title: A multicenter prospective quasi-experimental study on the impact of a transition-oriented generic patient education program on health service participation and quality of life in adolescents and young adults.
abstract: OBJECTIVE
  The aim of the study was to test the effects of a generic transition-oriented patient education program on adolescents' health service participation and quality of life (QoL).
  
  
  METHODS
  We conducted a controlled trial comparing participants of 29 transition workshops with treatment as usual in 274 adolescents (16.8 mean age, SD=1.76) diagnosed with type I diabetes (DM), cystic fibrosis (CF) or inflammatory bowel disease (IBD). A two-day transition workshop was carried out at 12 sites in Germany, focusing in standardized modules on adjustment to adult care settings, organization of future disease management, career choices and partnership. Study outcomes were health-related transition competence, self-efficacy, satisfaction with care, patient activation and QoL. Measures were assessed at baseline and six-month follow-up.
  
  
  RESULTS
  Repeated-measurement covariance analysis using age as a covariate showed that the transition workshop significantly affected transition competence, self-efficacy and satisfaction with school care six months post intervention. The intervention did not significantly affect patient activation and QoL. However, post-hoc analysis suggested different effects across conditions.
  
  
  CONCLUSIONS
  The program has a positive effect on the competence of adolescents in the transition phase.
  
  
  CONCLUSIONS
  The study demonstrates that an intervention can be effective in preparing adolescents with chronic conditions for transitions.
authors.affiliation: Department Health and Prevention, University of Greifswald, Germany. Electronic address: silke.schmidt@uni-greifswald.de.
authors.forename: Silke
authors.initials: S
authors.lastname: Schmidt
authors.affiliation: Department Health and Prevention, University of Greifswald, Germany.
authors.forename: Carsten
authors.initials: C
authors.lastname: Herrmann-Garitz
authors.affiliation: Department of Child and Adolescent Health, University of Lübeck, Germany.
authors.forename: Franziska
authors.initials: F
authors.lastname: Bomba
authors.affiliation: Department of Child and Adolescent Health, University of Lübeck, Germany.
authors.forename: Ute
authors.initials: U
authors.lastname: Thyen
mesh_terms: D000293:Adolescent; D016497:Adolescent Health Services; D002908:Chronic Disease / Q000523:psychology* / Q000534:rehabilitation*; D003550:Cystic Fibrosis / Q000523:psychology / Q000534:rehabilitation; D003922:Diabetes Mellitus, Type 1 / Q000523:psychology / Q000534:rehabilitation / Q000628:therapy*; D019468:Disease Management; D005260:Female; D005858:Germany; D006296:Health Services / Q000706:statistics & numerical data*; D006801:Humans; D015212:Inflammatory Bowel Diseases / Q000523:psychology / Q000534:rehabilitation; D008297:Male; D010043:Outcome and Process Assessment, Health Care; D010353:Patient Education as Topic; D017060:Patient Satisfaction; D011446:Prospective Studies; D011788:Quality of Life; D012648:Self Care / Q000523:psychology*; D020377:Self Efficacy; D060305:Transition to Adult Care / Q000458:organization & administration*; D055815:Young Adult
keywords: Adolescents; Chronic condition; Cystic fibrosis; Diabetes; Group training; Inflammatory bowel disease; Patient education; Patient group training; Patient training; Transition; Transition workshop