title: "Rare" diseases: Motivated patients make the difference.
authors.affiliation: University of Michigan Health System, Internal Medicine - Cardiology, Ann Arbor, MI, United States.
authors.forename: Christa E
authors.initials: CE
authors.lastname: Kuck
authors.affiliation: University of Michigan Health System, Internal Medicine - Cardiology, Ann Arbor, MI, United States.
authors.forename: Steven T
authors.initials: ST
authors.lastname: Heidt
authors.affiliation: University of Michigan Health System, Internal Medicine - Cardiology, Ann Arbor, MI, United States. Electronic address: evakline@med.umich.edu.
authors.forename: Eva
authors.initials: E
authors.lastname: Kline-Rogers
mesh_terms: D000328:Adult; D005260:Female; D005352:Fibromuscular Dysplasia / Q000175:diagnosis* / Q000628:therapy; D006801:Humans; D009042:Motivation; D010358:Patient Participation / Q000379:methods*; D035583:Rare Diseases / Q000175:diagnosis* / Q000628:therapy; D012955:Societies, Medical
keywords: Fibromuscular dysplasia; Patient participation; Rare diseases; Registries