title: Evaluating a pilot paediatric hospice-at-home service: a literature review.
abstract: Background: This literature review aims to offer practitioners an overview of the key components involved in designing the evaluation of a paediatric hospice-at-home pilot that will assess the effectiveness, efficiency and sustainability of the programme. The literature was reviewed in two stages: the first examined existing literature in the area of paediatric palliative care. The second looked at the wider field of adult palliative care to gain further insights into evaluation tool design. The findings are presented as a conceptual model to highlight each component of the pilot development stage as identified for evaluation purposes, emphasising their role and impact on the resultant delivery of integrated care. The clarity and transparency of this model offers a comprehensive overview of the evaluation process to all involved in the pilot.
authors.affiliation: Research Assistant, School of Nursing, Midwifery and Health Systems, University College Dublin, Ireland.
authors.forename: Rowan
authors.initials: R
authors.lastname: Hillis
authors.affiliation: Chief Executive Officer, European Association for Palliative Care, Dublin.
authors.forename: Julie
authors.initials: J
authors.lastname: Ling
authors.affiliation: Head of Research, LauraLynn, Ireland's Children's Hospice, Dublin.
authors.forename: Claire
authors.initials: C
authors.lastname: Quinn
authors.affiliation: Lecturer and Programme Coordinator Critical Care Nursing (Children), School of Nursing, Midwifery and Health Systems, University College Dublin.
authors.forename: Maria
authors.initials: M
authors.lastname: Brenner
mesh_terms: D006738:Hospices; D006776:Hospitals, Pediatric / Q000458:organization & administration*; D010865:Pilot Projects; D015397:Program Evaluation
keywords: Children's palliative care; Evaluation; Home care; Hospice; Respite