title: The Personally Controlled Electronic Health Record (PCEHR) for Adults with Severe Communication Impairments: Findings of Pilot Research.
abstract: To date, there is little information in the literature to guide the provision of supports for using the Personally Controlled Electronic Health Record (PCEHR) in populations with severe communication impairments associated with a range of disabilities. In this paper we will (a) outline the rationale for use of PCEHR in these populations by providing an overview of relevant research to date, and (b) present results of three integrated pilot studies aiming to investigate the barriers to and facilitators for PCEHR use by people with severe communication impairments and their service providers. Finally, we will present directions for future research on use of PCEHR by people with severe communication impairments.
authors.affiliation: School of Humanities and Social Sciences, Faculty of Education and Arts, The University of Newcastle, Australia.
authors.forename: Bronwyn
authors.initials: B
authors.lastname: Hemsley
authors.affiliation: Centre for Health Systems and Safety Research, Australian Institute of Health Innovation, Macquarie University, Sydney, Australia.
authors.forename: Andrew
authors.initials: A
authors.lastname: Georgiou
authors.affiliation: School of Health and Social Development, Faculty of Health, Deakin University, Melbourne, Australia.
authors.forename: Susan
authors.initials: S
authors.lastname: Balandin
authors.affiliation: School of Health and Social Development, Faculty of Health, Deakin University, Melbourne, Australia.
authors.forename: Rob
authors.initials: R
authors.lastname: Carter
authors.affiliation: School of Psychology and Public Health, La Trobe University, Melbourne, Australia.
authors.forename: Sophie
authors.initials: S
authors.lastname: Hill
authors.affiliation: School of Nursing and Midwifery, The University of Newcastle, Australia.
authors.forename: Isabel
authors.initials: I
authors.lastname: Higgins
authors.affiliation: School of Health Sciences, Faculty of Health and Medicine, The University of Newcastle, Australia.
authors.forename: Paulette
authors.initials: P
authors.lastname: Van Vliet
authors.affiliation: Newcastle Law School, Faculty of Business and Law, The University of Newcastle, Australia.
authors.forename: Shaun
authors.initials: S
authors.lastname: McCarthy
mesh_terms: D001315:Australia; D003143:Communication Devices for People with Disabilities; D003147:Communication Disorders / Q000534:rehabilitation*; D006233:Persons with Disabilities / Q000534:rehabilitation; D057286:Electronic Health Records / Q000458:organization & administration*; D006801:Humans; D016247:Information Storage and Retrieval / Q000379:methods*; D033283:Patient Access to Records; D010865:Pilot Projects; D014584:User-Computer Interface