title: Photovoice and Clubfoot: Using a Participatory Research Method to Study Caregiver Adherence to the Ponseti Method in Perú.
abstract: The Ponseti Method of casting and bracing is the gold-standard treatment for congenital clubfoot in young children. Despite its many advantages, outcomes depend heavily on caregiver adherence to the treatment protocol. Our study explored the experience caregivers had with the Ponseti method using a photography-based participatory research method known as Photovoice. Five adult caregivers were recruited from families pursuing clubfoot treatment at the Children's Hospital in Lima, Perú, during June, 2013. Each was provided a digital camera and training and agreed to photograph their experiences caring for a child undergoing Ponseti Method clubfoot treatment. Participants held four to five weekly one-on-one meetings with the researcher to discuss their photos. They also attended a group meeting at the end of the study to view and discuss photos of other participants. Using photos collected at this meeting, participants identified themes that summarized their experiences with treatment and discussed ways to improve delivery of care in order to support caregiver adherence to treatment. These results were presented to clinicians in Lima who use the Ponseti Method. The Photovoice method allowed researchers and participants to study the experience caregivers have with the Ponseti Method, and results can be used to inform the design of patient-based care models.
authors.affiliation: Department of Orthopedics, UIHC; Department of Trauma and Orthopedics, INSN (Lima, Perú).
authors.forename: Alison
authors.initials: A
authors.lastname: Pletch
authors.affiliation: Department of Orthopedics, UIHC; Department of Trauma and Orthopedics, INSN (Lima, Perú).
authors.forename: Jose
authors.initials: J
authors.lastname: Morcuende
authors.affiliation: Department of Orthopedics, UIHC; Department of Trauma and Orthopedics, INSN (Lima, Perú).
authors.forename: Hersey
authors.initials: H
authors.lastname: Barriga
authors.affiliation: Department of Orthopedics, UIHC; Department of Trauma and Orthopedics, INSN (Lima, Perú).
authors.forename: Jose
authors.initials: J
authors.lastname: Segura
authors.affiliation: Department of Orthopedics, UIHC; Department of Trauma and Orthopedics, INSN (Lima, Perú).
authors.forename: Alexandro
authors.initials: A
authors.lastname: Salas
mesh_terms: D000328:Adult; D001915:Braces / Q000706:statistics & numerical data; D017028:Caregivers; D002370:Casts, Surgical / Q000706:statistics & numerical data*; D002648:Child; D002675:Child, Preschool; D003025:Clubfoot / Q000175:diagnosis / Q000628:therapy*; D003906:Developing Countries; D005260:Female; D005500:Follow-Up Studies; D019983:Guideline Adherence; D006776:Hospitals, Pediatric; D006801:Humans; D007223:Infant; D008297:Male; D008991:Monitoring, Physiologic / Q000379:methods; D010287:Parent-Child Relations; D010568:Peru; D010781:Photography; D012107:Research Design; D018570:Risk Assessment; D013997:Time Factors