title: How to Develop an Electronic Clinical Endometriosis Research File Integrated in Clinical Practice.
abstract: Endometriosis is associated with a range of pelvic-abdominal pain symptoms and infertility. It is a chronic disease that can have a significant impact on various aspects of women's lives, including their social and sexual relationships, work, and study. Despite several international guidelines on the management of endometriosis, there is a wide variety of clinical practice in the management of endometriosis, resulting in many women receiving delayed or suboptimal care. In this paper we discuss the possibilities and benefits of using electronic health records for clinical research in the field of endometriosis. The development of a wide range of clinical software for electronic patient records has made the registration of large datasets feasible and the integration of research files and clinical files possible. Integration of global standards on registration of endometriosis care in electronic health records could improve reporting of research data and facilitate the execution of large, multicentre randomized trials on the management of endometriosis. These highly needed trials could bring us the evidence needed for the optimisation of management of women with endometriosis.
authors.affiliation: Leuven University Endometriosis Center of Expertise, University Hospital Leuven, Herestraat 49, 3000 Leuven, Belgium ; Department of Obstetrics and Gynaecology, Leuven University Fertility Center, University Hospital Leuven, Herestraat 49, 3000 Leuven, Belgium ; Department of Development and Regeneration, Faculty of Medicine, Leuven University, University Hospital Leuven, Herestraat 49, 3000 Leuven, Belgium ; Leuven University Fertility Center, 3000 Leuven, Belgium.
authors.forename: A
authors.initials: A
authors.lastname: Vanhie
authors.affiliation: Leuven University Endometriosis Center of Expertise, University Hospital Leuven, Herestraat 49, 3000 Leuven, Belgium ; Department of Obstetrics and Gynaecology, Leuven University Fertility Center, University Hospital Leuven, Herestraat 49, 3000 Leuven, Belgium ; Department of Development and Regeneration, Faculty of Medicine, Leuven University, University Hospital Leuven, Herestraat 49, 3000 Leuven, Belgium.
authors.forename: A
authors.initials: A
authors.lastname: Fassbender
authors.affiliation: Leuven University Endometriosis Center of Expertise, University Hospital Leuven, Herestraat 49, 3000 Leuven, Belgium ; Department of Obstetrics and Gynaecology, Leuven University Fertility Center, University Hospital Leuven, Herestraat 49, 3000 Leuven, Belgium ; Department of Development and Regeneration, Faculty of Medicine, Leuven University, University Hospital Leuven, Herestraat 49, 3000 Leuven, Belgium.
authors.forename: D
authors.initials: D
authors.lastname: O
authors.affiliation: Leuven University Endometriosis Center of Expertise, University Hospital Leuven, Herestraat 49, 3000 Leuven, Belgium ; Department of Obstetrics and Gynaecology, Leuven University Fertility Center, University Hospital Leuven, Herestraat 49, 3000 Leuven, Belgium ; Department of Development and Regeneration, Faculty of Medicine, Leuven University, University Hospital Leuven, Herestraat 49, 3000 Leuven, Belgium ; Leuven University Fertility Center, 3000 Leuven, Belgium.
authors.forename: C
authors.initials: C
authors.lastname: Tomassetti
authors.affiliation: Leuven University Endometriosis Center of Expertise, University Hospital Leuven, Herestraat 49, 3000 Leuven, Belgium ; Department of Obstetrics and Gynaecology, Leuven University Fertility Center, University Hospital Leuven, Herestraat 49, 3000 Leuven, Belgium ; Department of Development and Regeneration, Faculty of Medicine, Leuven University, University Hospital Leuven, Herestraat 49, 3000 Leuven, Belgium ; Leuven University Fertility Center, 3000 Leuven, Belgium ; Faculty of Medicine, Leuven University, 3000 Leuven, Belgium.
authors.forename: C
authors.initials: C
authors.lastname: Meuleman
authors.affiliation: Leuven University Endometriosis Center of Expertise, University Hospital Leuven, Herestraat 49, 3000 Leuven, Belgium ; Department of Obstetrics and Gynaecology, Leuven University Fertility Center, University Hospital Leuven, Herestraat 49, 3000 Leuven, Belgium ; Department of Development and Regeneration, Faculty of Medicine, Leuven University, University Hospital Leuven, Herestraat 49, 3000 Leuven, Belgium ; Leuven University Fertility Center, 3000 Leuven, Belgium.
authors.forename: K
authors.initials: K
authors.lastname: Peeraer
authors.affiliation: Leuven University Endometriosis Center of Expertise, University Hospital Leuven, Herestraat 49, 3000 Leuven, Belgium ; Department of Obstetrics and Gynaecology, Leuven University Fertility Center, University Hospital Leuven, Herestraat 49, 3000 Leuven, Belgium ; Department of Development and Regeneration, Faculty of Medicine, Leuven University, University Hospital Leuven, Herestraat 49, 3000 Leuven, Belgium ; Leuven University Fertility Center, 3000 Leuven, Belgium.
authors.forename: S
authors.initials: S
authors.lastname: Debrock
authors.affiliation: Leuven University Endometriosis Center of Expertise, University Hospital Leuven, Herestraat 49, 3000 Leuven, Belgium ; Department of Obstetrics and Gynaecology, Leuven University Fertility Center, University Hospital Leuven, Herestraat 49, 3000 Leuven, Belgium ; Leuven University Fertility Center, 3000 Leuven, Belgium ; Faculty of Medicine, Leuven University, 3000 Leuven, Belgium ; Faculty of Medicine, Yale University, New Haven, CT, USA ; International Advisory Board, Institute of Primate Research (WHO CC), Nairobi 00502, Kenya.
authors.forename: Th
authors.initials: T
authors.lastname: D'Hooghe
mesh_terms: D035843:Biomedical Research / Q000458:organization & administration*; D020000:Decision Support Systems, Clinical / Q000458:organization & administration; D057286:Electronic Health Records / Q000458:organization & administration*; D004715:Endometriosis / Q000175:diagnosis* / Q000628:therapy*; D005260:Female; D006801:Humans; D016247:Information Storage and Retrieval / Q000379:methods*; D008498:Medical Record Linkage; D012042:Registries