title: Cystic Fibrosis Transitions of Care: Lessons Learned and Future Directions for Cystic Fibrosis.
abstract: Advances in cystic fibrosis (CF) care transformed the condition from one considered lethal by age 7 into a chronic illness (median lifespan, >40 years). With the growing numbers of adults with CF voicing their preference for care in age appropriate settings, the CF community met the challenge by developing an adult-focused care system modeled on the highly successful pediatric CF centers. Adult CF programs ensure lifelong CF specialty care. Preparation for transfer occurs in a process of "transition." This article reviews progress in transition-related care and provides recommendations for research and clinical practice to improve the transition process.
authors: Division of General Pediatrics, University of California, San Francisco, 3333 California Street, Suite 245, San Francisco, CA 94118, USA; Division of General Internal Medicine, University of California, San Francisco, 3333 California Street, Suite 245, San Francisco, CA 94118, USA; Philip R. Lee Institute for Health Policy Studies, University of California, San Francisco, 3333 California Street, STE 265, San Francisco, CA 94118, USA. Electronic address: okumuram@peds.ucsf.edu.
authors: Megumi J
authors: MJ
authors: Okumura
authors: Division of Pulmonary, Critical Care, Allergy and Sleep Medicine, Department of Internal Medicine, University of California, San Francisco, 400 Parnassus Avenue, San Francisco, CA 94143-0359, USA.
authors: Mary Ellen
authors: ME
authors: Kleinhenz
mesh_terms: D035843:Biomedical Research / Q000639:trends*; D002908:Chronic Disease; D003550:Cystic Fibrosis / Q000628:therapy*; D019468:Disease Management; D017408:Guidelines as Topic; D006801:Humans; D010372:Pediatrics / Q000639:trends*; D000069341:Transitional Care / Q000639:trends*
keywords: Adolescents; Adult CF care; Cystic fibrosis; Pediatric CF care; Transition; Young adults