title: Palliative Care as a Standard of Care in Pediatric Oncology.
abstract: The study team conducted a systematic review of pediatric and adolescent palliative cancer care literature from 1995 to 2015 using four databases to inform development of a palliative care psychosocial standard. A total of 209 papers were reviewed with inclusion of 73 papers for final synthesis. Revealed topics of urgent consideration include the following: symptom assessment and intervention, direct patient report, effective communication, and shared decision-making. Standardization of palliative care assessments and interventions in pediatric oncology has the potential to foster improved quality of care across the cancer trajectory for children and adolescents with cancer and their family members.
authors.affiliation: Department of Oncology, Children's National Health System, Washington, DC.|Department of Oncology, St. Jude Children's Research Hospital, Memphis, Tennessee.
authors.forename: Meaghann S
authors.initials: MS
authors.lastname: Weaver
authors.affiliation: School of Nursing, Johns Hopkins University, Baltimore, Maryland.
authors.forename: Katherine E
authors.initials: KE
authors.lastname: Heinze
authors.affiliation: Department of Nursing Research and Quality Outcomes, Children's National Health System, Washington, DC.
authors.forename: Katherine P
authors.initials: KP
authors.lastname: Kelly
authors.affiliation: Pediatric Oncology Branch, National Cancer Institute, National Institutes of Health, Bethesda, Maryland.
authors.forename: Lori
authors.initials: L
authors.lastname: Wiener
authors.affiliation: Center for Cancer & Blood Disorders, Children's Hospital Colorado, University of Colorado, Denver, Colorado.
authors.forename: Robert L
authors.initials: RL
authors.lastname: Casey
authors.affiliation: College of Nursing, Wayne State University, Detroit, Michigan.|Hospice of Michigan Institute, Detroit, Michigan.
authors.forename: Cynthia J
authors.initials: CJ
authors.lastname: Bell
authors.affiliation: Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute, Boston, Massachusetts.
authors.forename: Joanne
authors.initials: J
authors.lastname: Wolfe
authors.affiliation: Department of Oncology, Nationwide Children's Hospital, Columbus, Ohio.
authors.forename: Amy M
authors.initials: AM
authors.lastname: Garee
authors.affiliation: Department of Critical Care Medicine, Children's National Health System, Washington, DC.
authors.forename: Anne
authors.initials: A
authors.lastname: Watson
authors.affiliation: Department of Nursing Research and Quality Outcomes, Children's National Health System, Washington, DC.|Department of Pediatrics, George Washington University, Washington, DC.
authors.forename: Pamela S
authors.initials: PS
authors.lastname: Hinds
mesh_terms: D000293:Adolescent; D002648:Child; D017051:Hospice Care / Q000592:standards; D006801:Humans; D008495:Medical Oncology / Q000592:standards*; D010166:Palliative Care / Q000592:standards*; D065126:Palliative Medicine / Q000592:standards*; D010372:Pediatrics / Q000592:standards*; D011584:Psychology / Q000592:standards*; D059039:Standard of Care
keywords: communication; family-centered care; palliative care; psychosocial support; quality of life