Factors Influencing Consent for Electronic Data Linkage in Urban Latinos.
Within the context of patient participation in a Learning Health System, this study examined consent rates and factors associated with consent for linking survey data with electronic clinical data in a sample of 2,271 Latinos. Consent rate was 96.3%. Government insurance status and health literacy significantly influenced the odds of consent.
School of Nursing, Columbia University, New York, NY, USA.
Suzanne
S
Bakken
School of Nursing, Columbia University, New York, NY, USA.
Sunmoo
S
Yoon
School of Nursing, Columbia University, New York, NY, USA.
Niurka
N
Suero-Tejeda
D003219:Confidentiality / Q000941:ethics*; D057286:Electronic Health Records / Q000941:ethics / Q000706:statistics & numerical data; D006630:Hispanic or Latino / Q000706:statistics & numerical data*; D006801:Humans; D016247:Information Storage and Retrieval / Q000941:ethics*; D007258:Informed Consent / Q000706:statistics & numerical data; D009519:New York City / Q000453:epidemiology; D013048:Specimen Handling / Q000941:ethics* / Q000706:statistics & numerical data; D011795:Surveys and Questionnaires