title: Recontact in clinical practice: a survey of clinical genetics services in the United Kingdom.
abstract: To ascertain whether and how recontacting occurs in the United Kingdom.
  
  
  
  A Web-based survey was administered online between October 2014 and July 2015. A link to the survey was circulated via an e-mail invitation to the clinical leads of the United Kingdom's 23 clinical genetics services, with follow-up with senior clinical genetics staff.
  
  
  
  The majority of UK services reported that they recontact patients and their family members. However, recontacting generally occurs in an ad hoc fashion when an unplanned event causes clinicians to review a file (a "trigger"). There are no standardized recontacting practices in the United Kingdom. More than half of the services were unsure whether formalized recontacting systems should be implemented. Some suggested greater patient involvement in the process of recontacting.
  
  
  
  This research suggests that a thorough evaluation of the efficacy and sustainability of potential recontacting systems within the National Health Service would be necessary before deciding whether and how to implement such a service or to create guidelines on best-practice models.Genet Med 18 9, 876-881.
authors.affiliation: Egenis, University of Exeter, Exeter, UK.
authors.forename: Daniele
authors.identifier: 0000-0002-3143-8430
authors.initials: D
authors.lastname: Carrieri
authors.affiliation: Faculty of Medicine, University of Southampton, Southampton, UK.
authors.forename: Anneke M
authors.identifier: 0000-0003-3324-4338
authors.initials: AM
authors.lastname: Lucassen
authors.affiliation: School of Medicine, University of Cardiff, Cardiff, UK.
authors.forename: Angus J
authors.identifier: 0000-0002-1200-9286
authors.initials: AJ
authors.lastname: Clarke
authors.affiliation: Faculty of Medicine, University of Southampton, Southampton, UK.
authors.forename: Sandi
authors.initials: S
authors.lastname: Dheensa
authors.affiliation: School of Medicine, University of Cardiff, Cardiff, UK.
authors.forename: Shane
authors.initials: S
authors.lastname: Doheny
authors.affiliation: Royal, Devon, and Exeter Hospital, Exeter, UK.
authors.forename: Peter D
authors.initials: PD
authors.lastname: Turnpenny
authors.affiliation: Egenis, University of Exeter, Exeter, UK.
authors.forename: Susan E
authors.identifier: 0000-0003-1045-4615
authors.initials: SE
authors.lastname: Kelly
mesh_terms: D033002:Duty to Recontact; D005826:Genetics, Medical; D006296:Health Services; D006801:Humans; D011795:Surveys and Questionnaires; D006113:United Kingdom; D000078329:Workforce