title: Return of Results from Research Using Newborn Screening Dried Blood Samples.
abstract: There may be compelling reasons to return to parents a limited subset of results from research conducted using residual newborn screening dried blood samples (DBS). This article explores the circumstances under which research results might be returned, as well as the mechanisms by which state newborn screening programs might facilitate the return of research results. The scope of any responsibility to return results of research conducted using DBS should be assessed in light of the potential impact on the primary mission of state newborn screening programs.
authors.affiliation: Research Scholar in the Berman Institute of Bioethics at Johns Hopkins University. She received her B.A. degree in English and History from Stanford University, her J.D. degree from Vanderbilt University, and her M.D. degree from Tulane University School of Medicine. Her research focuses on legal and ethical issues related to genomic research.
authors.forename: Michelle Huckaby
authors.initials: MH
authors.lastname: Lewis
authors.affiliation: Assistant Professor of Bioethics and the Assistant Director of the Center for Genetic Research, Ethics, and Law at Case Western Reserve University. He received his B.S. degree in the Philosophy of Science from Michigan State University, his M.P.H. from the University of Michigan, and his Ph.D. in Bioethics from Case Western Reserve University. Dr. Goldenberg's research focuses on the ethical and social issues surrounding advances in public health genomics.
authors.forename: Aaron J
authors.initials: AJ
authors.lastname: Goldenberg
mesh_terms: D030881:Disclosure / Q000941:ethics* / Q000331:legislation & jurisprudence*; D059788:Dried Blood Spot Testing; D006801:Humans; D007231:Infant, Newborn; D015997:Neonatal Screening / Q000941:ethics* / Q000331:legislation & jurisprudence*