title: Measuring what matters to patients: Using goal content to inform measure choice and development.
abstract: BACKGROUND
  Personalised care requires personalised outcomes and ways of feeding back clinically useful information to clinicians and practitioners, but it is not clear how to best personalise outcome measurement and feedback using existing standardised outcome measures.
  
  
  METHODS
  The constant comparison method of grounded theory was used to compare goal themes derived from goals set at the outset of therapy for 180 children aged between 4 and 17 years, visiting eight child and adolescent mental health services, to existing standardised outcome measures used as part of common national datasets.
  
  
  RESULTS
  In all, 20 out of 27 goal themes corresponded to items on at least one commonly used outcome measure.
  
  
  CONCLUSIONS
  Consideration of goal themes helped to identify potential relevant outcome measures. However, there were several goal themes that were not captured by items on standardised outcome measures. These seemed to be related to existential factors such as understanding, thinking about oneself and future planning.
  
  
  CONCLUSIONS
  This presents a powerful framework for how clinicians can use goals to help select a standardised outcome measure (where this is helpful) in addition to the use of a goal-based outcome measure and personalise choices. There may be areas not captured by standardised outcome measures that may be important for children and young people and which may only be currently captured in goal measurement. There is an indication that we may not be measuring what is important to children and young people. We may need to develop or look for new measures that capture these areas.
authors.affiliation: 1 Child Outcomes Research Consortium, Evidence Based Practice Unit, University College London and the Anna Freud Centre, UK.
authors.forename: Jenna
authors.initials: J
authors.lastname: Jacob
authors.affiliation: 2 Evidence Based Practice Unit, University College London and the Anna Freud Centre, UK.
authors.forename: Julian
authors.initials: J
authors.lastname: Edbrooke-Childs
authors.affiliation: 3 London and South East CYP IAPT Learning Collaborative, hosted at the Anna Freud Centre, UK.
authors.forename: Duncan
authors.initials: D
authors.lastname: Law
authors.affiliation: 2 Evidence Based Practice Unit, University College London and the Anna Freud Centre, UK.
authors.forename: Miranda
authors.initials: M
authors.lastname: Wolpert
mesh_terms: D000293:Adolescent; D016497:Adolescent Health Services / Q000592:standards*; D002648:Child; D002662:Child Health Services / Q000592:standards*; D002675:Child, Preschool; D006040:Goals; D006801:Humans; D008605:Mental Health Services / Q000592:standards*; D017063:Outcome Assessment, Health Care / Q000592:standards*; D018802:Patient-Centered Care / Q000592:standards*
keywords: Child Outcomes Research Consortium; Child and Adolescent Mental Health Services; Goals; child mental health and wellbeing; feedback tools; goal setting; outcome measurement