title: The Cancer Stories Project: narratives of encounters with cancer in Aotearoa, New Zealand.
abstract: OBJECTIVE
  The Cancer Stories Study aimed to identify the factors that empower people who have experienced cancer. More specifically the project sought to explore the coping and support mechanisms people adopted to help understand and manage their cancer experience.
  
  
  METHODS
  A participatory research approach involved researchers and consumers working in partnership on the project. This research team agreed on a qualitative method that focused on cancer survivors' personal stories. Semi-structured interviews were conducted with 38 cancer survivors in the lower half of the North Island, New Zealand (NZ). Generic qualitative analysis methods were employed including the recording, transcribing and thematic coding of interview narratives.
  
  
  RESULTS
  Seven distinct themes were classified under the overarching theme of empowerment: attitude, change, family/whānau and friends, healthcare professionals and services, sources of support, employment and tangata whenua (NZ's indigenous peoples). The unique needs of each individual were strongly emphasised throughout all the themes indicating a 'one-size-fits-all' approach has its limitations. The need for improvements in communication, cultural and spiritual care was highlighted by many participants.
  
  
  CONCLUSIONS
  It is anticipated that this project will contribute to a greater understanding of the factors that might empower people in their cancer journey. An empowerment lens, that asks how those affected by cancer may be further enabled at an individual, family/whānau, employer and healthcare professional level may be useful in assisting people navigate and manage their cancer.
authors.affiliation: University of Otago, Cancer Society Social and Behavioural Research Unit, Department of Preventive and Social Medicine, New Zealand.
authors.forename: Richard
authors.initials: R
authors.lastname: Egan
authors.affiliation: University of Otago, Cancer Society Social and Behavioural Research Unit, Department of Preventive and Social Medicine, New Zealand.
authors.forename: Rebecca
authors.initials: R
authors.lastname: Llewellyn
authors.affiliation: University of Otago, Cancer Society Social and Behavioural Research Unit, Department of Preventive and Social Medicine, New Zealand.
authors.forename: Sarah
authors.initials: S
authors.lastname: Wood
authors.affiliation: Doherty & Associates, New Zealand.
authors.forename: Joanne
authors.initials: J
authors.lastname: Doherty
authors.affiliation: Mana Wahine, Kokiri Marae Health and Social Services, Wellington, New Zealand.
authors.forename: Tira
authors.initials: T
authors.lastname: Albert
authors.affiliation: Health Quality and Safety Commission, New Zealand.
authors.forename: Chris
authors.initials: C
authors.lastname: Walsh
authors.affiliation: Cancer Society of New Zealand, Relay For Life and Community Development, New Zealand.
authors.forename: Kelly
authors.initials: K
authors.lastname: Atkinson
authors.affiliation: Life Paths Limited, New Zealand.
authors.forename: Phil
authors.initials: P
authors.lastname: Kerslake
mesh_terms: D000328:Adult; D017677:Age Distribution; D000368:Aged; D000369:Aged, 80 and over; D001291:Attitude of Health Personnel; D003142:Communication; D055812:Community-Based Participatory Research; D003863:Depression / Q000453:epidemiology; D004651:Employment; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D008875:Middle Aged; D033262:Narration; D009369:Neoplasms / Q000208:ethnology / Q000523:psychology*; D009520:New Zealand / Q000453:epidemiology; D015995:Prevalence; D036301:Qualitative Research; D012944:Social Support; D017741:Survivors / Q000523:psychology*