title: Perceived Motor Competence Differs From Actual Performance in 8-Year-Old Neonatal ECMO Survivors.
abstract: OBJECTIVE
  To assess perceived motor competence, social competence, self-worth, health-related quality of life, and actual motor performancein 8-year-old survivors of neonatal extracorporeal membrane oxygenation (ECMO).
  
  
  METHODS
  In a prospective nationwide study, 135 children completed the extended version of the "athletic competence" domain of the Self Perception Profile for Children (SPPC) called the m-CBSK (Motor supplement of the Competentie BelevingsSchaal voor Kinderen) to assess perceived motor competence, the SPPC, and the Pediatric Quality of Life Inventory (PedsQL), andwere tested with the Movement Assessment Battery for Children. SD scores (SDS) were used to compare with the norm.
  
  
  RESULTS
  The mean (SD) SDS for perceived motor competence, social competence, and self-worth were all significantly higher than the norm: 0.18 (0.94), P = .03; 0.35 (1.03), P < .001; and 0.32 (1.08), P < .001, respectively. The total PedsQL score was significantly below the norm: mean (SD) SDS: -1.26 (1.53), P < .001. Twenty-two percent of children had actual motor problems. The SDS m-CBSK and actual motor performance did not correlate (r = 0.12; P = .17). The SDS m-CBSK significantly correlated with the athletic competence domain of the SPPC (r = 0.63; P < .001).
  
  
  CONCLUSIONS
  Eight-year-old ECMO survivors feel satisfied with their motor- and social competence, despite impaired PedsQL scores and motor problems. Because motor problems in ECMO survivorsdeteriorate throughout childhood, clinicians should be aware that these patients may tend to "overrate" their actual motor performance. Education andstrict monitoring of actual motor performanceare important to enable timelyintervention.
authors.affiliation: Department of Orthopedics, Section of Physical Therapy, and Intensive Care and Department of Pediatric Surgery, Erasmus Medical Center-Sophia Children's Hospital, Rotterdam, Netherlands;
authors.forename: Leontien C C
authors.initials: LC
authors.lastname: Toussaint
authors.affiliation: Department of Orthopedics, Section of Physical Therapy, and Intensive Care and Department of Pediatric Surgery, Erasmus Medical Center-Sophia Children's Hospital, Rotterdam, Netherlands;
authors.forename: Monique H M
authors.initials: MH
authors.lastname: van der Cammen-van Zijp
authors.affiliation: Department of Rehabilitation, Pediatric Physical Therapy and Donders Institute, Radboud University Medical Center, Nijmegen, Netherlands; and.
authors.forename: Anjo J
authors.initials: AJ
authors.lastname: Janssen
authors.affiliation: Intensive Care and Department of Pediatric Surgery, Erasmus Medical Center-Sophia Children's Hospital, Rotterdam, Netherlands;
authors.forename: Dick
authors.initials: D
authors.lastname: Tibboel
authors.affiliation: Department of Neonatology, Radboud University Medical Center-Amalia Children's Hospital, Nijmegen, Netherlands.
authors.forename: Arno F
authors.initials: AF
authors.lastname: van Heijst
authors.affiliation: Intensive Care and Department of Pediatric Surgery, Erasmus Medical Center-Sophia Children's Hospital, Rotterdam, Netherlands; h.ijsselstijn@erasmusmc.nl.
authors.forename: Hanneke
authors.initials: H
authors.lastname: IJsselstijn
mesh_terms: D002648:Child; D002657:Child Development; D015199:Extracorporeal Membrane Oxygenation; D005260:Female; D005500:Follow-Up Studies; D006304:Health Status; D006801:Humans; D008297:Male; D009048:Motor Skills / Q000502:physiology*; D010809:Physical Fitness / Q000502:physiology*; D011446:Prospective Studies; D011788:Quality of Life; D012649:Self Concept; D017741:Survivors