title: Effectiveness of a partnership-based self-management programme for patients with mild and moderate chronic obstructive pulmonary disease: a pragmatic randomized controlled trial.
abstract: OBJECTIVE
  To evaluate the effectiveness of a 6-month, partnership-based self-management programme for patients with mild and moderate chronic obstructive pulmonary disease.
  
  
  BACKGROUND
  Self-management is a widely valued concept used to address contemporary issues of chronic health problems. Findings of self-management programmes for people with chronic obstructive pulmonary disease are inconclusive.
  
  
  METHODS
  Pragmatic randomized control trial.
  
  
  METHODS
  Patients, 45-65 years old, with mild and moderate chronic obstructive pulmonary disease were invited with a family member. Experimental group (n = 48) participated in a 6-month, partnership-based self-management programme consisting of: (a) three to four conversations between nurse and patient-family member; (b) 6 months of smoking cessation; and (c) interdisciplinary team-patient-family member group meeting. Control group (n = 52) received usual care. Data were collected at months zero, six and 12. The trial lasted from June 2009-March 2013.
  
  
  RESULTS
  Patients with mild and moderate chronic obstructive pulmonary disease who participated in the partnership-based self-management programme perceived less intrusiveness of the disease and its treatment than patients in the control group. Patients in the experimental group did not have better health-related quality of life, less anxiety or depression, increased physical activity, fewer exacerbations or better smoking status than patients in the control group. Patients in both groups found participation in the research useful and important.
  
  
  CONCLUSIONS
  The partnership-based self-management programme had benefits concerning perception of the intrusiveness of chronic obstructive pulmonary disease and its treatment on lifestyles, activities and interests for young patients with the disease in its early stages. High satisfaction in control group, low family attendance and the relatively short treatment period may explain the less than expected benefits of the programme.
authors.affiliation: Faculty of Nursing, School of Health Sciences, University of Iceland, Reykjavik, Iceland.|Department of Respiratory Medicine and Sleep, Landspitali University Hospital, Reykjavik, Iceland.
authors.forename: Helga
authors.initials: H
authors.lastname: Jonsdottir
authors.affiliation: Department of Respiratory Medicine and Sleep, Landspitali University Hospital, Reykjavik, Iceland.|Department of Physical Therapy, Faculty of Medicine, School of Health Sciences, University of Iceland, Reykjavik, Iceland.
authors.forename: Olof R
authors.initials: OR
authors.lastname: Amundadottir
authors.affiliation: Department of Respiratory Medicine and Sleep, Landspitali University Hospital, Reykjavik, Iceland.|Faculty of Medicine, School of Health Sciences, University of Iceland, Reykjavik, Iceland.
authors.forename: Gunnar
authors.initials: G
authors.lastname: Gudmundsson
authors.affiliation: Department of Respiratory Medicine and Sleep, Landspitali University Hospital, Reykjavik, Iceland.
authors.forename: Bryndis S
authors.initials: BS
authors.lastname: Halldorsdottir
authors.affiliation: Faculty of Physical Sciences, School of Engineering and Natural Sciences, University of Iceland, Reykjavik, Iceland.
authors.forename: Birgir
authors.initials: B
authors.lastname: Hrafnkelsson
authors.affiliation: Faculty of Nursing, School of Health Sciences, University of Iceland, Reykjavik, Iceland.|Department of Respiratory Medicine and Sleep, Landspitali University Hospital, Reykjavik, Iceland.
authors.forename: Thorbjorg Soley
authors.initials: TS
authors.lastname: Ingadottir
authors.affiliation: Department of Respiratory Medicine and Sleep, Landspitali University Hospital, Reykjavik, Iceland.
authors.forename: Rosa
authors.initials: R
authors.lastname: Jonsdottir
authors.affiliation: Faculty of Medicine, School of Health Sciences, University of Iceland, Reykjavik, Iceland.|Primary Health Care at Gardabaer, Gardabaer, Iceland.
authors.forename: Jon Steinar
authors.initials: JS
authors.lastname: Jonsson
authors.affiliation: Telemark Hospital, Skien, Norway.
authors.forename: Ellen D
authors.initials: ED
authors.lastname: Sigurjonsdottir
authors.affiliation: Department of Respiratory Medicine and Sleep, Landspitali University Hospital, Reykjavik, Iceland.
authors.forename: Ingibjorg K
authors.initials: IK
authors.lastname: Stefansdottir
mesh_terms: D000368:Aged; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D009723:Nurse-Patient Relations; D010317:Partnership Practice; D017060:Patient Satisfaction; D029424:Pulmonary Disease, Chronic Obstructive / Q000451:nursing*; D011788:Quality of Life; D012648:Self Care / Q000379:methods*; D016896:Treatment Outcome
keywords: COPD; anxiety; disease exacerbation; intervention studies; nursing; partnership practice; quality of life; randomized controlled trial; self-care; smoking cessation