Development and Evaluation of an Information Booklet for Grandparents of Children With Cancer.
The needs of grandparents of children with cancer are often overlooked. This study evaluated a new educational resource (booklet) targeted toward grandparents of children with cancer. A multidisciplinary committee developed a printed booklet targeting grandparents' information needs identified in a previous study. Seventy-nine grandparents of children with cancer (63% grandmothers, Mage = 66.04, SD = 7.0 years) read and evaluated the booklet. Quantitative responses were analyzed with SPSS, and qualitative responses were thematically coded using QSR NVivo 10. Grandparents' responses to the resource were positive, with 92% finding the booklet "informative" (n = 73), "useful" (84%, n = 66), and "very relevant" (50%, n = 39). Qualitative responses reflected an appreciation for the booklet's readability, informative content, and quotes from grandparent experiences. The developed booklet was highly acceptable to grandparents of children with cancer and addressed their need for reassurance and guidance on obtaining further support. This study demonstrates the feasibility of developing and evaluating a targeted resource to meet grandparent's identified information needs.
University of New South Wales, Kensington, New South Wales, Australia Sydney Children's Hospital, Randwick, New South Wales, Australia c.wakefield@unsw.edu.au.
Claire
C
Wakefield
University of New South Wales, Kensington, New South Wales, Australia Sydney Children's Hospital, Randwick, New South Wales, Australia.
Sixuan
S
Lin
Sydney Children's Hospital, Randwick, New South Wales, Australia.
Donna
D
Drew
University of New South Wales, Kensington, New South Wales, Australia Sydney Children's Hospital, Randwick, New South Wales, Australia.
Jordana
J
McLoone
University of New South Wales, Kensington, New South Wales, Australia Sydney Children's Hospital, Randwick, New South Wales, Australia.
Emma
E
Doolan
University of New South Wales, Kensington, New South Wales, Australia Sydney Children's Hospital, Randwick, New South Wales, Australia.
Alison
A
Young
University of New South Wales, Kensington, New South Wales, Australia Sydney Children's Hospital, Randwick, New South Wales, Australia.
Joanna
J
Fardell
University of New South Wales, Kensington, New South Wales, Australia Sydney Children's Hospital, Randwick, New South Wales, Australia.
Richard
R
Cohn
D000223:Adaptation, Psychological; D000293:Adolescent; D000368:Aged; D000369:Aged, 80 and over; D001315:Australia; D002648:Child; D002675:Child, Preschool; D005260:Female; D000066502:Grandparents / Q000193:education* / Q000523:psychology*; D006801:Humans; D007223:Infant; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000523:psychology*; D010174:Pamphlets; D013315:Stress, Psychological
cancer; children; evaluation; grandparents; information; support