title: Methods for engaging stakeholders in comparative effectiveness research: a patient-centered approach to improving diabetes care.
abstract: Engaging stakeholders in the research process has the potential to improve quality of care and the patient care experience. Online patient community surveys can elicit important topic areas for comparative effectiveness research. Stakeholder meetings with substantial patient representation, as well as representation from health care delivery systems and research funding agencies, are a valuable tool for selecting and refining pilot research and quality improvement projects. Giving patient stakeholders a deciding vote in selecting pilot research topics helps ensure their 'voice' is heard. Researchers and health care leaders should continue to develop best-practices and strategies for increasing patient involvement in comparative effectiveness and delivery science research.
authors.affiliation: Division of Research, Kaiser Permanente Northern California, 2000 Broadway, Oakland, CA 94612, USA. Electronic address: Julie.A.Schmittdiel@kp.org.
authors.forename: Julie A
authors.initials: JA
authors.lastname: Schmittdiel
authors.affiliation: HealthPartners Institute for Education and Research, Minneapolis, MN, USA.
authors.forename: Jay
authors.initials: J
authors.lastname: Desai
authors.affiliation: Kaiser Permanente Colorado Institute for Health Research, Denver, CO, USA.
authors.forename: Emily B
authors.initials: EB
authors.lastname: Schroeder
authors.affiliation: Kaiser Permanente Colorado Institute for Health Research, Denver, CO, USA.
authors.forename: Andrea R
authors.initials: AR
authors.lastname: Paolino
authors.affiliation: Kaiser Permanente Center for Health Research, Portland, OR, USA.
authors.forename: Gregory A
authors.initials: GA
authors.lastname: Nichols
authors.affiliation: Department of Research & Evaluation, Kaiser Permanente Southern California, Pasadena, CA, USA.
authors.forename: Jean M
authors.initials: JM
authors.lastname: Lawrence
authors.affiliation: HealthPartners Institute for Education and Research, Minneapolis, MN, USA.
authors.forename: Patrick J
authors.initials: PJ
authors.lastname: O'Connor
authors.affiliation: HealthPartners Institute for Education and Research, Minneapolis, MN, USA.
authors.forename: Kris A
authors.initials: KA
authors.lastname: Ohnsorg
authors.affiliation: Group Health Research Institute, Seattle, WA, USA.
authors.forename: Katherine M
authors.initials: KM
authors.lastname: Newton
authors.affiliation: Kaiser Permanente Colorado Institute for Health Research, Denver, CO, USA.
authors.forename: John F
authors.initials: JF
authors.lastname: Steiner
mesh_terms: D057186:Comparative Effectiveness Research; D003920:Diabetes Mellitus / Q000628:therapy*; D006801:Humans; D010358:Patient Participation; D018802:Patient-Centered Care; D058996:Quality Improvement; D012108:Research Personnel
keywords: Comparative effectiveness research; Diabetes; Patient engagement; Stakeholder engagement