title: Remembering parents in parent-mediated early intervention: An approach to examining impact on parents and families.
abstract: The goal of this review is to advance the discussion regarding meaningful outcomes of early intervention for children with autism spectrum disorder. The rapid growth in the development and evaluation of early intervention approaches for autism spectrum disorder includes both therapist-driven and parent-mediated interventions. The majority of research on both approaches to early intervention focuses on promoting child outcomes (e.g. language acquisition) with less emphasis on family and parent outcomes (e.g. quality of life, self-efficacy). Given that parent buy-in is essential for parent-mediated interventions to be effective over time, increased attention to family outcomes that are of value to families and have the potential to be impacted positively by these interventions is needed to develop, disseminate, and sustain high-quality interventions in community settings. In this review, we draw from work on parent and family outcomes targeted in related fields (e.g. Part C early intervention, pediatric chronic illness, behavior management parent training) that we propose are particularly relevant for evaluating the impact of parent-mediated interventions in early intervention for autism spectrum disorder.
authors.affiliation: Rush University Autism Assessment, Research, and Treatment Center, USA allison_wainer@rush.edu.
authors.forename: Allison L
authors.initials: AL
authors.lastname: Wainer
authors.affiliation: University of Colorado School of Medicine, USA.
authors.forename: Susan
authors.initials: S
authors.lastname: Hepburn
authors.affiliation: Children's Hospital Colorado, USA.
authors.forename: Elizabeth
authors.initials: E
authors.lastname: McMahon Griffith
mesh_terms: D000067877:Autism Spectrum Disorder / Q000523:psychology / Q000628:therapy*; D018479:Early Intervention, Educational; D005190:Family / Q000523:psychology*; D006801:Humans; D010287:Parent-Child Relations; D010290:Parents / Q000523:psychology
keywords: autism spectrum disorder; family functioning; outcome measures; parent-mediated intervention