title: Robin sequence: A European survey on current practice patterns.
abstract: To provide an overview of current practice patterns with regard to Robin sequence (RS) patients in Europe, a survey was conducted among European clinicians. This online survey consisted of different sections assessing characteristics of the respondent and clinic, definition, diagnosis, treatment, and follow-up. In total, surveys from 101 different European clinics were included in the analysis, and 56 different RS definitions were returned. The majority (72%) of the respondents used a sleep study system to determine the severity of the airway obstruction. A total of 63% used flexible endoscopy and 16% used rigid endoscopy in the diagnostic process. Treatment of the airway obstruction differed considerably between the different countries. Prone positioning for mild airway obstruction was the treatment modality used most often (63%). When prone positioning was not successful, a nasopharyngeal airway was used (62%). Surgical therapies varied considerably among countries. For severe obstruction, mandibular distraction was performed most frequently. Three-quarters of the respondents noted the presence of catch-up growth in their patient population. This first European survey study on definition and management of RS shows that there are considerable differences within Europe. Therefore, we would encourage the establishment of national (and international) guidelines to optimize RS patient care.
authors: Department of Oral and Maxillofacial Surgery, Erasmus Medical Center, Room D-210, 3000 CA Rotterdam, The Netherlands. Electronic address: m.vanlieshout@erasmusmc.nl.
authors: Manouk J S
authors: MJ
authors: van Lieshout
authors: Department of Pediatrics, Erasmus Medical Center, Room D-210, 3000 CA Rotterdam, The Netherlands. Electronic address: k.joosten@erasmusmc.nl.
authors: Koen F M
authors: KF
authors: Joosten
authors: Department of Plastic, Reconstructive and Hand Surgery, Erasmus Medical Center, Room D-210, 3000 CA Rotterdam, The Netherlands. Electronic address: i.mathijssen@erasmusmc.nl.
authors: Irene M J
authors: IM
authors: Mathijssen
authors: Department of Oral and Maxillofacial Surgery, Erasmus Medical Center, Room D-210, 3000 CA Rotterdam, The Netherlands. Electronic address: m.koudstaal@erasmusmc.nl.
authors: Maarten J
authors: MJ
authors: Koudstaal
authors: Department of Otorhinolaryngology-Head and Neck Surgery, Erasmus Medical Center, Room D-210, 3000 CA Rotterdam, The Netherlands. Electronic address: l.j.hoeve@erasmusmc.nl.
authors: Hans L J
authors: HL
authors: Hoeve
authors: Department of Otorhinolaryngology-Head and Neck Surgery, Erasmus Medical Center, Room D-210, 3000 CA Rotterdam, The Netherlands. Electronic address: m.vanderschroeff@erasmusmc.nl.
authors: Marc P
authors: MP
authors: van der Schroeff
authors: Department of Oral and Maxillofacial Surgery, Erasmus Medical Center, Room D-210, 3000 CA Rotterdam, The Netherlands. Electronic address: e.wolvius@erasmusmc.nl.
authors: Eppo B
authors: EB
authors: Wolvius
mesh_terms: D058109:Airway Management / Q000295:instrumentation; D000402:Airway Obstruction / Q000175:diagnosis / Q000601:surgery / Q000628:therapy; D003430:Cross-Sectional Studies; D019723:Endoscopes; D004724:Endoscopy / Q000379:methods; D005060:Europe; D006801:Humans; D007440:Intubation / Q000295:instrumentation; D008334:Mandible / Q000254:growth & development / Q000601:surgery; D019857:Osteogenesis, Distraction / Q000379:methods; D010347:Patient Care Planning; D010348:Patient Care Team; D056888:Patient Positioning; D010855:Pierre Robin Syndrome / Q000175:diagnosis / Q000601:surgery / Q000628:therapy*; D017286:Polysomnography / Q000379:methods; D017410:Practice Guidelines as Topic; D010818:Practice Patterns, Physicians'; D016684:Prone Position
keywords: Diagnosis; Europe; Robin sequence; Survey; Treatment