title: Outcomes and reflections on a consensus-building workshop for developing a spinal cord injury-related chronic pain research agenda.
abstract: Context/ Objective: Chronic pain following spinal cord injury (SCI) is a prevalent secondary health condition that significantly impacts quality of life (QoL). Although growing, the number of available effective pain management approaches for SCI is limited. Recognizing the need to "kick-start" activity on this topic, a consensus-building workshop on developing a research agenda for SCI-related chronic pain was held in 2006 with an expert panel. The present paper describes the processes of the consensus-workshop and its associated outcomes towards advancing the research agenda for SCI-related pain in Canada. A commentary on the current state of knowledge regarding SCI-related pain is also provided.
  
  
  
  Thirty-nine stakeholders (researchers, clinicians, policy-makers, SCI advocates, and people with SCI) attended the consensus-workshop. A modified Delphi approach was employed to gain consensus on identifying the top five SCI pain research priorities for improving QoL post-SCI. As well, project planning along with infrastructure support opportunities were discussed.
  
  
  
  The top five pain research priorities were: 1) pain management and treatment; 2) measurement tools; 3) health services policy and advocacy; 4) knowledge transfer; and 5) mechanisms of pain. Recommendations related to the priorities and related resources were generated, and pilot work was initiated.
  
  
  
  The consensus workshop provided an initial roadmap for research on SCI-related chronic pain, and supported five pilot projects on the identified priorities. Reflections on the current research landscape in Canada and abroad suggest increased activity towards addressing pain post-SCI but evidence-based approaches are still lacking.
authors.affiliation: a School of Kinesiology and Health Science, Faculty of Health , York University , Toronto , Ontario , Canada.|b Institute for Life Course and Aging, Faculty of Medicine , University of Toronto , Toronto , Ontario , Canada.|c Lyndhurst Centre, Toronto Rehabilitation Institute , University Health Network , Toronto , Ontario , Canada.
authors.forename: Sander L
authors.identifier: 0000-0002-9139-9250
authors.initials: SL
authors.lastname: Hitzig
authors.affiliation: d Department of Physical Therapy , University of Toronto , Toronto , Ontario , Canada.
authors.forename: Judith P
authors.initials: JP
authors.lastname: Hunter
authors.affiliation: e St- Joseph's Healthcare , Hamilton , Ontario , Canada.|f Bieman-Copland & Associates , St. Catharines , Ontario , Canada.
authors.forename: Elena C
authors.initials: EC
authors.lastname: Ballantyne
authors.affiliation: a School of Kinesiology and Health Science, Faculty of Health , York University , Toronto , Ontario , Canada.|g Department of Psychology, Faculty of Health , York University , Toronto , Ontario , Canada.|h Toronto General Research Institute , University Health Network , Toronto , Ontario , Canada.
authors.forename: Joel
authors.identifier: 0000-0002-8686-447X
authors.initials: J
authors.lastname: Katz
authors.affiliation: c Lyndhurst Centre, Toronto Rehabilitation Institute , University Health Network , Toronto , Ontario , Canada.|i Department of Family and Community Medicine , University of Toronto , Toronto , Ontario , Canada.
authors.forename: Linda
authors.initials: L
authors.lastname: Rapson
authors.affiliation: c Lyndhurst Centre, Toronto Rehabilitation Institute , University Health Network , Toronto , Ontario , Canada.|j Division of Physical Medicine and Rehabilitation, Faculty of Medicine , University of Toronto, Toronto , ON , Canada.
authors.forename: B Catharine
authors.identifier: 0000-0001-8234-6803
authors.initials: BC
authors.lastname: Craven
authors.affiliation: k Graduate Department of Rehabilitation Science , University of Toronto , Toronto , Ontario , Canada.
authors.forename: Kathryn A
authors.initials: KA
authors.lastname: Boschen
mesh_terms: D059350:Chronic Pain / Q000209:etiology / Q000503:physiopathology* / Q000628:therapy; D003226:Congresses as Topic; D032921:Consensus; D006801:Humans; D059408:Pain Management / Q000379:methods*; D011788:Quality of Life; D013119:Spinal Cord Injuries / Q000150:complications / Q000503:physiopathology* / Q000534:rehabilitation
keywords: Consensus development; Pain; Quality of life; Spinal cord injuries
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