title: Do Family Members of Dialysis Patients Have a Positive Attitude Toward Organ Donation?
abstract: BACKGROUND
  Malaysia, which currently uses the informed consent system (ICS), is suffering from a severe shortage of organs for transplantation. Family members of dialysis patients (FMDPs) are expected to have a positive attitude toward deceased organ donation (DOD) because they have a close relative in need of a kidney donation. This study explores FMDPs' attitude toward DOD under the ICS and the presumed consent system (PCS).
  
  
  METHODS
  The attitude of 350 FMDPs toward DOD under the ICS and PCS were sought between June and October 2013 in 3 dialysis institutions in Kuala Lumpur, Malaysia.
  
  
  RESULTS
  Under the ICS, 6.6% of respondents were registered donors, 6.6% were ready to register at the time of the survey, 38.6% were willing to donate but not ready to register at the time of the survey, and 48.2% were unwilling to donate organs upon death. If the PCS were implemented, 57.7% of respondents (28.7% of the willing donors and 88.7% of the unwilling respondents) stated that they would officially object to organ donation.
  
  
  CONCLUSIONS
  FMDPs' attitude toward DOD is not more positive or significantly better than that of the general public (based on earlier studies). The PCS may increase the number of donors, but it may also worsen the attitude of FMDPs toward DOD. Strategies aiming to promote DOD in Malaysia should be revised, and should perhaps be focused on enhancing trust of the medical system.
authors.affiliation: Department of Administrative Studies and Politics, Faculty of Economics and Administration, University of Malaya, Kuala Lumpur, Malaysia.
authors.forename: Makmor
authors.initials: M
authors.lastname: Tumin
authors.affiliation: Institute of Research Management and Monitoring, University of Malaya, Kuala Lumpur, Malaysia.
authors.forename: Khaled
authors.initials: K
authors.lastname: Tafran
authors.affiliation: Department of Economics, Faculty of Economics and Administration, University of Malaya, Kuala Lumpur, Malaysia.
authors.forename: Roza Hazli
authors.initials: RH
authors.lastname: Zakaria
authors.affiliation: Department of Economics, Faculty of Economics and Administration, University of Malaya, Kuala Lumpur, Malaysia.
authors.forename: NurulHuda Mohd
authors.initials: NM
authors.lastname: Satar
authors.affiliation: Department of Medicine, Faculty of Medicine, University of Malaya, Kuala Lumpur, Malaysia.
authors.forename: Kok Peng
authors.initials: KP
authors.lastname: Ng
authors.affiliation: Department of Medicine, Faculty of Medicine, University of Malaya, Kuala Lumpur, Malaysia.
authors.forename: Soo Kun
authors.initials: SK
authors.lastname: Lim
mesh_terms: D000328:Adult; D000367:Age Factors; D001294:Attitude to Health; D003430:Cross-Sectional Studies; D003906:Developing Countries; D018450:Disease Progression; D005190:Family / Q000523:psychology*; D005260:Female; D006801:Humans; D007676:Kidney Failure, Chronic / Q000175:diagnosis / Q000628:therapy*; D016030:Kidney Transplantation / Q000706:statistics & numerical data*; D008296:Malaysia; D008297:Male; D008875:Middle Aged; D020380:Needs Assessment; D006435:Renal Dialysis / Q000379:methods / Q000706:statistics & numerical data; D012737:Sex Factors; D011795:Surveys and Questionnaires; D014019:Tissue Donors / Q000523:psychology*; D009927:Tissue and Organ Procurement / Q000458:organization & administration*; D055815:Young Adult