title: The Catalonian Expert Patient Programme for Chagas Disease: An Approach to Comprehensive Care Involving Affected Individuals.
abstract: The Catalonian Expert Patient Programme on Chagas disease is a initiative, which is part of the Chronic Disease Programme. It aims to boost responsibility of patients for their own health and to promote self-care. The programme is based on nine sessions conducted by an expert patient. Evaluation was focusing in: habits and lifestyle/self-care, knowledge of disease, perception of health, self-esteem, participant satisfaction, and compliance with medical follow-up visits. Eighteen participants initiated the programme and 15 completed it. The participants were Bolivians. The 66.7 % of them had been diagnosed with chagas disease in Spain. The 100 % mentioned that they would participate in this activity again and would recommend it to family and friends. The knowledge about disease improve after sessions. The method used in the programme could serve as a key strategy in the field of comprehensive care for individuals with this disease.
authors.affiliation: Drassanes-Vall d'Hebron International Health Unit, International Health Programme of the Catalonian Institute of Health (PROSICS), Barcelona, Av. Drassanes 17-21, 08001, Barcelona, Spain. iclaveria@vhebron.net.
authors.forename: Isabel
authors.initials: I
authors.lastname: Claveria Guiu
authors.affiliation: Preventative Medicine Service, Vall d'Hebron Hospital (2014), IDIAP Jordi Gol, Gran Via de les Corts Catalanes 587 àtic, 08007, Barcelona, Spain.
authors.forename: Johanna
authors.initials: J
authors.lastname: Caro Mendivelso
authors.affiliation: Drassanes-Vall d'Hebron International Health Unit, International Health Programme of the Catalonian Institute of Health (PROSICS), Barcelona, Av. Drassanes 17-21, 08001, Barcelona, Spain.
authors.forename: Hakima
authors.initials: H
authors.lastname: Ouaarab Essadek
authors.affiliation: Chronic Disease Prevention and Care Programme, Department of Health, Government of Catalonia, Trav. de les Corts, 131-159, 08028, Barcelona, Spain.|Cap de Programa Pacient Expert Catalunya, Programa de prevenció i atenció a la cronicitat, Direcció General de Planificació i Recerca en Salut, Departament de Salut, Trav. de les Corts, 131-159, 08028, Barcelona, Spain.
authors.forename: Maria Asunción
authors.initials: MA
authors.lastname: González Mestre
authors.affiliation: Chagas Disease Control Programme, Control of Neglected Tropical Diseases Department, World Health Organization, Geneva, Switzerland.|WHO/HTM/NTD/IDM/Chagas disease, World Health Organization/Organisation mondiale de la Santé, HIV/AIDS, Tuberculosis, Malaria and Neglected Diseases, Control of Neglected Tropical Diseases, Innovative and Intensified Disease Management, Avenue Appia 20, 1211, Genève 27, Switzerland.
authors.forename: Pedro
authors.initials: P
authors.lastname: Albajar-Viñas
authors.affiliation: Drassanes-Vall d'Hebron International Health Unit, International Health Programme of the Catalonian Institute of Health (PROSICS), Barcelona, Av. Drassanes 17-21, 08001, Barcelona, Spain.
authors.forename: Jordi
authors.initials: J
authors.lastname: Gómez I Prat
mesh_terms: D000328:Adult; D001838:Bolivia / Q000208:ethnology; D014355:Chagas Disease / Q000208:ethnology* / Q000523:psychology / Q000628:therapy*; D002908:Chronic Disease; D007722:Health Knowledge, Attitudes, Practice / Q000208:ethnology*; D006304:Health Status; D006801:Humans; D008019:Life Style; D008875:Middle Aged; D010349:Patient Compliance / Q000208:ethnology; D010353:Patient Education as Topic / Q000458:organization & administration*; D017060:Patient Satisfaction / Q000208:ethnology; D010465:Perception; D012648:Self Care / Q000379:methods*; D012649:Self Concept; D013030:Spain / Q000453:epidemiology
keywords: Chagas disease; Chronic disease; Comprehensive care; Expert patient