title: Loss and rebuilding: A qualitative study of late diagnosis of cleft palate.
abstract: OBJECTIVE
  To explore the experiences of parents whose child received a late diagnosis of cleft palate (>24 hr after birth).
  
  
  METHODS
  Parents of 17 children and three nurses specialised in cleft care (specialist nurses) took part in a qualitative, semi-structured interview. Framework analysis was applied to data.
  
  
  RESULTS
  Loss and rebuilding was an overarching concept-from the crescendo leading up to the bombshell of diagnosis, followed by the aftermath of dealing with the child's long-term condition.
  
  
  CONCLUSIONS
  Specialist nurses can help parents to trust healthcare professionals and to feel confident in their ability to nurture by listening, informing, and supporting.
authors.affiliation: Royal College of Nursing Research Institute, Warwick Medical School, University of Warwick, Coventry, UK.
authors.forename: Stephanie
authors.initials: S
authors.lastname: Tierney
authors.affiliation: Cleft Lip and Palate Association, UK.
authors.forename: Maria
authors.initials: M
authors.lastname: Blackhurst
authors.affiliation: Cleft Lip and Palate Association, UK.
authors.forename: Rachael
authors.initials: R
authors.lastname: Scahill
authors.affiliation: School of Nursing, Midwifery and Social Work, University of Manchester, Manchester, UK.
authors.forename: Peter
authors.initials: P
authors.lastname: Callery
mesh_terms: D000222:Adaptation, Physiological; D000223:Adaptation, Psychological; D000367:Age Factors; D002675:Child, Preschool; D002972:Cleft Palate / Q000175:diagnosis* / Q000523:psychology / Q000601:surgery*; D057210:Delayed Diagnosis / Q000009:adverse effects* / Q000706:statistics & numerical data; D005260:Female; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D007407:Interviews as Topic; D008297:Male; D010287:Parent-Child Relations; D036301:Qualitative Research; D011788:Quality of Life; D019651:Plastic Surgery Procedures / Q000009:adverse effects / Q000379:methods; D018570:Risk Assessment; D012737:Sex Factors; D016896:Treatment Outcome
keywords: Cleft palate; diagnosis; experience; parent; qualitative research; semi-structured interview