title: Registries in Clinical Epidemiology: the European Surveillance System on Contact Allergies (ESSCA).
abstract: BACKGROUND
  Disease registries rely on consistent electronic data capturing (EDC) pertinent to their objectives; either by using existing electronic data as far as available, or by implementing specific software solutions.
  
  
  OBJECTIVE
  To describe the current practice of an international disease registry (European Surveillance System on Contact Allergies, ESSCA, www.essca-dc.org) against different state of the art approaches for EDC.
  
  
  METHODS
  Since 2002, ESSCA is collecting data, currently from 53 departments in 12 countries. Departmental EDC software ranges from spreadsheets to comprehensive "patch test software" based on a relational database. In the Erlangen data centre, such diverse data is imported, converted to a common format, quality checked and pooled for scientific analyses.
  
  
  RESULTS
  Feed-back to participating departments for quality control is provided by standardised reports. Varying author teams publish scientific analyses addressing the objective of contact allergy surveillance.
  
  
  CONCLUSIONS
  Although ESSCA represents a historically grown, heterogeneous network and not one unified approach to EDC, some of its features have contributed to its viability in the last 12 years and may be useful to consider for similar investigator-initiated networks.
authors.affiliation: Wolfgang Uter, Department of Medical Informatics, Biometry and Epidemiology, Friedrich-Alexander University Erlangen-Nürnberg, Waldstr. 4 - 6, 91054 Erlangen, Germany, E-mail: wolfgang.uter@fau.de.
authors.forename: W
authors.initials: W
authors.lastname: Uter
authors.forename: A
authors.initials: A
authors.lastname: Schnuch
authors.forename: M
authors.initials: M
authors.lastname: Wilkinson
authors.forename: A
authors.initials: A
authors.lastname: Dugonik
authors.forename: B
authors.initials: B
authors.lastname: Dugonik
authors.forename: T
authors.initials: T
authors.lastname: Ganslandt
mesh_terms: D017449:Dermatitis, Allergic Contact / Q000453:epidemiology*; D001330:Electronic Data Processing; D005060:Europe / Q000453:epidemiology; D006801:Humans; D011159:Population Surveillance; D012042:Registries / Q000706:statistics & numerical data*
keywords: Registry; allergic contact dermatitis; dermatitis; epidemiologic surveillance