title: [Development of the registry for Philadelphia-negative chronic myeloproliferative neoplasia in Hungary].
abstract: BACKGROUND
  The establishment and operation of disease registry can be used to collect data on epidemiology cases. In addition, the registry can help to work out medical and health economical and political decisions for longer term.
  
  
  OBJECTIVE
  The aim of the authors was to collect and analyse data of patients with Philadelphia negative neoplasia in Hungary and draw conclusions about the basic types and features of the relevant disease.
  
  
  METHODS
  An online electronic data collection system has been established, based on the permission of the Regional and Institutional Committee of Science and Research Ethics obtained in April 8, 2013. Data collection has been initiated by hematology centres in Hungary. In addition to collection of the epidemiologic data, blood and bone marrow analysis data have been collected, as well. Also, based on cardiovascular factors, risk stratification has been established. Finally, the authors have investigated the method and practice of patient treatment in Hungary.
  
  
  RESULTS
  Data of 901 patients from 15 Hungarian haematology centres have been recorded up to the date of June 30, 2015. After clarification of the data, 426 polycythaemia vera, 350 essential thrombocythaemia and 82 myelofibrosis cases were used for analysis.
  
  
  CONCLUSIONS
  An online registry has been established which helps to clarify and analyse the basic features of certain medical cases and their treatment in Hungary. Including additional medical centres could help to improve the accuracy of medical analysis.
authors.affiliation: Szent Borbála Kórház Tatabánya.
authors.forename: Péter
authors.initials: P
authors.lastname: Dombi
authors.affiliation: Hematológiai Tanszék, Debreceni Egyetem, Általános Orvostudományi Kar Debrecen, Nagyerdei krt. 98., 4032.
authors.forename: Árpád
authors.initials: Á
authors.lastname: Illés
authors.affiliation: I. Belgyógyászati Klinika, Semmelweis Egyetem, Általános Orvostudományi Kar Budapest.
authors.forename: Judit
authors.initials: J
authors.lastname: Demeter
authors.affiliation: Bölcsészet- és Társadalomtudományi Kar, Pázmány Péter Katolikus Egyetem Piliscsaba (Esztergom).
authors.forename: Lajos
authors.initials: L
authors.lastname: Homor
authors.affiliation: Hematológiai Tanszék, Debreceni Egyetem, Általános Orvostudományi Kar Debrecen, Nagyerdei krt. 98., 4032.
authors.forename: Zsófia
authors.initials: Z
authors.lastname: Simon
authors.affiliation: Hematológiai Tanszék, Debreceni Egyetem, Általános Orvostudományi Kar Debrecen, Nagyerdei krt. 98., 4032.
authors.forename: Miklós
authors.initials: M
authors.lastname: Udvardy
authors.affiliation: Somogy Megyei Kaposi Mór Oktató Kórház Kaposvár.
authors.forename: Miklós
authors.initials: M
authors.lastname: Egyed
mesh_terms: D000328:Adult; D017677:Age Distribution; D000368:Aged; D002908:Chronic Disease; D005260:Female; D006801:Humans; D006814:Hungary / Q000453:epidemiology; D008297:Male; D008875:Middle Aged; D010677:Philadelphia Chromosome; D011087:Polycythemia Vera / Q000453:epidemiology* / Q000628:therapy; D055728:Primary Myelofibrosis / Q000453:epidemiology* / Q000628:therapy; D012042:Registries; D018570:Risk Assessment; D012307:Risk Factors; D017678:Sex Distribution; D013920:Thrombocythemia, Essential / Q000453:epidemiology* / Q000628:therapy
keywords: Landolfi stratification; Landolfi-stratifikáció; cardiovascular risk; cardiovascularis rizikó; myeloproliferativ betegség; myeloproliferative neoplasia; registry; regiszter