title: [High myopic patients: A survey of their history, feelings, beliefs and needs].
abstract: OBJECTIVE
  High myopia (HM), which affects 0.9 to 3.1% of the population, is a major cause of vision loss. The purpose of this investigation was to study and evaluate the impact of their high myopia on the daily lives of patients and to better understand their expectations in order to better meet their needs.
  
  
  METHODS
  The survey was conducted between February 19 and March 21, 2014. To be eligible, patients had to have myopia of at least -8 diopters and be over 40 years of age, with or without myopic complications. Patients' degree of myopia was defined as the optical prescription of their worse eye. The 123 patients included were interviewed by phone using a questionnaire developed and validated by a scientific committee composed of experts and members of the patients' Association against myopic maculopathy (AMAM). The phone interview, semi-structured, lasted 20 minutes.
  
  
  RESULTS
  On average, myopia was -11.7 diopters. Women accounted for 71% of the population, 89% of patients were under 65 years and were mostly professionals (65%). Over half of the subjects reported myopic complications; 5% of patients had choroidal neovascularization (CNV). Only 29% had been informed of the risk of CNV or maculopathy. HM was a handicap in sports for 64% of patients, in leisure activities for 51%, and in professional activities for more than a quarter (28%). Only 56% of HM patients reported living perfectly well with their condition.
  
  
  CONCLUSIONS
  This survey is the first study on the daily life of people with HM aiming to analyze their social and emotional environment. It shows that HM has a profound impact on the daily lives of patients and may affect social life and professional activity. Most myopic patients possess incomplete or unclear information about the nature and risk of myopic complications. They expressed the desire to be better informed about their condition earlier, before the onset of complications.
authors.affiliation: Service d'ophtalmologie, NHC, hôpitaux universitaires de Strasbourg, 1, place de l'Hôpital, 67091 Strasbourg cedex, France; Unité EA-7290, Fédération de médecine translationnelle de Strasbourg, institut de bactériologie, 3, rue Koeberlé, 67000 Strasbourg, France. Electronic address: david.gaucher@chru-strasbourg.fr.
authors.forename: D
authors.initials: D
authors.lastname: Gaucher
authors.affiliation: Novartis Pharma S.A.S2 et 4, rue Lionel-Terray, BP 308, 92506 Rueil-Malmaison cedex, France.
authors.forename: C
authors.initials: C
authors.lastname: Chartier
authors.affiliation: Centre ophtalmologique d'imagerie et de laser, 11, rue Antoine-Bourdelle, 75015 Paris, France.
authors.forename: S-Y
authors.initials: SY
authors.lastname: Cohen
authors.affiliation: Service d'ophtalmologie, hôpital Pierre-Paul-Riquet, place du Docteur-Baylac, TSA 40031, 31059 Toulouse cedex 9, France.
authors.forename: F
authors.initials: F
authors.lastname: Malecaze
authors.affiliation: Centre hospitalier intercommunal de Créteil, 40, avenue de Verdun, 94010 Créteil cedex, France.
authors.forename: E H
authors.initials: EH
authors.lastname: Souied
authors.affiliation: Département d'ophtalmologie, hôpital universitaire de Nantes, 5, allée de l'Île-Gloriette, 44093 Nantes cedex 1, France.
authors.forename: M
authors.initials: M
authors.lastname: Weber
authors.affiliation: CHU de Poitiers, 2, rue de la Milétrie, 86000 Poitiers, France; Inserm UMR 1084, laboratoire de neurosciences expérimentales et cliniques, pôle biologie-santé, université de Poitiers, immeuble B36, 1, rue Georges-Bonnet, BP 633, 86022 Poitiers cedex, France.
authors.forename: N
authors.initials: N
authors.lastname: Leveziel
mesh_terms: D000203:Activities of Daily Living; D000328:Adult; D000368:Aged; D001294:Attitude to Health; D020256:Choroidal Neovascularization / Q000523:psychology; D015897:Comorbidity; D003469:Culture; D004644:Emotions; D005260:Female; D006301:Health Services Needs and Demand; D006306:Health Surveys; D006801:Humans; D008297:Male; D008875:Middle Aged; D009216:Myopia / Q000150:complications / Q000523:psychology*; D009790:Occupations; D010353:Patient Education as Topic; D011788:Quality of Life; D012306:Risk; D012931:Social Environment
keywords: Attentes; Besoins; Daily life; Expectations; High myopia; Myopie forte; Needs; Social life; Vie quotidienne; Vie sociale