title: Negotiating role management through everyday activities: narratives in action of two stroke survivors and their spouses.
abstract: To manage social roles is a challenging part of self-management post-stroke. This study explored how stroke survivors act as role managers with their spouses in the context of everyday activities.
  
  
  
  Two stroke survivors with a first time stroke living at home with a spouse were included. Data were generated through participant observations at their own environment at 3, 6, 9, 15 and 21 months post-discharge. The narrative analysis focused on the actions of participants.
  
  
  
  Daily activities can be understood as an arena where role management and a meaningful live is negotiated and co-constructed with others. Everyday activities gave stroke survivors and their spouses insight into stroke survivors' capacities in daily situations. This was sometimes empowering, and other times conflicting when a spouse had negative perceptions of the abilities of the stroke survivors.
  
  
  
  The findings add to the current understanding of self-management and role management with regard to how these are situated in everyday activities. Daily activities can help both spouses to reflect and understand about self-management, role management and comanagement in daily life. Moreover, observing stroke survivors in everyday situations provides professionals with concrete pictures of stroke survivors' performance and self-management in interaction with their spouses. Implications for Rehabilitation Self-management is a dynamic process in which individuals actively manage a chronic condition and finally live a meaningful life with a long-term chronic condition; self-management can be divided into medical, role, and emotional management; comanagement is when individuals activate resources and use the capacities of other persons to manage a situation together. Self-management is situated in everyday activities. Everyday activities give stroke survivors ánd their partners impressions about stroke survivors' self-management abilities post-stroke in an everyday context. Everyday activities give stroke survivors ánd their partners an arena where role management and a meaningful life are negotiated and coconstructed through doing. Observing stroke survivors in everyday situations provides professionals a concreter picture of stroke survivors' self-management and comanagement with their partners than can be obtained from an informal interview.
authors: a Department of Occupational Therapy and Research Group Neurorehabilitation , HAN University of Applied Sciences , Nijmegen , The Netherlands ;|b Department of Rehabilitation Radboud University Medical Centre , Radboud Institute for Health Sciences, Scientific Institute for Quality of Health Care , Nijmegen , The Netherlands ;
authors: Ton
authors: T
authors: Satink
authors: c Department of Neurobiology, Division of Occupational Therapy , Caring Science and Society, Karolinska Institute , Stockholm , Sweden ;|d Department of Occupational Therapy, Faculty of Health Science , Sør-Trøndelag University College , Trondheim , Norway ;
authors: Staffan
authors: S
authors: Josephsson
authors: b Department of Rehabilitation Radboud University Medical Centre , Radboud Institute for Health Sciences, Scientific Institute for Quality of Health Care , Nijmegen , The Netherlands ;
authors: Jana
authors: J
authors: Zajec
authors: b Department of Rehabilitation Radboud University Medical Centre , Radboud Institute for Health Sciences, Scientific Institute for Quality of Health Care , Nijmegen , The Netherlands ;
authors: Edith H C
authors: EH
authors: Cup
authors: b Department of Rehabilitation Radboud University Medical Centre , Radboud Institute for Health Sciences, Scientific Institute for Quality of Health Care , Nijmegen , The Netherlands ;|e Research Group Neurorehabilitation , HAN University of Applied Sciences , Nijmegen , The Netherlands.
authors: Bert J M
authors: BJ
authors: de Swart
authors: b Department of Rehabilitation Radboud University Medical Centre , Radboud Institute for Health Sciences, Scientific Institute for Quality of Health Care , Nijmegen , The Netherlands ;
authors: Maria W G
authors: MW
authors: Nijhuis-van der Sanden
mesh_terms: D000203:Activities of Daily Living / Q000523:psychology*; D000223:Adaptation, Psychological; D000368:Aged; D005260:Female; D006801:Humans; D008297:Male; D033262:Narration; D017008:Negotiating / Q000523:psychology*; D012380:Role; D012648:Self Care / Q000523:psychology; D066107:Social Skills; D018454:Spouses / Q000523:psychology*; D020521:Stroke / Q000523:psychology*; D000071939:Stroke Rehabilitation / Q000523:psychology*
keywords: Everyday activities; narrative; role management; self-management; stroke