title: Sharing Public Health Research Data: Toward the Development of Ethical Data-Sharing Practice in Low- and Middle-Income Settings.
abstract: It is increasingly recognized that effective and appropriate data sharing requires the development of models of good data-sharing practice capable of taking seriously both the potential benefits to be gained and the importance of ensuring that the rights and interests of participants are respected and that risk of harms is minimized. Calls for the greater sharing of individual-level data from biomedical and public health research are receiving support among researchers and research funders. Despite its potential importance, data sharing presents important ethical, social, and institutional challenges in low-income settings. In this article, we report on qualitative research conducted in five low- and middle-income countries exploring the experiences of key research stakeholders and their views about what constitutes good data-sharing practice.
authors: University of Oxford, UK Michael.parker@ethox.ox.ac.uk.
authors: Michael
authors: M
authors: Parker
authors: University of Oxford, UK.
authors: Susan
authors: S
authors: Bull
mesh_terms: D035843:Biomedical Research; D003299:Cooperative Behavior; D003625:Data Collection; D003906:Developing Countries; D006801:Humans; D007182:Income; D033181:Information Dissemination / Q000941:ethics*; D011634:Public Health; D036301:Qualitative Research; D012108:Research Personnel
keywords: biomedical research ethics; data release; data sharing; low-income countries; research data; research governance