title: The PROMIS satisfaction with social participation measures demonstrated responsiveness in diverse clinical populations.
abstract: To conduct a longitudinal evaluation of Patient-Reported Outcomes Measurement Information System (PROMIS) social function measures (satisfaction with participation in social roles and satisfaction with participation in discretionary social activities) in English-speaking people with chronic health conditions.
  
  
  
  Adults receiving treatment for chronic heart failure (CHF), chronic obstructive pulmonary disease (COPD), chronic back pain, or depression completed PROMIS computer-based measures of social health at two time points approximately 3 months apart and global ratings of change. Linear mixed effects models and standardized response means were estimated for the two social function measures.
  
  
  
  A total of 599 people participated: 79 with stable COPD, 46 COPD exacerbation, 60 with CHF, 196 with depression, and 218 with back pain. Four groups experienced improvement over time, one (COPD stable) changed very little. Those who reported better global ratings of change in overall health experienced larger changes in social function than those who reported the same or worse global health.
  
  
  
  This study provided support for responsiveness to change for two PROMIS social function measures. These results provide further evidence of the PROMIS goal to enable comparable measurement of universally relevant symptoms and experiences that apply to people with a variety of diseases.
authors.affiliation: Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, 633 N. St. Clair St., Suite 1900, Chicago, IL 60611, USA. Electronic address: e-hahn@northwestern.edu.
authors.forename: Elizabeth A
authors.initials: EA
authors.lastname: Hahn
authors.affiliation: Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, 633 N. St. Clair St., Suite 1900, Chicago, IL 60611, USA.
authors.forename: Jennifer L
authors.initials: JL
authors.lastname: Beaumont
authors.affiliation: Department of Psychiatry, University of Pittsburgh Medical Center, 3811 O'Hara St., Pittsburgh, PA 15213, USA.
authors.forename: Paul A
authors.initials: PA
authors.lastname: Pilkonis
authors.affiliation: Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, 633 N. St. Clair St., Suite 1900, Chicago, IL 60611, USA.
authors.forename: Sofia F
authors.initials: SF
authors.lastname: Garcia
authors.affiliation: Department of Occupational Therapy, University of Illinois at Chicago, 1919 W. Taylor St., Chicago, IL 60612, USA.
authors.forename: Susan
authors.initials: S
authors.lastname: Magasi
authors.affiliation: Cecil G. Sheps Center for Health Services Research, Division of General Internal Medicine, Department of Medicine, University of North Carolina School of Medicine, 5041 Old Clinic Bldg., Chapel Hill, NC 27599, USA.
authors.forename: Darren A
authors.initials: DA
authors.lastname: DeWalt
authors.affiliation: Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, 633 N. St. Clair St., Suite 1900, Chicago, IL 60611, USA.
authors.forename: David
authors.initials: D
authors.lastname: Cella
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D002908:Chronic Disease; D005260:Female; D006801:Humans; D008137:Longitudinal Studies; D008297:Male; D008875:Middle Aged; D010549:Personal Satisfaction; D011594:Psychometrics; D015203:Reproducibility of Results; D057566:Self Report; D012919:Social Behavior; D011795:Surveys and Questionnaires / Q000592:standards*; D055815:Young Adult
keywords: Chronic disease; Linear models; PROMIS; Patient-reported outcomes; Responsiveness; Social function; Social health