Living with Lung Cancer--Patients' Experiences as Input to eHealth Service Design.
The objective of the study is to describe the lung cancer care process as experienced by patients, as well as to perform a qualitative analysis of problems they encounter throughout the patient journey. A user-centered design approach was used and data collected through two focus group meetings with patients. We present the results in the form of a patient journey model, descriptions of problems related to the journey as expressed by patients and proposed eHealth services discussed by patients in the focus groups. The results indicate that not only is the patient journey fragmented and different for each patient going through it depending upon their specific type of lung cancer and treatment options, but their experiences are also highly individual and dependent on their personal needs and interpretations of the process. Designing eHealth to improve the patient journey will therefore require flexibility and adaptability to the individual's needs.
Health Informatics Centre, department of Learning Informatics, Management and Ethics, Karolinska Institutet, Stockholm, Sweden.
Maria
M
Hägglund
Health Informatics Centre, department of Learning Informatics, Management and Ethics, Karolinska Institutet, Stockholm, Sweden.
Peter
P
Bolin
Health Informatics Centre, department of Learning Informatics, Management and Ethics, Karolinska Institutet, Stockholm, Sweden.
Sabine
S
Koch
D001294:Attitude to Health; D019091:Critical Pathways / Q000706:statistics & numerical data*; D057286:Electronic Health Records / Q000706:statistics & numerical data*; D017144:Focus Groups; D008175:Lung Neoplasms / Q000175:diagnosis* / Q000523:psychology / Q000628:therapy*; D020380:Needs Assessment; D010358:Patient Participation / Q000706:statistics & numerical data; D057240:Patient Preference / Q000706:statistics & numerical data*; D010360:Patient Transfer / Q000706:statistics & numerical data; D013548:Sweden; D017216:Telemedicine / Q000706:statistics & numerical data