title: Evaluation of collected outcome measures in axial spondyloarthritis in daily-care rheumatology settings: the experience of the RHEVER network.
abstract: OBJECTIVE
  Nowadays, the recommended measures for optimal monitoring of axial Spondyloarthritis (ax-SpA) disease activity are either BASDAI and CRP, or ASDAS-CRP. However, there could be a gap between recommendations and daily practice. We aimed to determine the measures collected by rheumatologists in an ax-SpA follow-up visit, and to determine the impact of a meeting (where rheumatologists reached a consensus on the measures to be collected) on the collection of such measures.
  
  
  METHODS
  A consensual meeting of a local network of 32 rheumatologists proposed, four months later, to report at least the BASDAI score in the medical file of every ax-SpA patient at every follow-up visit. An independent investigator reviewed the medical files of 10 consecutive patients per rheumatologist, seen twice during the year (e.g. before and after the meeting). The most frequently collected measures were assessed, and then, the frequency of collection before and after the meeting was compared.
  
  
  RESULTS
  A total of 456 medical files from 228 patients were reviewed. Treatment (>60%), CRP (51.3%) and total BASDAI (28.5%) were the most reported measures in medical files. Before/After the meeting, the frequencies of collected measures in medical files were 28.5%/51.7%, 51.3%/52.2%, 16.7%/31.6% and 0.9%/6.1% for BASDAI, CRP, BASDAI + CRP and ASDAS, respectively reaching a statistically significance for BASDAI, ASDAS and BASDAI+CRP (p<0.05).
  
  
  CONCLUSIONS
  This study revealed a low rate of systematic report of the recommended outcome measures in ax-SpA. However, it suggests that a consensual meeting involving practicing rheumatologists might be relevant to improve the implementation of such recommendations.
authors.affiliation: Hôpital Cochin, Assistance Publique, Hôpitaux de Paris, Département de Rhumatologie, Paris, and Hôpital Lapeyronie, Département de Rhumatologie, Montpellier, France. che.helene@yahoo.fr.
authors.forename: H
authors.initials: H
authors.lastname: Che
authors.affiliation: Hôpital Cochin, Assistance Publique, Hôpitaux de Paris, Département de Rhumatologie, Paris, France.
authors.forename: A
authors.initials: A
authors.lastname: Etcheto
authors.affiliation: Centre Hospitalier du Mans, Service de Rhumatologie, Le Mans, France.
authors.forename: E
authors.initials: E
authors.lastname: Dernis
authors.affiliation: Private office, 57 boulevard du Marechal Juin, 78200 Mantes la Jolie, France.
authors.forename: H
authors.initials: H
authors.lastname: Nataf
authors.affiliation: Polyclinique de Picardie, Service de Rhumatologie, Amiens, France.
authors.forename: P
authors.initials: P
authors.lastname: Boumier
authors.affiliation: Private office, 10 rue Claret, 95500 Gonesse, France.
authors.forename: P
authors.initials: P
authors.lastname: Breuillard
authors.affiliation: Private office, 98 boulevard Auguste Blanqui, 75013 Paris, France.
authors.forename: M
authors.initials: M
authors.lastname: Durandin-Truffinet
authors.affiliation: Private office, 1 rue Hoche, 93500 Pantin, France.
authors.forename: J
authors.initials: J
authors.lastname: Fechtenbaum
authors.affiliation: Hôpital Cochin, Assistance Publique, Hôpitaux de Paris, Département de Rhumatologie, Paris; and Private office, 4 place Jules Ferry, 91240 St Michel sur Orge, France.
authors.forename: V
authors.initials: V
authors.lastname: Gaud-Listrat
authors.affiliation: Private office, 10 rue Henri Amodru, 91190 Gif sur Yvette, France.
authors.forename: B
authors.initials: B
authors.lastname: Giraud
authors.affiliation: Private office, 5 square du Roule, 75008 Paris, France.
authors.forename: C
authors.initials: C
authors.lastname: Hudry
authors.affiliation: Private office, 18 rue Fabre d'Eglantine, 75012 Paris, France.
authors.forename: S
authors.initials: S
authors.lastname: Labatide-Alanore
authors.affiliation: Private office, Cabinet Médical de l'Olivier, 2bis rue Stephanson, 78180 Montigny le Bretonneux, France.
authors.forename: P
authors.initials: P
authors.lastname: Le Devic
authors.affiliation: Private office, 118, rue Jean Jaurès, 92800 Puteaux, France.
authors.forename: P
authors.initials: P
authors.lastname: Le Goux
authors.affiliation: Private office, 5 square du Roule, 75008 Paris, France.
authors.forename: A
authors.initials: A
authors.lastname: Lebrun
authors.affiliation: Private office, 4 boulevard Beaumarchais, 75011 Paris, France.
authors.forename: E
authors.initials: E
authors.lastname: Maheu
authors.affiliation: Private office, 5 square du Roule, 75008 Paris, France.
authors.forename: B
authors.initials: B
authors.lastname: Moura
authors.affiliation: Private office, 65 boulevard de Courcelles, 75008 Paris, France.
authors.forename: M
authors.initials: M
authors.lastname: Nguyen
authors.affiliation: Hôpital François Quesnay, Service de Rhumatologie, Mantes la Jolie, France.
authors.forename: A
authors.initials: A
authors.lastname: Sacchi
authors.affiliation: Hôpital Cochin, Assistance Publique, Hôpitaux de Paris, Département de Rhumatologie, Paris, France.
authors.forename: X
authors.initials: X
authors.lastname: Ayral
authors.affiliation: Hôpital Cochin, Assistance Publique, Hôpitaux de Paris, Département de Rhumatologie, Paris, France.
authors.forename: A
authors.initials: A
authors.lastname: Blanchais
authors.affiliation: Hôpital Cochin, Assistance Publique, Hôpitaux de Paris, Département de Rhumatologie, Paris, France.
authors.forename: S
authors.initials: S
authors.lastname: Neveu
authors.affiliation: Hôpital Cochin, Assistance Publique, Hôpitaux de Paris, Département de Rhumatologie, Paris; and INSERM (U1153), Clinical Epidemiology and Biostatistics, PRES Sorbonne Paris-Cité, France.
authors.forename: M
authors.initials: M
authors.lastname: Dougados
authors.affiliation: Hôpital Cochin, Assistance Publique, Hôpitaux de Paris, Département de Rhumatologie, Paris; and INSERM (U1153), Clinical Epidemiology and Biostatistics, PRES Sorbonne Paris-Cité, France.
authors.forename: A
authors.initials: A
authors.lastname: Moltó
mesh_terms: D000328:Adult; D005260:Female; D005602:France; D019538:Health Care Surveys; D006301:Health Services Needs and Demand; D006305:Health Status Indicators; D006801:Humans; D008297:Male; D008875:Middle Aged; D010043:Outcome and Process Assessment, Health Care / Q000379:methods / Q000458:organization & administration; D058996:Quality Improvement; D012219:Rheumatology / Q000379:methods / Q000592:standards; D013167:Spondylitis, Ankylosing / Q000175:diagnosis / Q000628:therapy