title: Transfer to Adult Care--Experiences of Young Adults with Congenital Heart Disease.
abstract: More than 90% of children born with congenital heart disease survive into adulthood due to successes of cardiac surgery and medical management. Interviews with 16 young adults with congenital heart disease to explore their experiences of transfer from pediatric to adult care were performed. The analysis identified five themes; Feeling secure during the transfer process, Experiencing trust in the care, Expecting to be involved, Assuming responsibility for one's health is a process and Lack of knowledge leads to uncertainty. In conclusion; a structured and gradual transfer process was necessary to enable the informants to shoulder the responsibility for self-care.
authors.affiliation: Children's Heart center, Department of Pediatrics, Skåne University Hospital Lasarettsgatan 48, Lund, Sweden.
authors.forename: Ann
authors.initials: A
authors.lastname: Asp
authors.affiliation: Institute of Health and Care Sciences, The Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; Department of Paediatric Cardiology, The Queen Silvia Children's Hospital, Gothenburg, Sweden.
authors.forename: Ewa-Lena
authors.initials: EL
authors.lastname: Bratt
authors.affiliation: Malmö University: Health and Society, Department of Care Science, Malmö, Sweden; Department of Pediatrics, Skåne University Hospital Sweden, Malmö, Sweden. Electronic address: ann-cathrine.bramhagen@mah.se.
authors.forename: Ann-Cathrine
authors.initials: AC
authors.lastname: Bramhagen
mesh_terms: D019468:Disease Management; D005260:Female; D006330:Heart Defects, Congenital / Q000175:diagnosis / Q000523:psychology / Q000628:therapy*; D006801:Humans; D007231:Infant, Newborn; D007407:Interviews as Topic; D008297:Male; D009723:Nurse-Patient Relations; D061214:Patient Safety / Q000706:statistics & numerical data*; D010817:Physician-Patient Relations; D036301:Qualitative Research; D011788:Quality of Life; D018570:Risk Assessment; D012494:Sampling Studies; D013548:Sweden; D060305:Transition to Adult Care / Q000458:organization & administration*; D055815:Young Adult
keywords: Congenital heart disease; Experiences; Transfer to adult care; Transition; Young adults