title: Patient-centered care and quality: Activating the system and the patient.
abstract: Patient-centered care is an expectation in our current environment, yet it is only one of the six domains that the Institute of Medicine has described as critical in redesigning the architecture of a medical system. Patients requiring long-term feeding tube access represent a particularly complex group of patients who stress the mechanisms placed within a healthcare system to optimize quality and safety. We describe the implementation of a new approach to this patient population that serves as an example of redesigning a system of care to optimize safety using the principles of patient-centered care while delivering safe, effective, timely, efficient, and equitable care.
authors.affiliation: Department of Pediatric General and Thoracic Surgery, Seattle Children׳s Hospital, 4800 Sand Point Way NE, Seattle, WA 98105; Department of General Surgery, University of Washington School of Medicine, Seattle, WA.
authors.forename: Morgan K
authors.initials: MK
authors.lastname: Richards
authors.affiliation: Department of Pediatric General and Thoracic Surgery, Seattle Children׳s Hospital, 4800 Sand Point Way NE, Seattle, WA 98105; Department of General Surgery, University of Washington School of Medicine, Seattle, WA. Electronic address: adam.goldin@seattlechildrens.org.
authors.forename: Adam B
authors.initials: AB
authors.lastname: Goldin
mesh_terms: D002648:Child; D002675:Child, Preschool; D005774:Gastrostomy / Q000592:standards*; D006801:Humans; D007223:Infant; D007441:Intubation, Gastrointestinal / Q000592:standards*; D061214:Patient Safety / Q000592:standards*; D018802:Patient-Centered Care / Q000379:methods / Q000458:organization & administration / Q000592:standards*; D058996:Quality Improvement / Q000458:organization & administration*; D014481:United States
keywords: Gastrostomy tube; PCORI; Patient activation; Patient engagement; Patient-centered care; Quality improvement