title: "Hear(ing) New Voices": Peer Reflections from Community-Based Survey Development with Women Living with HIV.
abstract: BACKGROUND
  The Canadian HIV Women's Sexual and Reproductive Health Cohort Study (CHIWOS) engaged in an innovative community-based survey development process.
  
  
  OBJECTIVE
  We sought to provide 1) an overview of the survey development process, and 2) personal reflections from women living with human immunodeficiency virus (HIV; "peers") on their own observations of strengths and short-comings of the process and opportunities for improvement.
  
  
  METHODS
  Guided by the principles of community-based research (CBR) and meaningful involvement of women living with HIV (WLWH), CHIWOS coordinated a national, multidisciplinary research team, and facilitated a community based survey development process.
  
  
  CONCLUSIONS
  Four key lessons emerged highlighting the importance of 1) accommodating different preferences for feedback collection, 2) finding the right combination of people and skills, 3) formalizing mentorship, and 4) creating guidelines on survey item reduction and managing expectations from the outset.
  
  
  CONCLUSIONS
  Peers discussed the strengths and weaknesses of participatory methodologies in survey development.
authors.forename: Kira
authors.initials: K
authors.lastname: Abelsohn
authors.forename: Anita C
authors.initials: AC
authors.lastname: Benoit
authors.forename: Tracey
authors.initials: T
authors.lastname: Conway
authors.forename: Lynne
authors.initials: L
authors.lastname: Cioppa
authors.forename: Stephanie
authors.initials: S
authors.lastname: Smith
authors.forename: Gladys
authors.initials: G
authors.lastname: Kwaramba
authors.forename: Johanna
authors.initials: J
authors.lastname: Lewis
authors.forename: Valerie
authors.initials: V
authors.lastname: Nicholson
authors.forename: Nadia
authors.initials: N
authors.lastname: O'Brien
authors.forename: Allison
authors.initials: A
authors.lastname: Carter
authors.forename: Jayson
authors.initials: J
authors.lastname: Shurgold
authors.forename: Angela
authors.initials: A
authors.lastname: Kaida
authors.forename: Alexandra de
authors.initials: Ad
authors.lastname: Pokomandy
authors.forename: Mona
authors.initials: M
authors.lastname: Loutfy
mesh_terms: D002170:Canada; D015331:Cohort Studies; D055812:Community-Based Participatory Research / Q000458:organization & administration*; D003258:Consumer Behavior; D005246:Feedback; D005260:Female; D017408:Guidelines as Topic; D015658:HIV Infections / Q000523:psychology*; D006801:Humans; D008611:Mentors; D010379:Peer Group; D011795:Surveys and Questionnaires / Q000592:standards*; D016387:Women's Health