title: Fulfilling Ethical Responsibility: Moving Beyond the Minimal Standards of Protecting Human Subjects from Research Harm.
abstract: OBJECTIVE
  Rules for protecting human subjects, in place federally since 1974, have focused primarily on guarding against placing research subjects at social, physical, or psychological risk or violating their privacy and confidentiality. Nevertheless, high-risk communities are routinely subjected to "sins of omission," which limit access to potentially significant research opportunities and result in the absence of studies that could confer high degree of community beneficence.
  
  
  OBJECTIVE
  To describe "sins of omission" and provide examples from the Community Networks Program Centers (CNPC) to illustrate how community-based participatory research (CBPR) can prevent them.
  
  
  CONCLUSIONS
  CBPR is an effective antidote to sins of omission. Activities undertaken by the CNPCs illustrate how adherence to CBPR principles can improve research access and outcomes.
  
  
  CONCLUSIONS
  By working with community members as partners, we expand the concept of beneficence to include "community beneficence," thus reducing the probability of "sins of omission."
authors.forename: James R
authors.initials: JR
authors.lastname: Hébert
authors.forename: William A
authors.initials: WA
authors.lastname: Satariano
authors.forename: Daniela B
authors.initials: DB
authors.lastname: Friedman
authors.forename: Cheryl A
authors.initials: CA
authors.lastname: Armstead
authors.forename: Allen
authors.initials: A
authors.lastname: Greiner
authors.forename: Tisha M
authors.initials: TM
authors.lastname: Felder
authors.forename: Thomas A
authors.initials: TA
authors.lastname: Coggins
authors.forename: Sora
authors.initials: S
authors.lastname: Tanjasiri
authors.forename: Kathryn L
authors.initials: KL
authors.lastname: Braun
mesh_terms: D019058:Community Networks / Q000458:organization & administration; D055812:Community-Based Participatory Research / Q000941:ethics* / Q000458:organization & administration*; D032984:Ethics, Research; D006801:Humans; D008913:Minority Groups; D054547:National Cancer Institute (U.S.) / Q000458:organization & administration*; D009369:Neoplasms / Q000208:ethnology; D044469:Racial Groups; D035842:Research Subjects; D014481:United States