title: Stakeholder assessment of comparative effectiveness research needs for Medicaid populations.
abstract: Patients, providers and policy-makers rely heavily on comparative effectiveness research (CER) when making complex, real-world medical decisions. In particular, Medicaid providers and policy-makers face unique challenges in decision-making because their program cares for traditionally underserved populations, especially children, pregnant women and people with mental illness. Because these patient populations have generally been underrepresented in research discussions, CER questions for these groups may be understudied. To address this problem, the Agency for Healthcare Research and Quality commissioned our team to work with Medicaid Medical Directors and other stakeholders to identify relevant CER questions. Through an iterative process of topic identification and refinement, we developed relevant, feasible and actionable questions based on issues affecting Medicaid programs nationwide. We describe challenges and limitations and provide recommendations for future stakeholder engagement.
authors.affiliation: Division of Pharmacoepidemiology & Pharmacoeconomics, Department of Medicine, Brigham & Women's Hospital & Harvard Medical School, 1620 Tremont Street, Suite 3030, Boston, MA 02120, USA.
authors.forename: Michael A
authors.initials: MA
authors.lastname: Fischer
authors.affiliation: Division of Pharmacoepidemiology & Pharmacoeconomics, Department of Medicine, Brigham & Women's Hospital & Harvard Medical School, 1620 Tremont Street, Suite 3030, Boston, MA 02120, USA.
authors.forename: Cora
authors.initials: C
authors.lastname: Allen-Coleman
authors.affiliation: Division of Pharmacoepidemiology & Pharmacoeconomics, Department of Medicine, Brigham & Women's Hospital & Harvard Medical School, 1620 Tremont Street, Suite 3030, Boston, MA 02120, USA.
authors.forename: Stephen F
authors.initials: SF
authors.lastname: Farrell
authors.affiliation: Division of Pharmacoepidemiology & Pharmacoeconomics, Department of Medicine, Brigham & Women's Hospital & Harvard Medical School, 1620 Tremont Street, Suite 3030, Boston, MA 02120, USA.
authors.forename: Sebastian
authors.initials: S
authors.lastname: Schneeweiss
mesh_terms: D057186:Comparative Effectiveness Research / Q000379:methods* / Q000706:statistics & numerical data; D003657:Decision Making; D006801:Humans; D008484:Medicaid / Q000706:statistics & numerical data*; D012107:Research Design; D014481:United States
keywords: CER; Medicaid; comparative effectiveness research; stakeholder; underserved populations