title: Development of South Australian-Victorian Prostate Cancer Health Outcomes Research Dataset.
abstract: BACKGROUND
  Prostate cancer is the most commonly diagnosed and prevalent malignancy reported to Australian cancer registries, with numerous studies from single institutions summarizing patient outcomes at individual hospitals or States. In order to provide an overview of patterns of care of men with prostate cancer across multiple institutions in Australia, a specialized dataset was developed. This dataset, containing amalgamated data from South Australian and Victorian prostate cancer registries, is called the South Australian-Victorian Prostate Cancer Health Outcomes Research Dataset (SA-VIC PCHORD).
  
  
  RESULTS
  A total of 13,598 de-identified records of men with prostate cancer diagnosed and consented between 2008 and 2013 in South Australia and Victoria were merged into the SA-VIC PCHORD. SA-VIC PCHORD contains detailed information about socio-demographic, diagnostic and treatment characteristics of patients with prostate cancer in South Australia and Victoria. Data from individual registries are available to researchers and can be accessed under individual data access policies in each State.
  
  
  CONCLUSIONS
  The SA-VIC PCHORD will be used for numerous studies summarizing trends in diagnostic characteristics, survival and patterns of care in men with prostate cancer in Victoria and South Australia. It is expected that in the future the SA-VIC PCHORD will become a principal component of the recently developed bi-national Australian and New Zealand Prostate Cancer Outcomes Registry to collect and report patterns of care and standardised patient reported outcome measures of men nation-wide in Australia and New Zealand.
authors.affiliation: Department of Epidemiology and Preventive Medicine, Monash University, Melbourne, VIC, Australia. rasa.ruseckaite@monash.edu.
authors.forename: Rasa
authors.initials: R
authors.lastname: Ruseckaite
authors.affiliation: Centre for Population Health, Sansom Institute for Health Research, University of South Australia, Adelaide, SA, Australia. kerri.beckmann@unisa.edu.au.
authors.forename: Kerri
authors.initials: K
authors.lastname: Beckmann
authors.affiliation: South Australian Prostate Cancer Clinical Outcomes Collaborative, Department of Urology, Repatriation General Hospital, Adelaide, SA, Australia. michael.ocallaghan2@sa.gov.au.|Flinders Centre for Innovation in Cancer, Flinders University, Adelaide, SA, Australia. michael.ocallaghan2@sa.gov.au.|Freemasons Foundation Centre for Men's Health and Discipline of Medicine, University of Adelaide, Adelaide, SA, Australia. michael.ocallaghan2@sa.gov.au.
authors.forename: Michael
authors.initials: M
authors.lastname: O'Callaghan
authors.affiliation: Centre for Population Health, Sansom Institute for Health Research, University of South Australia, Adelaide, SA, Australia. david.roder@unisa.edu.au.
authors.forename: David
authors.initials: D
authors.lastname: Roder
authors.affiliation: Centre for Population Health, Sansom Institute for Health Research, University of South Australia, Adelaide, SA, Australia. kim@theurologist.net.au.
authors.forename: Kim
authors.initials: K
authors.lastname: Moretti
authors.affiliation: Department of Epidemiology and Preventive Medicine, Monash University, Melbourne, VIC, Australia. john.zalcberg@monash.edu.
authors.forename: John
authors.initials: J
authors.lastname: Zalcberg
authors.affiliation: William Buckland Radiation Oncology Department, the Alfred, Melbourne, VIC, Australia. jeremy.millar@monash.edu.
authors.forename: Jeremy
authors.initials: J
authors.lastname: Millar
authors.affiliation: Department of Epidemiology and Preventive Medicine, Monash University, Melbourne, VIC, Australia. sue.evans@monash.edu.
authors.forename: Sue
authors.initials: S
authors.lastname: Evans
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D000970:Antineoplastic Agents / Q000627:therapeutic use*; D066264:Datasets as Topic / Q000600:supply & distribution*; D019468:Disease Management; D005720:Gamma Rays / Q000627:therapeutic use*; D006801:Humans; D016247:Information Storage and Retrieval; D008297:Male; D008875:Middle Aged; D011471:Prostatic Neoplasms / Q000175:diagnosis / Q000401:mortality / Q000601:surgery / Q000628:therapy*; D012042:Registries; D012959:Socioeconomic Factors; D013021:South Australia; D016019:Survival Analysis
chemical_list: D000970:Antineoplastic Agents