title: Community Engagement in Health-Related Research: A Case Study of a Community-Linked Research Infrastructure, Jefferson County, Arkansas, 2011-2013.
abstract: BACKGROUND
  Underrepresentation of racial minorities in research contributes to health inequities. Important factors contributing to low levels of research participation include limited access to health care and research opportunities, lack of perceived relevance, power differences, participant burden, and absence of trust. We describe an enhanced model of community engagement in which we developed a community-linked research infrastructure to involve minorities in research both as participants and as partners engaged in issue selection, study design, and implementation.
  
  
  OBJECTIVE
  We implemented this effort in Jefferson County, Arkansas, which has a predominantly black population, bears a disproportionate burden of chronic disease, and has death rates above state and national averages.
  
  
  METHODS
  Building on existing community-academic partnerships, we engaged new partners and adapted a successful community health worker model to connect community residents to services and relevant research. We formed a community advisory board, a research collaborative, a health registry, and a resource directory.
  
  
  RESULTS
  Newly formed community-academic partnerships resulted in many joint grant submissions and new projects. Community health workers contacted 2,665 black and 913 white community residents from December 2011 through April 2013. Eighty-five percent of blacks and 88% of whites were willing to be re-contacted about research of potential interest. Implementation challenges were addressed by balancing the needs of science with community needs and priorities.
  
  
  CONCLUSIONS
  Our experience indicates investments in community-linked research infrastructure can be fruitful and should be considered by academic health centers when assessing institutional research infrastructure needs.
authors.affiliation: Fay W. Boozman College of Public Health, University of Arkansas for Medical Sciences, 4301 West Markham St, Slot 820, Little Rock, AR 72205. Email: stewartmaryk@uams.edu.
authors.forename: M Kathryn
authors.initials: MK
authors.lastname: Stewart
authors.affiliation: Fay W. Boozman College of Public Health, University of Arkansas for Medical Sciences, Little Rock, Arkansas.
authors.forename: Holly C
authors.initials: HC
authors.lastname: Felix
authors.affiliation: Tri County Rural Health Network, Inc, Helena, Arkansas.
authors.forename: Mary
authors.initials: M
authors.lastname: Olson
authors.affiliation: Tri County Rural Health Network, Inc, Helena, Arkansas.
authors.forename: Naomi
authors.initials: N
authors.lastname: Cottoms
authors.affiliation: Fay W. Boozman College of Public Health, University of Arkansas for Medical Sciences, Little Rock, Arkansas.
authors.forename: Ashley
authors.initials: A
authors.lastname: Bachelder
authors.affiliation: Shiloh Baptist Church and Ten Thousand Black Men, Pine Bluff, Arkansas.
authors.forename: Johnny
authors.initials: J
authors.lastname: Smith
authors.affiliation: University of Arkansas at Pine Bluff, Pine Bluff, Arkansas.
authors.forename: Tanesha
authors.initials: T
authors.lastname: Ford
authors.affiliation: Fay W. Boozman College of Public Health, University of Arkansas for Medical Sciences, Little Rock, Arkansas.
authors.forename: Leah C
authors.initials: LC
authors.lastname: Dawson
authors.affiliation: Fay W. Boozman College of Public Health, University of Arkansas for Medical Sciences, Little Rock, Arkansas.
authors.forename: Paul G
authors.initials: PG
authors.lastname: Greene
mesh_terms: D001131:Arkansas; D002908:Chronic Disease / Q000453:epidemiology / Q000401:mortality / Q000517:prevention & control*; D003150:Community Health Workers / Q000193:education; D003256:Community Participation / Q000639:trends*; D055812:Community-Based Participatory Research; D003159:Community-Institutional Relations; D003299:Cooperative Behavior; D006284:Health Plan Implementation; D006301:Health Services Needs and Demand; D006305:Health Status Indicators; D054625:Healthcare Disparities; D006801:Humans; D008913:Minority Groups / Q000523:psychology* / Q000706:statistics & numerical data; D019982:Organizational Case Studies; D012042:Registries; D012959:Socioeconomic Factors