title: Prevalence and nature of survivorship needs in patients with head and neck cancer.
abstract: The purpose of this study was to determine the number, type, and predictors of patients with head and neck cancer unmet survivorship needs.
  
  
  
  This study accrued patients with head and neck cancer at any time point in their survivorship course, and they completed a survey, including demographic information and the Cancer Survivors' Unmet Needs Measure (CaSUN).
  
  
  
  The median age of the 158 participants was 64 years. Ninety-six patients (61%) reported at least one unmet need on the CaSUN and 6 patients had a very high number of needs between 31 and 35. The mean number of unmet needs was 5.8 ± 8.9. Comprehensive Cancer Care was the most common domain of unmet need (n = 69; 45%). Younger age, earlier survivorship phase, and worse quality of life were associated with increased survivorship unmet needs on multivariable analysis.
  
  
  
  A high proportion of patients with head and neck cancer have unmet needs. These data can guide the development of head and neck survivorship programs. © 2016 Wiley Periodicals, Inc. Head Neck 38: 1097-1103, 2016.
authors.affiliation: Department of Radiation Oncology, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.
authors.forename: Meredith
authors.initials: M
authors.lastname: Giuliani
authors.affiliation: Radiation Medicine Program, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.
authors.forename: Maurene
authors.initials: M
authors.lastname: McQuestion
authors.affiliation: Cancer Survivorship Program, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.
authors.forename: Jennifer
authors.initials: J
authors.lastname: Jones
authors.affiliation: Patient and Survivorship Education, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.
authors.forename: Janet
authors.initials: J
authors.lastname: Papadakos
authors.affiliation: Department of Biostatistics, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.
authors.forename: Lisa W
authors.initials: LW
authors.lastname: Le
authors.affiliation: Cancer Survivorship Program, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.
authors.forename: Nour
authors.initials: N
authors.lastname: Alkazaz
authors.affiliation: Psychosocial Oncology and Palliative Care, Princess Margaret Cancer Center, Toronto, Ontario, Canada.
authors.forename: Terry
authors.initials: T
authors.lastname: Cheng
authors.affiliation: Department of Radiation Oncology, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.
authors.forename: John
authors.initials: J
authors.lastname: Waldron
authors.affiliation: Department of Radiation Oncology, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.
authors.forename: Pamela
authors.initials: P
authors.lastname: Catton
authors.affiliation: Department of Radiation Oncology, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.
authors.forename: Jolie
authors.initials: J
authors.lastname: Ringash
mesh_terms: D000046:Academic Medical Centers; D000222:Adaptation, Physiological; D000223:Adaptation, Psychological; D000328:Adult; D000368:Aged; D000704:Analysis of Variance; D002173:Cancer Care Facilities; D003266:Continuity of Patient Care / Q000458:organization & administration*; D003430:Cross-Sectional Studies; D005260:Female; D005500:Follow-Up Studies; D006258:Head and Neck Neoplasms / Q000175:diagnosis / Q000453:epidemiology* / Q000523:psychology / Q000628:therapy*; D006801:Humans; D008297:Male; D008875:Middle Aged; D015999:Multivariate Analysis; D020380:Needs Assessment; D009864:Ontario; D015995:Prevalence; D011788:Quality of Life; D011795:Surveys and Questionnaires; D017741:Survivors / Q000523:psychology; D000073859:Survivorship; D013997:Time Factors
keywords: head and neck neoplasms; resources; survivorship; unmet needs