title: Personalization, self-advocacy and inclusion: An evaluation of parent-initiated supported living schemes for people with intellectual and developmental disabilities in the Netherlands.
abstract: This study focused on parent-initiated supported living schemes in the South of the Netherlands and the ability of these living schemes to enhance participation, choice, autonomy and self-advocacy for people with intellectual or developmental disabilities through personalized planning, support and care. Based on in-depth interviews with tenants, parents and caregivers, findings included that parent-initiated supported housing schemes made steps towards stimulating self-advocacy and autonomy for tenants. However, overprotective and paternalistic attitudes expressed by a significant number of parents, as well as structural constraints affecting the living schemes, created obstacles to tenants' personal development. The study calls for consideration of interdependence as a model for the relationship of parents and adult offspring with disabilities. The benefits and tensions inherent within this relationship must be taken into consideration during inclusive community building.
authors: University College Amsterdam, The Netherlands marie.reindl@gmx.net.
authors: Marie-Sol
authors: MS
authors: Reindl
authors: Hogeschool van Rotterdam, The Netherlands.
authors: Mitzi
authors: M
authors: Waltz
authors: VU University Medical Centre, The Netherlands.
authors: Alice
authors: A
authors: Schippers
mesh_terms: D000328:Adult; D032721:Adult Children; D002658:Developmental Disabilities / Q000534:rehabilitation*; D006801:Humans; D057187:Independent Living; D008607:Intellectual Disability / Q000534:rehabilitation*; D009426:Netherlands; D010287:Parent-Child Relations; D010344:Patient Advocacy; D036301:Qualitative Research
keywords: community-based living; developmental disability; intellectual disability; self-advocacy