title: End-of-Life Care for Undocumented Immigrants With Advanced Cancer: Documenting the Undocumented.
abstract: There are approximately 11.1 million undocumented immigrants in the United States, with a majority being Latino. Cancer is now the leading cause of death in Latinos. There is little research guiding providers on how to deliver optimal end-of-life care in this population. We describe a case of an undocumented Latino patient with advanced cancer, and provide a review of the literature on end-of-life care in undocumented immigrants. Our patient encountered many challenges as he navigated through the healthcare system in the last months of life. These included delayed diagnosis, limited social support, financial issues, fear of deportation, and language and cultural barriers, which resulted in significant physical and psychological distress. Within the undocumented patient population, there is often a lack of advance care planning, prognostic understanding, mistrust, religious practices, and cultural beliefs that may affect decision making. Given the growing number of undocumented immigrants in the United States, it is important for clinicians and policy makers to have a better understanding of the issues surrounding end-of-life care for undocumented immigrants, and work together to improve the quality of life and quality of end-of-life care for these disadvantaged individuals.
authors.affiliation: Department of General Oncology, M. D. Anderson Cancer Center, Houston, Texas, USA.
authors.forename: Sylvia
authors.initials: S
authors.lastname: Jaramillo
authors.affiliation: Department of General Oncology, M. D. Anderson Cancer Center, Houston, Texas, USA; Department of Palliative Care and Rehabilitation Medicine, M. D. Anderson Cancer Center, Houston, Texas, USA. Electronic address: dhui@mdanderson.org.
authors.forename: David
authors.initials: D
authors.lastname: Hui
mesh_terms: D017809:Fatal Outcome; D054625:Healthcare Disparities; D006630:Hispanic or Latino / Q000523:psychology*; D006801:Humans; D008297:Male; D009369:Neoplasms / Q000175:diagnosis / Q000523:psychology* / Q000628:therapy*; D013727:Terminal Care / Q000379:methods* / Q000523:psychology*; D000069756:Undocumented Immigrants / Q000523:psychology*; D014481:United States
keywords: Emigrants; Hispanic Americans; health care disparities; immigrants; neoplasms; palliative care; terminal care