title: Psychosocial impact of early onset dementia among caregivers.
abstract: BACKGROUND
  There is growing recognition of early onset dementia (EOD) as a significant clinical and social problem because of its effects on physical and mental health of people with dementia (PWD) and their caregivers.
  
  
  OBJECTIVE
  To analyze the psychosocial impact of EOD in family caregivers.
  
  
  METHODS
  The study design was qualitative. Nine EOD caregivers (7 women) were recruited at a service for Alzheimer's disease and assessed using semi-structured interviews. Interpretative phenomenological analysis was used to analyze caregivers' reports.
  
  
  RESULTS
  Five themes emerged from the narratives: psychological and emotional impact; physical impact; financial and professional impact; social impact and need for support services. The majority of the caregivers of people with EOD perceived their emotional wellbeing as poor or extremely poor. Carers reported poor physical health, which tends to be longer-lasting than mental health problems. Two caregivers had to retire after the disclosure of the dementia diagnosis, and seven reduced their work loads because they had to look after PWD. Preserving the abilities of PWD is essential to maintain their self-esteem, dignity and sense of utility. For the caregivers, interventions and stimulating activities make PWD feel worthwhile and contribute to improving life.
  
  
  CONCLUSIONS
  The caregivers of people with EOD assume the role of caregiver prematurely and need to balance this activity with other responsibilities. There is a need for more studies of EOD in order to improve understanding of the impact of this disease and to enable development of adequate services for PWD and their caregivers.
authors.affiliation: Institute of Psychiatry, Universidade Federal do Rio de Janeiro, Rio de Janeiro, RJ, Brazil.
authors.forename: Nathália R S
authors.initials: NR
authors.lastname: Kimura
authors.affiliation: Institute of Psychiatry, Universidade Federal do Rio de Janeiro, Rio de Janeiro, RJ, Brazil.
authors.forename: Virgínia L R
authors.initials: VL
authors.lastname: Maffioletti
authors.affiliation: Institute of Psychiatry, Universidade Federal do Rio de Janeiro, Rio de Janeiro, RJ, Brazil.
authors.forename: Raquel L
authors.initials: RL
authors.lastname: Santos
authors.affiliation: Institute of Psychiatry, Universidade Federal do Rio de Janeiro, Rio de Janeiro, RJ, Brazil.
authors.forename: Maria Alice Tourinho
authors.initials: MA
authors.lastname: Baptista
authors.affiliation: Institute of Psychiatry, Universidade Federal do Rio de Janeiro, Rio de Janeiro, RJ, Brazil.
authors.forename: Marcia C N
authors.initials: MC
authors.lastname: Dourado
mesh_terms: D000328:Adult; D017668:Age of Onset; D000368:Aged; D017028:Caregivers / Q000523:psychology*; D017281:Cost of Illness; D003704:Dementia / Q000191:economics / Q000628:therapy*; D004644:Emotions; D005190:Family / Q000523:psychology*; D005260:Female; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D008875:Middle Aged; D033262:Narration; D012934:Social Isolation / Q000523:psychology; D012944:Social Support