title: The Role of Aging and Disability Resource Centers in Serving Adults Aging with Intellectual Disabilities and Their Families: Findings from Seven States.
abstract: For the first time, adults with intellectual and developmental disabilities (I/DD) are living to experience old age. The purpose of this project was to assess the activities of aging and disability resource centers (ADRCs) as they seek to serve older adults with intellectual disabilities and their family caregivers. Data come from 21 in-depth qualitative interviews with ADRC staff in seven states. Results of this qualitative analysis indicate that ADRCs are not focusing explicitly on adults aging with I/DD and their family caregivers, but meeting the needs of this population is a future goal of ADRCs. Challenges related to accessing and providing information and referral services for adults aging with I/DD were described and highlight existing unmet needs of this population. Supporting adults who simultaneously require aging and disability services requires true coordination of aging and disability service systems.
authors.affiliation: a Research Fellow , Yale School of Public Health , New Haven , Connecticut , USA.
authors.forename: Caitlin E
authors.initials: CE
authors.lastname: Coyle
authors.affiliation: b Professor of Social Work , Simmons College , Boston , Massachusetts , USA.
authors.forename: Michelle
authors.initials: M
authors.lastname: Putman
authors.affiliation: c Research Associate, Institute for Community Inclusion , University of Massachusetts Boston , Boston , Massachusetts , USA.
authors.forename: John
authors.initials: J
authors.lastname: Kramer
authors.affiliation: d Professor of Gerontology , University of Massachusetts Boston , Boston , Massachusetts , USA.
authors.forename: Jan E
authors.initials: JE
authors.lastname: Mutchler
mesh_terms: D000328:Adult; D000368:Aged; D000375:Aging; D017028:Caregivers; D014487:Centers for Medicare and Medicaid Services, U.S.; D006233:Persons with Disabilities / Q000523:psychology / Q000534:rehabilitation; D005260:Female; D006301:Health Services Needs and Demand; D066086:Health Services for Persons with Disabilities / Q000458:organization & administration*; D006299:Health Services for the Aged / Q000458:organization & administration*; D006801:Humans; D057187:Independent Living / Q000592:standards; D008607:Intellectual Disability / Q000453:epidemiology / Q000534:rehabilitation; D008134:Long-Term Care / Q000379:methods / Q000523:psychology / Q000592:standards; D008297:Male; D015397:Program Evaluation; D012944:Social Support; D011795:Surveys and Questionnaires; D014481:United States / Q000453:epidemiology
keywords: Community living; disability; intellectual disability long-term services and supports; state policy