title: Conflicting Values: A Case Study in Patient Choice and Caregiver Perspectives.
abstract: Decisions related to births in the "gray zone" of periviability are particularly challenging. Despite published management guidelines, clinicians and families struggle to negotiate care management plans. Stakeholders must reconcile conflicting values in the context of evolving circumstances with a high degree of uncertainty within a short time period. Even skilled clinicians may struggle to guide the patient in making value-laden decisions without imposing their own values. Exploring the experiences of one pregnant woman and her caregivers, this case study highlights how bias may undermine caregivers' ability to meet their obligation to enhance patient autonomy and the moral distress they may experience when a patient's values do not align with their own. Management strategies to mitigate the potential impact of bias and related moral distress are identified. The authors then describe one management strategy used in this case, facilitated ethics consultation, which is focused on thoughtful consideration of the patient's perspective.
authors: Margot M
authors: MM
authors: Eves
authors: Phoebe Day
authors: PD
authors: Danziger
authors: Ruth M
authors: RM
authors: Farrell
authors: Cristie M
authors: CM
authors: Cole
mesh_terms: D001291:Attitude of Health Personnel; D017028:Caregivers / Q000941:ethics / Q000523:psychology; D003657:Decision Making / Q000941:ethics*; D006233:Persons with Disabilities; D034462:Dissent and Disputes; D033061:Ethics Consultation; D005260:Female; D005865:Gestational Age; D006801:Humans; D009014:Morals; D010358:Patient Participation; D018579:Patient Selection; D026684:Personal Autonomy; D010817:Physician-Patient Relations / Q000941:ethics*; D011247:Pregnancy; D011256:Pregnancy Outcome; D047928:Premature Birth; D012306:Risk; D013315:Stress, Psychological