title: Measuring Transition Readiness: A Correlational Study of Perceptions of Parent and Adolescents and Young Adults with Sickle Cell Disease.
abstract: Adolescents and young adults (AYAs) often transfer from pediatric to adult care without adequate preparation, resulting in increased morbidity and mortality. The purpose of this descriptive research study of parent/AYA dyads was to measure perceptions of transition readiness. Factors that were found to be associated with perceptions of increased readiness to transition included AYA age, the amount of responsibility AYAs assume for their healthcare and the degree of parent involvement. More attention should be focused on these aspects of care to improve transition from pediatric to adult care for AYAs with sickle cell disease.
authors.affiliation: Children's National, Washington, DC. Electronic address: bsbrown@childrensnational.org.
authors.forename: Barbara
authors.initials: B
authors.lastname: Speller-Brown
authors.affiliation: Children's National, Washington, DC; The George Washington University School of Nursing, Washington, DC.
authors.forename: Katherine
authors.initials: K
authors.lastname: Patterson Kelly
authors.affiliation: Johns Hopkins University, Baltimore, MD.
authors.forename: Brigit
authors.initials: B
authors.lastname: VanGraafeiland
authors.affiliation: Children's National, Washington, DC.
authors.forename: Suzanne
authors.initials: S
authors.lastname: Feetham
authors.affiliation: Children's National, Washington, DC.
authors.forename: Anne
authors.initials: A
authors.lastname: Sill
authors.affiliation: Children's National, Washington, DC; The George Washington University School of Medicine and Health Sciences, Washington, DC.
authors.forename: Deepika
authors.initials: D
authors.lastname: Darbari
authors.affiliation: Children's National, Washington, DC; The George Washington University School of Medicine and Health Sciences, Washington, DC.
authors.forename: Emily R
authors.initials: ER
authors.lastname: Meier
mesh_terms: D000293:Adolescent; D000704:Analysis of Variance; D000755:Anemia, Sickle Cell / Q000175:diagnosis / Q000628:therapy*; D002908:Chronic Disease; D005260:Female; D006776:Hospitals, Pediatric; D006801:Humans; D016014:Linear Models; D008297:Male; D015999:Multivariate Analysis; D017063:Outcome Assessment, Health Care; D010290:Parents / Q000523:psychology*; D010465:Perception; D036301:Qualitative Research; D018570:Risk Assessment; D011795:Surveys and Questionnaires; D013997:Time Factors; D060305:Transition to Adult Care / Q000458:organization & administration*; D014481:United States; D055815:Young Adult
keywords: Adolescents; Health care responsibility; Parent involvement; Sickle cell disease; Transition readiness; Young adults