title: Psychometric performance of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire in the Netherlands.
abstract: The European Quality of Life in Short Stature Youth (QoLISSY) questionnaire is a disease-specific instrument assessing quality of life (QoL) in children with short stature from the child and parent perspectives. In order to use the QoLISSY in Dutch samples, a translation process and psychometric testing is needed. Children diagnosed with short stature (8 to 18 years) and their parents were recruited from a Dutch growth clinic. Reliability was assessed using Cronbach's α and intraclass correlation coefficients (ICCs). Pearsons' correlations with the generic KIDSCREEN and a confirmatory factor analysis (CFA) were performed to test validity. Scales showed good internal consistency with α ranging from 0.80 to 0.94 (child report) and from 0.85 to 0.95 (parent report). Test-retest reliability (ICC) ranged from 0.15 to 0.91 (child report) and from 0.14 to 0.83 (parent report). Correlations with the KIDSCREEN in the mean range indicated criterion validity. The models' goodness of fit was confirmed by CFA results in the Dutch and in comparison with the European sample.
  
  
  CONCLUSIONS
  The Dutch QoLISSY is a psychometrically reliable and valid short stature-specific QoL measure. It is now available for use in clinical research and practice to evaluate well-being and possible effects of growth hormone treatment and psychological interventions in the Netherlands.
authors.affiliation: Department of Medical Psychology, University Medical Center Hamburg - Eppendorf, Martinistr. 52, Building W26, 20246, Hamburg, Germany. a.rohenkohl@uke.de.
authors.forename: Anja
authors.initials: A
authors.lastname: Rohenkohl
authors.affiliation: Department of Pediatrics, Tergooi Hospital, Blaricum, The Netherlands. se.stalman@gmail.com.
authors.forename: Susanne
authors.initials: S
authors.lastname: Stalman
authors.affiliation: Department of Pediatrics, Tergooi Hospital, Blaricum, The Netherlands. gkamp@tergooi.nl.
authors.forename: Gerdine
authors.initials: G
authors.lastname: Kamp
authors.affiliation: Department of Medical Psychology, University Medical Center Hamburg - Eppendorf, Martinistr. 52, Building W26, 20246, Hamburg, Germany. bullinger@uke.de.
authors.forename: Monika
authors.initials: M
authors.lastname: Bullinger
authors.affiliation: Department of Medical Psychology, University Medical Center Hamburg - Eppendorf, Martinistr. 52, Building W26, 20246, Hamburg, Germany. j.quitmann@uke.de.
authors.forename: Julia
authors.initials: J
authors.lastname: Quitmann
mesh_terms: D000293:Adolescent; D002648:Child; D002675:Child, Preschool; D004392:Dwarfism / Q000523:psychology*; D005163:Factor Analysis, Statistical; D005260:Female; D006801:Humans; D008297:Male; D009426:Netherlands; D011594:Psychometrics / Q000379:methods*; D011788:Quality of Life / Q000523:psychology*; D015203:Reproducibility of Results; D011795:Surveys and Questionnaires
keywords: Children; Growth hormone (treatment); Psychometric testing; Quality of life; Short stature