title: The Right Not to Know and the Duty to Tell: The Case of Relatives.
abstract: Obtaining and sharing genetic information when there is a potential conflict of interest between patients and their relatives give rise to two questions. Do we have a duty to find out our genetic predispositions for disease for the sake of our relatives, or do we have a right to remain ignorant? Do we have a duty to disclose our known genetic predispositions for disease to our relatives? I argue that the answer to both questions is yes, but to a lesser extent than sometimes claimed.
authors.affiliation: Senior lecturer and researcher in medical ethics the Stockholm Centre for Healthcare Ethics (CHE) at Karolinska Institutet.
authors.forename: Niklas
authors.initials: N
authors.lastname: Juth
mesh_terms: D017007:Duty to Warn / Q000941:ethics*; D005190:Family; D020022:Genetic Predisposition to Disease; D030661:Genetic Privacy; D005820:Genetic Testing; D006801:Humans; D028701:Patient Rights; D026684:Personal Autonomy