title: Trajectories, Long-Term Outcomes and Family Experiences of 76 Adults with Autism Spectrum Disorder.
abstract: The aim of this retrospective study was to retrace the trajectories and long-term outcomes of individuals with autism in France, and to explore the family experiences. Data obtained from parents enables us to follow the trajectories of 76 adults. Two-thirds of adults with severe autism had a very poor outcome. Those with moderate autism had a better outcome. In adulthood, the majority were in residential accommodation. None were living independently. The trajectories of people with Asperger syndrome or high-functioning autism were more positive since all of them attended school for a long time and some went to university. All of them had a good outcome but they remained dependent on aging parents who had few available supports.
authors.affiliation: CERMES3 - INSERM U988 - CNRS UMR 8211 - EHESS, Paris Descartes University, 45 rue des Saints-Pères, 75270, Paris Cedex 06, France. brigitte.chamak@parisdescartes.fr.
authors.forename: Brigitte
authors.initials: B
authors.lastname: Chamak
authors.affiliation: CERMES3 - INSERM U988 - CNRS UMR 8211 - EHESS, Paris Descartes University, 45 rue des Saints-Pères, 75270, Paris Cedex 06, France. beatrice.bonniau@parisdescartes.fr.
authors.forename: Béatrice
authors.initials: B
authors.lastname: Bonniau
mesh_terms: D000293:Adolescent; D000328:Adult; D020817:Asperger Syndrome / Q000175:diagnosis / Q000453:epidemiology / Q000523:psychology; D000067877:Autism Spectrum Disorder / Q000175:diagnosis / Q000453:epidemiology* / Q000523:psychology*; D005190:Family / Q000523:psychology*; D005260:Female; D005602:France / Q000453:epidemiology; D006801:Humans; D008297:Male; D008875:Middle Aged; D012189:Retrospective Studies; D011795:Surveys and Questionnaires; D013997:Time Factors; D016896:Treatment Outcome; D055815:Young Adult
keywords: Adults; Asperger syndrome; Autism; Outcome; Trajectory