title: [The BETER survivorship care initiative for Hodgkin lymphoma; tailored survivorship care for late effects of treatment].
abstract: The Dutch BETER consortium has established a national care infrastructure for Hodgkin lymphoma survivors. 'BETER' [the Dutch word for 'better'] stands for Better care after Hodgkin lymphoma (HL): Evaluation of long-term Treatment Effects and screening Recommendations. The survivorship care focuses on long-term effects of HL treatment. Over 10,000 HL survivors who were treated in the period spanning 1965-2008 have been identified. As part of the survivorship care initiative, specific BETER out-patient clinics have been set up. A dedicated website, www.beternahodgkin.nl, provides HL survivors with relevant information. The stakeholders of the BETER survivorship care programme aim to achieve an improved healthy life expectancy for patients treated for HL.
authors.affiliation: *Namens het BETER-consortium, waarvan de deelnemers aan het eind van dit artikel vermeld staan.
authors.forename: Nicky
authors.initials: N
authors.lastname: Dekker
authors.forename: Mars B
authors.initials: MB
authors.lastname: van 't Veer
authors.forename: Berthe M P
authors.initials: BM
authors.lastname: Aleman
authors.forename: Flora E
authors.initials: FE
authors.lastname: van Leeuwen
authors.forename: John M M
authors.initials: JM
authors.lastname: Raemaekers
mesh_terms: D006689:Hodgkin Disease / Q000175:diagnosis / Q000401:mortality / Q000628:therapy*; D006801:Humans; D008017:Life Expectancy; D010045:Outpatients; D011787:Quality of Health Care; D011788:Quality of Life; D015996:Survival Rate; D017741:Survivors / Q000523:psychology / Q000706:statistics & numerical data*; D016896:Treatment Outcome