title: Guidelines for the Standard Monitoring of Patients With Thalassemia: Report of the Thalassemia Longitudinal Cohort.
abstract: Chronic transfusion therapy has played a central role in extending life expectancy for patients with hemoglobinopathies such as thalassemia. However, this life-saving therapy is associated with numerous complications that now comprise the bulk of management considerations for patients with thalassemia. This review reports on the experience of the Thalassemia Longitudinal Cohort and reviews available literature to establish guidelines for the management of patients with thalassemia.
authors.affiliation: *Boston Children's Hospital, Boston, MA †Children's Hospital & Research Center Oakland, Oakland, CA ‡Weill Medical College of Cornell, New York, NY §Children's Memorial Hospital, Chicago, IL ∥University of Texas Southwestern Medical Center, Dallas, TX ¶Children's Hospital of Philadelphia, Philadelphia, PA.
authors.forename: Venée N
authors.initials: VN
authors.lastname: Tubman
authors.forename: Ellen B
authors.initials: EB
authors.lastname: Fung
authors.forename: Maria
authors.initials: M
authors.lastname: Vogiatzi
authors.forename: Alexis A
authors.initials: AA
authors.lastname: Thompson
authors.forename: Zora R
authors.initials: ZR
authors.lastname: Rogers
authors.forename: Ellis J
authors.initials: EJ
authors.lastname: Neufeld
authors.forename: Janet L
authors.initials: JL
authors.lastname: Kwiatkowski
mesh_terms: D001803:Blood Transfusion; D006453:Hemoglobinopathies / Q000628:therapy*; D006801:Humans; D008137:Longitudinal Studies; D008991:Monitoring, Physiologic / Q000592:standards*; D013789:Thalassemia / Q000628:therapy*