title: Critical timing of gastrostomy insertion in a child with cystic fibrosis.
abstract: Pulmonary exacerbations and malabsorption in children with cystic fibrosis (CF) can lead to faltering growth and poor weight gain. Children with a higher BMI (body mass index) show a slower decline in lung function. Our specialist CF centre has experienced a death following gastrostomy insertion in a young CF child, despite maximal medical intervention, which has made us reflect on our practice and the urgency with which we discuss the option for a gastrostomy to improve nutrition.
authors.affiliation: Royal Brompton and Harefield NHS Foundation Trust. Electronic address: c.grime@rbht.nhs.uk.
authors.forename: Christopher J
authors.initials: CJ
authors.lastname: Grime
authors.affiliation: Surrey and Sussex Healthcare NHS Trust.
authors.forename: Catherine
authors.initials: C
authors.lastname: Greenaway
authors.affiliation: Chelsea and Westminster Hospital NHS Foundation Trust.
authors.forename: Simon
authors.initials: S
authors.lastname: Clarke
authors.affiliation: Royal Brompton and Harefield NHS Foundation Trust.
authors.forename: Ian M
authors.initials: IM
authors.lastname: Balfour-Lynn
mesh_terms: D001827:Body Height / Q000502:physiology; D001835:Body Weight / Q000502:physiology; D002648:Child; D003550:Cystic Fibrosis / Q000628:therapy*; D004750:Enteral Nutrition; D017809:Fatal Outcome; D005260:Female; D005774:Gastrostomy / Q000009:adverse effects / Q000379:methods*; D006801:Humans; D009752:Nutritional Status; D013997:Time Factors; D014057:Tomography, X-Ray Computed
keywords: Cystic fibrosis; Gastrostomy