title: Translation and adaptation of the Pediatric Outcome Data Collecting Instrument (PODCI) into the Dutch language and preliminary validation in children with Neonatal Brachial Plexus Palsy.
abstract: OBJECTIVE
  This study aimed to translate and cross-culturally adapt the Pediatric Outcome Data Collecting Instrument (PODCI) into the Dutch language and evaluate its measurement properties among children (age 3-10) with Neonatal Brachial Plexus Palsy (NBPP).
  
  
  METHODS
  The PODCI was translated and adapted according to international guidelines and administered to 10 children with NBPP before and after surgery and thereafter twice again. Subsequently, the Mallet-score, Assisting Hand Assessment and active Range of Motion (aROM) were recorded. Cronbach's-α and correlations between the PODCI and other outcome measures were determined, as well as Intraclass Correlation Coefficients (ICC). In addition, effect sizes (ES), Standard Response Means (SRM) and change scores with the 95% Confidence Interval (95% CI) were calculated.
  
  
  RESULTS
  The final Dutch PODCI `Upper Extremity and Physical Function' subscale and total score `Global Functioning' showed good internal consistency (Cronbach's-α 0.695/0.781) and reliability (ICC 0.97/0.80) and were significantly associated with aROM and the Mallet-score. After surgery a significant change of the total score (ES 0.57, SRM 1.23, change 4.22 points, 95% CI 1.04-7.4) was seen.
  
  
  CONCLUSIONS
  The final Dutch PODCI had good measurement properties and appears useful in evaluating quality of life and functioning in children with NBPP.
authors.affiliation: Department of Orthopaedics and Rehabilitation, Leiden University Medical Center, Leiden, The Netherlands.|Rijnlands Rehabilitation Center, Leiden, The Netherlands.
authors.forename: Menno
authors.initials: M
authors.lastname: van der Holst
authors.affiliation: Department of Orthopaedics and Rehabilitation, Leiden University Medical Center, Leiden, The Netherlands.|Rijnlands Rehabilitation Center, Leiden, The Netherlands.
authors.forename: Thea P M Vliet
authors.initials: TP
authors.lastname: Vlieland
authors.affiliation: Department of Orthopaedics and Rehabilitation, Leiden University Medical Center, Leiden, The Netherlands.
authors.forename: Michiel A J
authors.initials: MA
authors.lastname: van de Sande
authors.affiliation: Department of Orthopaedics and Rehabilitation, Leiden University Medical Center, Leiden, The Netherlands.
authors.forename: Janneke C
authors.initials: JC
authors.lastname: van Egmond-van Dam
authors.affiliation: Department of Orthopaedics and Rehabilitation, Leiden University Medical Center, Leiden, The Netherlands.
authors.forename: Henricus M
authors.initials: HM
authors.lastname: Vermeulen
authors.affiliation: Department of Orthopaedics and Rehabilitation, Leiden University Medical Center, Leiden, The Netherlands.
authors.forename: Rob G H H
authors.initials: RG
authors.lastname: Nelissen
mesh_terms: D020516:Brachial Plexus Neuropathies / Q000503:physiopathology*; D002648:Child; D002675:Child, Preschool; D003430:Cross-Sectional Studies; D005260:Female; D006801:Humans; D007231:Infant, Newborn; D007232:Infant, Newborn, Diseases / Q000503:physiopathology*; D008297:Male; D017063:Outcome Assessment, Health Care / Q000379:methods / Q000592:standards*; D011446:Prospective Studies; D011788:Quality of Life; D015203:Reproducibility of Results; D012720:Severity of Illness Index; D011795:Surveys and Questionnaires / Q000592:standards*
keywords: Brachial plexus neuropathy; joint capsule release; pediatrics; physical therapy; quality of life; tendon transfer; treatment outcome