title: Exploring the Person-Centeredness of an Innovative E-Supportive System Aimed at Person-Centered Care: Prototype Evaluation of the Care Expert.
abstract: Integrated in a multiphase development project, the Care Expert is a prototype of a novel e-supportive system aiming to mediate person-centered care in the context of outpatient oncology. At this early stage of development, the current study was conducted aiming at exploring the person-centeredness concept underlying the Care Expert version 1.0 and its usability for patients receiving outpatient chemotherapy for breast cancer. Within a user-centered design, we followed a mixed-methods approach entailing subjective assessment and diagnostic evaluation of the prototype. Four women undergoing outpatient chemotherapy participated in individual sessions and rated highly the system's usability. Their accounts led to identifying three supportive functions: continuous communication, reinforcement of self-driven agency, and cooperative agency with a sense of being looked after. We discuss the results in relation to theoretical fields that might guide further the development of the supportive system and usability recommendations. Care Expert has the potential to mediate person-centered care in outpatient oncology. Nevertheless, additional cycles of iterative development with the software team and of participatory design focusing on oncology nurses' perspectives are required before departing to the feasibility phase in intervention research.
authors.affiliation: Author Affiliations: Institute of Health and Care Sciences (Ms Ventura and Drs Koinberg and Öhlén) and Institute of Clinical Sciences (Dr Karlsson), Sahlgrenska Academy, and Center for Person-Centered Care (Ms Ventura and Drs Koinberg and Öhlén), University of Gothenburg, Gothenburg, Sweden; Trinity Western University, Langley (Dr Sawatzky); and Centre for Health Evaluation and Outcome Sciences, Vancouver, British Columbia, Canada (Dr Sawatzky); and Palliative Research Centre, Ersta Sköndal University College, Stockholm, Sweden (Dr Öhlén).
authors.forename: Filipa
authors.initials: F
authors.lastname: Ventura
authors.forename: Ingalill
authors.initials: I
authors.lastname: Koinberg
authors.forename: Richard
authors.initials: R
authors.lastname: Sawatzky
authors.forename: Per
authors.initials: P
authors.lastname: Karlsson
authors.forename: Joakim
authors.initials: J
authors.lastname: Öhlén
mesh_terms: D000328:Adult; D000368:Aged; D001943:Breast Neoplasms / Q000188:drug therapy / Q000523:psychology / Q000628:therapy; D003299:Cooperative Behavior; D005260:Female; D006801:Humans; D020407:Internet; D007407:Interviews as Topic; D008875:Middle Aged; D009859:Oncology Nursing; D010348:Patient Care Team; D018802:Patient-Centered Care / Q000379:methods*; D012648:Self Care; D012657:Self-Help Groups; D017216:Telemedicine; D014584:User-Computer Interface