title: Are Research Ethics Committees Prepared for Community-Based Participatory Research?
abstract: Community-based participatory research (CBPR) is challenging to research ethics committees (RECs). We reviewed the REC preparedness when reviewing CBPR projects. We searched the MEDLINE database and included qualitative studies of CBPR researchers or REC members about their experiences with RECs. The search yielded 107 studies, of which 10 met our criteria. Barriers were that the community is not prepared to conduct research, the reluctance of RECs to work outside the university, the difficulty RECs have understanding CBPR, and that REC forms evaluate individual rather than community risk. Facilitators were having a CBPR expert as an REC member and educating RECs. Therefore, RECs are not prepared to evaluate CBPR projects leading to unnecessary delays in the approval process.
authors.affiliation: University of Miami, FL, USA Veterans Affairs Medical Center, Miami, FL, USA ltamariz@med.miami.edu.
authors.forename: Leonardo
authors.initials: L
authors.lastname: Tamariz
authors.affiliation: University of Miami, FL, USA.
authors.forename: Heidy
authors.initials: H
authors.lastname: Medina
authors.affiliation: University of Miami, FL, USA.
authors.forename: Janielle
authors.initials: J
authors.lastname: Taylor
authors.affiliation: University of Miami, FL, USA.
authors.forename: Olveen
authors.initials: O
authors.lastname: Carrasquillo
authors.affiliation: University of Miami, FL, USA.
authors.forename: Erin
authors.initials: E
authors.lastname: Kobetz
authors.affiliation: University of Miami, FL, USA Veterans Affairs Medical Center, Miami, FL, USA.
authors.forename: Ana
authors.initials: A
authors.lastname: Palacio
mesh_terms: D001290:Attitude; D055812:Community-Based Participatory Research / Q000941:ethics*; D003159:Community-Institutional Relations; D032882:Comprehension; D026724:Ethical Review; D028744:Ethics Committees, Research; D006801:Humans; D011361:Professional Competence; D036301:Qualitative Research; D012108:Research Personnel; D012111:Residence Characteristics
keywords: IRB/REC forms; community consent; community involvement; community risk; community-based participatory research