title: Teenagers and young adults with cancer in Europe: from national programmes to a European integrated coordinated project.
abstract: Over 14 000 patients aged 15-24 are estimated to be diagnosed with cancer in the European Union (EU) each year. Teenagers and young adults (TYA) often fall down gaps between children's and adults cancer services. The specific challenges of providing optimal care to them are described, but we present a summary of recent progress. Progress to overcome these challenges is happening at different rates across Europe. We summarise the European national projects in this field but more recently we have seen the beginnings of European coordination. Within the EU 7th Funding Programme (FP7) European Network for Cancer Research in Children and Adolescents programme (ENCCA), a specific European Network for Teenagers and Young Adults with Cancer has held a series of scientific meetings, including professionals, patients and caregivers. This group has proposed unanswered research questions and agreed key features of a high-quality service that can improve outcomes for TYA with cancer, including the primacy of collaboration between adult and paediatric services to eliminate the gap in the management of TYA with cancer.
authors.affiliation: Leeds Institute of Cancer and Pathology, Leeds Institute of Oncology and St James's University Hospital, University of Leeds, Leeds, UK.
authors.forename: D
authors.initials: D
authors.lastname: Stark
authors.affiliation: Klinikum Stuttgart, Center for Pediatric and Adolescent Medicine, Pediatrics 5 (Oncology, Hematology, Immunology), Olgahospital, Stuttgart, Germany.
authors.forename: S
authors.initials: S
authors.lastname: Bielack
authors.affiliation: Department of Children and Adolescents Oncology, Institut Gustave Roussy, Villejuif, France.
authors.forename: L
authors.initials: L
authors.lastname: Brugieres
authors.affiliation: University Hospital Muenster, Department of Pediatric Hematology and Oncology, Westfalian Wilhelms University, Muenster, Germany.|Hospital Infantil Universitario Niño Jesús, Madrid, Spain.
authors.forename: U
authors.initials: U
authors.lastname: Dirksen
authors.affiliation: Instituto Português de Oncologia de Lisboa, Lisbon, Portugal.
authors.forename: X
authors.initials: X
authors.lastname: Duarte
authors.affiliation: Teenage Cancer Trust, London, UK.
authors.forename: S
authors.initials: S
authors.lastname: Dunn
authors.affiliation: Semmelweis University, Budapest, Hungary.
authors.forename: D J
authors.initials: DJ
authors.lastname: Erdelyi
authors.affiliation: Oxford University Clinical Academic Graduate School, Oxford, UK.
authors.forename: T
authors.initials: T
authors.lastname: Grew
authors.affiliation: Department of Pediatrics, Skåne University Hospital, Clinical Sciences Lund University, Lund, Sweden.
authors.forename: L
authors.initials: L
authors.lastname: Hjorth
authors.affiliation: Division of Pediatrics, Unit of Hematooncology, University Medical Centre Ljubljana, Ljubljana, Slovenia.
authors.forename: J
authors.initials: J
authors.lastname: Jazbec
authors.affiliation: Charles University, Prague, Czech Republic.
authors.forename: E
authors.initials: E
authors.lastname: Kabickova
authors.affiliation: Medical University of Varna, Varna, Bulgaria.
authors.forename: A
authors.initials: A
authors.lastname: Konsoulova
authors.affiliation: Children's University Hospital, Skubiszewski Medical University of Lublin, Lublin, Poland.
authors.forename: J R
authors.initials: JR
authors.lastname: Kowalczyk
authors.affiliation: Hospital Infantil Universitario Niño Jesús, Madrid, Spain.
authors.forename: A
authors.initials: A
authors.lastname: Lassaletta
authors.affiliation: Department of Medical and Pediatric Oncology, Institut Curie, Paris, France.
authors.forename: V
authors.initials: V
authors.lastname: Laurence
authors.affiliation: Alder Hey Children's NHS Foundation Trust, Liverpool.
authors.forename: I
authors.initials: I
authors.lastname: Lewis
authors.affiliation: Spanish Association of Adolescents and Young Adult with Cancer, London.
authors.forename: A
authors.initials: A
authors.lastname: Monrabal
authors.affiliation: Teenage Cancer Trust Unit, St James's University Hospital, Leeds, UK.
authors.forename: S
authors.initials: S
authors.lastname: Morgan
authors.affiliation: University of Athens School of Medicine, Athens, Greece.
authors.forename: G
authors.initials: G
authors.lastname: Mountzios
authors.affiliation: Department of Oncology, Aarhus University Hospital, Aarhus C, Denmark.
authors.forename: P R
authors.initials: PR
authors.lastname: Olsen
authors.affiliation: Department of Pediatric Hemato-Oncology, University Hospitals Leuven, Leuven, Belgium.
authors.forename: M
authors.initials: M
authors.lastname: Renard
authors.affiliation: Institute for Cancer Research, Oslo University Hospital, Oslo, Norway.
authors.forename: G
authors.initials: G
authors.lastname: Saeter
authors.affiliation: Department of Medical Oncology, Radboud University Medical Centre, Nijmegen, the Netherlands.
authors.forename: W T
authors.initials: WT
authors.lastname: van der Graaf
authors.affiliation: Pediatric Oncology Unit, Fondazione IRCCS Istituto Nazionale Tumori, Milan, Italy.
authors.forename: A
authors.initials: A
authors.lastname: Ferrari
mesh_terms: D000293:Adolescent; D035843:Biomedical Research / Q000458:organization & administration; D003695:Delivery of Health Care / Q000458:organization & administration; D005060:Europe / Q000453:epidemiology; D005062:European Union; D006801:Humans; D007391:International Cooperation; D008495:Medical Oncology / Q000458:organization & administration; D009369:Neoplasms / Q000453:epidemiology* / Q000523:psychology / Q000628:therapy; D055815:Young Adult
keywords: adolescents; cancer; teenagers