title: Health information needs and preferences in relation to survivorship care plans of long-term cancer survivors in the American Cancer Society's Study of Cancer Survivors-I.
abstract: Survivorship care plans (SCPs) provide cancer patients and health care providers with a treatment summary and outline of recommended medical follow-up. Few studies have investigated the information needs and preferred sources among long-term cancer survivors.
  
  
  
  Cancer survivors of the ten most common cancers enrolled in the longitudinal Study of Cancer Survivors-I (SCS-I) completed a survey 9 years post-diagnosis (n = 3138); at time of diagnosis of the SCS-I cohort, SCPs were not considered usual care. We assessed participants' current desire and preferred sources for information across ten SCP items and evaluated factors associated with information need 9 years after diagnosis.
  
  
  
  The proportion of long-term cancer survivors endorsing a need for cancer and health information 9 years post-diagnosis ranged from 43 % (cancer screening) to 9 % (consequences of cancer on ability to work). Print media and personalized reading materials were the most preferred information sources. Younger age, higher education, race other than non-Hispanic white, later cancer stage, having breast cancer, having ≥2 comorbidities, and self-reporting poor health were associated with greater informational need (p < 0.05).
  
  
  
  Long-term cancer survivors continue to report health information needs for most SCP items and would prefer a print format; however, level of need differs by socio-demographic and cancer characteristics. Cancer survivors who did not previously receive a SCP may still benefit from receiving SCP content, and strategies for enabling dissemination to long-term survivors warrant further investigation.
authors.affiliation: Yale School of Public Health, Yale University, 55 Church Street, Suite 801, New Haven, CT, 06510, USA. mary.playdon@yale.edu.
authors.forename: Mary
authors.initials: M
authors.lastname: Playdon
authors.affiliation: Yale School of Public Health, Yale University, 55 Church Street, Suite 801, New Haven, CT, 06510, USA.|Yale Cancer Center, New Haven, CT, USA.
authors.forename: Leah M
authors.initials: LM
authors.lastname: Ferrucci
authors.affiliation: Yale Cancer Center, New Haven, CT, USA.|Yale School of Nursing, Yale University, New Haven, CT, USA.|Yale School of Medicine, Yale University, New Haven, CT, USA.
authors.forename: Ruth
authors.initials: R
authors.lastname: McCorkle
authors.affiliation: Behavioral Research Center, American Cancer Society, Atlanta, GA, USA.
authors.forename: Kevin D
authors.initials: KD
authors.lastname: Stein
authors.affiliation: Behavioral Research Center, American Cancer Society, Atlanta, GA, USA.
authors.forename: Rachel
authors.initials: R
authors.lastname: Cannady
authors.affiliation: Yale Cancer Center, New Haven, CT, USA.|Yale School of Medicine, Yale University, New Haven, CT, USA.
authors.forename: Tara
authors.initials: T
authors.lastname: Sanft
authors.affiliation: Yale School of Public Health, Yale University, 55 Church Street, Suite 801, New Haven, CT, 06510, USA.|Yale Cancer Center, New Haven, CT, USA.
authors.forename: Brenda
authors.initials: B
authors.lastname: Cartmel
mesh_terms: D000368:Aged; D000570:American Cancer Society; D005260:Female; D006801:Humans; D008297:Male; D015996:Survival Rate; D017741:Survivors / Q000706:statistics & numerical data*
keywords: Cancer survivor; Health information need; Information delivery source; Long-term