aguilaniu
mesh_terms: D016208:Databases, Factual; D005240:Feasibility Studies; D006801:Humans; D020407:Internet; D029424:Pulmonary Disease, Chronic Obstructive; D058996:Quality Improvement
keywords: BPCO; Base de données; COPD; Database; Navigateur Internet; Observational study; Phenotype; Phénotype; Web browser; Étude observationnelle