title: Trust, Respect, and Reciprocity: Informing Culturally Appropriate Data-Sharing Practice in Vietnam.
abstract: International science funders and publishers are driving a growing trend in data sharing. There is mounting pressure on researchers in low- and middle-income settings to conform to new sharing policies, despite minimal empirically grounded accounts of the ethical challenges of implementing the policies in these settings. This study used in-depth interviews and focus group discussions with 48 stakeholders in Vietnam to explore the experiences, attitudes, and expectations that inform ethical and effective approaches to sharing clinical research data. Distinct views on the role of trust, respect, and reciprocity were among those that emerged to inform culturally appropriate best practices. We conclude by discussing the challenges that authors of data-sharing policies should consider in this unique context.
authors: Oxford University Clinical Research Unit, Ho Chi Minh City, Vietnam Lmerson@oucru.org.
authors: Laura
authors: L
authors: Merson
authors: Oxford University Clinical Research Unit, Ho Chi Minh City, Vietnam.
authors: Tran Viet
authors: TV
authors: Phong
authors: Children's Hospital 1, Ho Chi Minh City, Vietnam.
authors: Le Nguyen Thanh
authors: le NT
authors: Nhan
authors: Hospital for Tropical Diseases, Ho Chi Minh City, Vietnam.
authors: Nguyen Thanh
authors: NT
authors: Dung
authors: National Hospital for Tropical Diseases, Ha Noi, Vietnam.
authors: Ta Thi Dieu
authors: TT
authors: Ngan
authors: National Hospital for Tropical Diseases, Ha Noi, Vietnam.
authors: Nguyen Van
authors: NV
authors: Kinh
authors: University of Oxford, UK.
authors: Michael
authors: M
authors: Parker
authors: University of Oxford, UK.
authors: Susan
authors: S
authors: Bull
mesh_terms: D001290:Attitude; D035843:Biomedical Research; D003299:Cooperative Behavior; D003469:Culture; D003625:Data Collection; D003906:Developing Countries; D017144:Focus Groups; D006801:Humans; D007182:Income; D033181:Information Dissemination / Q000941:ethics*; D057766:Policy; D036301:Qualitative Research; D012108:Research Personnel; D035842:Research Subjects; D012111:Residence Characteristics; D035502:Trust; D014744:Vietnam
keywords: Vietnam; access to information; biomedical data; clinical data; data sharing; ethics; information dissemination; qualitative methods