title: Defining the Scope of Public Engagement: Examining the "Right Not to Know" in Public Health Genomics.
abstract: In this article, we explore the concept of a "right not to know" on a population rather than individual level. We argue that a population level "right not to know" is a useful concept for helping to define the appropriate boundaries of public engagement initiatives in the emerging public health genomics context.
authors.affiliation: Research Assistant at the Center of Genomics and Policy, located within the McGill University/Genome Quebec Innovation Center in Montreal, Quebec.
authors.forename: Clarissa
authors.initials: C
authors.lastname: Allen
authors.affiliation: Academic Associate at the Centre of Genomics and Policy in the Faculty of Medicine at McGill University in Montreal, Québec.
authors.forename: Karine
authors.initials: K
authors.lastname: Sénécal
authors.affiliation: Research Director for the Centre of Genomics and Policy and an Associate Professor in the Faculty of Medicine, Department of Human Genetics at McGill University, Montreal, Quebec.
authors.forename: Denise
authors.initials: D
authors.lastname: Avard
mesh_terms: D030881:Disclosure / Q000941:ethics*; D005820:Genetic Testing; D023281:Genomics; D006291:Health Policy; D006801:Humans; D028701:Patient Rights; D026684:Personal Autonomy; D011634:Public Health