title: Identifying the Unique Aspects of Adolescent and Young Adult Palliative Care: A Case Study to Propel Programmatic Changes in Pediatric Hospitals.
abstract: Using a case study, in this article we seek to highlight how the distinct developmental needs of adolescent and young adult patients facing a life-threatening condition require a different approach to patient care by pediatric health care workers. The case underscores pitfalls in using a pediatric construct of care in areas of pain management, social stressors, and advanced care planning, and suggests programs to implement for improvement, including partnership with psychiatry, substance abuse, and palliative care specialists.
authors.affiliation: Pediatric Palliative Care, Nationwide Children's Hospital, Columbus, OH; Hospice Medicine, Nationwide Children's Hospital, Columbus, OH; Department of Pediatrics, The Ohio State University School of Medicine, Columbus, OH. Electronic address: Lisa.humphrey@nationwidechildrens.org.
authors.forename: Lisa
authors.initials: L
authors.lastname: Humphrey
authors.affiliation: Department of Psychiatry, The Ohio State University School of Medicine, Columbus, OH.
authors.forename: Mary Lynn
authors.initials: ML
authors.lastname: Dell
mesh_terms: D000293:Adolescent; D000328:Adult; D006776:Hospitals, Pediatric / Q000941:ethics / Q000592:standards; D006801:Humans; D008297:Male; D010146:Pain / Q000209:etiology / Q000523:psychology; D059408:Pain Management; D010166:Palliative Care / Q000941:ethics / Q000379:methods* / Q000523:psychology; D054198:Precursor Cell Lymphoblastic Leukemia-Lymphoma / Q000150:complications / Q000451:nursing; D055815:Young Adult