title: Data Collection and Management in Community Engaged Research: Lessons Learned From Two Community-Based Participatory Research Partnerships.
abstract: BACKGROUND
  Data collection and data management (DCDM) within community-engaged research (CEnR) requires special considerations that differ from those of traditional research. To date, little guidance exists to preemptively help community-academic partnerships anticipate and resolve DCDM issues that may arise.
  
  
  OBJECTIVE
  We sought to provide recommendations for DCDM based on two CEnR research projects.
  
  
  METHODS
  We used a case study design to describe the DCDM process and lessons learned that were generated through formal and informal discussions between community and academic partners.
  
  
  CONCLUSIONS
  We identified 4 key lessons: 1) CEnR requires a flexible, iterative approach to DCDM, 2) there are trade-offs to having a flexible DCDM approach, 3) responsibilities for DCDM should consider the skill sets and priorities of all partners, and 4) nuances of DC within CEnR has important implications for human subjects and ethics training.
  
  
  CONCLUSIONS
  Based on our lessons learned, we provide recommendations for how to approach DCDM within CEnR.
authors.forename: Crystal W
authors.initials: CW
authors.lastname: Cené
authors.forename: Laura Beth
authors.initials: LB
authors.lastname: Haymore
authors.forename: Zoe
authors.initials: Z
authors.lastname: Enga
authors.forename: Stepheria Hodge
authors.initials: SH
authors.lastname: Sallah
authors.forename: Tiarney
authors.initials: T
authors.lastname: Ritchwood
authors.forename: Mysha
authors.initials: M
authors.lastname: Wynn
authors.forename: Danny
authors.initials: D
authors.lastname: Ellis
authors.forename: Giselle
authors.initials: G
authors.lastname: Corbie-Smith
mesh_terms: D055812:Community-Based Participatory Research / Q000379:methods*; D003159:Community-Institutional Relations; D003625:Data Collection / Q000379:methods*; D063025:Health Information Management / Q000379:methods*; D006301:Health Services Needs and Demand; D054624:Health Status Disparities; D006801:Humans; D009657:North Carolina; D011634:Public Health / Q000379:methods; D012424:Rural Population