title: Involving Advocates in Cancer Research.
abstract: Advocates can play an important role in cancer research. In 2010, the National Cancer Institute (NCI) Advocate in Research Working Group (ARWG) defined a "research advocate" as an individual who brings and can convey a nonscientific viewpoint to the research process and can communicate a collective patient perspective through knowledge of multiple disease experiences. Experiences cited in this review are related to publically funded research. They, exemplify challenges and successes of advocate engagement and involvement in the cancer research process.
authors.affiliation: The Gemini Group, Ann Arbor, MI. Electronic address: janep@gemini-grp.com.
authors.forename: Jane
authors.initials: J
authors.lastname: Perlmutter
authors.affiliation: Fight Colorectal Cancer, Alexandria, VA.
authors.forename: Nancy
authors.initials: N
authors.lastname: Roach
authors.affiliation: Research Advocacy Network, Plano, TX.
authors.forename: Mary Lou
authors.initials: ML
authors.lastname: Smith
mesh_terms: D026683:Advisory Committees; D035843:Biomedical Research; D017028:Caregivers; D055812:Community-Based Participatory Research; D005376:Financial Management; D006801:Humans; D054547:National Cancer Institute (U.S.); D009369:Neoplasms; D010344:Patient Advocacy; D012109:Research Support as Topic; D017741:Survivors; D014481:United States