title: Befriending Everyday Life When Bringing Technology Into the Private Sphere.
abstract: We present the findings of our phenomenological interview study concerning the meaning of being an autonomous person while dependent on advanced medical technology at home. This was elucidated in the participants' narratives as befriending everyday life when bringing technology into the private sphere. We discovered four constituents of the phenomenon: befriending the lived body, depending on good relationships, keeping the home as a private sphere, and managing time. The most important finding was the overall position of the lived body by means of the illness limiting the control over one's life. We found that the participants wanted to be involved in and have influence over their care to be able to enjoy autonomy. We therefore stress the importance of bringing the patients into the care process as chronic illness will be a part of their everyday life for a long time to come, hence challenging patient autonomy.
authors: 1 Blekinge Institute of Technology, Karlskrona, Sweden.
authors: Catharina
authors: C
authors: Lindberg
authors: 1 Blekinge Institute of Technology, Karlskrona, Sweden.
authors: Cecilia
authors: C
authors: Fagerström
authors: 2 Malmö University, Malmö, Sweden.
authors: Ania
authors: A
authors: Willman
authors: 3 Lund University, Lund, Sweden.
authors: Bengt
authors: B
authors: Sivberg
mesh_terms: D000203:Activities of Daily Living / Q000523:psychology*; D000223:Adaptation, Psychological; D001292:Attitude to Computers; D001294:Attitude to Health; D002908:Chronic Disease / Q000523:psychology* / Q000628:therapy*; D005260:Female; D006801:Humans; D062069:Inventions; D008297:Male; D026684:Personal Autonomy
keywords: Giorgi; advanced home care; autonomy; decision making; ethics; interviews; phenomenology; qualitative; technology, medical