title: The psychosocial outcomes of individuals with hematological cancers: Are we doing enough high quality research, and what is it telling us?
abstract: This systematic review assessed the quantity and quality of research examining the psychosocial outcomes among hematological cancer patients. Studies were categorised as either measurement, descriptive or intervention. Intervention studies were further assessed according to Effective Practice and Organisation of Care (EPOC) methodological criteria. A total of 261 eligible papers were identified. The number of publications increased by 8.8% each year (95% CI=7.5-10.2%; p<0.0001). The majority of studies were descriptive (n=232; 89%), with few measurement (n=8; 3%) and intervention (n=21; 8%) studies identified. Ten intervention studies met EPOC design criteria, however only two interventions, one targeted at individuals with Hodgkin's or Non-Hodgkin's lymphoma and one targeted at individuals with leukaemia, lymphoma or myelomatosis were successful in improving patients' psychosocial outcomes. Despite an increasing volume of research examining psychosocial outcomes of hematological cancer patients, there is a need for robust measurement and methodologically rigorous intervention research in this area.
authors.affiliation: Priority Research Centre for Health Behaviour, University of Newcastle & Hunter Medical Research Institute, HMRI Building, University of Newcastle, Callaghan, NSW 2308, Australia,. Electronic address: Jamie.Bryant@newcastle.edu.au.
authors.forename: Jamie
authors.initials: J
authors.lastname: Bryant
authors.affiliation: Priority Research Centre for Health Behaviour, University of Newcastle & Hunter Medical Research Institute, HMRI Building, University of Newcastle, Callaghan, NSW 2308, Australia.
authors.forename: Elise
authors.initials: E
authors.lastname: Mansfield
authors.affiliation: Priority Research Centre for Health Behaviour, University of Newcastle & Hunter Medical Research Institute, HMRI Building, University of Newcastle, Callaghan, NSW 2308, Australia.
authors.forename: Alix
authors.initials: A
authors.lastname: Hall
authors.affiliation: Priority Research Centre for Health Behaviour, University of Newcastle & Hunter Medical Research Institute, HMRI Building, University of Newcastle, Callaghan, NSW 2308, Australia.
authors.forename: Amy
authors.initials: A
authors.lastname: Waller
authors.affiliation: Priority Research Centre for Health Behaviour, University of Newcastle & Hunter Medical Research Institute, HMRI Building, University of Newcastle, Callaghan, NSW 2308, Australia.
authors.forename: Allison
authors.initials: A
authors.lastname: Boyes
authors.affiliation: Priority Research Centre for Health Behaviour, University of Newcastle & Hunter Medical Research Institute, HMRI Building, University of Newcastle, Callaghan, NSW 2308, Australia.
authors.forename: Amanda
authors.initials: A
authors.lastname: Jayakody
authors.affiliation: Priority Research Centre for Health Behaviour, University of Newcastle & Hunter Medical Research Institute, HMRI Building, University of Newcastle, Callaghan, NSW 2308, Australia.
authors.forename: Natalie
authors.initials: N
authors.lastname: Dodd
authors.affiliation: Priority Research Centre for Health Behaviour, University of Newcastle & Hunter Medical Research Institute, HMRI Building, University of Newcastle, Callaghan, NSW 2308, Australia.
authors.forename: Rob
authors.initials: R
authors.lastname: Sanson-Fisher
mesh_terms: D016208:Databases, Factual; D019337:Hematologic Neoplasms / Q000523:psychology*; D006801:Humans
keywords: Adjustment; Hematological cancer; Psychosocial; Systematic review