title: Transition guidelines: An important step in the future care for childhood cancer survivors. A comprehensive definition as groundwork.
abstract: Evidence-based clinical practice guidelines are essential to ensure that childhood cancer survivors at risk of chronic health conditions receive effective long-term follow-up care. However, adult survivors of childhood cancer are not always engaged in recommended health promotion and follow-up practices, as many centres do not have a formal transition programme that prepares survivors and their families for successful transfer from child-centred to adult-oriented healthcare. The need for a specific pan-European guideline for the transition of care for childhood cancer survivors has been recognised. The first step is to define the concept of transition of care for survivors of childhood cancer based on existing evidence.
authors.affiliation: Emma's Children Hospital, Academic Medical Center, Amsterdam, The Netherlands.
authors.forename: R L
authors.initials: RL
authors.lastname: Mulder
authors.affiliation: Emma's Children Hospital, Academic Medical Center, Amsterdam, The Netherlands. Electronic address: h.j.vanderpal@amc.uva.nl.
authors.forename: H J H
authors.initials: HJH
authors.lastname: van der Pal
authors.affiliation: Great Ormond Street Hospital for Children, NHS Foundation Trust, London, United Kingdom.
authors.forename: G A
authors.initials: GA
authors.lastname: Levitt
authors.affiliation: Newcastle University, Newcastle upon Tyne, United Kingdom; Great North Children's Hospital, Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle upon Tyne, United Kingdom.
authors.forename: R
authors.initials: R
authors.lastname: Skinner
authors.affiliation: Emma's Children Hospital, Academic Medical Center, Amsterdam, The Netherlands.
authors.forename: L C M
authors.initials: LCM
authors.lastname: Kremer
authors.affiliation: Newcastle University, Newcastle upon Tyne, United Kingdom.
authors.forename: M C
authors.initials: MC
authors.lastname: Brown
authors.affiliation: Semmelweis University, 2nd Department of Paediatrics, Budapest, Hungary.
authors.forename: E
authors.initials: E
authors.lastname: Bárdi
authors.affiliation: University College London Hospitals NHS Foundation Trust, London, United Kingdom.
authors.forename: R
authors.initials: R
authors.lastname: Windsor
authors.affiliation: University of Bern, Bern, Switzerland; University of Lucerne, Lucerne, Switzerland.
authors.forename: G
authors.initials: G
authors.lastname: Michel
authors.affiliation: St. Anna Children's Hospital, Vienna, Austria.
authors.forename: E
authors.initials: E
authors.lastname: Frey
mesh_terms: D000293:Adolescent; D000328:Adult; D000367:Age Factors; D002648:Child; D006801:Humans; D008134:Long-Term Care / Q000145:classification / Q000592:standards*; D009369:Neoplasms / Q000628:therapy*; D017410:Practice Guidelines as Topic; D017741:Survivors; D009626:Terminology as Topic; D013997:Time Factors; D060305:Transition to Adult Care / Q000145:classification / Q000592:standards*; D000069341:Transitional Care / Q000145:classification / Q000592:standards*; D016896:Treatment Outcome; D055815:Young Adult
keywords: Childhood cancer survivors; Guidelines; Long-term follow-up care; Transition