title: Barriers to psychological care among primary caregivers of children undergoing hematopoietic stem cell transplantation.
abstract: OBJECTIVE
  This substudy of an intervention trial aimed to describe barriers to participation in psychological care among primary caregivers of children who were about to undergo a hematopoietic stem cell transplantation (HSCT), including demographic and medical correlates.
  
  
  METHODS
  Three hundred and twelve primary caregivers of children undergoing HSCT who were approached to participate in a psychological intervention trial (n = 218 enrollees and 94 decliners) completed a measure of barriers to psychological care.
  
  
  RESULTS
  The most frequently endorsed barriers to care were focusing on the child as priority, not wanting to leave the child's bedside, and already having adequate psychosocial support. The least frequently endorsed barriers were location, wait times, and stigma around seeking psychological care.
  
  
  CONCLUSIONS
  Results suggest that explaining how psychological care for a primary caregiver can positively affect their ill child may reduce barriers to seeking needed support services. Certain practical barriers to care may be irrelevant in inpatient settings where psychological support is offered.
authors.affiliation: Department of Medicine, Section of Population Sciences, Rutgers Cancer Institute of New Jersey, 195 Little Albany Street, New Brunswick, NJ, 08903, USA. Katie.devine@rutgers.edu.
authors.forename: Katie A
authors.initials: KA
authors.lastname: Devine
authors.affiliation: Department of Medicine, Section of Population Sciences, Rutgers Cancer Institute of New Jersey, 195 Little Albany Street, New Brunswick, NJ, 08903, USA.
authors.forename: Sharon L
authors.initials: SL
authors.lastname: Manne
authors.affiliation: Department of Psychiatry and Behavioral Sciences, Emory University School of Medicine, Atlanta, GA, USA.
authors.forename: Laura
authors.initials: L
authors.lastname: Mee
authors.affiliation: Department of Psychiatry & Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, NY, USA.
authors.forename: Abraham S
authors.initials: AS
authors.lastname: Bartell
authors.affiliation: Department of Psychiatry, Columbia University Medical Center, New York, NY, USA.
authors.forename: Stephen A
authors.initials: SA
authors.lastname: Sands
authors.affiliation: Department of Medicine, Section of Population Sciences, Rutgers Cancer Institute of New Jersey, 195 Little Albany Street, New Brunswick, NJ, 08903, USA.
authors.forename: Shannon
authors.initials: S
authors.lastname: Myers-Virtue
authors.affiliation: Department of Biostatistics, Rutgers University School of Public Health, Piscataway Township, NJ, USA.
authors.forename: Pamela
authors.initials: P
authors.lastname: Ohman-Strickland
mesh_terms: D000328:Adult; D017028:Caregivers / Q000523:psychology*; D002648:Child; D005260:Female; D018380:Hematopoietic Stem Cell Transplantation / Q000523:psychology*; D006801:Humans; D013315:Stress, Psychological / Q000523:psychology; D019172:Transplantation Conditioning / Q000523:psychology*
keywords: Hematopoietic stem cell transplantation; Primary caregiver; Psychological care