title: Assessing the burden of childhood asthma: validation of electronic versions of the Mini Pediatric and Pediatric Asthma Caregiver's Quality of Life Questionnaires.
abstract: OBJECTIVE
  To validate electronic versions of the Mini Pediatric and Pediatric Asthma Caregiver's Quality of Life Questionnaires (MiniPAQLQ and PACQLQ, respectively), determine completion times and correlate QOL of children and caregivers.
  
  
  METHODS
  A total of 63 children and 64 caregivers completed the paper and electronic MiniPAQLQ or PACQLQ. Agreement between versions of each questionnaire was summarized by intraclass correlation coefficients (ICC). The correlation between MiniPAQLQ and PACQLQ scores from child-caregiver pairs was assessed using Pearson's correlation coefficient.
  
  
  RESULTS
  There was no significant difference (mean difference = 0.1, 95% CI -0.1, 0.2) in MiniPAQLQ Overall Scores between paper (5.9 ± 1.0, mean ± SD) and electronic (5.8 ± 1.0) versions, or any of the domains. ICCs ranged from 0.89 (Overall) to 0.86 (Emotional Function). Overall PACQLQ scores for both versions were comparable (5.9 ± 0.9 and 5.8 ± 1.0; mean difference = 0.0; 95% CI -0.1, 0.2). ICCs ranged from 0.81 (Activity Limitation) to 0.88 (Emotional Function). The electronic PACQLQ took 26 s longer (95% CI 11, 41; p < 0.001). Few participants (3-11%) preferred the paper format. MiniPAQLQ and PACQLQ scores were significantly correlated (all p < 0.05) for Overall (r paper = 0.33, r electronic = 0.27) and Emotional Function domains (r paper = 0.34, r electronic = 0.29).
  
  
  CONCLUSIONS
  These electronic QOL questionnaires are valid, and asthma-related QOL of children and caregivers is related.
authors.affiliation: Department of Medicine, Queen's University, 102 Stuart Street, Kingston, ON, K7L 2V6, Canada. minardj@kgh.kari.net.|Asthma Research Unit, Kingston General Hospital, 76 Stuart Street, Kingston, ON, K7L 2V7, Canada. minardj@kgh.kari.net.
authors.forename: Janice P
authors.initials: JP
authors.lastname: Minard
authors.affiliation: Asthma Program, Kingston General Hospital, 76 Stuart Street, Kingston, ON, K7L 2V7, Canada.
authors.forename: Nicola J
authors.initials: NJ
authors.lastname: Thomas
authors.affiliation: Asthma Program, Kingston General Hospital, 76 Stuart Street, Kingston, ON, K7L 2V7, Canada.|School of Nursing, Queen's University, 92 Barrie Street, Kingston, ON, K7L 3N6, Canada.
authors.forename: Jennifer G
authors.initials: JG
authors.lastname: Olajos-Clow
authors.affiliation: Department of Medicine, Queen's University, 102 Stuart Street, Kingston, ON, K7L 2V6, Canada.|Asthma Research Unit, Kingston General Hospital, 76 Stuart Street, Kingston, ON, K7L 2V7, Canada.
authors.forename: Nastasia V
authors.initials: NV
authors.lastname: Wasilewski
authors.affiliation: CISSEC Corporation, 160 Binnington Court, Kingston, ON, K7M 8N1, Canada.
authors.forename: Blaine
authors.initials: B
authors.lastname: Jenkins
authors.affiliation: Department of Medicine, Queen's University, 102 Stuart Street, Kingston, ON, K7L 2V6, Canada.|Asthma Research Unit, Kingston General Hospital, 76 Stuart Street, Kingston, ON, K7L 2V7, Canada.
authors.forename: Ann K
authors.initials: AK
authors.lastname: Taite
authors.affiliation: Clinical Research Centre, Kingston General Hospital, 76 Stuart Street, Kingston, ON, K7L 2V7, Canada.
authors.forename: Andrew G
authors.initials: AG
authors.lastname: Day
authors.affiliation: Department of Medicine, Queen's University, 102 Stuart Street, Kingston, ON, K7L 2V6, Canada.|Asthma Research Unit, Kingston General Hospital, 76 Stuart Street, Kingston, ON, K7L 2V7, Canada.|Asthma Program, Kingston General Hospital, 76 Stuart Street, Kingston, ON, K7L 2V7, Canada.|Clinical Research Centre, Kingston General Hospital, 76 Stuart Street, Kingston, ON, K7L 2V7, Canada.|Department of Public Health Sciences, Queen's University, Kingston, ON, K7L 3N6, Canada.
authors.forename: M Diane
authors.initials: MD
authors.lastname: Lougheed
mesh_terms: D000293:Adolescent; D000328:Adult; D001249:Asthma / Q000523:psychology*; D017028:Caregivers / Q000523:psychology*; D002648:Child; D003201:Computers; D004644:Emotions; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D010372:Pediatrics; D011788:Quality of Life / Q000523:psychology*; D011795:Surveys and Questionnaires
keywords: Asthma; Caregiver; Pediatric; Quality of Life Questionnaire