title: Engaging the Public to Identify Opportunities to Improve Critical Care: A Qualitative Analysis of an Open Community Forum.
abstract: OBJECTIVE
  To engage the public to understand how to improve the care of critically ill patients.
  
  
  METHODS
  A qualitative content analysis of an open community forum (Café Scientifique).
  
  
  METHODS
  Public venue in Calgary, Alberta, Canada.
  
  
  METHODS
  Members of the general public including patients, families of patients, health care providers, and members of the community at large.
  
  
  METHODS
  A panel of researchers, decision-makers, and a family member led a Café Scientifique, an informal dialogue between the populace and experts, over three-hours to engage the public to understand how to improve the care of critically ill patients. Conventional qualitative content analysis was used to analyze the data. The inductive analysis occurred in three phases: coding, categorizing, and developing themes.
  
  
  RESULTS
  Thirty-eight members of the public (former ICU patients, family members of patients, providers, community members) attended. Participants focused the discussion and provided concrete suggestions for improvement around communication (family as surrogate voice, timing of conversations, decision tools) and provider well-being and engagement, as opposed to medical interventions in critical care.
  
  
  CONCLUSIONS
  Café participants believe patient and family centered care is important to ensure high-quality care in the ICU. A Café Scientifique is a valuable forum to engage the public to contribute to priority setting areas for research in critical care, as well as a platform to share lived experience. Research stakeholders including health care organizations, governments, and funding organizations should provide more opportunities for the public to engage in meaningful conversations about how to best improve healthcare.
authors.affiliation: Research Priorities & Implementation, Alberta Health Services, Calgary, Canada.|Department of Community Health Sciences, University of Calgary, Calgary, Canada.
authors.forename: Melissa L
authors.initials: ML
authors.lastname: Potestio
authors.affiliation: Department of Community Health Sciences, University of Calgary, Calgary, Canada.|W21C Research and Innovation Centre, University of Calgary, Calgary, Canada.
authors.forename: Jamie M
authors.initials: JM
authors.lastname: Boyd
authors.affiliation: Division of Critical Care Medicine, Faculty of Medicine and Dentistry, University of Alberta, Alberta Health Services, Edmonton, Canada.
authors.forename: Sean M
authors.initials: SM
authors.lastname: Bagshaw
authors.affiliation: Department of Critical Care Medicine, Queen's University, Clinical Evaluation Research Unit, Kingston General Hospital, Kingston, Canada.
authors.forename: Daren
authors.initials: D
authors.lastname: Heyland
authors.affiliation: Family Advisor, Critical Care, Alberta Health Services, Calgary, Canada.|Patient and Community Engagement Researcher (PaCER), University of Calgary, Calgary, Canada.
authors.forename: Peter
authors.initials: P
authors.lastname: Oxland
authors.affiliation: Department of Critical Care Medicine, University of Calgary, Alberta Health Services, Calgary, Canada.
authors.forename: Christopher J
authors.initials: CJ
authors.lastname: Doig
authors.affiliation: Division of Critical Care Medicine, Faculty of Medicine and Dentistry, University of Alberta, Alberta Health Services, Edmonton, Canada.
authors.forename: Dave
authors.initials: D
authors.lastname: Zygun
authors.affiliation: Department of Community Health Sciences, University of Calgary, Calgary, Canada.|Department of Critical Care Medicine, University of Calgary, Alberta Health Services, Calgary, Canada.
authors.forename: Henry T
authors.initials: HT
authors.lastname: Stelfox
mesh_terms: D000416:Alberta; D003256:Community Participation; D003159:Community-Institutional Relations; D003422:Critical Care / Q000458:organization & administration*; D016638:Critical Illness / Q000628:therapy*; D003657:Decision Making; D005190:Family; D006801:Humans; D010817:Physician-Patient Relations / Q000941:ethics; D036301:Qualitative Research