title: A Collaborative Step-Wise Process to Implementing an Innovative Clinic for Adult Survivors of Childhood Cancer.
abstract: With a 5 year survival rate of approximately 80%, there is an increasing number of childhood cancer survivors in the United States. Childhood cancer survivors are at an increased risk for physical and psychosocial health problems many years after treatment. Long-term follow-up care should include education, development of individualized follow up plans and screening for health problems in accordance with the Children's Oncology Group survivor guidelines. Due to survivor, provider and healthcare system related barriers, adult survivors of childhood cancer (ASCC) infrequently are receiving care in accordance to these guidelines. In this paper we describe the stepwise process and collaboration between a children's hospital and an adult academic medical center that was implemented to develop the Survivorship Transition Clinic and address the needs of ASCC in our region. In the clinic model that we designed ASCC follow-up with a primary care physician in the adult setting who is knowledgeable about late effects of childhood cancer treatment and are provided transition support and education by a transition nurse navigator.
authors.affiliation: Children's Mercy Hospital, Kansas City, MO. Electronic address: wsmcclellan@cmh.edu.
authors.forename: Wendy
authors.initials: W
authors.lastname: McClellan
authors.affiliation: Children's Mercy Hospital, Kansas City, MO.
authors.forename: Joy M
authors.initials: JM
authors.lastname: Fulbright
authors.affiliation: Midwest Cancer Alliance, The University of Kansas Cancer Center, Fairway, KS; The University of Kansas Cancer Center, Westwood, KS; The University of Kansas School of Medicine, Kansas City, KS.
authors.forename: Gary C
authors.initials: GC
authors.lastname: Doolittle
authors.affiliation: Children's Mercy Hospital, Kansas City, MO; Midwest Cancer Alliance, The University of Kansas Cancer Center, Fairway, KS.
authors.forename: Kyla
authors.initials: K
authors.lastname: Alsman
authors.affiliation: The University of Kansas Cancer Center, Westwood, KS.
authors.forename: Jennifer R
authors.initials: JR
authors.lastname: Klemp
authors.affiliation: Children's Mercy Hospital, Kansas City, MO.
authors.forename: Robin
authors.initials: R
authors.lastname: Ryan
authors.affiliation: The University of Kansas School of Medicine, Kansas City, KS.
authors.forename: Eve-Lynn
authors.initials: EL
authors.lastname: Nelson
authors.affiliation: Children's Mercy Hospital, Kansas City, MO.
authors.forename: Kristin
authors.initials: K
authors.lastname: Stegenga
authors.affiliation: Midwest Cancer Alliance, The University of Kansas Cancer Center, Fairway, KS.
authors.forename: Hope
authors.initials: H
authors.lastname: Krebill
authors.affiliation: The University of Kansas School of Medicine, Kansas City, KS.
authors.forename: Eyad M
authors.initials: EM
authors.lastname: Al-hihi
authors.affiliation: The University of Kansas School of Social Welfare, Lawrence, KS.
authors.forename: Nik
authors.initials: N
authors.lastname: Schuetz
authors.affiliation: The University of Kansas School of Nursing, Kansas City, KS.
authors.forename: Ashley
authors.initials: A
authors.lastname: Heiman
authors.affiliation: Midwest Cancer Alliance, The University of Kansas Cancer Center, Fairway, KS; The University of Kansas School of Medicine, Kansas City, KS.
authors.forename: Becky
authors.initials: B
authors.lastname: Lowry
mesh_terms: D000328:Adult; D000367:Age Factors; D000554:Ambulatory Care Facilities / Q000458:organization & administration*; D002648:Child; D003266:Continuity of Patient Care / Q000458:organization & administration; D003695:Delivery of Health Care / Q000458:organization & administration*; D005260:Female; D006284:Health Plan Implementation / Q000458:organization & administration*; D006801:Humans; D008297:Male; D020380:Needs Assessment; D009369:Neoplasms / Q000175:diagnosis / Q000628:therapy*; D010372:Pediatrics; D016730:Program Development; D015397:Program Evaluation; D017741:Survivors; D014481:United States
keywords: Childhood cancer survivors; Late effects; Long-term follow-up; Program implementation; Transition