title: Translational Research--Caregiving Challenges for Parents of Children With Rare Chronic Conditions Due to Genetic Disorders.
authors.affiliation: School of Nursing, The University of Louisville, Louisville, KY. Electronic address: becky.christian@louisville.edu.
authors.forename: Becky J
authors.initials: BJ
authors.lastname: Christian
mesh_terms: D000328:Adult; D017028:Caregivers / Q000193:education* / Q000523:psychology*; D002648:Child; D002675:Child, Preschool; D002908:Chronic Disease; D005192:Family Health; D005260:Female; D030342:Genetic Diseases, Inborn / Q000175:diagnosis / Q000451:nursing*; D006801:Humans; D008134:Long-Term Care / Q000523:psychology; D008297:Male; D020380:Needs Assessment; D010290:Parents / Q000193:education* / Q000523:psychology; D011788:Quality of Life; D018570:Risk Assessment; D013315:Stress, Psychological; D057170:Translational Research, Biomedical