title: Understanding Information About Mortality Among People with Intellectual and Developmental Disabilities in Canada.
abstract: BACKGROUND
  This paper reviews what is currently known about mortality among Canadians with intellectual and developmental disabilities and describes opportunities for ongoing monitoring.
  
  
  METHODS
  In-hospital mortality among adults with intellectual and developmental disabilities in Ontario was examined using hospital data. Mortality was compared between age-, sex- and residence area-matched groups of Manitobans with and without intellectual and developmental disabilities using linked administrative data. A retrospective cohort study of mortality among individuals with intellectual and developmental disabilities in a region of Ontario focused on measuring excess mortality and risk factors.
  
  
  RESULTS
  There is evidence of excess mortality in persons with intellectual and developmental disabilities in Canada. Some of the excess is attributable to comorbidities that are more common in this population. Women may have a greater risk of death than men. Excess mortality occurs at all ages but is more pronounced in early life.
  
  
  CONCLUSIONS
  High-quality ongoing monitoring of mortality among individuals with intellectual and developmental disabilities is possible in Canada. Examination of sex differences should be a priority.
authors.affiliation: Department of Public Health Sciences, Queen's University, Kingston, ON, Canada.|Ongwanada, Kingston, ON, Canada.|Institute for Clinical Evaluative Sciences, Toronto, ON, Canada.
authors.forename: Hélène
authors.initials: H
authors.lastname: Ouellette-Kuntz
authors.affiliation: Department of Community Health Sciences, University of Manitoba, Winnipeg, MB, Canada.|St. Amant Research Centre, Winnipeg, MB, Canada.
authors.forename: Shahin
authors.initials: S
authors.lastname: Shooshtari
authors.affiliation: Institute for Clinical Evaluative Sciences, Toronto, ON, Canada.|Faculty of Health Sciences, University of Ontario Institute of Technology, Toronto, ON, Canada.
authors.forename: Robert
authors.initials: R
authors.lastname: Balogh
authors.affiliation: Department of Community Health Sciences, University of Manitoba, Winnipeg, MB, Canada.|Manitoba Centre for Health Policy, Winnipeg, MB, Canada.
authors.forename: Patricia
authors.initials: P
authors.lastname: Martens
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D002423:Cause of Death / Q000639:trends*; D002648:Child; D002675:Child, Preschool; D002658:Developmental Disabilities / Q000401:mortality*; D005260:Female; D017052:Hospital Mortality / Q000639:trends*; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D008607:Intellectual Disability / Q000401:mortality*; D008297:Male; D008875:Middle Aged; D061213:Mortality, Premature / Q000639:trends*; D009864:Ontario / Q000453:epidemiology; D012189:Retrospective Studies; D012307:Risk Factors; D055815:Young Adult
keywords: Canada; administrative data; intellectual disabilities; mortality