title: Clients' Perception of Outcome of Team-Based Prenatal and Reproductive Genetic Counseling in Serbian Service Using the Perceived Personal Control (PPC) Questionnaire.
abstract: This is the first study in Serbia and the region of South-East Europe dedicated to clients' perception of outcome and efficiency of prenatal and reproductive genetic counseling. The primary aim of this study was to assess overall value and success of genetic counseling in prenatal and reproductive care with regard to perceived personal control of clients, reflecting also in a part patient comprehension, knowledge retention, and empowerment in decision-making. The standardized Perceived Personal Control questionnaire (PPC) was used for the assessment of 239 female participants. First, we performed a complete validation of the psychometric characteristics of the Serbian-language version of the PPC questionnaire. The validation of the questionnaire permits other researchers from Serbian-speaking regions of South-East Europe to use this standard instrument to assess the effectiveness of prenatal genetic counseling in their communities and analyze advantages and disadvantages of their counseling models. We also measured social and demographic characteristics of participants. Further, we analyzed effects of our team-based prenatal and reproductive genetic counseling model through (a) calculation of PPC scores at three different stages (before initial, after initial, and before second counseling session), and (b) by assessing participants' responses by indication for referral (advanced maternal age, abnormal biochemical screening, family history of hereditary disorders, maternal exposure to drugs, exposure to radiation, exposure to infective agents, infertility or recurrent abortions, and miscellaneous). The results indicate that participants' knowledge after initial counseling increased significantly and after that remained stable and sustainable. A satisfactory level of confidence among participants had been achieved, in that many felt an increased sense of control over their situation and emotional response to it. Indirectly, these results indicate the success of a team-based prenatal genetic counseling model, which has not been assessed in the literature to date.
authors.affiliation: Faculty of Medicine, University of Belgrade, Belgrade, Serbia. udkgenetika@udk.bg.ac.rs.|Department of Medical Genetics, University Children's Hospital, Tirsova 10, 11000, Belgrade, Serbia. udkgenetika@udk.bg.ac.rs.
authors.forename: Goran
authors.initials: G
authors.lastname: Cuturilo
authors.affiliation: Faculty of Medicine, University of Belgrade, Belgrade, Serbia.|Clinic for Gynecology and Obstetrics, Clinical Center of Serbia, Belgrade, Serbia.
authors.forename: Olivera Kontic
authors.initials: OK
authors.lastname: Vucinic
authors.affiliation: Faculty of Medicine, University of Belgrade, Belgrade, Serbia.|Institute for Human Genetics, Belgrade, Serbia.
authors.forename: Ivana
authors.initials: I
authors.lastname: Novakovic
authors.affiliation: Institute for Medical Biochemistry, Clinical Center of Serbia, Faculty of Pharmacy, University of Belgrade, Belgrade, Serbia.
authors.forename: Svetlana
authors.initials: S
authors.lastname: Ignjatovic
authors.affiliation: Department of Medical Genetics, University Children's Hospital, Tirsova 10, 11000, Belgrade, Serbia.
authors.forename: Marija
authors.initials: M
authors.lastname: Mijovic
authors.affiliation: Clinic for Gynecology and Obstetrics, Clinical Center of Serbia, Belgrade, Serbia.
authors.forename: Nenad
authors.initials: N
authors.lastname: Sulovic
authors.affiliation: Clinic for Gynecology and Obstetrics, Clinical Center of Serbia, Belgrade, Serbia.
authors.forename: Dusan
authors.initials: D
authors.lastname: Vukolic
authors.affiliation: Clinic for Gynecology and Obstetrics, Clinical Center of Serbia, Belgrade, Serbia.
authors.forename: Milica
authors.initials: M
authors.lastname: Komnenic
authors.affiliation: Clinic for Gynecology and Obstetrics, Clinical Center of Serbia, Belgrade, Serbia.
authors.forename: Jasmina
authors.initials: J
authors.lastname: Tadic
authors.affiliation: Clinic for Gynecology and Obstetrics, Clinical Center of Serbia, Belgrade, Serbia.
authors.forename: Aleksandar
authors.initials: A
authors.lastname: Cetkovic
authors.affiliation: Clinic for Gynecology and Obstetrics, Clinical Center of Serbia, Belgrade, Serbia.
authors.forename: Aleksandra
authors.initials: A
authors.lastname: Belic
authors.affiliation: Faculty of Medicine, University of Belgrade, Belgrade, Serbia.|Clinic for Gynecology and Obstetrics, Clinical Center of Serbia, Belgrade, Serbia.|Medigroup, General Hospital, Belgrade, Serbia.
authors.forename: Aleksandar
authors.initials: A
authors.lastname: Ljubic
mesh_terms: D000328:Adult; D003657:Decision Making; D005260:Female; D005817:Genetic Counseling / Q000523:psychology*; D006801:Humans; D008297:Male; D017063:Outcome Assessment, Health Care; D010342:Patient Acceptance of Health Care; D010549:Personal Satisfaction; D011296:Prenatal Diagnosis / Q000523:psychology*; D012098:Reproduction; D012649:Self Concept; D055771:Serbia; D011795:Surveys and Questionnaires; D055815:Young Adult
keywords: Outcome; Perceived Personal Control (PPC); Prenatal genetic counseling; Questionnaire; Satisfaction; Serbia; South-East Europe; Validation