Development of a Tool to Measure Youths' Food Allergy Management Facilitators and Barriers.
OBJECTIVE
This study's aims are to identify factors related to allergen avoidance and epinephrine carriage among youth with food allergy, develop a tool to measure food allergy management facilitators and barriers, and investigate its initial reliability and validity.


METHODS
The Food Allergy Management Perceptions Questionnaire (FAMPQ) was developed based on focus groups with 19 adolescents and young adults with food allergy. Additional youth with food allergy (N = 92; ages: 13-21 years) completed food allergy clinical history and management questionnaires and the FAMPQ.


RESULTS
Internal reliability estimates for the FAMPQ Facilitators and Barriers subscales were acceptable to good. Youth who were adherent to allergen avoidance and epinephrine carriage had higher Facilitator scores. Poor adherence was more likely among youth with higher Barrier scores.


CONCLUSIONS
Initial FAMPQ reliability and validity is promising. Additional research is needed to develop FAMPQ clinical guidelines.
Division of Allergy and Immunology, Children's National Health System and lherbert@childrensnational.org.
Linda Jones
LJ
Herbert
Division of Allergy and Immunology, Children's National Health System and.
Adora
A
Lin
Division of Pediatric Allergy and Immunology, Johns Hopkins School of Medicine.
Elizabeth
E
Matsui
Division of Pediatric Allergy and Immunology, Johns Hopkins School of Medicine.
Robert A
RA
Wood
Division of Allergy and Immunology, Children's National Health System and.
Hemant
H
Sharma
D000293:Adolescent; D000328:Adult; D001993:Bronchodilator Agents / Q000627:therapeutic use; D019468:Disease Management; D004837:Epinephrine / Q000627:therapeutic use; D005260:Female; D005512:Food Hypersensitivity / Q000188:drug therapy / Q000517:prevention & control*; D006801:Humans; D008297:Male; D010349:Patient Compliance; D011594:Psychometrics / Q000295:instrumentation*; D015203:Reproducibility of Results; D011795:Surveys and Questionnaires / Q000592:standards*; D055815:Young Adult
D001993:Bronchodilator Agents; D004837:Epinephrine
adherence; barriers; facilitators; food allergy