title: Addressing Methodological Challenges in Large Communication Data Sets: Collecting and Coding Longitudinal Interactions in Home Hospice Cancer Care.
abstract: In this article, we present strategies for collecting and coding a large longitudinal communication data set collected across multiple sites, consisting of more than 2000 hours of digital audio recordings from approximately 300 families. We describe our methods within the context of implementing a large-scale study of communication during cancer home hospice nurse visits, but this procedure could be adapted to communication data sets across a wide variety of settings. This research is the first study designed to capture home hospice nurse-caregiver communication, a highly understudied location and type of communication event. We present a detailed example protocol encompassing data collection in the home environment, large-scale, multisite secure data management, the development of theoretically-based communication coding, and strategies for preventing coder drift and ensuring reliability of analyses. Although each of these challenges has the potential to undermine the utility of the data, reliability between coders is often the only issue consistently reported and addressed in the literature. Overall, our approach demonstrates rigor and provides a "how-to" example for managing large, digitally recorded data sets from collection through analysis. These strategies can inform other large-scale health communication research.
authors.affiliation: a Department of Health Outcomes & Behavior , Moffitt Cancer Center.
authors.forename: Maija
authors.initials: M
authors.lastname: Reblin
authors.affiliation: b College of Nursing , University of Utah.
authors.forename: Margaret F
authors.initials: MF
authors.lastname: Clayton
authors.affiliation: c School of Communications , Brigham Young University.
authors.forename: Kevin K
authors.initials: KK
authors.lastname: John
authors.affiliation: b College of Nursing , University of Utah.
authors.forename: Lee
authors.initials: L
authors.lastname: Ellington
mesh_terms: D017028:Caregivers / Q000523:psychology; D003142:Communication; D003625:Data Collection; D066264:Datasets as Topic; D006302:Health Services Research; D006699:Home Care Services / Q000706:statistics & numerical data*; D017051:Hospice Care; D064946:Hospice and Palliative Care Nursing; D006801:Humans; D008137:Longitudinal Studies; D009369:Neoplasms; D012107:Research Design