title: The discordance of information needs between cancer patients and their families in China.
abstract: OBJECTIVE
  We aimed at studying information needs of patients and their families, and their attitude towards the counterparts' information needs. Factors influencing psychological status of patients were investigated.
  
  
  METHODS
  Self-designed questionnaires for information needs and attitude were delivered to participants. Patient Health Questionnaire 9-item and Generalized Anxiety Disorder 7-item scale were used to evaluate psychological status of patients.
  
  
  RESULTS
  183 eligible pairs of patients and families were involved. Except for the patients' expected life span, most patients and families needed information for all other subscales of disease-related information. Most patients wished families know more information; however, caregivers tended to prevent this. The occurrence of patients' psychiatric disorders was related to their needs for expected life span (OR 3.06 95%CI 1.36-6.93), as well as the attitude of caregivers about whether to provide more information about treatment outcomes (OR 0.24 95% CI 0.10-0.63).
  
  
  CONCLUSIONS
  Information discordance between cancer patients and their families tended to happen when it came to patients' prognostic information. The psychological status of cancer patients was found in association with their information needs and families' attitude towards it.
  
  
  CONCLUSIONS
  To guide oncology professionals and cancer patients' families for information provision.
authors.affiliation: Institutions Department of Medical Oncology, Cancer Center State Key Laboratory of Biotherapy, West China Hospital, Sichuan University, Chengdu, People's Republic of China. Electronic address: 21201800@qq.com.
authors.forename: Ting-wu
authors.initials: TW
authors.lastname: Yi
authors.affiliation: Institutions Department of Medical Oncology, Cancer Center State Key Laboratory of Biotherapy, West China Hospital, Sichuan University, Chengdu, People's Republic of China. Electronic address: 575942837@qq.com.
authors.forename: Yao-tiao
authors.initials: YT
authors.lastname: Deng
authors.affiliation: Institutions Department of Medical Oncology, Cancer Center State Key Laboratory of Biotherapy, West China Hospital, Sichuan University, Chengdu, People's Republic of China. Electronic address: 308672439@qq.com.
authors.forename: Hui-ping
authors.initials: HP
authors.lastname: Chen
authors.affiliation: Institutions Department of Medical Oncology, Cancer Center State Key Laboratory of Biotherapy, West China Hospital, Sichuan University, Chengdu, People's Republic of China. Electronic address: 156515494@qq.com.
authors.forename: Jie
authors.initials: J
authors.lastname: Zhang
authors.affiliation: Institutions Department of Medical Oncology, Cancer Center State Key Laboratory of Biotherapy, West China Hospital, Sichuan University, Chengdu, People's Republic of China. Electronic address: 382486310@qq.com.
authors.forename: Jie
authors.initials: J
authors.lastname: Liu
authors.affiliation: Institutions Department of Medical Oncology, Cancer Center State Key Laboratory of Biotherapy, West China Hospital, Sichuan University, Chengdu, People's Republic of China. Electronic address: 35247965@qq.com.
authors.forename: Bo-yan
authors.initials: BY
authors.lastname: Huang
authors.affiliation: Institutions Department of Medical Oncology, Cancer Center State Key Laboratory of Biotherapy, West China Hospital, Sichuan University, Chengdu, People's Republic of China. Electronic address: 295763835@qq.com.
authors.forename: Yu-qing
authors.initials: YQ
authors.lastname: Wang
authors.affiliation: Institutions Department of Medical Oncology, Cancer Center State Key Laboratory of Biotherapy, West China Hospital, Sichuan University, Chengdu, People's Republic of China. Electronic address: jiangyu1973@hotmail.com.
authors.forename: Yu
authors.initials: Y
authors.lastname: Jiang
mesh_terms: D000328:Adult; D000368:Aged; D044466:Asian People / Q000523:psychology* / Q000706:statistics & numerical data; D017028:Caregivers / Q000523:psychology*; D002681:China / Q000453:epidemiology; D005190:Family / Q000523:psychology*; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006301:Health Services Needs and Demand; D006801:Humans; D057226:Information Seeking Behavior; D008297:Male; D008875:Middle Aged; D020380:Needs Assessment; D009369:Neoplasms / Q000523:psychology / Q000628:therapy; D010353:Patient Education as Topic; D010361:Patients / Q000523:psychology*; D011368:Professional-Family Relations; D011379:Prognosis; D013315:Stress, Psychological; D011795:Surveys and Questionnaires
keywords: Cancer; Family member; Information needs; Oncologist; Patient