title: Incorporating Palliative Care Concepts Into Nutrition Practice: Across the Age Spectrum.
abstract: A practice gap exists between published guidelines and recommendations and actual clinical practice with life-sustaining treatments not always being based on the patient's wishes, including the provision of nutrition support therapies. Closing this gap requires an interdisciplinary approach that can be enhanced by incorporating basic palliative care concepts into nutrition support practice. In the fast-paced process of providing timely and effective medical treatments, communication often suffers and decision making is not always reflective of the patient's quality-of-life goals. The current healthcare clinical ethics model does not yet include optimum use of advance directives and early communication between patients and family members and their healthcare providers about treatment choices, including nutrition support. A collaborative, proactive, integrated process in all healthcare facilities and across levels of care and age groups, together with measurable sustained outcomes, shared best practices, and preventive ethics, will be needed to change the culture of care. Implementation of a better process, including basic palliative care concepts, requires improved communication skills by healthcare professionals. Formalized palliative care consults are warranted early in complex cases. An education technique, as presented in this article, of how clinicians can engage in critical and crucial conversations early with patients and family members, by incorporating the patient's values and cultural and religious diversity in easily understood language, is identified as an innovative tool.
authors.affiliation: Providence Saint Joseph Medical Center, Burbank, California denisebairdschwartz@gmail.com.
authors.forename: Denise Baird
authors.initials: DB
authors.lastname: Schwartz
authors.affiliation: Central Coast VNA & Hospice, Monterey, California.
authors.forename: Kristina
authors.initials: K
authors.lastname: Olfson
authors.affiliation: Providence Saint Joseph Medical Center, Burbank, California.
authors.forename: Babak
authors.initials: B
authors.lastname: Goldman
authors.affiliation: Atlanta Medical Center, Atlanta, Georgia.
authors.forename: Albert
authors.initials: A
authors.lastname: Barrocas
authors.affiliation: Feinberg School of Medicine, Division of Pediatric Surgery, Ann & Robert H. Lurie Children's Hospital, Chicago, Illinois.
authors.forename: John R
authors.initials: JR
authors.lastname: Wesley
mesh_terms: D000328:Adult; D002648:Child; D006801:Humans; D007231:Infant, Newborn; D018529:Nutritional Support / Q000379:methods*; D010166:Palliative Care / Q000379:methods*; D010346:Patient Care Management / Q000379:methods*; D017410:Practice Guidelines as Topic; D013727:Terminal Care / Q000379:methods*
keywords: ethics; nutritional support; palliative care; patient care planning; patient-centered care