title: KHA-CARI Autosomal Dominant Polycystic Kidney Disease Guideline: Psychosocial Care.
authors.affiliation: Sydney School of Public Health, University of Sydney, NSW, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Westmead, NSW, Australia. Electronic address: allison.tong@sydney.edu.au.
authors.forename: Allison
authors.initials: A
authors.lastname: Tong
authors.affiliation: Kidney Health Service and Conjoint Kidney Research Laboratory, Royal Brisbane and Women's Hospital, Brisbane, Queensland, Australia; Centre for Kidney Disease Research, Centre for Chronic Disease and CKD, School of Medicine and Centre for Rare Diseases Research, Institute for Molecular Bioscience, The University of Queensland, Brisbane, Queensland, Australia.
authors.forename: Andrew
authors.initials: A
authors.lastname: Mallett
authors.affiliation: KHA-CARI Guidelines, Centre for Kidney Research, The Children's Hospital at Westmead, Westmead, Sydney, Australia; Sydney School of Public Health, University of Sydney, NSW, Australia.
authors.forename: Pamela
authors.initials: P
authors.lastname: Lopez-Vargas
authors.affiliation: Department of Renal Medicine, Westmead Hospital, Western Sydney Local Health District, Sydney, Australia; Centre for Transplant and Renal Research, Westmead Institute for Medical Research, University of Sydney, Westmead, Sydney, Australia.
authors.forename: Gopala K
authors.initials: GK
authors.lastname: Rangan
mesh_terms: D005817:Genetic Counseling; D006801:Humans; D010353:Patient Education as Topic; D016891:Polycystic Kidney, Autosomal Dominant / Q000523:psychology* / Q000628:therapy*; D011788:Quality of Life; D012648:Self Care; D012649:Self Concept; D012657:Self-Help Groups; D012944:Social Support