title: Integrating Patient-Reported Outcome Measures into Routine Cancer Care: Cancer Patients' and Clinicians' Perceptions of Acceptability and Value.
abstract: BACKGROUND
  Despite growing interest in integrating patient-reported outcome (PRO) measures of symptoms and functional status into routine cancer care, little attention has been paid to patients' and clinicians' perceptions of acceptability and value.
  
  
  METHODS
  A two-phase qualitative study was conducted to develop a web-based PRO screening system with 21 items assessing symptoms (e.g., nausea) and functional status. Phase 1 involved cognitive interviews with 35 cancer outpatients (n=9 breast chemotherapy, radiation for prostate (n=8) or head and neck cancer (n=10), and n=8 bone marrow transplant [BMT]). In Phase 2, we evaluated the acceptability and perceived value of reviewing a PRO measure during real-time clinical encounters with 39 additional outpatients (n=10 breast, n=9 head and neck, n=10 prostate, n=10 BMT) and 12 clinicians (n=3 breast, n=2 head and neck, n=4 prostate, n=3 BMT). At least 20% of patients were ≥60 years, African American, or ≤ high school.
  
  
  RESULTS
  Patients felt that their PRO summary of symptoms and functional status was helpful in discussing health issues with clinicians (92%), wanted to review their results with clinicians during future visits (82%), and would recommend it to other patients (87%). Clinicians found the PRO summary to be easy to interpret (83%), most helpful for documenting the Review of Symptoms (92%), and would recommend it to future patients (92%). Over 90% of clinicians reported that consultation time did not increase.
  
  
  CONCLUSIONS
  Both cancer patients and clinicians reported that discussing a PRO summary of symptoms and functional status during an outpatient visit was useful, acceptable, and feasible.
authors.affiliation: University of North Carolina at Chapel Hill.
authors.forename: Angela
authors.initials: A
authors.lastname: Stover
authors.affiliation: University of North Carolina at Chapel Hill.
authors.forename: Debra E
authors.initials: DE
authors.lastname: Irwin
authors.affiliation: University of North Carolina at Chapel Hill.
authors.forename: Ronald C
authors.initials: RC
authors.lastname: Chen
authors.affiliation: University of North Carolina at Chapel Hill.
authors.forename: Bhishamjit S
authors.initials: BS
authors.lastname: Chera
authors.affiliation: University of North Carolina at Chapel Hill.
authors.forename: Deborah K
authors.initials: DK
authors.lastname: Mayer
authors.affiliation: University of North Carolina at Chapel Hill.
authors.forename: Hyman B
authors.initials: HB
authors.lastname: Muss
authors.affiliation: University of North Carolina at Chapel Hill.
authors.forename: Donald L
authors.initials: DL
authors.lastname: Rosenstein
authors.affiliation: University of North Carolina at Chapel Hill.
authors.forename: Thomas C
authors.initials: TC
authors.lastname: Shea
authors.affiliation: University of North Carolina at Chapel Hill.
authors.forename: William A
authors.initials: WA
authors.lastname: Wood
authors.affiliation: Harvard University.
authors.forename: Jessica C
authors.initials: JC
authors.lastname: Lyons
authors.affiliation: University of North Carolina at Chapel Hill.
authors.forename: Bryce B
authors.initials: BB
authors.lastname: Reeve
keywords: Health Information Technology; Patient Involvement; Standardized Data Collection