title: [Caregivers of people with neurodegenerative diseases: from help to delegation].
abstract: Being a caregiver is difficult, even more so when it comes to helping people with a neurodegenerative disease. These caregivers, either family members or close friends, are confronted with an unexpected delegation which can prove to be highly complex as the pitfalls can indeed be significant. Moreover, the support the caregivers can provide depends on the support they can get for themselves.
authors.affiliation: Université Paris-Dauphine, Laboratoire du LEDa-LEGOS, place du Maréchal-de-Lattre-de-Tassigny, 75016 Paris, France. Electronic address: sabine.delzescaux@dauphine.fr.
authors.forename: Sabine
authors.initials: S
authors.lastname: Delzescaux
authors.affiliation: Université Paris-Diderot, Laboratoire de changement social et politique (LCSP), 8 place Paul-Ricoeur, 75013 Paris, France.
authors.forename: Frédéric
authors.initials: F
authors.lastname: Blondel
mesh_terms: D017028:Caregivers / Q000523:psychology*; D000066505:Help-Seeking Behavior; D006801:Humans; D019636:Neurodegenerative Diseases / Q000523:psychology*; D012144:Respite Care; D013315:Stress, Psychological / Q000209:etiology / Q000628:therapy
keywords: aidants familiaux; caregiver support; caregivers; compagnonnage; companionship; delegation; délégation; interface; maladie neurodégénérative; neurodegenerative disease; servitude; soutien