Parent-to-Child Transition in Managing Cystic Fibrosis: A Research Synthesis.
Although parents and children must adhere to five primary treatments for cystic fibrosis (CF), and their roles transition over time, the scope of CF studies often has been limited to one treatment regimen or to children within a specified age range. The purpose of this mixed research synthesis study is to integrate findings from qualitative and quantitative studies addressing the transition of CF management from parent to child, as well as factors related to adherence across treatments and over time. An existing grounded theory was used as a framework to synthesize findings in 17 reports from 16 studies. The results confirm the theory and posit three additional factors that may influence parent-to-child transition of care management.
School of Nursing, University of North Carolina at Chapel Hill.
Jennifer
J
Leeman
School of Nursing, University of North Carolina at Chapel Hill.
Margarete
M
Sandelowski
School of Nursing, University of North Carolina at Chapel Hill.
Nancy L
NL
Havill
School of Nursing, University of North Carolina at Chapel Hill.
Kathleen
K
Knafl
Cystic fibrosis; disease management; family; grounded theory; research synthesis; transition to adult care