title: ILLNESS IS WORK: Revisiting the concept of illness careers and recognizing the identity work of patients with ME/CFS.
abstract: The concept of careers has an extensive history in the sociology of health and illness. Among other things, the notion of a career has been used to describe the changing identities of patients diagnosed with mental illness, to identify distinct stages in the progression of various illnesses, and to recognize the cooperative efforts of hospitalized patients. However, the career concept may be reanalyzed as part of an analytical metaphor that makes salient both the agency of people with illnesses and the social structures in which they are enmeshed. This metaphor, ILLNESS IS WORK, can valorize and aid understanding of the identity work and actions of patients with chronic illnesses, particularly illnesses with a low degree of social recognition and medical prestige such as myalgic encephalopathy and chronic fatigue syndrome.
authors: University of Oslo, Norway jangrue@gmail.com.
authors: Jan
authors: J
authors: Grue
mesh_terms: D000223:Adaptation, Psychological; D001294:Attitude to Health; D002908:Chronic Disease; D017281:Cost of Illness; D015673:Fatigue Syndrome, Chronic / Q000523:psychology*; D006801:Humans; D008016:Life Change Events; D011788:Quality of Life; D012649:Self Concept; D012803:Sick Role; D012919:Social Behavior; D012934:Social Isolation; D014937:Work
keywords: chronic illness; disease prestige; identity; illness career; metaphor theory; myalgic encephalopathy and chronic fatigue syndrome