[Conception and Measurement of Health-related Transition Competence for Adolescents with Chronic Conditions - Development and Testing of a Self-Report Instrument].
Background:The importance of health-related care and self-management responsibilities has been shown in recent research. The aim of this work is the development and psychometric testing of an instrument to assess health-related transition competence.Methods:The instrument was developed with psychometric and conceptual methods in several steps. Based on focus group and expert interviews, an item pool to assess health-related transition competence was developed. The instrument was tested and finalised in a pilot study with adolescents with chronic conditions (N=323).Results:Three subscales "work-related preparedness" (3 items), "condition-related knowledge" (3 items) and "health-care competence" (4 items) with proper psychometric properties were identified. The subscales can be combined to a global score.Conclusions:The scales feature good psychometrics. They efficiently facilitate the standardised assessment of health-related transition competence in preparation and progress of the transition. This also enables for outcome assessment of health-care services related to transition competence (e. g., workshops).
Lehrstuhl Gesundheit und Prävention, Universität Greifswald, Greifswald.
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Herrmann-Garitz
Lehrstuhl Gesundheit und Prävention, Universität Greifswald, Greifswald.
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Muehlan
Klinik für Kinder- und Jugendmedizin, Campus Lübeck, Universität Lübeck, Lübeck.
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Bomba
Klinik für Kinder- und Jugendmedizin, Campus Lübeck, Universität Lübeck, Lübeck.
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Thyen
Lehrstuhl Gesundheit und Prävention, Universität Greifswald, Greifswald.
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Schmidt
D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D002908:Chronic Disease / Q000523:psychology* / Q000628:therapy*; D004185:Disability Evaluation; D005260:Female; D005858:Germany; D057220:Health Literacy; D006801:Humans; D008297:Male; D011594:Psychometrics; D012648:Self Care / Q000523:psychology*; D057566:Self Report; D011795:Surveys and Questionnaires; D060305:Transition to Adult Care; D055815:Young Adult