title: Problems of patients with cystic fibrosis during transition to adulthood.
abstract: The proper care of cystic fibrosis patients extends over their lifetime. More than half of the children with the disease die before adulthood. An important element in the patient's care is a time of transition from a paediatric to the care of an internist and the patient's acceptance of this necessity. Transition from paediatric care to an internist should be adequately prepared. It is not only a question of transfer of medical records, but also careful preparation of patients for such transition. The patients expect not only continuity of care but also the introduction to the management with the disease. The creation of a base for specialist hospital treatment for exacerbation of the disease at the adulthood is an important element in the care of these patients. The problem has been solved in the children group, but is still waiting for solution in adults with cystic fibrosis. It has been proven that care in the centres carried out by a specialized team ensures longer life and better quality of life of these patients. The paper is an overview of these two important elements of care of adults with cystic fibrosis.
authors.affiliation: Department of Paediatric Pulmonology and Rheumatology, Medical University of Lublin, Poland. ftpulmza@sum.edu.pl.
authors.forename: Violetta
authors.initials: V
authors.lastname: Opoka-Winiarska
authors.forename: Szczepan
authors.initials: S
authors.lastname: Cofta
authors.forename: Henryk
authors.initials: H
authors.lastname: Mazurek
authors.forename: Jerzy
authors.initials: J
authors.lastname: Kozielski
mesh_terms: D000293:Adolescent; D000328:Adult; D002648:Child; D003550:Cystic Fibrosis; D006801:Humans; D011788:Quality of Life; D060305:Transition to Adult Care; D055815:Young Adult
keywords: childhood to adulthood; cystic fibrosis