title: [Poor knowledge of treatment protocols by members of an HIV association].
abstract: The treatment protocol form defines all health care and treatments that are free of charge for patients living with a long-term disease in France. It is designed to facilitate the medical care of these patients. The way in which it is written impact on access and adequacy of health care. AIDES, a French HIV/AIDS/Hepatitis association, reported disparities and shortcomings in the use of this protocol. A survey was conducted among people attending this association in order to objectively demonstrate field observations. This article presents the results of this investigation designed to determine the level of knowledge of the people living with HIV and/or hepatitis in contact with the association regarding the use of this protocol. 224 people completed the questionnaire. The results confirm field observations: the appropriation of the treatment protocol by patients who participated in this survey remains limited, even within a study population in contact with a patient association. These findings raise the question of the effectiveness of the communication between health care practitioners/caregivers and patients concerning the use of this tool. More widely, the protocol drafting process needs to be reviewed: what are the respective places and roles for health stakeholders? What form of coordination between the patient, the general practitioner and the Health Insurance is required to establish an appropriate and appropriable treatment protocol?
authors.forename: Guillemette
authors.initials: G
authors.lastname: Quatremère
authors.forename: Daniela
authors.initials: D
authors.lastname: Rojas Castro
authors.forename: Marie-Noëlle
authors.initials: MN
authors.lastname: Liaud
authors.forename: Patricia
authors.initials: P
authors.lastname: Girardi
authors.forename: Frédéric
authors.initials: F
authors.lastname: Bouhier
authors.forename: Franck
authors.initials: F
authors.lastname: Barbier
mesh_terms: D000328:Adult; D000368:Aged; D002985:Clinical Protocols; D003142:Communication; D003695:Delivery of Health Care / Q000191:economics / Q000458:organization & administration*; D005260:Female; D005602:France; D015658:HIV Infections / Q000191:economics / Q000628:therapy*; D007722:Health Knowledge, Attitudes, Practice; D006297:Health Services Accessibility; D006801:Humans; D008297:Male; D008875:Middle Aged; D009313:National Health Programs; D011369:Professional-Patient Relations; D011795:Surveys and Questionnaires; D055815:Young Adult