title: Living Well With a Long-Term Condition: Service Users' Perspectives of a Self-Management Intervention.
abstract: The outcomes of self-management interventions are commonly assessed using quantitative measurement tools, and few studies ask people with long-term conditions to explain, in their own words, what aspects of the intervention they valued. In this Grounded Theory study, a Health Trainers service in the north of England was evaluated based on interviews with eight service-users. Open, focused, and theoretical coding led to the development of a preliminary model explaining participants' experiences and perceived impact of the service. The model reflects the findings that living well with a long-term condition encompassed social connectedness, changed identities, acceptance, and self-care. Health trainers performed four related roles that were perceived to contribute to these outcomes: conceptualizer, connector, coach, and champion. The evaluation contributes a grounded theoretical understanding of a personalized self-management intervention that emphasizes the benefits of a holistic approach to enable cognitive, behavioral, emotional, and social adjustments.
authors.affiliation: 1 Staffordshire University, Stoke-on-Trent, UK.
authors.forename: Nicola
authors.initials: N
authors.lastname: Stenberg
authors.affiliation: 2 Sheffield Hallam University, Sheffield, UK.
authors.forename: Penny J
authors.initials: PJ
authors.lastname: Furness
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D002908:Chronic Disease / Q000523:psychology* / Q000628:therapy*; D004739:England; D005260:Female; D066296:Grounded Theory; D015438:Health Behavior; D006801:Humans; D007398:Interpersonal Relations; D008875:Middle Aged; D009042:Motivation; D010353:Patient Education as Topic / Q000458:organization & administration*; D012648:Self Care / Q000523:psychology; D000073278:Self-Management / Q000193:education* / Q000523:psychology*; D012944:Social Support
keywords: grounded theory; health outcomes; illness and disease, chronic; interviews; participation, social; quality of life; relationships, patient–provider; self-care; self-help, United Kingdom