title: Factors Associated with Subjective Quality of Life of Adults with Autism Spectrum Disorder: Self-Report Versus Maternal Reports.
abstract: We examined factors related to subjective quality of life (QoL) of adults with autism spectrum disorder (ASD) aged 25-55 (n = 60), using the World Health Organization Quality of Life measure (WHOQOL-BREF). We used three different assessment methods: adult self-report, maternal proxy-report, and maternal report. Reliability analysis showed that adults with ASD rated their own QoL reliably. QoL scores derived from adult self-reports were more closely related to those from maternal proxy-report than from maternal report. Subjective factors such as perceived stress and having been bullied frequently were associated with QoL based on adult self-reports. In contrast, level of independence in daily activities and physical health were significant predictors of maternal reports of their son or daughter's QoL.
authors.affiliation: Waisman Center, University of Wisconsin-Madison, 1500 Highland Ave., Madison, WI, 53705, USA. jhong@waisman.wisc.edu.
authors.forename: Jinkuk
authors.initials: J
authors.lastname: Hong
authors.affiliation: Waisman Center, University of Wisconsin-Madison, 1500 Highland Ave., Madison, WI, 53705, USA.
authors.forename: Lauren
authors.initials: L
authors.lastname: Bishop-Fitzpatrick
authors.affiliation: Waisman Center, University of Wisconsin-Madison, 1500 Highland Ave., Madison, WI, 53705, USA.
authors.forename: Leann E
authors.initials: LE
authors.lastname: Smith
authors.affiliation: Waisman Center, University of Wisconsin-Madison, 1500 Highland Ave., Madison, WI, 53705, USA.
authors.forename: Jan S
authors.initials: JS
authors.lastname: Greenberg
authors.affiliation: Waisman Center, University of Wisconsin-Madison, 1500 Highland Ave., Madison, WI, 53705, USA.
authors.forename: Marsha R
authors.initials: MR
authors.lastname: Mailick
mesh_terms: D000328:Adult; D000067877:Autism Spectrum Disorder / Q000523:psychology*; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D009035:Mothers / Q000523:psychology*; D011788:Quality of Life / Q000523:psychology*; D057566:Self Report
keywords: Autism spectrum disorder; Maternal report; Self-report; Subjective quality of life; WHOQOL-BREF domains