title: Survivorship care experiences, information, and support needs of patients with oral and oropharyngeal cancer.
abstract: There is little research documenting the posttreatment experiences and needs of oral/oropharyngeal cancer survivors.
  
  
  
  In this cross-sectional study, 92 patients with oral/oropharyngeal cancer diagnosed between 2 and 5 years prior completed a survey about oral cancer information and support needs.
  
  
  
  About half retrospectively reported that they did not receive a written treatment summary. The desire for more oral cancer information was common; one-third or more desired more information about long-term effects, recommended follow-up, and symptoms that should prompt contacting a doctor. Support needs were less common; only a lack of energy was rated as a significant support need. Patients who had a recurrence, did not drink alcohol, and had a greater recurrence fear desired more information. Smokers and more distressed patients reported more support needs.
  
  
  
  Survivors reported the desire for more oral cancer information. A desire for assistance was less common. © 2016 Wiley Periodicals, Inc. Head Neck 38: E1935-E1946, 2016.
authors.affiliation: Department of Population Science, Rutgers Cancer Institute of New Jersey, New Brunswick, New Jersey.
authors.forename: Sharon
authors.initials: S
authors.lastname: Manne
authors.affiliation: Department of Population Science, Rutgers Cancer Institute of New Jersey, New Brunswick, New Jersey.
authors.forename: Shawna V
authors.initials: SV
authors.lastname: Hudson
authors.affiliation: Department of Otolaryngology - Head and Neck Surgery, Rutgers New Jersey Medical School, Newark, New Jersey.
authors.forename: Soly
authors.initials: S
authors.lastname: Baredes
authors.affiliation: Department of Population Science, Rutgers Cancer Institute of New Jersey, New Brunswick, New Jersey.|Department of Nutritional Sciences, Rutgers School of Public Health, Piscataway, New Jersey.
authors.forename: Antoinette
authors.initials: A
authors.lastname: Stroup
authors.affiliation: Department of Population Science, Rutgers Cancer Institute of New Jersey, New Brunswick, New Jersey.
authors.forename: Shannon Myers
authors.initials: SM
authors.lastname: Virtue
authors.affiliation: Department of Nutritional Sciences, Rutgers School of Public Health, Piscataway, New Jersey.
authors.forename: Lisa
authors.initials: L
authors.lastname: Paddock
authors.affiliation: Department of Otolaryngology - Head and Neck Surgery, Rutgers New Jersey Medical School, Newark, New Jersey.
authors.forename: Evelyne
authors.initials: E
authors.lastname: Kalyoussef
mesh_terms: D000328:Adult; D000368:Aged; D003430:Cross-Sectional Studies; D005260:Female; D006301:Health Services Needs and Demand; D006801:Humans; D008297:Male; D008875:Middle Aged; D009364:Neoplasm Recurrence, Local; D009959:Oropharyngeal Neoplasms / Q000503:physiopathology / Q000628:therapy*; D011795:Surveys and Questionnaires; D017741:Survivors; D000073859:Survivorship
keywords: information needs; oral cancer survivors; posttreatment care; support needs; survivorship care plan