The use of health related quality of life data to produce information sheets for patients with head and neck cancer.
BACKGROUND
Health related quality of life information gives patients and carers an indication of how they will be affected following treatment. Such knowledge can promote realistic expectations and help patients come to terms with their outcome. The aim of this paper is to describe the background development of patient information sheets produced at our unit.


METHODS
The data were compiled using a common head and neck cancer specific quality of life questionnaire (University of Washington Quality of Life [UW-QOL]). There are 12 domains comprising activity, appearance, anxiety, chewing, mood, pain, recreation, saliva, shoulder, speech, swallowing and taste. The data were collected over 19 years at our unit and focus on follow-up records at around 2 years as this gives a good indication of health related quality of life in survivorship. UW-QOL questionnaires were available from 1,511 patients treated following primary diagnosis of head and neck cancer, and there were 24 subgroups based on cancer site, stage and treatment. There were 2 other subgroups: 132 having transoral laser resection and 176 having laryngectomy.


RESULTS
The patient and carer research forum helped to design the information sheets, which display overall quality of life, percentages with 'good' outcome and 'significant problem' by domain, and the most important domains. Three examples are included in this paper: early stage oral cancer treated by surgery alone, early laryngeal cancer treated by surgery alone, and late stage oropharyngeal cancer treated by surgery and postoperative radiotherapy. All 26 subgroup information sheets are available in booklet form and on the internet.


CONCLUSIONS
How the surgical community best utilises this type of resource needs further research.
Edge Hill University , UK.
S N
SN
Rogers
University of Liverpool , UK.
E S
ES
Hogg
University of Liverpool , UK.
W K A
WK
Cheung
University of Liverpool , UK.
L K L
LK
Lai
University of Liverpool , UK.
P
P
Jassal
Edge Hill University , UK.
D
D
Lowe
D015331:Cohort Studies; D006258:Head and Neck Neoplasms / Q000453:epidemiology* / Q000401:mortality / Q000523:psychology / Q000628:therapy; D006801:Humans; D033181:Information Dissemination / Q000379:methods*; D010353:Patient Education as Topic / Q000379:methods*; D011788:Quality of Life; D057566:Self Report; D011795:Surveys and Questionnaires; D016896:Treatment Outcome; D014861:Washington / Q000453:epidemiology
Expectations; Head and neck cancer; Health related quality of life; Information; Patient reported outcomes; University of Washington Quality of Life