title: Knowledge and Educational Needs about Pre-Implantation Genetic Diagnosis (PGD) among Oncology Nurses.
abstract: Preimplantation genetic diagnosis (PGD), a form of assisted reproductive technology, is a new technology with limited awareness among health care professionals and hereditary cancer families. Nurses play a key role in the care of patients and are often in an ideal position to discuss and refer patients on sensitive quality of life issues, such as PGD. Two hundred and one nurses at Moffitt Cancer Center (MCC) responded to an online survey assessing knowledge and educational needs regarding PGD and families with hereditary cancer. The majority of respondents were female (n = 188), white (n = 175), had an RN/BSN degree (n = 83), and provided outpatient care at the cancer center (n = 102). More than half of respondents (78%) were unfamiliar with PGD prior to the survey and respondents who had heard of PGD had limited knowledge. More than half of the participants reported PGD was an acceptable option for families with hereditary cancer syndromes and thought individuals with a strong family or personal history should be provided with information about PGD. This study indicates that oncology nurses may benefit from and desire education about PGD. With advances in reproductive technology and options, further PGD education is needed among healthcare professionals. An examination of current oncology nursing curriculum and competencies regarding genetic education may identify need for future revisions and updates.
authors.affiliation: Department of Oncologic Sciences, Morsani College of Medicine, University of South Florida, 12901 Bruce B Downs Blvd #11, Tampa, FL 33612, USA. gwen.quinn@moffitt.org.|Department of Health Outcomes & Behavior, H. Lee Moffitt Cancer Center and Research Institute, Moffitt Cancer Center, MRC CANCONT, 12902 Magnolia Drive, Tampa, FL 33612, USA. gwen.quinn@moffitt.org.
authors.forename: Gwendolyn P
authors.initials: GP
authors.lastname: Quinn
authors.affiliation: Department of Health Outcomes and Policy, University of Florida, 1329 SW 16th St., Gainesville, FL 32608, USA. caprice1@ufl.edu.
authors.forename: Caprice
authors.initials: C
authors.lastname: Knapp
authors.affiliation: Department of Health Outcomes & Behavior, H. Lee Moffitt Cancer Center and Research Institute, Moffitt Cancer Center, MRC CANCONT, 12902 Magnolia Drive, Tampa, FL 33612, USA. ivana.sehovic@moffitt.org.
authors.forename: Ivana
authors.initials: I
authors.lastname: Sehovic
authors.affiliation: Department of Health Outcomes & Behavior, H. Lee Moffitt Cancer Center and Research Institute, Moffitt Cancer Center, MRC CANCONT, 12902 Magnolia Drive, Tampa, FL 33612, USA. danielle.ung@moffitt.org.
authors.forename: Danielle
authors.initials: D
authors.lastname: Ung
authors.affiliation: Department of Health Outcomes & Behavior, H. Lee Moffitt Cancer Center and Research Institute, Moffitt Cancer Center, MRC CANCONT, 12902 Magnolia Drive, Tampa, FL 33612, USA. meghan.bowman@moffitt.org.
authors.forename: Meghan
authors.initials: M
authors.lastname: Bowman
authors.affiliation: Department of Health Outcomes & Behavior, H. Lee Moffitt Cancer Center and Research Institute, Moffitt Cancer Center, MRC CANCONT, 12902 Magnolia Drive, Tampa, FL 33612, USA. lgonzal3@health.usf.edu.
authors.forename: Luis
authors.initials: L
authors.lastname: Gonzalez
authors.affiliation: Department of Oncologic Sciences, Morsani College of Medicine, University of South Florida, 12901 Bruce B Downs Blvd #11, Tampa, FL 33612, USA. susan.vadaparampil@moffitt.org.|Department of Health Outcomes & Behavior, H. Lee Moffitt Cancer Center and Research Institute, Moffitt Cancer Center, MRC CANCONT, 12902 Magnolia Drive, Tampa, FL 33612, USA. susan.vadaparampil@moffitt.org.
authors.forename: Susan T
authors.initials: ST
authors.lastname: Vadaparampil
keywords: hereditary cancer; nurse; oncology; pre implantation genetic diagnosis