title: Palliative care in neonatal neurology: robust support for infants, families and clinicians.
abstract: Infants with neurological injury and their families face unique challenges in the neonatal intensive care unit. As specialty palliative care support becomes increasingly available, we must consider how to intentionally incorporate palliative care principles into the care of infants with neurological injury. Here, we review data regarding neonatal symptom management, prognostic uncertainty, decision making, communication and parental support for neonatal neurology patients and their families.
authors.affiliation: Division of Pediatric Neurology, Department of Neurology, Johns Hopkins School of Medicine, Baltimore, MD, USA.|Division of Pediatric Neurology, Department of Pediatrics, Duke University Medical Center, Durham, NC, USA.
authors.forename: M E
authors.initials: ME
authors.lastname: Lemmon
authors.affiliation: Division of Neonatology, Department of Pediatrics, Duke University Medical Center, Durham, NC, USA.
authors.forename: M
authors.initials: M
authors.lastname: Bidegain
authors.affiliation: Division of Neonatology, Department of Pediatrics, Johns Hopkins School of Medicine, Baltimore, MD, USA.|Berman Institute of Bioethics, Johns Hopkins School of Medicine.
authors.forename: R D
authors.initials: RD
authors.lastname: Boss
mesh_terms: D000066491:Clinical Decision-Making / Q000941:ethics; D006801:Humans; D007231:Infant, Newborn; D007232:Infant, Newborn, Diseases / Q000523:psychology / Q000628:therapy; D007363:Intensive Care Units, Neonatal / Q000458:organization & administration; D009422:Nervous System Diseases / Q000523:psychology / Q000628:therapy; D009462:Neurology / Q000379:methods; D010166:Palliative Care / Q000941:ethics / Q000379:methods / Q000523:psychology; D010290:Parents / Q000523:psychology*; D012944:Social Support