Perspectives About Health Care Provision in Dementia Care in Spain: A Qualitative Study Using Focus-Group Methodology.
BACKGROUND
The aim of this study is to identify the barriers and facilitators in dementia care with respect to information provision, communication, and collaboration from the perspectives of the person with dementia, family caregivers, and health care professionals over the course of the illness.


METHODS
A qualitative study using Focus-Group methodology was carried out in people with dementia, family caregivers, and health care providers.


RESULTS
The categories that emerged from the analysis were insufficient information provided, specific dementia care needs, and acceptance of long-term care institutionalization from the people with dementia and caregivers' groups and insufficient communication between health care providers, differential information according to disease stage, and home care coordination from the health care providers' groups.


CONCLUSIONS
The family is a key element in successful care coordination during dementia care provision. New effective strategies including self-management and emergent roles, such as case managers, could bring great benefits to people with dementia, caregivers, and health care providers.
Department of Nursing, Hospital Clínic de Barcelona, Barcelona, Spain erisco@clinic.ub.es.
Ester
E
Risco
School of Health Sciences TecnoCampus, Pompeu Fabra University, Mataró, Spain.
Esther
E
Cabrera
Department of Nursing, Hospital Clínic de Barcelona, Barcelona, Spain.
Marta
M
Farré
Department of Nursing, Comte Borrell Primary Care, Comte Borrell, Barcelona, Spain.
Carme
C
Alvira
School of Health Sciences Gimbernat i Tomàs Cerdà, UAB. Av. de la Generalitat, Barcelona, Spain.
Susana
S
Miguel
Department of Nursing, Hospital Clínic de Barcelona, Barcelona, Spain.
Adelaida
A
Zabalegui
D000368:Aged; D000369:Aged, 80 and over; D017028:Caregivers; D003704:Dementia / Q000451:nursing*; D005190:Family / Q000523:psychology*; D017144:Focus Groups; D006282:Health Personnel; D006801:Humans; D008134:Long-Term Care; D008875:Middle Aged; D010342:Patient Acceptance of Health Care / Q000523:psychology*; D011368:Professional-Family Relations; D036301:Qualitative Research; D013030:Spain
collaboration; communication; dementia care; focus group; information