title: Breast cancer patients' narrative experiences about communication during the oncology care process: a qualitative study.
abstract: To analyse the perception about the information and communication received to evaluate oncologic care of breast cancer patients in Spain. Qualitative study based on conducting in-depth interviews. An inductive thematic analysis of the illness narratives was performed. Intentional theoretical sampling of 41 people diagnosed with breast cancer. The information provided during care process is assessed as appropriate, as it includes personalised skills focused on communication and considers organisational and contextual issues. In some cases, the information was considered partial, heterogeneous and at times contradictory, which revealed a lack of continuity. To provide and adequately cover information needs from the patient perspective, it is necessary to ensure access, both in its physical (material) and intellectual (comprehension) dimension, keeping in mind elements of social capital (social networks) and cultural capital (values, beliefs, non-verbal language) that facilitate or hinder access. The current state of transition to a horizontal model in the doctor-patient relationship, could account for the difficulties, deficits and contradictions in communication and information that breast cancer patients perceive in many contexts.
authors.affiliation: Canary Islands Foundation for Health Research (FUNCANIS), Tenerife, Spain.|National Institute of Health Carlos III, Health Services Research on Chronic Patients Network (REDISSEC), Madrid, Spain.
authors.forename: A
authors.initials: A
authors.lastname: Abt Sacks
authors.affiliation: Evaluation Unit of the Canary Islands Health Service (SESCS), Tenerife, Spain.|Health Services Research on Chronic Patients Network (REDISSEC), Madrid, Spain.
authors.forename: L
authors.initials: L
authors.lastname: Perestelo-Perez
authors.affiliation: Faculty of Occupational Therapy, Speech Therapy and Nursing, University of Castilla-La Mancha, Talavera de la Reina (Toledo), Spain.
authors.forename: B
authors.initials: B
authors.lastname: Rodriguez-Martin
authors.affiliation: Canary Islands Foundation for Health Research (FUNCANIS), Tenerife, Spain.
authors.forename: L
authors.initials: L
authors.lastname: Cuellar-Pompa
authors.affiliation: Radiation Oncology, L'Esperança Hospital, Municipal Healthcare Institute (IMAS), Barcelona, Spain.
authors.forename: M
authors.initials: M
authors.lastname: Algara López
authors.affiliation: Research Unit / Health Services Research on Chronic Patients Network (REDISSEC), Galdakao-Usansolo Hospital, Barrio Labeaga, s/n, 48960 Usansolo, Bilbao, Spain.
authors.forename: N
authors.initials: N
authors.lastname: González Hernández
authors.affiliation: National Institute of Health Carlos III, Health Services Research on Chronic Patients Network (REDISSEC), Madrid, Spain.|Evaluation Unit of the Canary Islands Health Service (SESCS), Tenerife, Spain.|Centre for Biomedical Research of the Canary Islands (CIBICAN), Tenerife, Spain.
authors.forename: P
authors.initials: P
authors.lastname: Serrano-Aguilar
mesh_terms: D000328:Adult; D000368:Aged; D000970:Antineoplastic Agents / Q000627:therapeutic use; D001943:Breast Neoplasms / Q000523:psychology* / Q000628:therapy; D018567:Breast Neoplasms, Male / Q000523:psychology / Q000628:therapy; D003142:Communication; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D033262:Narration; D010353:Patient Education as Topic / Q000592:standards; D010358:Patient Participation; D017060:Patient Satisfaction; D010817:Physician-Patient Relations; D036301:Qualitative Research; D012944:Social Support
chemical_list: D000970:Antineoplastic Agents
keywords: breast cancer; communication; information; patient-centred care; patients’ experiences; qualitative research