Streaming Physiological Data: General Public Perceptions of Secondary Use and Application to Research in Neonatal Intensive Care.
High speed physiological data represents one of the most untapped resources in healthcare today and is a form of Big Data. Physiological data is captured and displayed on a wide range of devices in healthcare environments. Frequently this data is transitory and lost once initially displayed. Researchers wish to store and analyze these datasets, however, there is little evidence of any engagement with citizens regarding their perceptions of physiological data capture for secondary use. This paper presents the findings of a self-administered household survey (n=165, response rate = 34%) that investigated Australian and Canadian citizens' perceptions of such physiological data capture and re-use. Results indicate general public support for the secondary use of physiological streaming data. Discussion considers the potential application of such data in neonatal intensive care contexts in relation to our Artemis research. Consideration of the perceptions of secondary use of the streaming data as early as possible will assist in building appropriate use models, with a focus on parents in the neonatal context.
Faculty of Business and Information Technology, University of Ontario Institute of Technology, Oshawa, Canada.
Carolyn
C
McGregor
Business Analysis & Learning Analytics, University of Wollongong, Wollongong, Australia.
Jennifer
J
Heath
Faculty of Health Sciences, University of Ontario Institute of Technology, Oshawa, Canada.
Yvonne
Y
Choi
D001294:Attitude to Health; D001315:Australia; D035843:Biomedical Research / Q000706:statistics & numerical data*; D002170:Canada; D066264:Datasets as Topic / Q000706:statistics & numerical data*; D057286:Electronic Health Records / Q000706:statistics & numerical data; D016247:Information Storage and Retrieval / Q000379:methods / Q000706:statistics & numerical data; D015931:Intensive Care, Neonatal / Q000706:statistics & numerical data*; D008991:Monitoring, Physiologic / Q000706:statistics & numerical data*; D010290:Parents; D011639:Public Opinion; D011795:Surveys and Questionnaires