title: "Your Place or Mine?" Priorities for a Specialist Teenage and Young Adult (TYA) Cancer Unit: Disparity Between TYA and Professional Perceptions.
abstract: OBJECTIVE
  To identify key components of a specialist teenager and young adult (TYA) cancer unit from the perspective of young people and health professionals.
  
  
  METHODS
  A facilitated workshop was held in England at which participants prioritized 15 core features of a specialist cancer unit identified in a literature review. Themes were transferred onto cards and organized using a pyramid. Notes were made of the discussion and how decisions were reached. The exercise was repeated in a survey at a patient conference. Data were analyzed by weighting the ranked position and by content analysis.
  
  
  RESULTS
  Eleven young people and 22 health professionals attended the workshops, and 64 young people completed the survey. Young people's top three priorities were a dedicated unit, contact with peers, and provision for partners/parents to live in the unit with them. Health professionals prioritized best chance of survival and best quality of life, access to expertise, access to computers/Internet, and age-appropriate equipment.
  
  
  CONCLUSIONS
  Priorities varied across and within healthcare professionals and young people, and were dependent on viewpoint and personal experience. This is an essential first step toward a fuller description of the benefit of specialist TYA cancer services and highlights the importance of consulting users in service development.
authors.affiliation: 1 Cancer Institute, University College London and Department of Children's Nursing, London South Bank University , London, United Kingdom .
authors.forename: Rachel M
authors.initials: RM
authors.lastname: Taylor
authors.affiliation: 2 National Cancer Research Institute, Teenage and Young Adult Clinical Studies Group (NCRI TYA CSG) , London, United Kingdom .
authors.forename: Lorna
authors.initials: L
authors.lastname: Fern
authors.affiliation: 3 University College London Hospitals NHS Foundation Trust , London, United Kingdom .
authors.forename: Jeremy
authors.initials: J
authors.lastname: Whelan
authors.affiliation: 3 University College London Hospitals NHS Foundation Trust , London, United Kingdom .
authors.forename: Susie
authors.initials: S
authors.lastname: Pearce
authors.affiliation: 4 NCRI TYA CSG Core Consumer Group (CCG) , London, United Kingdom .
authors.forename: Tom
authors.initials: T
authors.lastname: Grew
authors.affiliation: 4 NCRI TYA CSG Core Consumer Group (CCG) , London, United Kingdom .
authors.forename: Hannah
authors.initials: H
authors.lastname: Millington
authors.affiliation: 4 NCRI TYA CSG Core Consumer Group (CCG) , London, United Kingdom .
authors.forename: James
authors.initials: J
authors.lastname: Ashton
authors.affiliation: 4 NCRI TYA CSG Core Consumer Group (CCG) , London, United Kingdom .
authors.forename: Kate
authors.initials: K
authors.lastname: Brooman
authors.affiliation: 4 NCRI TYA CSG Core Consumer Group (CCG) , London, United Kingdom .
authors.forename: Carol
authors.initials: C
authors.lastname: Starkey
authors.affiliation: 5 Great Ormond Street Hospital for Children NHS Trust and Department of Children's Nursing, London South Bank University , London, United Kingdom .
authors.forename: Faith
authors.initials: F
authors.lastname: Gibson