title: Adolescents with Cancer in Italy: Improving Access to National Cooperative Pediatric Oncology Group (AIEOP) Centers.
abstract: This analysis compared the numbers of patients treated at Italian pediatric oncology group (Associazione Italiana Ematologia Oncologia Pediatrica [AIEOP]) centers with the numbers of cases predicted according to the population-based registry. It considered 32,431 patients registered in the AIEOP database (1989-2012). The ratio of observed (O) to expected (E) cases was 0.79 for children (0-14 years old) and 0.15 for adolescents (15-19 years old). The proportion of adolescents increased significantly over the years, however, from 0.05 in the earliest period to 0.10, 0.18, and then 0.28 in the latest period of observation, suggesting a greater efficacy of local/national programs dedicated to adolescents.
authors.affiliation: Pediatric Oncology Unit, Fondazione IRCCS Istituto Nazionale Tumori, Milano, Italy.
authors.forename: Andrea
authors.initials: A
authors.lastname: Ferrari
authors.affiliation: Pediatric Oncology and Hematology Unit "Lalla Seràgnoli,", University of Bologna, Bologna, Italy.
authors.forename: Roberto
authors.initials: R
authors.lastname: Rondelli
authors.affiliation: Pediatric Oncology and Hematology Unit "Lalla Seràgnoli,", University of Bologna, Bologna, Italy.
authors.forename: Andrea
authors.initials: A
authors.lastname: Pession
authors.affiliation: Pediatric Radiotherapy Unit, Centro di Riferimento Oncologico, Aviano, Italy.
authors.forename: Maurizio
authors.initials: M
authors.lastname: Mascarin
authors.affiliation: Clinical and Descriptive Epidemiology and Registries Unit, ISPO-Cancer Research and Prevention Institute, Florence, Italy.
authors.forename: Carlotta
authors.initials: C
authors.lastname: Buzzoni
authors.affiliation: Childhood Cancer Registry of Piedmont, Department of Medical Sciences, University of Turin, Italy.
authors.forename: Maria Luisa
authors.initials: ML
authors.lastname: Mosso
authors.affiliation: Childhood Cancer Registry of Piedmont, Department of Medical Sciences, University of Turin, Italy.
authors.forename: Milena
authors.initials: M
authors.lastname: Maule
authors.affiliation: Pediatric Onco-Hematology, Stem Cell Transplantation and Cellular Therapy Division, Regina Margherita Children's Hospital, Torino, Italy.
authors.forename: Elena
authors.initials: E
authors.lastname: Barisone
authors.affiliation: Pediatric Onco-Hematology, Stem Cell Transplantation and Cellular Therapy Division, Regina Margherita Children's Hospital, Torino, Italy.
authors.forename: Marina
authors.initials: M
authors.lastname: Bertolotti
authors.affiliation: Department of Biomolecular Sciences and Biotechnology, Psychology Section, Faculty of Medicine, University of Milan, Milano, Italy.
authors.forename: Carlo Alfredo
authors.initials: CA
authors.lastname: Clerici
authors.affiliation: Pediatric Hematology-Oncology Department and "Tettamanti" Research Centre, Milano-Bicocca University, "Fondazione MBBM," San Gerardo Hospital, Monza, Italy.
authors.forename: Momcilo
authors.initials: M
authors.lastname: Jankovic
authors.affiliation: Pediatric Onco-Hematology, Stem Cell Transplantation and Cellular Therapy Division, Regina Margherita Children's Hospital, Torino, Italy.
authors.forename: Franca
authors.initials: F
authors.lastname: Fagioli
authors.affiliation: Pediatric Hematology-Oncology Department and "Tettamanti" Research Centre, Milano-Bicocca University, "Fondazione MBBM," San Gerardo Hospital, Monza, Italy.
authors.forename: Andrea
authors.initials: A
authors.lastname: Biondi
mesh_terms: D000293:Adolescent; D000295:Adolescent Medicine / Q000706:statistics & numerical data*; D002648:Child; D002675:Child, Preschool; D005260:Female; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D007558:Italy / Q000453:epidemiology; D008297:Male; D008495:Medical Oncology / Q000706:statistics & numerical data; D009369:Neoplasms / Q000453:epidemiology*; D010372:Pediatrics / Q000706:statistics & numerical data; D012042:Registries
keywords: access to care; adolescents; cancer; epidemiology; pediatric oncology