title: Development of a comprehensive survey of sexuality issues including a self-report version of the International Spinal Cord Injury sexual function basic data sets.
abstract: METHODS
  Questionnaire development, validation and completion.
  
  
  OBJECTIVE
  Develop comprehensive survey of sexuality issues including validated self-report versions of the International Spinal Cord Injury male sexual function and female sexual and reproductive function basic data sets (SR-iSCI-sexual function).
  
  
  METHODS
  People with spinal cord damage (SCD) living in the community, Australia from August 2013 to June 2014.
  
  
  METHODS
  An iterative process involving rehabilitation medicine clinicians, a nurse specialising in sexuality issues in SCD and people with SCD who developed a comprehensive survey that included the SR-iSCI-sexual function. Participants recruitment through spinal rehabilitation review clinic and community organisations that support people with SCD.
  
  
  RESULTS
  Surveys completed by 154 people. Most were male (n=101, 65.6%). Respondents' median age was 50 years (interquartile range (IQR) 38-58), and they were a median of 10 years (IQR 4-20) after the onset of SCD. Sexual problems unrelated to SCD were reported by 12 (8%) respondents, and 114 (n=75.5%) reported sexual problems because of SCD. Orgasms were much less likely (χ(2)=13.1, P=0.006) to be normal in males (n=5, 5%) compared with females (n=11, 22%). Males had significantly worse (χ(2)=26.0, P=0.001) psychogenic genital functioning (normal n=9, 9%) than females (normal n=13, 26%) and worse (χ(2)=10.8, P=0.013) reflex genital functioning. Normal ejaculation was reported in only three (3%) men. Most (n=26, 52%) women reported reduced or absent menstruation pattern since SCD.
  
  
  CONCLUSIONS
  The SR-iSCI-sexual function provides a useful tool for researchers and clinicians to collect information regarding patient-reported sexual functioning after SCD and to facilitate comparative studies.
authors.affiliation: Spinal Rehabilitation Service, Department of Rehabilitation, Caulfield Hospital, Alfred Health, Melbourne, Victoria, Australia.|Epworth-Monash Rehabilitation Medicine Unit, Southern Medical School, Monash University, Melbourne, Victoria, Australia.|Department of Epidemiology and Preventive Medicine, School of Public Health and Preventive Medicine, Monash University, Melbourne, Victoria, Australia.
authors.forename: P W
authors.initials: PW
authors.lastname: New
authors.affiliation: Spinal Rehabilitation Service, Department of Rehabilitation, Caulfield Hospital, Alfred Health, Melbourne, Victoria, Australia.
authors.forename: K E
authors.initials: KE
authors.lastname: Currie
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001315:Australia; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D011594:Psychometrics; D012047:Rehabilitation Centers; D012098:Reproduction; D012189:Retrospective Studies; D057566:Self Report; D012725:Sexual Behavior / Q000523:psychology; D012735:Sexual Dysfunction, Physiological / Q000175:diagnosis / Q000209:etiology / Q000523:psychology; D019529:Sexuality; D013119:Spinal Cord Injuries / Q000150:complications* / Q000209:etiology; D018709:Statistics, Nonparametric; D011795:Surveys and Questionnaires; D055815:Young Adult