title: Safety-Related Concerns of Parents for Children with Disabilities and Chronic Conditions.
abstract: OBJECTIVE
  The aim of this study was to explore the safety-related concerns of parents of children with a variety of disabilities and chronic conditions. We sought to examine concerns common to parents as they related to their children's delayed development, behavioral difficulties, and chronic conditions.
  
  
  METHODS
  A qualitative approach guided by grounded theory was used. Participants included parents of children between 1 and 5 years with a disability or chronic condition who resided in British Columbia, Canada. Data were collected using in-depth in-person interviews and analysis conducted using constant comparative methods.
  
  
  RESULTS
  Three themes were identified that reflected parental safety concerns. These included concerns about: (1) Child's level of understanding about danger; (2) Child interactions with physical environment (concerns about child movement, concerns about ingestions); (3) Child interactions with social environment. Difficult-to-manage behaviors and cognitive limitations exacerbated parents' safety concerns. Parents were found to share safety concerns about movement and ingestions across a range of types of child health conditions.
  
  
  CONCLUSIONS
  For themes of child movement and child ingestions, findings supported the utility of a noncategorical approach for the design of injury prevention strategies for these types of concerns. Parent concerns about child lack of understanding about risk and social safety concerns were linked to a smaller number of conditions and supported a more tailored approach. Flexible approaches may be needed that can offer both generic and specific information and to meet the needs of parents and clinicians.
authors.affiliation: *School of Nursing, Faculty of Health and Social Development, University of British Columbia Okanagan, Kelowna, Canada; †BC Injury Research and Prevention Unit, Child and Family Research Institute, University of British Columbia, Vancouver, Canada; ‡Department of Pediatrics, University of British Columbia, Child and Family Research Institute, Vancouver, Canada; §Department of Pediatrics, School of Population and Public Health, University of British Columbia, Child and Family Research Institute, BC Injury Research and Prevention Unit, Vancouver, Canada.
authors.forename: Lise L
authors.initials: LL
authors.lastname: Olsen
authors.forename: Sami
authors.initials: S
authors.lastname: Kruse
authors.forename: Anton R
authors.initials: AR
authors.lastname: Miller
authors.forename: Mariana
authors.initials: M
authors.lastname: Brussoni
mesh_terms: D002648:Child; D002908:Chronic Disease; D003617:Dangerous Behavior; D002658:Developmental Disabilities; D019988:Children with Disabilities; D005260:Female; D006801:Humans; D008297:Male; D010290:Parents / Q000523:psychology*; D036301:Qualitative Research; D012307:Risk Factors; D012449:Safety; D014947:Wounds and Injuries / Q000517:prevention & control