title: Adjusting to a Diagnosis of Cancer: Processes for Building Patient Capacity for Decision-Making.
abstract: This short report contributes to the expanding body of qualitative research literature about the cognitive processes of newly diagnosed cancer patients as they adjust to a diagnosis of cancer. The study is based on secondary qualitative analysis of audio records collected as part of a larger NIH study (RO1D: An Interdisciplinary Perspective: A Social Science Examination of Oncofertility RL1 HD058296). Core categories illustrate the processes of "naming it," "dealing with dealing with it," and finding the "new norm" and were based on nine patient experiences. We observe that our substantive conceptual categories have equivalents in bereavement and grief literature where researchers have posited the theory that processing the diagnosis of a terminal illness is the equivalent to adjusting to a bereavement. These findings emphasize the importance of understanding real-time patient thoughts and feelings as soon after diagnosis as was possible with full patient consent.
authors.affiliation: Buehler Center on Aging, Health and Society, Northwestern University, 750 N Lake Shore Drive, Suite 601, Chicago, IL, 60611, USA.
authors.forename: Linda
authors.initials: L
authors.lastname: Emanuel
authors.affiliation: Buehler Center on Aging, Health and Society, Northwestern University, 750 N Lake Shore Drive, Suite 601, Chicago, IL, 60611, USA. rebecca.johnson@northwestern.edu.
authors.forename: Rebecca
authors.initials: R
authors.lastname: Johnson
authors.affiliation: Buehler Center on Aging, Health and Society, Northwestern University, 750 N Lake Shore Drive, Suite 601, Chicago, IL, 60611, USA.
authors.forename: Caroline
authors.initials: C
authors.lastname: Taromino
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D001601:Bereavement; D057191:Capacity Building; D003657:Decision Making; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000175:diagnosis / Q000523:psychology*; D036301:Qualitative Research
keywords: Bereavement; Cancer diagnosis; Decision making; Psychological adjustment; Qualitative research