title: [A genetic ID for tomorrow?].
abstract: Dozens of private companies have emerged in 2005, with the commercial purpose of offering the public a wide variety of personal genetic tests - direct-to-consumer personal genome tests. Simultaneously, a collaborative research initiative on individual sequencing - the Personal Genome Project - was born in Harvard University, then online. This text provides an analysis of the promises and limits of the proposed individual sequencing. First, the scope and quality of individual predictive genetic sequencing are still far from being acquired. Moreover, it is necessary to question the ethical standards of confidentiality and respect for privacy in the connected information era.
authors.affiliation: Centre de recherche interdisciplinaire en bioéthique, Université libre de Bruxelles, 50, avenue Franklin-Delano-Roosevelt, CP 175/01, 1050 Bruxelles, Belgique. Electronic address: lperbal@ulb.ac.be.
authors.forename: Laurence
authors.initials: L
authors.lastname: Perbal
mesh_terms: D003219:Confidentiality; D005820:Genetic Testing / Q000941:ethics / Q000379:methods*; D015894:Genome, Human; D016045:Human Genome Project; D006801:Humans; D017422:Sequence Analysis, DNA
keywords: DTC-PGT; Ethics; Personal genome project; Éthique