title: Validation of the National Institutes of Health Patient-Reported Outcomes Measurement Information System Survey as a Quality-of-Life Instrument for Patients with Malignant Brain Tumors and Their Caregivers.
abstract: At present there is a lack of well-validated surveys used to measure quality of life in patients with malignant brain tumors and their caregivers. The main objective of this pilot study was to validate the National Institutes of Health Patient-Reported Outcomes Measurement Information System (NIH PROMIS) survey for use as a quality-of-life measure in this population. This article presents the rationale for using the NIH PROMIS instrument as a quality-of-life measure for patients with malignant brain tumors and their caregivers.
authors.affiliation: School of Nursing, Northern Michigan University, 2131 New Science Facility, 1401 Presque Isle Avenue, Marquette, MI 49855, USA. Electronic address: mromero@nmu.edu.
authors.forename: Melissa M
authors.initials: MM
authors.lastname: Romero
authors.affiliation: School of Nursing, Northern Michigan University, 2131 New Science Facility, 1401 Presque Isle Avenue, Marquette, MI 49855, USA.
authors.forename: Lisa Sue
authors.initials: LS
authors.lastname: Flood
authors.affiliation: School of Nursing, Northern Michigan University, 2131 New Science Facility, 1401 Presque Isle Avenue, Marquette, MI 49855, USA.
authors.forename: Nanci K
authors.initials: NK
authors.lastname: Gasiewicz
authors.affiliation: Marquette General Neurosurgery, UP Health System Marquette, 580 West College Avenue, Marquette, MI 49855, USA.
authors.forename: Richard
authors.initials: R
authors.lastname: Rovin
authors.affiliation: School of Nursing, Northern Michigan University, 2131 New Science Facility, 1401 Presque Isle Avenue, Marquette, MI 49855, USA.
authors.forename: Samantha
authors.initials: S
authors.lastname: Conklin
mesh_terms: D000328:Adult; D000368:Aged; D001254:Astrocytoma / Q000451:nursing / Q000473:pathology / Q000523:psychology; D001932:Brain Neoplasms / Q000451:nursing / Q000473:pathology / Q000523:psychology*; D017028:Caregivers / Q000523:psychology*; D005260:Female; D005909:Glioblastoma / Q000451:nursing / Q000473:pathology / Q000523:psychology; D006801:Humans; D007256:Information Systems; D008297:Male; D008875:Middle Aged; D009316:National Institutes of Health (U.S.); D009362:Neoplasm Metastasis; D009736:Nursing Process; D010865:Pilot Projects; D011788:Quality of Life; D015203:Reproducibility of Results; D011795:Surveys and Questionnaires; D014481:United States
keywords: Caregiver; Malignant brain tumor; Pilot study; Quality of life; iPod touch device