title: An Observational Study to Explore the Feasibility of Assessing Bereaved Relatives' Experiences Before and After a Quality Improvement Project to Improve Care of Dying Medical Inpatients.
abstract: Although hospitals are the most likely place of death, the quality of care received by dying inpatients remains variable. This is concerning for both the dying person and their relatives, with poorer bereavement outcomes likely for those who perceived their family member suffered unduly. There is a real need to consider how this situation can be improved. This work was conducted with the aim of exploring the feasibility of including bereaved relatives' experiences as part of a larger project exploring the use of a care bundle to improve care of the dying inpatients. Fifty relatives of inpatients who had died previously in hospital were contacted by letter with a request for interview before the implementation of a care bundle for the dying, with a care bundle being a collection of care processes that are implemented together. After this project had been in place for 6 months, a further 50 families were contacted who had died on the bundle. Ten families responded initially to the first request and 10 the second, with the interviews based on the Quality of Dying and Death (QODD) tool and a final open-ended question. Although all families who agree to be interviewed completed the session, with regard to the QODD, some families indicated that they would rather talk than provide numeric scores. No major differences in the prescores and postscores were noted. When invited to share their experiences, without prompting, families spoke of consistent concerns that included communication, place of death, and symptom control. This work confirms that it is highly feasible to incorporate assessments of bereaved family members' opinions as part of the wider assessment of research into end-of-life care.
authors.affiliation: 1 Department of Palliative Care, Calvary Mater Newcastle, Newcastle, New South Wales, Australia.|2 The University of Newcastle, Newcastle, New South Wales, Australia.
authors.forename: Katherine
authors.initials: K
authors.lastname: Clark
authors.affiliation: 1 Department of Palliative Care, Calvary Mater Newcastle, Newcastle, New South Wales, Australia.
authors.forename: Abby
authors.initials: A
authors.lastname: Willis
authors.affiliation: 1 Department of Palliative Care, Calvary Mater Newcastle, Newcastle, New South Wales, Australia.
authors.forename: Naomi
authors.initials: N
authors.lastname: Byfieldt
mesh_terms: D001315:Australia; D001601:Bereavement; D016022:Case-Control Studies; D003142:Communication; D005190:Family / Q000523:psychology*; D006801:Humans; D064872:Patient Care Bundles / Q000592:standards; D000070659:Patient Comfort / Q000592:standards; D058996:Quality Improvement / Q000458:organization & administration*; D013727:Terminal Care / Q000458:organization & administration* / Q000523:psychology* / Q000592:standards
keywords: acute hospitals; care bundle; end-of-life care; relatives