title: You say you want a revolution: An empirical study of community-based participatory research with people with developmental disabilities.
abstract: BACKGROUND
  Community-based participatory research (CBPR) seeks to improve the responsiveness of science to community priorities and foster positive community change through equitable research collaborations between scientists and community members. CBPR resonates with disability rights principles, and is increasingly being used in disability research, though there are few studies of its use with people with developmental disabilities.
  
  
  OBJECTIVE
  We conducted a prospective qualitative study to explore the experiences of scientists and community members in a multi-year CBPR project with people with developmental disabilities.
  
  
  METHODS
  Over the four project years, we conducted periodic individual interviews and focus groups with members of the CBPR project, and used an inductive thematic analysis to identify and develop relational themes.
  
  
  RESULTS
  We identified factors that contributed to the success of the CBPR project and factors that presented challenges to the CBPR project. We also identified potential individual, project, and societal level impacts of the CBPR project.
  
  
  CONCLUSIONS
  CBPR with people with developmental disabilities is possible and fruitful, and can serve as an effective model for the full inclusion of people with developmental disabilities in science and society at large.
authors.affiliation: Public Health, Food Studies, and Nutrition and the Burton Blatt Institute, Syracuse University, 444 White Hall, Syracuse, NY 13244, USA. Electronic address: kemcdona@syr.edu.
authors.forename: Katherine E
authors.initials: KE
authors.lastname: McDonald
authors.affiliation: RMC Research Corporation, USA.
authors.forename: Erin
authors.initials: E
authors.lastname: Stack
mesh_terms: D055812:Community-Based Participatory Research; D003299:Cooperative Behavior; D002658:Developmental Disabilities; D006233:Persons with Disabilities; D017144:Focus Groups; D006801:Humans; D011446:Prospective Studies; D036301:Qualitative Research; D012111:Residence Characteristics
keywords: Community-based participatory research; Developmental disability; Health research