title: The perspectives of stakeholders of intellectual disability liaison nurses: a model of compassionate, person-centred care.
abstract: OBJECTIVE
  To investigate the experiences of patients with intellectual disabilities, family and paid carers regarding the role of liaison nurses and the delivery of compassionate, person-centred care. From this to propose a model of person-centred care embedded in these experiences.
  
  
  BACKGROUND
  People with intellectual disabilities have a high number of comorbidities, requiring multidisciplinary care, and are at high risk of morbidity and preventable mortality. Provision of compassionate, person-centred care is essential to prevent complications and avoid death.
  
  
  METHODS
  A qualitative design was adopted with Interpretative Phenomenological Analysis for data analysis.
  
  
  METHODS
  Semistructured interviews and focus groups were conducted. Data were analysed with a focus on compassionate, person-centred care elements and components. Themes were modelled to develop a clinically meaningful model for practice.
  
  
  RESULTS
  Themes identified vulnerability, presence and the human interface; information balance; critical points and broken trust; roles and responsibilities; managing multiple transitions; 'flagging up' and communication.
  
  
  CONCLUSIONS
  The findings provide the first 'anatomy' of compassionate, person-centred care and provide a model for operationalising this approach in practice. The applicability of the model will have to be evaluated further with this and other vulnerable groups.
  
  
  CONCLUSIONS
  This is the first study to provide a definition of compassionate, person-centred care and proposes a model to support its application into clinical practice for this and other vulnerable groups.
authors: Edinburgh Napier University, NHS Lothian, Edinburgh, UK.|Learning Disability Service, NHS Lothian, Edinburgh, UK.
authors: Michael
authors: M
authors: Brown
authors: Edinburgh Napier University, NHS Lothian, Edinburgh, UK.
authors: Zoë
authors: Z
authors: Chouliara
authors: Research and Development, NHS Lothian, Edinburgh, UK.
authors: Juliet
authors: J
authors: MacArthur
authors: Learning Disability Service, NHS Lothian, Edinburgh, UK.|University of Edinburgh, Edinburgh, UK.
authors: Andrew
authors: A
authors: McKechanie
authors: Learning Disability Service, NHS Lothian, Edinburgh, UK.|Queen Margaret University, Musselburgh, East Lothian, UK.
authors: Siobhan
authors: S
authors: Mack
authors: University of Edinburgh, Edinburgh, UK.|NHS Lothian, Edinburgh, UK.
authors: Matt
authors: M
authors: Hayes
authors: NHS Lothian, Edinburgh, UK.
authors: Joan
authors: J
authors: Fletcher
mesh_terms: D000328:Adult; D003142:Communication; D004645:Empathy; D005260:Female; D017144:Focus Groups; D006801:Humans; D008607:Intellectual Disability / Q000451:nursing*; D008297:Male; D024802:Nurse's Role; D018802:Patient-Centered Care; D012648:Self Care
keywords: compassionate care; intellectual disability; liaison nurses; models of care; person-centred care