title: Patients are dissatisfied with information provision: perceived information provision and quality of life in prostate cancer patients.
abstract: To determine the satisfaction with information received by prostate cancer survivors and associations with health-related quality of life (HRQoL) and illness perception.
  
  
  
  A cross-sectional study was performed among 999 patients diagnosed between 2006 and 2009. All patients received a questionnaire on HRQoL (EORTC QLQ-C30), illness perception (B-IPQ) and satisfaction with information provision (EORTC QLQ-INFO-25). Multivariate regression analyses were performed to assess the association between satisfaction with information provision and HRQoL as well as illness perception.
  
  
  
  Response rate was 70% (N = 697), 34% (N = 222) indicated to be dissatisfied with the information received. Multivariate linear regression analyses showed a significant positive association between satisfaction with information provision and global health (P = <0.001), emotional functioning (P = 0.004), social functioning (P = 0.027), physical functioning (P = 0.002) and role functioning (P = 0.001). Satisfaction was negatively associated with illness perception subscales on consequences (P = 0.020), timeline (P = 0.031), personal control (P = 0.013), treatment control (P < 0.001), illness concern (P < 0.001), coherence (P = 0.001) and emotional representation (P = 0.004). Hence, more satisfied patients reported fewer consequences of disease, illness concern and emotional representation, but higher personal and treatment control and coherence.
  
  
  
  A third of all prostate cancer survivors reported to be dissatisfied with the information received and scored worse on HRQoL and illness perception. A prospective randomized study is needed to study the effect of an intervention that improves information provision on HRQoL and illness perception outcomes. Copyright © 2015 John Wiley & Sons, Ltd.
authors.affiliation: Department of Urology, St. Elisabeth Hospital, Tilburg, The Netherlands.
authors.forename: Romy E D
authors.initials: RE
authors.lastname: Lamers
authors.affiliation: Department of Social Psychology, Tilburg University, Tilburg, The Netherlands.
authors.forename: Maarten
authors.initials: M
authors.lastname: Cuypers
authors.affiliation: CoRPS-Center of Research on Psychology in Somatic Diseases (CoRPS), Department of Medical Psychology and Neuropsychology, Tilburg University, The Netherlands.|Eindhoven Cancer Registry, Comprehensive Cancer Center The Netherlands (CCCN), Eindhoven, The Netherlands.
authors.forename: Olga
authors.initials: O
authors.lastname: Husson
authors.affiliation: Department of Social Psychology, Tilburg University, Tilburg, The Netherlands.
authors.forename: Marieke
authors.initials: M
authors.lastname: de Vries
authors.affiliation: Department of Urology, St. Elisabeth Hospital, Tilburg, The Netherlands.
authors.forename: Paul J M
authors.initials: PJ
authors.lastname: Kil
authors.affiliation: Departement of Urology, University Medical Center Utrecht, Utrecht, The Netherlands.
authors.forename: J L H
authors.initials: JL
authors.lastname: Ruud Bosch
authors.affiliation: CoRPS-Center of Research on Psychology in Somatic Diseases (CoRPS), Department of Medical Psychology and Neuropsychology, Tilburg University, The Netherlands.|Eindhoven Cancer Registry, Comprehensive Cancer Center The Netherlands (CCCN), Eindhoven, The Netherlands.
authors.forename: Lonneke V
authors.initials: LV
authors.lastname: van de Poll-Franse
mesh_terms: D000368:Aged; D003430:Cross-Sectional Studies; D004644:Emotions; D006801:Humans; D008297:Male; D008875:Middle Aged; D010353:Patient Education as Topic; D017060:Patient Satisfaction; D011446:Prospective Studies; D011471:Prostatic Neoplasms / Q000523:psychology*; D011788:Quality of Life / Q000523:psychology*; D011795:Surveys and Questionnaires; D017741:Survivors / Q000523:psychology*
keywords: health related quality of life; illness perception; oncology; patient information satisfaction; prostate cancer