title: Consumer Perceptions of Interactions With Primary Care Providers After Direct-to-Consumer Personal Genomic Testing.
abstract: BACKGROUND
  Direct-to-consumer (DTC) personal genomic testing (PGT) allows individuals to learn about their genetic makeup without going through a physician, but some consumers share their results with their primary care provider (PCP).
  
  
  OBJECTIVE
  To describe the characteristics and perceptions of DTC PGT consumers who discuss their results with their PCP.
  
  
  METHODS
  Longitudinal, prospective cohort study.
  
  
  METHODS
  Online survey before and 6 months after results.
  
  
  METHODS
  DTC PGT consumers.
  
  
  METHODS
  Consumer satisfaction with the DTC PGT experience; whether and, if so, how many results could be used to improve health; how many results were not understood; and beliefs about the PCP's understanding of genetics. Participants were asked with whom they had discussed their results. Genetic reports were linked to survey responses.
  
  
  RESULTS
  Among 1026 respondents, 63% planned to share their results with a PCP. At 6-month follow-up, 27% reported having done so, and 8% reported sharing with another health care provider only. Common reasons for not sharing results with a health care provider were that the results were not important enough (40%) or that the participant did not have time to do so (37%). Among participants who discussed results with their PCP, 35% were very satisfied with the encounter, and 18% were not at all satisfied. Frequently identified themes in participant descriptions of these encounters were actionability of the results or use in care (32%), PCP engagement or interest (25%), and lack of PCP engagement or interest (22%).
  
  
  CONCLUSIONS
  Participants may not be representative of all DTC PGT consumers.
  
  
  CONCLUSIONS
  A comprehensive picture of DTC PGT consumers who shared their results with a health care provider is presented. The proportion that shares results is expected to increase with time after testing as consumers find opportunities for discussion at later appointments or if results become relevant as medical needs evolve.
  
  
  BACKGROUND
  National Institutes of Health.
authors.forename: Cathelijne H
authors.initials: CH
authors.lastname: van der Wouden
authors.forename: Deanna Alexis
authors.initials: DA
authors.lastname: Carere
authors.forename: Anke H
authors.initials: AH
authors.lastname: Maitland-van der Zee
authors.forename: Mack T
authors.initials: MT
authors.lastname: Ruffin
authors.forename: J Scott
authors.initials: JS
authors.lastname: Roberts
authors.forename: Robert C
authors.initials: RC
authors.lastname: Green
mesh_terms: D000328:Adult; D000368:Aged; D001291:Attitude of Health Personnel; D003258:Consumer Behavior; D000067108:Direct-To-Consumer Screening and Testing; D005260:Female; D005820:Genetic Testing; D023281:Genomics; D006801:Humans; D008137:Longitudinal Studies; D008297:Male; D008875:Middle Aged; D010465:Perception; D010817:Physician-Patient Relations; D058007:Physicians, Primary Care / Q000523:psychology*; D011446:Prospective Studies; D014481:United States; D055815:Young Adult