title: The experiences of family carers in the delivery of invasive clinical interventions for young people with complex intellectual disabilities: policy disconnect or policy opportunity?
abstract: OBJECTIVE
  To explore the experiences of family carers in the delivery of invasive clinical interventions within community settings.
  
  
  BACKGROUND
  Many young people with intellectual disabilities present with complex health needs and require clinical interventions to sustain life. As the population lives into older age there is growing demand for the delivery of these interventions within the community setting.
  
  
  METHODS
  An interpretivist qualitative design.
  
  
  METHODS
  Ten family carers of children with intellectual disabilities and complex care needs requiring invasive clinical interventions participated in semi-structured interviews.
  
  
  RESULTS
  There are barriers identified regarding the delivery of invasive clinical interventions in the home setting by social care support workers. These include a reluctance to carry out invasive clinical interventions both for family carers and staff, anxiety, a lack of knowledge and training and difficulties in recruiting appropriate staff.
  
  
  CONCLUSIONS
  There needs to be strategic policy developments focusing on this population who are cared for in the community and require invasive clinical interventions.
  
  
  CONCLUSIONS
  Registered Nurses have a key role in educating and preparing families and social care support workers to safely deliver invasive clinical interventions in community settings for both children and adults with intellectual disabilities.
authors.affiliation: Faculty of Health, Life & Social Sciences, Edinburgh Napier University, Edinburgh, UK.|NHS Lothian, Edinburgh, UK.
authors.forename: Michael
authors.initials: M
authors.lastname: Brown
authors.affiliation: Faculty of Health, Life & Social Sciences, Edinburgh Napier University, Edinburgh, UK.
authors.forename: Louise
authors.initials: L
authors.lastname: Hoyle
authors.affiliation: Faculty of Health, Life & Social Sciences, Edinburgh Napier University, Edinburgh, UK.|NHS Lothian, Edinburgh, UK.
authors.forename: Thanos
authors.initials: T
authors.lastname: Karatzias
mesh_terms: D000293:Adolescent; D000328:Adult; D017028:Caregivers / Q000523:psychology*; D002648:Child; D002675:Child, Preschool; D003657:Decision Making; D005260:Female; D006301:Health Services Needs and Demand; D006801:Humans; D008607:Intellectual Disability / Q000451:nursing / Q000523:psychology*; D007407:Interviews as Topic; D008297:Male; D057766:Policy; D017410:Practice Guidelines as Topic; D012606:Scotland; D013222:State Medicine
keywords: co-production; community care; education and practice development; health needs; intellectual disabilities; invasive clinical procedures; nurses; nursing; policy implementation; support workers