title: 'Pop-Up' Governance: developing internal governance frameworks for consortia: the example of UK10K.
abstract: Innovations in information technologies have facilitated the development of new styles of research networks and forms of governance. This is evident in genomics where increasingly, research is carried out by large, interdisciplinary consortia focussing on a specific research endeavour. The UK10K project is an example of a human genomics consortium funded to provide insights into the genomics of rare conditions, and establish a community resource from generated sequence data. To achieve its objectives according to the agreed timetable, the UK10K project established an internal governance system to expedite the research and to deal with the complex issues that arose. The project's governance structure exemplifies a new form of network governance called 'pop-up' governance. 'Pop-up' because: it was put together quickly, existed for a specific period, was designed for a specific purpose, and was dismantled easily on project completion. In this paper, we use UK10K to describe how 'pop-up' governance works on the ground and how relational, hierarchical and contractual governance mechanisms are used in this new form of network governance.
authors.affiliation: HeLEX Centre, Nuffield Department of Population Health, University of Oxford, Oxford, UK. jane.kaye@law.ox.ac.uk.|Nuffield Department of Population Health, HeLEX - Centre for Health, Law and Emerging Technologies, University of Oxford, Old Road Campus, Oxford, OX3 7LF, UK. jane.kaye@law.ox.ac.uk.
authors.forename: Jane
authors.initials: J
authors.lastname: Kaye
authors.affiliation: Wellcome Trust Sanger Institute, Cambridge, UK.
authors.forename: Dawn
authors.initials: D
authors.lastname: Muddyman
authors.affiliation: Wellcome Trust Sanger Institute, Cambridge, UK.
authors.forename: Carol
authors.initials: C
authors.lastname: Smee
authors.affiliation: National Cancer Research Institute, London, UK.
authors.forename: Karen
authors.initials: K
authors.lastname: Kennedy
authors.affiliation: HeLEX Centre, Nuffield Department of Population Health, University of Oxford, Oxford, UK.
authors.forename: Jessica
authors.identifier: http://orcid.org/0000-0002-3433-0265
authors.initials: J
authors.lastname: Bell
mesh_terms: D035843:Biomedical Research / Q000458:organization & administration*; D054976:Clinical Governance / Q000458:organization & administration*; D017598:Efficiency, Organizational; D023281:Genomics; D006801:Humans; D033181:Information Dissemination / Q000331:legislation & jurisprudence*; D019451:Information Management / Q000458:organization & administration*; D006113:United Kingdom
keywords: Consortia; Genomics-research; Networks; ‘Pop-up’ governance