title: Younger Onset Dementia.
abstract: This literature review focused on the experience, care, and service requirements of people with younger onset dementia. Systematic searches of 10 relevant bibliographic databases and a rigorous examination of the literature from nonacademic sources were undertaken. Searches identified 304 articles assessed for relevance and level of evidence, of which 74% were academic literature. The review identified the need for (1) more timely and accurate diagnosis and increased support immediately following diagnosis; (2) more individually tailored services addressing life cycle issues; (3) examination of the service needs of those living alone; (4) more systematic evaluation of services and programs; (5) further examination of service utilization, costs of illness, and cost effectiveness; and (6) current Australian clinical surveys to estimate prevalence, incidence, and survival rates. Although previous research has identified important service issues, there is a need for further studies with stronger research designs and consideration of the control of potentially confounding factors.
authors.affiliation: 1 Australian Health Services Research Institute, University of Wollongong, Wollongong, New South Wales, Australia.
authors.forename: Janet
authors.initials: J
authors.lastname: Sansoni
authors.affiliation: 1 Australian Health Services Research Institute, University of Wollongong, Wollongong, New South Wales, Australia.
authors.forename: Cathy
authors.initials: C
authors.lastname: Duncan
authors.affiliation: 1 Australian Health Services Research Institute, University of Wollongong, Wollongong, New South Wales, Australia.
authors.forename: Pamela
authors.initials: P
authors.lastname: Grootemaat
authors.affiliation: 1 Australian Health Services Research Institute, University of Wollongong, Wollongong, New South Wales, Australia.
authors.forename: Jacquelin
authors.initials: J
authors.lastname: Capell
authors.affiliation: 1 Australian Health Services Research Institute, University of Wollongong, Wollongong, New South Wales, Australia.
authors.forename: Peter
authors.initials: P
authors.lastname: Samsa
authors.affiliation: 1 Australian Health Services Research Institute, University of Wollongong, Wollongong, New South Wales, Australia.
authors.forename: Anita
authors.initials: A
authors.lastname: Westera
mesh_terms: D017668:Age of Onset; D003704:Dementia / Q000175:diagnosis* / Q000628:therapy*; D006301:Health Services Needs and Demand; D006801:Humans; D010342:Patient Acceptance of Health Care
keywords: care and service requirements; epidemiological estimates; experience of younger onset dementia; younger onset dementia