title: Engagement and experience with cancer-related follow-up care among young adult survivors of childhood cancer after transfer to adult care.
abstract: OBJECTIVE
  Young adult survivors (YAS) of childhood cancer require annual adult-focused, cancer-related follow-up given their risk for late effects of treatment. This study describes perception of and engagement with adult-focused, cancer-related follow-up care and general health care among YAS formally transferred to adult care from pediatric survivorship care.
  
  
  METHODS
  YAS transferred from pediatric survivorship care in the prior 1-5 years completed measures indicating engagement with cancer-related follow-up care, other health care utilization, content of communication by providers, quality of cancer-related care, and satisfaction with health care in the prior year.
  
  
  RESULTS
  Eighty YAS (M age = 27.7 years, M time since diagnosis = 10.4 years) participated. Just over half of YAS surveyed (n = 44, 55%) endorsed continuing cancer-related follow-up care since transfer. Those with cancer-related follow-up endorsed seeing subspecialty survivorship providers (n = 16, 44%) and primary care providers (n = 22, 50%) or utilizing a shared care model (n = 6, 14%). About a third of YAS endorsed seeing subspecialists (n = 29, 36%) or using other support services (n = 22, 27%). YAS-perceived content of communication varied significantly depending on care model with less cancer-related content being discussed by primary care providers, though perceived quality of cancer-related care and satisfaction with health care was generally favorable.
  
  
  CONCLUSIONS
  YAS report less than optimal engagement in cancer-related follow-up care and communication in their health care encounters.
  
  
  CONCLUSIONS
  Young adult survivors should receive anticipatory guidance about expectations for delivery and content of adult-focused cancer-related follow-up care.
authors: The Children's Hospital of Philadelphia, CTRB 3-016, 3501 Civic Center Blvd, Philadelphia, PA, 19104, USA. szaldad@email.chop.edu.|University of Pennsylvania, Philadelphia, PA, USA. szaldad@email.chop.edu.
authors: Dava
authors: D
authors: Szalda
authors: The Children's Hospital of Philadelphia, CTRB 3-016, 3501 Civic Center Blvd, Philadelphia, PA, 19104, USA.|University of Pennsylvania, Philadelphia, PA, USA.
authors: Lisa
authors: L
authors: Pierce
authors: The Children's Hospital of Philadelphia, CTRB 3-016, 3501 Civic Center Blvd, Philadelphia, PA, 19104, USA.|University of Pennsylvania, Philadelphia, PA, USA.
authors: Wendy
authors: W
authors: Hobbie
authors: The Children's Hospital of Philadelphia, CTRB 3-016, 3501 Civic Center Blvd, Philadelphia, PA, 19104, USA.|University of Pennsylvania, Philadelphia, PA, USA.
authors: Jill P
authors: JP
authors: Ginsberg
authors: The Children's Hospital of Philadelphia, CTRB 3-016, 3501 Civic Center Blvd, Philadelphia, PA, 19104, USA.|University of Pennsylvania, Philadelphia, PA, USA.
authors: Lauren
authors: L
authors: Brumley
authors: The Children's Hospital of Philadelphia, CTRB 3-016, 3501 Civic Center Blvd, Philadelphia, PA, 19104, USA.|University of Pennsylvania, Philadelphia, PA, USA.
authors: Monika
authors: M
authors: Wasik
authors: The Children's Hospital of Philadelphia, CTRB 3-016, 3501 Civic Center Blvd, Philadelphia, PA, 19104, USA.|University of Pennsylvania, Philadelphia, PA, USA.
authors: Yimei
authors: Y
authors: Li
authors: The Children's Hospital of Philadelphia, CTRB 3-016, 3501 Civic Center Blvd, Philadelphia, PA, 19104, USA.|University of Pennsylvania, Philadelphia, PA, USA.
authors: Lisa A
authors: LA
authors: Schwartz
mesh_terms: D000293:Adolescent; D000328:Adult; D002648:Child; D002675:Child, Preschool; D003695:Delivery of Health Care / Q000592:standards*; D005260:Female; D005500:Follow-Up Studies; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D008297:Male; D009369:Neoplasms / Q000401:mortality / Q000534:rehabilitation* / Q000628:therapy; D010372:Pediatrics; D011795:Surveys and Questionnaires; D017741:Survivors / Q000523:psychology*; D060305:Transition to Adult Care / Q000592:standards*; D055815:Young Adult
keywords: Communication; Health care utilization; Quality; Transition to adult care; Young adult survivors