title: [Conception and Content Validation of a Questionnaire Relating to the Potential Need for Information of Visually Impaired Persons with Regard to Services and Contact Persons].
abstract: A questionnaire was drafted to identify the needs of visually impaired persons and to optimize their access to non-medical support and services. Subjects had to rate a list of 15 everyday activities that are typically affected by visual impairment (for example, being able to orient themselves in the home environment), by indicating the degree to which they perceive each activity to be affected, using a four-stage scale. They had to evaluate these aspects by means of a relevance assessment. The needs profile derived from this is then correlated with individualized information for assistance and support. The questionnaire shall be made available for use by subjects through advisers in some ophthalmic practices and via the internet. The validity of the content of the proposed tool was evaluated on the basis of a survey of 59 experts in the fields of medical, optical and psychological care and of persons involved in training initiatives. The experts were asked to rate the activities by relevance and clarity of the wording and to propose methods to further develop and optimize the content. The validity of the content was quantified according to a process adopted in the literature, based on the parameters Interrater Agreement (IRA) and Content Validity Index (CVI). The results of all responses (n = 19) and the sub-group analysis suggest that the questionnaire adequately reflects the potential needs profile of visually impaired persons. Overall, there was at least 80% agreement among the 19 experts for 93% of the proposed parameterisation of the activities relating to the relevance and clarity of the wording. Individual proposals for optimization of the design of the questionnaire were adopted.
authors.affiliation: Institut für Medizinische Biometrie und Epidemiologie; Fakultät für Gesundheit, Universität Witten-Herdecke, Witten.
authors.forename: U
authors.initials: U
authors.lastname: Hahn
authors.affiliation: Deutsches Kinderschmerzzentrum, Vestische Kinder- und Jugendklinik Datteln, Lehrstuhl für Kinderschmerztherapie und Pädiatrische Palliativmedizin, Universität Witten-Herdecke, Datteln.
authors.forename: T
authors.initials: T
authors.lastname: Hechler
authors.affiliation: Akademie des Sehens, AMD-Netz, Münster.
authors.forename: U
authors.initials: U
authors.lastname: Witt
authors.affiliation: Institut für Medizinische Biometrie und Epidemiologie; Fakultät für Gesundheit, Universität Witten-Herdecke, Witten.
authors.forename: F
authors.initials: F
authors.lastname: Krummenauer
mesh_terms: D000203:Activities of Daily Living; D000328:Adult; D000368:Aged; D005260:Female; D005858:Germany; D006801:Humans; D008297:Male; D008875:Middle Aged; D020380:Needs Assessment / Q000706:statistics & numerical data*; D012017:Referral and Consultation / Q000706:statistics & numerical data*; D015203:Reproducibility of Results; D012680:Sensitivity and Specificity; D011795:Surveys and Questionnaires; D019987:Persons with Visual Disabilities / Q000534:rehabilitation* / Q000706:statistics & numerical data*