title: A Culturally Targeted Website for Hispanics/Latinos About Living Kidney Donation and Transplantation: A Randomized Controlled Trial of Increased Knowledge.
abstract: Hispanics/Latinos receive disproportionately fewer living donor kidney transplantations (LDKTs) than non-Hispanic whites. We conducted a multisite, randomized controlled trial to evaluate the efficacy of exposure to a bilingual, culturally targeted website, Infórmate, for increasing Hispanics' knowledge about LDKT.
  
  
  
  Hispanic patients initiating transplant evaluation and their family/friends at 2 transplant centers were randomized to view Infórmate before attending routine transplant education sessions; usual care controls only attended education sessions. All participants completed a pretest; website participants also completed a posttest immediately after viewing Infórmate. All participants completed a 3-week telephone follow-up test. Random effects linear regression of 3-week knowledge scores tested the significance of website exposure after adjusting for clustering within families and controlling for pretest scores and covariates.
  
  
  
  Two hundred-eighty-two individuals participated (81% patient participation rate). Website exposure was associated with a mean 21.7% same day knowledge score increase between pretest and posttest (P < 0.001). At 3 weeks, website participants' knowledge scores remained 22.6% above the pretest; control scores increased to 11.8% (P = 0.0001). Regression results found that website participants were associated with a 10.0% greater knowledge score at 3-week follow-up (P < 0.0001). Most website participants (92.6%) plan to return to Infórmate in the future.
  
  
  
  Our culturally targeted website increased participants' knowledge about LDKT above and beyond transplant education and should supplement transplant center education for Hispanics. When considered at the population level, Infórmate could have a great impact on knowledge gains in this underserved population disproportionately affected by kidney disease.
authors.affiliation: 1 Center for Healthcare Studies, Comprehensive Transplant Center, Feinberg School of Medicine, Northwestern University, Chicago, IL. 2 Division of General Internal Medicine and Geriatrics, Department of Medicine, Feinberg School of Medicine, Northwestern University, Chicago, IL. 3 Department of Health Sciences, Chicago State University, 9501 S King Dr, Chicago, IL. 4 Center for Healthcare Studies, Feinberg School of Medicine, Northwestern University, Chicago, IL. 5 National Kidney Foundation of Illinois, Chicago, IL. 6 Grant Healthcare Foundation, formerly National Kidney Foundation of Illinois, Chicago, IL. 7 Northwestern University, formerly National Kidney Foundation of Illinois, Chicago, IL. 8 Division of Transplant Surgery, University of California, Davis, Sacramento, CA. 9 Transplant Center, University of California, Davis, Sacramento, CA. 10 Hispanic Transplant Program, Department of Surgery, Northwestern Memorial Hospital, Comprehensive Transplant Center, Feinberg School of Medicine, Northwestern University, Chicago, IL.
authors.forename: Elisa J
authors.initials: EJ
authors.lastname: Gordon
authors.forename: Joe
authors.initials: J
authors.lastname: Feinglass
authors.forename: Paula
authors.initials: P
authors.lastname: Carney
authors.forename: Karina
authors.initials: K
authors.lastname: Vera
authors.forename: Maria
authors.initials: M
authors.lastname: Olivero
authors.forename: Anne
authors.initials: A
authors.lastname: Black
authors.forename: Kate
authors.initials: K
authors.lastname: OʼConnor
authors.forename: Jessica
authors.initials: J
authors.lastname: MacLean
authors.forename: Shari
authors.initials: S
authors.lastname: Nichols
authors.forename: Junichiro
authors.initials: J
authors.lastname: Sageshima
authors.forename: Luke
authors.initials: L
authors.lastname: Preczewski
authors.forename: Juan Carlos
authors.initials: JC
authors.lastname: Caicedo
mesh_terms: D002140:California; D002489:Central America; D002641:Chicago; D003466:Cultural Characteristics; D054521:Cultural Competency; D007722:Health Knowledge, Attitudes, Practice; D006630:Hispanic or Latino; D006801:Humans; D020407:Internet; D007676:Kidney Failure, Chronic / Q000601:surgery; D016030:Kidney Transplantation; D007802:Language; D016014:Linear Models; D019520:Living Donors; D008507:Medically Underserved Area; D008800:Mexico; D010353:Patient Education as Topic / Q000379:methods*; D011647:Puerto Rico; D012044:Regression Analysis; D011795:Surveys and Questionnaires; D014481:United States