title: Engagement of Veterans With Dementia in Partners in Dementia Care: An Evidence-Based Care Coordination Program.
abstract: This study describes engagement of veterans with dementia in an evidence-based care coordination intervention called Partners in Dementia Care (PDC). PDC uses a person-centered approach that encourages participation by individuals with dementia (IWDs), despite their cognitive impairment. PDC also targets primary family or friend caregivers, who often are the main user of the program. Of the total 316 IWDs, 202 passed a mental status screening and were considered to have engagement potential. The study of actual engagement was based on data from IWDs' PDC records, combined with data from structured research interviews. Approximately 80% of IWDs with engagement potential had a minimum level of actual engagement in PDC. A smaller subsample was more actively engaged, as indicated by assigned and/or accomplished action steps. Younger IWDs and those self-reporting more memory difficulties had higher levels of engagement. Results describe one example of the extent and limits of IWD engagement in psychosocial interventions.
authors.affiliation: 1 Benjamin Rose Institute on Aging, Cleveland, OH, USA.
authors.forename: Laura
authors.initials: L
authors.lastname: Darlak
authors.affiliation: 1 Benjamin Rose Institute on Aging, Cleveland, OH, USA.
authors.forename: David M
authors.initials: DM
authors.lastname: Bass
authors.affiliation: 2 Cleveland State University, OH, USA.
authors.forename: Katherine S
authors.initials: KS
authors.lastname: Judge
authors.affiliation: 3 Baylor College of Medicine, Houston, TX, USA.
authors.forename: Nancy
authors.initials: N
authors.lastname: Wilson
authors.affiliation: 1 Benjamin Rose Institute on Aging, Cleveland, OH, USA.
authors.forename: Wendy
authors.initials: W
authors.lastname: Looman
authors.affiliation: 1 Benjamin Rose Institute on Aging, Cleveland, OH, USA.
authors.forename: Catherine
authors.initials: C
authors.lastname: McCarthy
authors.affiliation: 4 The University of Texas School of Public Health, Houston, USA.
authors.forename: Robert
authors.initials: R
authors.lastname: Morgan
authors.affiliation: 5 Gerontological Society of America, Washington, DC, USA.
authors.forename: Katie
authors.initials: K
authors.lastname: Maslow
authors.affiliation: 3 Baylor College of Medicine, Houston, TX, USA.
authors.forename: Mark E
authors.initials: ME
authors.lastname: Kunik
mesh_terms: D000368:Aged; D000369:Aged, 80 and over; D017028:Caregivers / Q000193:education*; D003704:Dementia / Q000628:therapy*; D019317:Evidence-Based Medicine; D005260:Female; D006801:Humans; D008297:Male; D012959:Socioeconomic Factors; D014481:United States; D014728:Veterans / Q000193:education* / Q000523:psychology
keywords: caregiving; decision making; dementia; person-centered care