title: Web-Based Intervention for Nutritional Management in Cystic Fibrosis: Development, Usability, and Pilot Trial.
abstract: Usability and pilot testing of a web intervention (BeInCharge.org [BIC]) of behavior plus nutrition intervention for children with cystic fibrosis (CF) ages 4-9 years.
  
  
  
  Think Aloud methodology was used with five mothers to assess usability and refine the intervention. A pilot trial was then conducted with 10 mothers of children with CF ages 4-9 years randomized to the web-based BIC or a Standard Care Control (STC). Change in weight gain for each group was compared in a pre-to-post design.
  
  
  
  Mothers rated the usability and clarity of BIC highly. The pilot trial showed children of mothers who received BIC had a significant change in weight pre-to-post-treatment (0.67 kg, p = .04). Change for the STC was not significant (0.41 kg, p = .10).
  
  
  
  A web-based behavior plus nutrition intervention appears promising in increasing weight gain in children with CF.
authors.affiliation: Division of Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center and lori.stark@cchmc.org.
authors.forename: Lori J
authors.initials: LJ
authors.lastname: Stark
authors.affiliation: Division of Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center and.
authors.forename: Lisa
authors.initials: L
authors.lastname: Opipari-Arrigan
authors.affiliation: Division of Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center and.
authors.forename: Stephanie S
authors.initials: SS
authors.lastname: Filigno
authors.affiliation: Division of Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center and.
authors.forename: Stacey L
authors.initials: SL
authors.lastname: Simon
authors.affiliation: Department of Pediatrics, The Johns Hopkins Medical Institutions.
authors.forename: Amanda
authors.initials: A
authors.lastname: Leonard
authors.affiliation: Department of Pediatrics, The Johns Hopkins Medical Institutions.
authors.forename: Peter J
authors.initials: PJ
authors.lastname: Mogayzel
authors.affiliation: Division of Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center and.
authors.forename: Joseph
authors.initials: J
authors.lastname: Rausch
authors.affiliation: Division of Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center and.
authors.forename: Cynthia
authors.initials: C
authors.lastname: Zion
authors.affiliation: Division of Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center and.
authors.forename: Scott W
authors.initials: SW
authors.lastname: Powers
mesh_terms: D001521:Behavior Therapy; D002648:Child; D002675:Child, Preschool; D003131:Combined Modality Therapy; D003550:Cystic Fibrosis / Q000178:diet therapy* / Q000628:therapy; D005260:Female; D006801:Humans; D020407:Internet; D008297:Male; D010865:Pilot Projects; D016037:Single-Blind Method; D017216:Telemedicine / Q000379:methods*; D016896:Treatment Outcome; D015430:Weight Gain
keywords: behavioral intervention; cystic fibrosis; nutrition; web intervention