title: Strategies for Disseminating Information on Biomedical Research on Autism to Hispanic Parents.
abstract: Low income Hispanic families experience multiple barriers to accessing evidence-based information on Autism Spectrum Disorders (ASD). This study utilized a mixed-strategy intervention to create access to information in published bio-medical research articles on ASD by distilling the content into parent-friendly English- and Spanish-language ASD Science Briefs and presenting them to participants using two socially-oriented dissemination methods. There was a main effect for short-term knowledge gains associated with the Science Briefs but no effect for the dissemination method. After 5 months, participants reported utilizing the information learned and 90% wanted to read more Science Briefs. These preliminary findings highlight the potential benefits of distilling biomedical research articles on ASD into parent-friendly educational products for currently underserved Hispanic parents.
authors.affiliation: University of Southern California Viterbi School of Engineering, 3740 McClintock Ave., Los Angeles, CA, 90089-2564, USA.|Autism Speaks, Los Angeles, CA, USA.
authors.forename: Clara M
authors.initials: CM
authors.lastname: Lajonchere
authors.affiliation: USC University Center for Excellence in Developmental Disabilities at Children's Hospital Los Angeles, MS 53, 4650 Sunset Blvd., Los Angeles, CA, 90027, USA. bwheeler@chla.usc.edu.|Department of Pediatrics, University of Southern California Keck School of Medicine, Los Angeles, CA, USA. bwheeler@chla.usc.edu.
authors.forename: Barbara Y
authors.initials: BY
authors.lastname: Wheeler
authors.affiliation: Department of Preventive Medicine, University of Southern California Keck School of Medicine, 2001 N. Soto St, Room 302 W, Los Angeles, CA, 90032-3628, USA.
authors.forename: Thomas W
authors.initials: TW
authors.lastname: Valente
authors.affiliation: USC University Center for Excellence in Developmental Disabilities at Children's Hospital Los Angeles, MS 53, 4650 Sunset Blvd., Los Angeles, CA, 90027, USA.|Department of Pediatrics, University of Southern California Keck School of Medicine, Los Angeles, CA, USA.|University of Southern California Davis School of Gerontology, 3715 McClintock Ave., Los Angeles, CA, 90089-0191, USA.
authors.forename: Cary
authors.initials: C
authors.lastname: Kreutzer
authors.affiliation: Department of Preventive Medicine, University of Southern California Keck School of Medicine, 2001 N. Soto St, Room 302 W, Los Angeles, CA, 90032-3628, USA.|Loma Linda University Medical Center, 30554 Colina Verde, Temecula, CA, 92592, USA.
authors.forename: Aron
authors.initials: A
authors.lastname: Munson
authors.affiliation: University of Southern California Viterbi School of Engineering, 3740 McClintock Ave., Los Angeles, CA, 90089-2564, USA.
authors.forename: Shrikanth
authors.initials: S
authors.lastname: Narayanan
authors.affiliation: University of Southern California Viterbi School of Engineering, 3740 McClintock Ave., Los Angeles, CA, 90089-2564, USA.|Vixlet, 3420 S. Sepulveda Blvd. #419, Los Angeles, CA, 90034, USA.
authors.forename: Abe
authors.initials: A
authors.lastname: Kazemzadeh
authors.affiliation: USC University Center for Excellence in Developmental Disabilities at Children's Hospital Los Angeles, MS 53, 4650 Sunset Blvd., Los Angeles, CA, 90027, USA.|Fiesta Educativa, Inc., 161 South Avenue 24, Los Angeles, CA, 90031, USA.|1736 Family Crisis Center, 3434 Garnet St., Los Angeles, CA, 90023, USA.
authors.forename: Roxana
authors.initials: R
authors.lastname: Cruz
authors.affiliation: Fiesta Educativa, Inc., 161 South Avenue 24, Los Angeles, CA, 90031, USA.|Fiesta Educativa, Inc., P.O. Box 31285, Los Angeles, CA, 90031, USA.
authors.forename: Irene
authors.initials: I
authors.lastname: Martinez
authors.affiliation: Division of Hospital Medicine, Children's Hospital Los Angeles, 4650 Sunset Blvd., MS #94, Los Angeles, CA, 90027, USA.
authors.forename: Sheree M
authors.initials: SM
authors.lastname: Schrager
authors.affiliation: University of Southern California Price School of Public Policy, 311 RGL, Los Angeles, CA, 90016, USA.
authors.forename: Lisa
authors.initials: L
authors.lastname: Schweitzer
authors.affiliation: Iridescent, 532 W 22nd St., Los Angeles, CA, 90007, USA.
authors.forename: Tara
authors.initials: T
authors.lastname: Chklovski
authors.affiliation: University of Southern California Viterbi School of Engineering, 3740 McClintock Ave., Los Angeles, CA, 90089-2564, USA.|Iridescent, 532 W 22nd St., Los Angeles, CA, 90007, USA.|USC Department of Radiology, Healthcare Consultation Center II, 1520 San Pablo St. L1600, Los Angeles, CA, 90033, USA.
authors.forename: Darryl
authors.initials: D
authors.lastname: Hwang
mesh_terms: D000293:Adolescent; D000328:Adult; D000067877:Autism Spectrum Disorder / Q000208:ethnology* / Q000523:psychology / Q000628:therapy; D035843:Biomedical Research / Q000379:methods*; D005260:Female; D057220:Health Literacy / Q000379:methods; D006630:Hispanic or Latino / Q000208:ethnology* / Q000523:psychology; D006801:Humans; D033181:Information Dissemination / Q000379:methods*; D007802:Language; D008297:Male; D008875:Middle Aged; D010290:Parents / Q000193:education* / Q000523:psychology; D010353:Patient Education as Topic / Q000379:methods*
keywords: Biomedical research on Autism; Health literacy; Hispanic/Latino; Racial disparities