title: Psychosocial Follow-Up in Survivorship as a Standard of Care in Pediatric Oncology.
abstract: Childhood cancer survivors (CCS) have a high risk of medical late effects following cancer therapy. Psychosocial late effects are less often recognized. Many CCS do not receive long-term follow-up (LTFU) care, and those who do are rarely screened for psychosocial late effects. An interdisciplinary team conducted a systematic review of qualitative and quantitative studies to assess social, educational, vocational, psychological, and behavioral outcomes along with factors related to receipt of LTFU care. We propose that psychosocial screening be considered a standard of care in long-term follow-up care and that education be provided to promote the use LTFU care starting early in the treatment trajectory.
authors.affiliation: Department of Social and Behavioral Sciences, School of Nursing, University of California, San Francisco, California.
authors.forename: E Anne
authors.initials: EA
authors.lastname: Lown
authors.affiliation: School of Social Work, The University of Texas at Austin, Austin, Texas.
authors.forename: Farya
authors.initials: F
authors.lastname: Phillips
authors.affiliation: The Children's Hospital of Philadelphia and The Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania.
authors.forename: Lisa A
authors.initials: LA
authors.lastname: Schwartz
authors.affiliation: Cancer and Blood Disorders Center, Seattle Children's Hospital, Seattle, Washington.|Department of Pediatrics, University of Washington School of Medicine, Seattle, Washington.
authors.forename: Abby R
authors.initials: AR
authors.lastname: Rosenberg
authors.affiliation: School of Social Work, The University of Texas at Austin, Austin, Texas.
authors.forename: Barbara
authors.initials: B
authors.lastname: Jones
mesh_terms: D005500:Follow-Up Studies; D006801:Humans; D008495:Medical Oncology / Q000592:standards; D009369:Neoplasms / Q000150:complications* / Q000523:psychology*; D010372:Pediatrics / Q000592:standards; D011584:Psychology / Q000592:standards*; D059039:Standard of Care / Q000592:standards*; D017741:Survivors / Q000523:psychology*
keywords: childhood cancer; long-term follow-up care; psychosocial; survivorship