title: Urban-Dwelling Community Members' Views on Biomedical Research Engagement.
abstract: In this study, we explore community members' overall understanding and experience with biomedical research engagement. We conducted a qualitative analysis to explore a concept that emerged but was not specifically addressed in a pre-existing dataset obtained using four focus group sessions with 30 urban-dwelling community members. Transcripts were read in an iterative process, and an emergent content analysis was performed. Five main themes were identified: (a) engaging in research to contribute to personal or greater good, (b) hierarchy of trust, (c) the importance of disclosure and transparency, (d) practical barriers to research engagement, and (e) fear of research procedures. Community members view research engagement as a collaborative process whereby community members and researchers are involved in all stages of the investigation. Focusing on research engagement, and not merely participation, may enhance community knowledge of the research process and advance scientific knowledge.
authors.affiliation: University of Pittsburgh, Pittsburgh, Pennsylvania, USA.
authors.forename: Yamnia I
authors.initials: YI
authors.lastname: Cortés
authors.affiliation: Columbia University, New York City, New York, USA.
authors.forename: Adriana
authors.initials: A
authors.lastname: Arcia
authors.affiliation: Yale School of Nursing, West Haven, Connecticut, USA.
authors.forename: Joan
authors.initials: J
authors.lastname: Kearney
authors.affiliation: Columbia University, New York City, New York, USA.
authors.forename: Jose
authors.initials: J
authors.lastname: Luchsinger
authors.affiliation: University of Florida, Gainesville, Florida, USA rlucero@ufl.edu.|VA HSR&D Center of Innovation on Disability and Rehabilitation Research, Gainesville, Florida, USA.
authors.forename: Robert J
authors.initials: RJ
authors.lastname: Lucero
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D035843:Biomedical Research; D030881:Disclosure; D005239:Fear; D006801:Humans; D008875:Middle Aged; D036301:Qualitative Research; D035842:Research Subjects / Q000523:psychology*; D012959:Socioeconomic Factors; D035502:Trust; D055815:Young Adult
keywords: minorities; northeast region; qualitative emergent analysis; research participation; research, collaborative
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