title: Emotional Health of People with Visual Impairment Caused by Retinitis Pigmentosa.
abstract: OBJECTIVE
  To understand the emotional difficulties associated with living with the ocular condition Retinitis Pigmentosa, and to examine the functioning of a self-report instrument used to assess this construct.
  
  
  METHODS
  The difficulty of goals and tasks in the emotional health domain of the Dutch ICF Activity Inventory were rated by 166 people with Retinitis Pigmentosa in a cross-sectional study. Demographic factors were also assessed.
  
  
  RESULTS
  Responses to the 23 emotional health tasks were Rasch analysed and could be used to form either one 20 item overview scale with some multidimensionality, or three unidimensional subscales addressing feelings (4 items), communicating visual loss (5 items) and fatigue (7 items). The most difficult individual tasks related to communicating visual loss to other people, and dealing with feelings such as frustration, anxiety and stress. The use of mobility aids and female gender were associated with increased difficulty with emotional health, explaining 19% of the variance in the overview scale.
  
  
  CONCLUSIONS
  The emotional health domain of the Dutch ICF Activity Inventory is a valid tool to assess emotional difficulties arising from visual loss. Interventions to aid people with Retinitis Pigmentosa deal with emotional difficulties should particularly address communicating vision loss effectively to others and coping with negative feelings.
authors.affiliation: Visual Function and Physiology Research Group, Anglia Ruskin University, Cambridge, United Kingdom.|Vision and Eye Research Unit, Anglia Ruskin University, Cambridge, United Kingdom.
authors.forename: Keziah
authors.initials: K
authors.lastname: Latham
authors.affiliation: Vision and Eye Research Unit, Anglia Ruskin University, Cambridge, United Kingdom.|Sport and Exercise Science Research Group, Anglia Ruskin University, Cambridge, United Kingdom.
authors.forename: Mohammad
authors.initials: M
authors.lastname: Baranian
authors.affiliation: Vision and Eye Research Unit, Anglia Ruskin University, Cambridge, United Kingdom.|Sport and Exercise Science Research Group, Anglia Ruskin University, Cambridge, United Kingdom.
authors.forename: Matthew
authors.initials: M
authors.lastname: Timmis
authors.affiliation: Vision and Eye Research Unit, Anglia Ruskin University, Cambridge, United Kingdom.
authors.forename: Shahina
authors.initials: S
authors.lastname: Pardhan
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D004644:Emotions; D005260:Female; D006801:Humans; D008297:Male; D008603:Mental Health; D008875:Middle Aged; D012174:Retinitis Pigmentosa / Q000150:complications*; D014786:Vision Disorders / Q000209:etiology* / Q000523:psychology*; D055815:Young Adult