title: Open-source, Rapid Reporting of Dementia Evaluations.
abstract: The National Institutes of Health Alzheimer's Disease Center consortium requires member institutions to build and maintain a longitudinally characterized cohort with a uniform standard data set. Increasingly, centers are employing electronic data capture to acquire data at annual evaluations. In this paper, the University of Kansas Alzheimer's Disease Center reports on an open-source system of electronic data collection and reporting to improve efficiency. This Center capitalizes on the speed, flexibility and accessibility of the system to enhance the evaluation process while rapidly transferring data to the National Alzheimer's Coordinating Center. This framework holds promise for other consortia that regularly use and manage large, standardized datasets.
authors.affiliation: University of Kansas Alzheimer's Disease Center rgraves@kumc.edu.
authors.forename: Rasinio S
authors.initials: RS
authors.lastname: Graves
authors.affiliation: Department of Biostatistics, University of Kansas Medical Center jmahnken@kumc.edu.
authors.forename: Jonathan D
authors.initials: JD
authors.lastname: Mahnken
authors.affiliation: University of Kansas Alzheimer's Disease Center rswerdlow@kumc.edu.
authors.forename: Russell H
authors.initials: RH
authors.lastname: Swerdlow
authors.affiliation: University of Kansas Alzheimer's Disease Center jburns2@kumc.edu.
authors.forename: Jeffrey M
authors.initials: JM
authors.lastname: Burns
authors.affiliation: Department of Biostatistics, University of Kansas Medical Center cprice@kumc.edu.
authors.forename: Cathy
authors.initials: C
authors.lastname: Price
authors.affiliation: University of Kansas Alzheimer's Disease Center bamstein@kumc.edu.
authors.forename: Brad
authors.initials: B
authors.lastname: Amstein
authors.affiliation: Department of Biostatistics, University of Kansas Medical Center shunt@kumc.edu.
authors.forename: Suzanne L
authors.initials: SL
authors.lastname: Hunt
authors.affiliation: Department of Biostatistics, University of Kansas Medical Center abrown8@kumc.edu.
authors.forename: Lexi
authors.initials: L
authors.lastname: Brown
authors.affiliation: Division of Medical Informatics, University of Kansas Medical Center badagarla@kumc.edu.
authors.forename: Bhargav
authors.initials: B
authors.lastname: Adagarla
authors.affiliation: University of Kansas Alzheimer's Disease Center evidoni@kumc.edu.
authors.forename: Eric D
authors.initials: ED
authors.lastname: Vidoni
keywords: Alzheimers; database management system; registry; reporting