title: Patient Portal Preferences: Perspectives on Imaging Information.
abstract: Patient portals have the potential to provide content that is specifically tailored to a patient's information needs based on diagnoses and other factors. In this work, we conducted a survey of 41 lung cancer patients at an outpatient lung cancer clinic at the medical center of the University of California Los Angeles, to gain insight into these perceived information needs and opinions on the design of a portal to fulfill them. We found that patients requested access to information related to diagnosis and imaging, with more than half of the patients reporting that they did not anticipate an increase in anxiety due to access to medical record information via a portal. We also found that patient educational background did not lead to a significant difference in desires for explanations of reports and definitions of terms.
authors.affiliation: Department of Bioengineering, University of California, Los Angeles, 924 Westwood Boulevard, Suite 420, Los Angeles, CA 90024.
authors.forename: Mary
authors.initials: M
authors.lastname: McNamara
authors.affiliation: Department of Radiological Sciences, University of California, Los Angeles, 924 Westwood Boulevard, Suite 420, Los Angeles, CA 90024.
authors.forename: Corey
authors.initials: C
authors.lastname: Arnold
authors.affiliation: David Geffen School of Medicine, University of California, Los Angeles, 924 Westwood Boulevard, Suite 420, Los Angeles, CA 90024.
authors.forename: Karthik
authors.initials: K
authors.lastname: Sarma
authors.affiliation: Department of Bioengineering and Department of Radiological Sciences, University of California, Los Angeles, 924 Westwood Boulevard, Suite 420, Los Angeles, CA 90024.
authors.forename: Denise
authors.initials: D
authors.lastname: Aberle
authors.affiliation: Department of Medicine, Hematology, and Oncology, University of California, Los Angeles, 924 Westwood Boulevard, Suite 420, Los Angeles, CA 90024.
authors.forename: Edward
authors.initials: E
authors.lastname: Garon
authors.affiliation: Department of Radiological Sciences, University of California, Los Angeles, 924 Westwood Boulevard, Suite 420, Los Angeles, CA 90024.
authors.forename: Alex A T
authors.initials: AA
authors.lastname: Bui