title: Unmet Needs of Asian American and Pacific Islander Cancer Survivors.
abstract: In the USA, cancer is the leading cause of death for Asian Americans and Pacific Islanders (AAPIs), but little is known about the unmet needs of AAPI cancer survivors, especially from a national perspective. Using a community-based participatory research approach, we partnered with the Asian and Pacific Islander National Cancer Survivors Network and the Asian American Cancer Support Network to design and conduct a cross-sectional survey to understand the unmet needs of a national sample of AAPI cancer survivors. We assessed unmet needs in 10 domains: day-to-day activities, financial expenses, emotional concerns, medical treatment, cancer information, home care, nutrition, physical concerns, family relationships, and spirituality. We also assessed self-reported measures related to quality of life. This national sample of AAPI cancer survivors included people from 14 states and two territories who had been diagnosed with a broad range of cancers, including cancer of the breast, ovary/uterus/cervix, prostate, blood, and other sites. Over 80 % reported at least one unmet need. Participants reported an average of 8.4 unmet needs, spanning an average of 3.9 domains. Most commonly reported were unmet needs pertaining to physical concerns (66 %), day-to-day activities (52 %), and emotional concerns (52 %). This is the first report of unmet needs in a national sample of AAPI cancer survivors with a range of different cancer types. It describes the areas of greatest need and points to the importance of devoting more resources to identifying and addressing unmet needs for the underserved population of AAPI cancer survivors.
authors.affiliation: Department of Asian American Studies, San Francisco State University, 1600 Holloway Ave., EP 412, San Francisco, CA, 94132-4252, USA. mainhung@sfsu.edu.
authors.forename: Mai-Nhung
authors.identifier: http://orcid.org/0000-0001-9640-4306
authors.initials: MN
authors.lastname: Le
authors.affiliation: Department of Family Medicine and Community Health, University of Pennsylvania, Philadelphia, PA, USA.
authors.forename: Giang T
authors.initials: GT
authors.lastname: Nguyen
authors.affiliation: Graduate Program in Public Health Studies, University of Pennsylvania, Philadelphia, PA, USA.
authors.forename: Zhi
authors.initials: Z
authors.lastname: Pan
authors.affiliation: Department of Asian American Studies, San Francisco State University, 1600 Holloway Ave., EP 412, San Francisco, CA, 94132-4252, USA.
authors.forename: Dale Dagar
authors.initials: DD
authors.lastname: Maglalang
authors.affiliation: Asian American Cancer Support Network, Sunnyvale, CA, USA.
authors.forename: Fidelia
authors.initials: F
authors.lastname: Butt
authors.affiliation: Asian and Pacific Islander National Cancer Survivors Network and Asian and Pacific Islander American Health Forum, San Francisco, CA, USA.
authors.forename: Roxanna
authors.initials: R
authors.lastname: Bautista
authors.affiliation: Asian and Pacific Islander National Cancer Survivors Network and Asian and Pacific Islander American Health Forum, San Francisco, CA, USA.
authors.forename: Mavis
authors.initials: M
authors.lastname: Nitta
authors.affiliation: Department of Family Medicine and Community Health, University of Pennsylvania, Philadelphia, PA, USA.
authors.forename: Frances K
authors.initials: FK
authors.lastname: Barg
mesh_terms: D001213:Asian / Q000706:statistics & numerical data*; D000073116:Cancer Survivors / Q000706:statistics & numerical data*; D055812:Community-Based Participatory Research; D003430:Cross-Sectional Studies; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D044468:Native Hawaiian or Pacific Islander / Q000706:statistics & numerical data*; D020380:Needs Assessment; D011788:Quality of Life; D012944:Social Support
keywords: Asian American and Pacific Islander (AAPI); Cancer; Cancer experience; Cancer survivorship; Quality of life; Unmet needs