title: Reflections of a team approach to involving people with dementia in research.
abstract: The article reflects on the ways in which a person-centred approach was used to ensure that people with dementia were given an opportunity to participate in research. The authors discuss three key issues-the importance of including people with dementia in research, informed consent and the possibility of accidental disclosure of diagnosis. The study was an in-depth examination of the ways in which the cancer team manages patients with memory problems and patients with dementia, and the experiences of these patients and their families in accessing outpatient cancer treatment and care in Wales. The study findings will be reported elsewhere. This article aims to add to the small body of existing knowledge within the literature that describes the experiences of researchers in actively involving people with dementia in research.
authors.affiliation: Lecturer in Mental Health at the School of Health Care Sciences, Cardiff University.
authors.forename: Amanda
authors.initials: A
authors.lastname: King
authors.affiliation: Professor of Nursing at the School of Health Care Sciences, Cardiff University.
authors.forename: Jane
authors.initials: J
authors.lastname: Hopkinson
authors.affiliation: Researcher at the School of Health Care Sciences, Cardiff University.
authors.forename: Rebecca
authors.initials: R
authors.lastname: Milton
mesh_terms: D000368:Aged; D003704:Dementia; D005260:Female; D064946:Hospice and Palliative Care Nursing / Q000458:organization & administration*; D006801:Humans; D007258:Informed Consent; D008297:Male; D016743:Mental Competency; D015399:Nursing Research / Q000458:organization & administration*; D009859:Oncology Nursing / Q000458:organization & administration*; D018579:Patient Selection; D018802:Patient-Centered Care / Q000458:organization & administration*; D036301:Qualitative Research; D012107:Research Design; D014852:Wales
keywords: Consent; Dementia; Information; Research