title: Developing and assessing the utility of a You-Tube based clinical genetics video channel for families affected by inherited tumours.
abstract: We have designed and implemented the first worldwide You Tube channel with 22 videos covering common questions asked in familial cancer susceptibility clinics. We discuss the use of the videos including demographics of registered You Tube users, and what lessons have been learnt about how the general public uses medical information online. The most popular video on inheritance patterns has been watched on average 84 times per month. The mostly highly viewed videos include inheritance patterns, breast cancer screening and hereditary non-polyposis colorectal cancer. Registered viewers were more commonly male and the average age of the registered user was 45-54 years; similar to that seen in Genetics Clinics suggesting that age may not be a major barrier to access to this type of information for patients. The videos have been viewed in more than 140 countries confirming that there is clearly an audience for this type of information. Patient feedback questionnaires indicate that these videos provide a useful aide memoir for the clinic appointment, and most people would recommend them to others. In summary, You Tube videos are easy and cost effective to make. They have the ability to disseminate genetics education to a worldwide audience and may be a useful adjunct to clinical appointments.
authors.affiliation: Leicester Clinical Genetics Department, University Hospitals Leicester NHS Trust, Leicester, LE1 5WW, UK. gabriela.jones@uhl-tr.nhs.uk.
authors.forename: G E
authors.initials: GE
authors.lastname: Jones
authors.affiliation: Department of Genetics, University of Leicester, Leicester, UK.
authors.forename: J H
authors.initials: JH
authors.lastname: Singletary
authors.affiliation: Department of Genetics, University of Leicester, Leicester, UK.
authors.forename: A
authors.initials: A
authors.lastname: Cashmore
authors.affiliation: Leicester Clinical Genetics Department, University Hospitals Leicester NHS Trust, Leicester, LE1 5WW, UK.
authors.forename: V
authors.initials: V
authors.lastname: Jain
authors.affiliation: Department of Genetics, University of Leicester, Leicester, UK.
authors.forename: J
authors.initials: J
authors.lastname: Abhulimhen
authors.affiliation: Department of Genetics, University of Leicester, Leicester, UK.
authors.forename: J
authors.initials: J
authors.lastname: Chauhan
authors.affiliation: Department of Genetics, University of Leicester, Leicester, UK.
authors.forename: H V
authors.initials: HV
authors.lastname: Musson
authors.affiliation: Leicester Clinical Genetics Department, University Hospitals Leicester NHS Trust, Leicester, LE1 5WW, UK.
authors.forename: J G
authors.initials: JG
authors.lastname: Barwell
mesh_terms: D001943:Breast Neoplasms / Q000235:genetics; D003123:Colorectal Neoplasms, Hereditary Nonpolyposis / Q000235:genetics; D005192:Family Health; D005246:Feedback; D005260:Female; D020022:Genetic Predisposition to Disease; D006801:Humans; D033181:Information Dissemination; D020407:Internet / Q000706:statistics & numerical data; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000235:genetics*; D011795:Surveys and Questionnaires; D014741:Video Recording
keywords: Genetic counselling; Inherited cancer susceptibility; Internet; You Tube