title: Stigma, activism, and well-being among people living with HIV.
abstract: Evidence demonstrates that HIV stigma undermines the psychological and physical health of people living with HIV (PLWH). Yet, PLWH describe engaging in HIV activism to challenge stigma, and research suggests that individuals may benefit from activism. We examine associations between experiences of HIV stigma and HIV activism, and test whether HIV activists benefit from greater well-being than non-activists. Participants include 93 PLWH recruited from drop-in centers, housing programs, and other organizations providing services to PLWH in the Northeastern USA between 2012 and 2013 (mean age = 50 years; 56% Black, 20% White, 18% Other; 61% non-Latino(a), 39% Latino(a); 59% male, 38% female, 3% transgender; 82% heterosexual, 15% sexual minority). Participants completed a cross-sectional written survey. Results of regression analyses suggest that PLWH who experienced greater enacted stigma engaged in greater HIV activism. Anticipated, internalized, and perceived public stigma, however, were unrelated to HIV activism. Moreover, results of a multivariate analysis of variance suggest that HIV activists reported greater social network integration, greater social well-being, greater engagement in active coping with discrimination, and greater meaning in life than non-activists. Yet, HIV activists also reported somewhat greater depressive symptoms than non-activists, suggesting that the association between HIV activism and well-being is complex. By differentiating between HIV stigma mechanisms, the current study provides a more nuanced understanding of which experiences of HIV stigma may be associated with HIV activism. It further suggests that engagement in activism may offer benefits to PLWH, while raising the possibility that activists could experience greater depressive symptoms than non-activists. Given the preliminary nature of this study, future research should continue to examine these complex associations between HIV stigma, activism, and well-being among PLWH. As this work continues, PLWH, as well as interventionists and clinicians invested in improving well-being among PLWH, should carefully weigh the benefits and potential costs of activism.
authors: a Center for Interdisciplinary Research on AIDS, Yale University , New Haven , CT , USA.|b Division of General Pediatrics, Department of Medicine , Boston Children's Hospital , Boston , MA , USA.|c Department of Pediatrics , Harvard Medical School , Boston , MA , USA.
authors: Valerie A
authors: VA
authors: Earnshaw
authors: a Center for Interdisciplinary Research on AIDS, Yale University , New Haven , CT , USA.|d Department of Psychology , Pace University , New York , NY , USA.
authors: Lisa
authors: L
authors: Rosenthal
authors: a Center for Interdisciplinary Research on AIDS, Yale University , New Haven , CT , USA.|e AIDS Connecticut , Hartford , CT , USA.
authors: Shawn M
authors: SM
authors: Lang
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D003430:Cross-Sectional Studies; D003863:Depression / Q000523:psychology*; D005260:Female; D015658:HIV Infections / Q000523:psychology; D006304:Health Status; D006801:Humans; D007389:Internal-External Control; D008297:Male; D008875:Middle Aged; D015999:Multivariate Analysis; D011287:Prejudice / Q000523:psychology; D011788:Quality of Life; D057545:Social Stigma; D012944:Social Support; D012959:Socioeconomic Factors; D013240:Stereotyping; D014481:United States; D055815:Young Adult
keywords: Activism; depressive symptoms; people living with HIV; stigma; well-being