title: How Much Control Do Children and Adolescents Have over Genomic Testing, Parental Access to Their Results, and Parental Communication of Those Results to Others?
abstract: Adolescents may often have opinions about whether they want genetic and genomic testing in both the clinic and research and about who should have access to the results. This legal analysis demonstrates that the law provides very little protection to minors' wishes.
authors.affiliation: Craig-Weaver Professor of Pediatrics, Professor of Law, Professor of Health Policy, and Co-Founder of the Center for Biomedical Ethics and Society at Vanderbilt University. She obtained her B.S. from Duke University, her M.S. from Stanford University, her J.D. from Yale Law School, and her M.D. from Harvard Medical School.
authors.forename: Ellen Wright
authors.initials: EW
authors.lastname: Clayton
mesh_terms: D022126:Access to Information / Q000941:ethics / Q000331:legislation & jurisprudence*; D000293:Adolescent; D000328:Adult; D002648:Child; D003142:Communication; D003643:Death; D030881:Disclosure / Q000941:ethics / Q000331:legislation & jurisprudence*; D005820:Genetic Testing / Q000941:ethics / Q000331:legislation & jurisprudence*; D023281:Genomics / Q000941:ethics / Q000331:legislation & jurisprudence*; D006801:Humans; D033242:Minors / Q000331:legislation & jurisprudence*; D010290:Parents; D028701:Patient Rights / Q000941:ethics / Q000331:legislation & jurisprudence*; D045808:Refusal to Participate / Q000941:ethics / Q000331:legislation & jurisprudence