title: The development of a congenital heart programme quality dashboard to promote transparent reporting of outcomes.
abstract: In 2001, the Institute of Medicine identified healthcare transparency as a necessity for re-designing a quality healthcare system; however, despite widespread calls for publicly available transparent data, the goal remains elusive. The transparent reporting of outcome data and the results of congenital heart surgery is critical to inform patients and families who have both the wish and the ability to choose where care is provided. Indeed, in an era where data and means of communication of data have never been easier, the paucity of transparent data reporting is paradoxical. We describe the development of a quality dashboard used to inform staff, patients, and families about the outcomes of congenital heart surgery at the Stollery Children's Hospital.
authors.affiliation: 1Pediatric Cardiac Critical Care Unit,Division of Pediatric Critical Care,Stollery Children's Hospital,Edmonton,Canada.
authors.forename: Vijay
authors.initials: V
authors.lastname: Anand
authors.affiliation: 1Pediatric Cardiac Critical Care Unit,Division of Pediatric Critical Care,Stollery Children's Hospital,Edmonton,Canada.
authors.forename: Dominic
authors.initials: D
authors.lastname: Cave
authors.affiliation: 2Family Centered Care Council,Stollery Children's Hospital,Edmonton,Canada.
authors.forename: Heather
authors.initials: H
authors.lastname: McCrady
authors.affiliation: 3Division of Pediatric Cardiac Surgery,Stollery Children's Hospital,Edmonton,Canada.
authors.forename: Mohammed
authors.initials: M
authors.lastname: Al-Aklabi
authors.affiliation: 3Division of Pediatric Cardiac Surgery,Stollery Children's Hospital,Edmonton,Canada.
authors.forename: David B
authors.initials: DB
authors.lastname: Ross
authors.affiliation: 3Division of Pediatric Cardiac Surgery,Stollery Children's Hospital,Edmonton,Canada.
authors.forename: Ivan M
authors.initials: IM
authors.lastname: Rebeyka
authors.affiliation: 1Pediatric Cardiac Critical Care Unit,Division of Pediatric Critical Care,Stollery Children's Hospital,Edmonton,Canada.
authors.forename: Ian
authors.initials: I
authors.lastname: Adatia
mesh_terms: D030881:Disclosure; D006330:Heart Defects, Congenital / Q000628:therapy*; D006801:Humans; D015278:Intensive Care Units, Pediatric / Q000592:standards*; D015969:National Academies of Science, Engineering, and Medicine, U.S., Health and Medicine Division; D017063:Outcome Assessment, Health Care; D010372:Pediatrics / Q000592:standards*; D011785:Quality Assurance, Health Care; D019984:Quality Indicators, Health Care; D013903:Thoracic Surgery / Q000592:standards*; D014481:United States
keywords: Public; cardiac; critical care; dashboard; paediatric; quality; transparency