title: [Concordance in the registry of dementia among the main sources of clinical information].
abstract: BACKGROUND
  The objective of this work was to analyse the concordance in the registry of dementia among the main sources of clinical information, with the aim of determining their usefulness for epidemiological and clinical research.
  
  
  METHODS
  Descriptive study of patients assigned to the Aragon Health Service in 2010 (n=1,344,891).
  
  
  METHODS
  (i)the pharmacy billing database (n=9,392); (ii)Primary Care electronic health records (EHR) (n=9,471), and (iii)the hospital minimum basic data set (n=3,289). When studying the concordance of the databases, the group of patients with a specific treatment for dementia (i.e., acetylcholinesterase inhibitors and/or memantine) was taken as the reference.
  
  
  RESULTS
  The diagnosis in Primary Care was missing for 47.3% of patients taking anti-dementia drugs. The same occurred with 38.3% of dementia patients admitted to hospital during the study year. Among patients with a diagnosis of dementia in the EHR, only half (52.3%) was under treatment for this condition. This percentage decreased to 34.4% in patients with the diagnosis registered in the hospital database.
  
  
  CONCLUSIONS
  The weak concordance in the registry of the dementia diagnosis between the main health information systems makes their use and analysis more complex, and supports the need to include all available health data sources in order to gain a global picture of the epidemiological and clinical reality of this health condition.
authors.affiliation: Grupo EpiChron de Investigación en Enfermedades Crónicas, Instituto Aragonés de Ciencias de la Salud (IACS), IIS Aragón, Hospital Universitario Miguel Servet, Zaragoza, España; Servicio de Neurología, Hospital Universitario Miguel Servet, Servicio Aragonés de Salud (SALUD), Zaragoza, España.
authors.forename: Javier
authors.initials: J
authors.lastname: Marta-Moreno
authors.affiliation: Unidad Docente de Medicina Preventiva y Salud Pública, Instituto Aragonés de Ciencias de la Salud (IACS), Zaragoza, España.
authors.forename: Blanca
authors.initials: B
authors.lastname: Obón-Azuara
authors.affiliation: Grupo EpiChron de Investigación en Enfermedades Crónicas, Instituto Aragonés de Ciencias de la Salud (IACS), IIS Aragón, Hospital Universitario Miguel Servet, Zaragoza, España; Centro de Salud de San Pablo (SALUD), Zaragoza, España; Universidad de Zaragoza, Zaragoza, España.
authors.forename: Luis
authors.initials: L
authors.lastname: Gimeno-Felíu
authors.affiliation: Unidad Docente de Medicina Familiar y Comunitaria, Servicio Aragonés de Salud (SALUD), Zaragoza, España.
authors.forename: Nesib Nicolás
authors.initials: NN
authors.lastname: Achkar-Tuglaman
authors.affiliation: Grupo EpiChron de Investigación en Enfermedades Crónicas, Instituto Aragonés de Ciencias de la Salud (IACS), IIS Aragón, Hospital Universitario Miguel Servet, Zaragoza, España; Red de Investigación en Servicios de Salud en Enfermedades Crónicas (REDISSEC), Instituto de Salud Carlos III , Madrid, España.
authors.forename: Beatriz
authors.initials: B
authors.lastname: Poblador-Plou
authors.affiliation: Grupo EpiChron de Investigación en Enfermedades Crónicas, Instituto Aragonés de Ciencias de la Salud (IACS), IIS Aragón, Hospital Universitario Miguel Servet, Zaragoza, España; Red de Investigación en Servicios de Salud en Enfermedades Crónicas (REDISSEC), Instituto de Salud Carlos III , Madrid, España. Electronic address: acalderon.iacs@aragon.es.
authors.forename: Amaia
authors.initials: A
authors.lastname: Calderón-Larrañaga
authors.affiliation: Grupo EpiChron de Investigación en Enfermedades Crónicas, Instituto Aragonés de Ciencias de la Salud (IACS), IIS Aragón, Hospital Universitario Miguel Servet, Zaragoza, España; Universidad de Zaragoza, Zaragoza, España; Red de Investigación en Servicios de Salud en Enfermedades Crónicas (REDISSEC), Instituto de Salud Carlos III , Madrid, España.
authors.forename: Alexandra
authors.initials: A
authors.lastname: Prados-Torres
mesh_terms: D000368:Aged; D016208:Databases, Factual; D003704:Dementia / Q000453:epidemiology* / Q000473:pathology / Q000628:therapy; D005260:Female; D006760:Hospitalization; D006801:Humans; D008297:Male; D011320:Primary Health Care; D012042:Registries
keywords: Demencia; Dementia; Electronic health record; Health information systems; Historia clínica electrónica; Sistemas de información sanitaria