title: Applying the Patient-Reported Outcomes Measurement Information System to Assess Upper Extremity Function among Children with Congenital Hand Differences.
abstract: BACKGROUND
  Few studies have evaluated self-assessment tools among children with congenital hand differences. The authors compared three upper extremity disability instruments with the Patient-Reported Outcomes Measurement Information System (PROMIS) Pediatric Upper Extremity Item Bank.
  
  
  METHODS
  Thirty-three children (aged 6 to 17 years) with congenital hand differences completed the Pediatric Outcomes Data Collection Instrument; the Michigan Hand Outcomes Questionnaire; the Disabilities of the Arm, Shoulder, and Hand questionnaire; and the PROMIS Upper Extremity short form and computerized adaptive test. Hand function was also assessed, and construct validity and feasibility were examined.
  
  
  RESULTS
  PROMIS demonstrated good construct validity. Short form and computerized adaptive test were highly correlated with Disabilities of the Arm, Shoulder, and Hand questionnaire scores (r = 0.80, p < 0.001) and Pediatric Outcomes Data Collection Instrument domains (r = 0.70, p < 0.001). PROMIS was moderately correlated with the Michigan Hand Outcomes Questionnaire (r = 0.40, p < 0.05). PROMIS scores also correlated with grip (r = 0.60, p < 0.001) and pinch strength (r = 0.50, p < 0.001). Compared with the Pediatric Outcomes Data Collection Instrument and the Disabilities of the Arm, Shoulder, and Hand and Michigan Hand Outcomes questionnaires, PROMIS required the least time to complete with fewer children requiring assistance.
  
  
  CONCLUSIONS
  The Patient-Reported Outcomes Measurement Information System is highly correlated with both functional assessment and self-reported function among children with congenital hand differences.
authors.affiliation: Ann Arbor, Mich. From the Section of Plastic Surgery and the Department of Physical Medicine and Rehabilitation, University of Michigan Medical School.
authors.forename: Jennifer F
authors.initials: JF
authors.lastname: Waljee
authors.forename: Noelle
authors.initials: N
authors.lastname: Carlozzi
authors.forename: Lauren E
authors.initials: LE
authors.lastname: Franzblau
authors.forename: Lin
authors.initials: L
authors.lastname: Zhong
authors.forename: Kevin C
authors.initials: KC
authors.lastname: Chung
mesh_terms: D000293:Adolescent; D000367:Age Factors; D002648:Child; D015331:Cohort Studies; D016208:Databases, Factual; D004185:Disability Evaluation; D005240:Feasibility Studies; D005260:Female; D006228:Hand Deformities, Congenital / Q000175:diagnosis* / Q000534:rehabilitation*; D006801:Humans; D008297:Male; D063868:Patient Outcome Assessment; D057566:Self Report; D012680:Sensitivity and Specificity; D012737:Sex Factors; D011795:Surveys and Questionnaires; D034941:Upper Extremity / Q000503:physiopathology*