title: [Perception and assessment of pain by caregiver and adolescent with sickle cell disease: The impact of the patient's anxiety].
abstract: Pain is the main symptom in sickle cell disease and is a major issue in its management. Its complexity often makes assessment difficult for both patients and caregivers. This study looks for a link between anxiety in children with sickle cell disease at the beginning of their hospital stay and the difficulties experienced by caregivers to assess their pain. Forty teenagers hospitalized for a vaso-occlusive crisis were included in this prospective study. To determine which patients were "difficult to assess," a self-assessment of pain combined with a nursing assessment were proposed to patients (NS [numerical scale] and FLACC [Face Legs Activity Cry Consolability]). Feedback from specialized physicians was collected. In this study, no objective criteria allowed us to determine whether patients were "difficult to assess." At the beginning of the hospital stay, self-assessment for pain and nurse assessment with the NS matched. In this context, the FLACC scale did not assist in determining the pain score accurately. Patients identified as difficult to assess by physicians are more anxious than others.
authors.affiliation: Site de référence pédiatrique labellisé « drépanocytose », hôpital Robert-Debré, Assistance publique-Hôpitaux de Paris, 48, boulevard Sérurier, 75020 Paris, France. Electronic address: eliane.raffet@rdb.aphp.fr.
authors.forename: E
authors.initials: E
authors.lastname: Josset-Raffet
authors.affiliation: Centre d'évaluation et de traitement de la douleur, hôpital Robert-Debré, Assistance publique-Hôpitaux de Paris, 48, boulevard Sérurier, 75020 Paris, France.
authors.forename: N
authors.initials: N
authors.lastname: Duparc-Alegria
authors.affiliation: Centre d'évaluation et de traitement de la douleur, hôpital Robert-Debré, Assistance publique-Hôpitaux de Paris, 48, boulevard Sérurier, 75020 Paris, France.
authors.forename: A-F
authors.initials: AF
authors.lastname: Thiollier
authors.affiliation: Centre d'évaluation et de traitement de la douleur, hôpital Robert-Debré, Assistance publique-Hôpitaux de Paris, 48, boulevard Sérurier, 75020 Paris, France.
authors.forename: S
authors.initials: S
authors.lastname: Dugue
authors.affiliation: Service de pédiatrie générale, hôpital Robert-Debré, Assistance publique-Hôpitaux de Paris, 48, boulevard Sérurier, 75020 Paris, France.
authors.forename: A
authors.initials: A
authors.lastname: Faye
authors.affiliation: Site de référence pédiatrique labellisé « drépanocytose », hôpital Robert-Debré, Assistance publique-Hôpitaux de Paris, 48, boulevard Sérurier, 75020 Paris, France.
authors.forename: G
authors.initials: G
authors.lastname: Ithier
authors.affiliation: Site de référence pédiatrique labellisé « drépanocytose », hôpital Robert-Debré, Assistance publique-Hôpitaux de Paris, 48, boulevard Sérurier, 75020 Paris, France.
authors.forename: L
authors.initials: L
authors.lastname: Holvoet-Vermaut
authors.affiliation: Site de référence pédiatrique labellisé « drépanocytose », hôpital Robert-Debré, Assistance publique-Hôpitaux de Paris, 48, boulevard Sérurier, 75020 Paris, France.
authors.forename: F
authors.initials: F
authors.lastname: Missud
authors.affiliation: URC CIC Descartes, hôpital Necker/Cochin, 149, rue de Sèvres, 75015 Paris, France.
authors.forename: H
authors.initials: H
authors.lastname: Abdoul
authors.affiliation: Site de référence pédiatrique labellisé « drépanocytose », hôpital Robert-Debré, Assistance publique-Hôpitaux de Paris, 48, boulevard Sérurier, 75020 Paris, France.
authors.forename: M
authors.initials: M
authors.lastname: Benkerrou
mesh_terms: D000293:Adolescent; D000755:Anemia, Sickle Cell / Q000150:complications*; D001007:Anxiety / Q000150:complications*; D001294:Attitude to Health; D017028:Caregivers; D005260:Female; D006801:Humans; D008297:Male; D010146:Pain / Q000209:etiology*; D010147:Pain Measurement / Q000592:standards; D011446:Prospective Studies