title: Deceased Organ Donation Registration and Familial Consent among Chinese and South Asians in Ontario, Canada.
abstract: OBJECTIVE
  For various reasons, people of Chinese (China, Hong Kong or Taiwan) and South Asian (Indian subcontinent) ancestry (the two largest ethnic minority groups in Ontario, Canada) may be less likely to register for deceased organ donation than the general public, and their families may be less likely to consent for deceased organ donation at the time of death.
  
  
  METHODS
  We conducted two population-based studies: (1) a cross-sectional study of deceased organ donor registration as of May 2013, and (2) a cohort study of the steps in proceeding with deceased organ donation for patients who died in hospital from October 2008 to December 2012.
  
  
  RESULTS
  A total of 49 938 of 559 714 Chinese individuals (8.9%) and 47 774 of 374 291 South Asians (12.8%) were registered for deceased organ donation, proportions lower than the general public (2 676 260 of 10 548 249 (25.4%). Among the 168 703 Ontarians who died in a hospital, the families of 33 of 81 Chinese (40.1%; 95% CI: 30.7%-51.6%) and 39 of 72 South Asian individuals (54.2%; 95% CI: 42.7-65.2%) consented for deceased organ donation, proportions lower than the general public (68.3%; 95% CI: 66.4%-70.0%).
  
  
  CONCLUSIONS
  In Ontario, Canada Chinese and South Asian individuals are less likely to register and their families are less likely to consent to deceased organ donation compared to the remaining general public. There is an opportunity to build support for organ and tissue donation in these two large ethnic communities in Canada.
authors.affiliation: Department of Epidemiology & Biostatistics, Western University, London, Ontario, Canada.
authors.forename: Alvin Ho-Ting
authors.initials: AH
authors.lastname: Li
authors.affiliation: Institute for Clinical Evaluative Sciences, Toronto, Ontario, Canada.
authors.forename: Eric
authors.initials: E
authors.lastname: McArthur
authors.affiliation: Trillium Gift of Life Network, Toronto, Ontario, Canada.
authors.forename: Janet
authors.initials: J
authors.lastname: Maclean
authors.affiliation: Trillium Gift of Life Network, Toronto, Ontario, Canada.
authors.forename: Cynthia
authors.initials: C
authors.lastname: Isenor
authors.affiliation: Trillium Gift of Life Network, Toronto, Ontario, Canada.
authors.forename: Versha
authors.initials: V
authors.lastname: Prakash
authors.affiliation: Institute for Clinical Evaluative Sciences, Toronto, Ontario, Canada; Division of Nephrology, Department of Medicine, University of Toronto, Toronto, Ontario, Canada.
authors.forename: S Joseph
authors.initials: SJ
authors.lastname: Kim
authors.affiliation: Division of Nephrology and Ottawa Hospital Research Institute, The Ottawa Hospital and University of Ottawa, Ottawa, Ontario, Canada.
authors.forename: Greg
authors.initials: G
authors.lastname: Knoll
authors.affiliation: Institute for Clinical Evaluative Sciences, Toronto, Ontario, Canada; Department of Medicine, University of Toronto, Toronto, Ontario, Canada.
authors.forename: Baiju
authors.initials: B
authors.lastname: Shah
authors.affiliation: Department of Epidemiology & Biostatistics, Western University, London, Ontario, Canada; Institute for Clinical Evaluative Sciences, Toronto, Ontario, Canada.
authors.forename: Amit X
authors.initials: AX
authors.lastname: Garg
mesh_terms: D000328:Adult; D000368:Aged; D001208:Asia / Q000208:ethnology; D002102:Cadaver; D002681:China / Q000208:ethnology; D015331:Cohort Studies; D003430:Cross-Sectional Studies; D005190:Family; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D009864:Ontario; D009927:Tissue and Organ Procurement; D055815:Young Adult