title: Community Palliative Care Nurses' Challenges and Coping Strategies on Delivering Home-Based Pediatric Palliative Care.
abstract: OBJECTIVE
  The aim of this study was to explore the experience of community palliative care nurses providing home care to children.
  
  
  METHODS
  A qualitative study was conducted at the 3 community palliative care provider organizations in greater Kuala Lumpur from August to October 2014. Data were collected with semistructured interviews with 16 nurses who have provided care to children and was analyzed using thematic analysis. Two categories were identified: (1) challenges nurses faced and (2) coping strategies. The themes identified from the categories are (1) communication challenges, (2) inadequate training and knowledge, (3) personal suffering, (4) challenges of the system, (5) intrapersonal coping skills, (6) interpersonal coping strategies, and (7) systemic supports.
  
  
  CONCLUSIONS
  These results reinforces the need for integration of pediatric palliative care teaching and communication skills training into all undergraduate health care programs. Provider organizational support to meet the specific needs of the nurses in the community can help retain them in their role. It will also be important to develop standards for current and new palliative care services to ensure delivery of quality pediatric palliative care.
authors.affiliation: 1 Hospis Malaysia, Kuala Lumpur, Malaysia.
authors.forename: LeeAi
authors.initials: L
authors.lastname: Chong
authors.affiliation: 2 University Malaya Primary Care Research Group, Department of Primary Care Medicine, Faculty of Medicine, University Malaya, Kuala Lumpur, Malaysia.
authors.forename: Adina
authors.initials: A
authors.lastname: Abdullah
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D002648:Child; D005260:Female; D006699:Home Care Services; D064946:Hospice and Palliative Care Nursing / Q000379:methods; D006801:Humans; D007407:Interviews as Topic; D008296:Malaysia; D008875:Middle Aged; D024802:Nurse's Role; D036301:Qualitative Research; D055815:Young Adult
keywords: Malaysia; home based care; nurse; palliative care; pediatric; qualitative study