title: Factors influencing the care provided for periviable babies in Australia: a narrative review.
abstract: Survival at extreme prematurity is becoming increasingly common. Neurodisability is an increasing risk with decreasing gestation. This review outlines the risks of extreme prematurity and the attitudes of health care providers and families in Australia of periviable babies. High quality data is difficult to find due to differing definitions and methods of assessment of disability. Meta-analyses of outcomes of prematurity published from 2008 to 2013, including babies born from 1990 onwards, suggest a severe disability rate of around 20 % at 22 to 26 weeks completed gestation, with moderate disability decreasing with increasing gestation. Studies show that Australian health care providers underestimate the survival and positive outcomes of these babies. The majority of Australian health care providers state that parental preference would determine the decision to offer care to babies at 23 weeks gestation, however, all had a threshold above which parental preference would be ignored in favour of resuscitation .This ranged from 22 to 27 completed weeks gestation. The few studies examining Australian parental involvement in resuscitation decisions, showed that the majority of parents felt that health professionals alone had made the decision to resuscitate their extremely preterm babies and the parents themselves did not wish to be the primary decision makers in withholding care. The babies progressed better than parents had expected following antenatal counselling. The attitudes of health care providers, experiences and opinions of parents seem to be at odds with the current move to increase parental decision making at the most extremes of gestation. Current Australian guidelines suggest parental decision making below 25 weeks gestation, and primarily clinician decision making over this gestation. The increased risks of prematurity and adverse outcomes for the North Queensland population is also explored. This population has a high proportion of Aboriginal and Torres Strait Islanders who have increased risks which are primarily linked to poor socioeconomic factors and are highest for the most remote residents. Attitudes towards delivery of care to these highest risk babies from health professionals and in the populations themselves have not been studied.
authors.affiliation: The neonatal unit, The Townsville Hospital, 100 Angus Smith Dve, Douglas, Queensland, 4814, Australia. Susan.ireland@my.jcu.edu.au.
authors.forename: Susan
authors.initials: S
authors.lastname: Ireland
authors.affiliation: College of Medicine and Dentistry, James Cook University, Douglas, Queensland, 4814, Australia. Robin.ray@jcu.edu.au.
authors.forename: Robin
authors.initials: R
authors.lastname: Ray
authors.affiliation: College of Medicine and Dentistry, James Cook University, Douglas, Queensland, 4814, Australia. Sarah.larkins@jcu.edu.au.
authors.forename: Sarah
authors.initials: S
authors.lastname: Larkins
authors.affiliation: College of Medicine and Dentistry, James Cook University, Douglas, Queensland, 4814, Australia. Lynn.woodward@jcu.edu.au.
authors.forename: Lynn
authors.initials: L
authors.lastname: Woodward
mesh_terms: D001291:Attitude of Health Personnel; D001294:Attitude to Health; D001315:Australia; D003657:Decision Making; D005865:Gestational Age; D006801:Humans; D062071:Infant, Extremely Premature; D007231:Infant, Newborn; D010290:Parents / Q000523:psychology; D018743:Perinatal Care / Q000379:methods*; D011368:Professional-Family Relations; D012151:Resuscitation