title: Patient Recruitment 2.0: Become a Partner in the Patient Journey Using Digital Media.
abstract: We describe a digital platform, Pioneering Healthcare, designed to inform and empower people who are impacted by lung cancer. The platform enables Roche to support an online conversation with patients and caregivers about lung cancer, and about the role of lung cancer clinical studies in the development of future treatment options. This conversation is live and ongoing on the platform. It provides insights about the views and motivations of patients, and about how to better support patients pursuing treatment for life-threatening illness. We discuss the strategies used to deploy Pioneering Healthcare, and the advantages of using digital platforms for raising disease awareness, increasing patient engagement and, ultimately, for boosting patient enrollment into clinical trials.
authors.affiliation: Roche Pharma Research and Early Development, pRED Informatics, Roche Innovation Center Basel, F. Hoffmann-La Roche Ltd, Basel, Switzerland.
authors.forename: Michael
authors.identifier: http://orcid.org/0000-0003-1010-3890
authors.initials: M
authors.lastname: Lindemann
authors.forename: Tobe
authors.identifier: http://orcid.org/0000-0002-1883-958X
authors.initials: T
authors.lastname: Freeman
authors.forename: Timothy
authors.identifier: http://orcid.org/0000-0003-0904-1522
authors.initials: T
authors.lastname: Kilchenmann
authors.forename: Shuree
authors.identifier: http://orcid.org/0000-0001-7225-2846
authors.initials: S
authors.lastname: Harrison
authors.forename: Margaret
authors.identifier: http://orcid.org/0000-0003-2665-833X
authors.initials: M
authors.lastname: Chan
authors.forename: Mark
authors.identifier: http://orcid.org/0000-0001-9120-6159
authors.initials: M
authors.lastname: Wygonik
authors.forename: Lea
authors.identifier: http://orcid.org/0000-0001-8947-6635
authors.initials: L
authors.lastname: Haines
authors.forename: Christian
authors.identifier: http://orcid.org/0000-0003-2660-5895
authors.initials: C
authors.lastname: Gossens
keywords: Internet intervention; cancer survivor; patient empowerment; social media; systematic review; web 2.0
references.citation: J Community Support Oncol. 2014 Jan;12(1):6-12
references.pmid: 24971397
references.citation: Support Care Cancer. 2013 Sep;21(9):2527-35
references.pmid: 23625020
references.citation: Chron Respir Dis. 2013 Feb;10(1):35-47
references.pmid: 23355404
references.citation: Psychooncology. 2014 May;23(5):569-77
references.pmid: 24403132
references.citation: PLoS One. 2013 Sep 04;8(9):e74373
references.pmid: 24023942
references.citation: Front Psychol. 2014 Nov 20;5:1342
references.pmid: 25477853
references.citation: Psychooncology. 2013 Nov;22(11):2617-23
references.pmid: 23893960
references.citation: J Med Internet Res. 2010 Jun 24;12(2):e23
references.pmid: 20581001
references.citation: N Engl J Med. 2010 Aug 19;363(8):733-42
references.pmid: 20818875
references.citation: Health Serv Res. 2004 Aug;39(4 Pt 1):1005-26
references.pmid: 15230939
references.citation: Death Stud. 2012 Apr;36(4):360-90
references.pmid: 24567991
references.citation: J Med Internet Res. 2012 Jun 25;14(3):e63
references.pmid: 22732765
references.citation: Lung Cancer. 2014 Nov;86(2):274-80
references.pmid: 25294732
references.citation: J Med Internet Res. 2013 Feb 20;15(2):e37
references.pmid: 23425685
references.citation: J Med Internet Res. 2015 Jan 08;17(1):e10
references.pmid: 25574815