title: Continuous patient engagement in cardiovascular disease clinical comparative effectiveness research.
abstract: Researchers have produced evidence that identifies interventions that reduce cardiovascular disease (CVD) risk; however, despite a significant investment in research CVD remains the leading cause of death. Engaging patients in the research process has the potential to ensure that evidence-based treatments are adopted in real-world practice to improve patient outcomes. The Patient-Centered Outcomes Research Institute has created an Engagement Rubric to guide meaningful engagement in the research process. A 10-step systematic framework to enhance patient engagement throughout the comparative effectiveness research process also has been proposed. This special report identifies the relationship between these two approaches to patient engagement and describes examples of how patients could be engaged in a hypothetical CVD study.
authors.affiliation: a Pharmaceutical Health Services Research Department , University of Maryland School of Pharmacy , Baltimore , MD , USA.
authors.forename: Joseph
authors.initials: J
authors.lastname: Vandigo
authors.affiliation: a Pharmaceutical Health Services Research Department , University of Maryland School of Pharmacy , Baltimore , MD , USA.
authors.forename: Ebenezer
authors.initials: E
authors.lastname: Oloyede
authors.affiliation: b Pharmerit International , Baltimore , MD , USA.
authors.forename: Abdalla
authors.initials: A
authors.lastname: Aly
authors.affiliation: c Clinical and Community Research , Bon Secours Baltimore Health System , Baltimore , MD , USA.
authors.forename: Aurelia L
authors.initials: AL
authors.lastname: Laird
authors.affiliation: d Department of Pharmacy Practice and Science , University of Maryland School of Pharmacy , Baltimore , MD , USA.
authors.forename: Catherine E
authors.initials: CE
authors.lastname: Cooke
authors.affiliation: a Pharmaceutical Health Services Research Department , University of Maryland School of Pharmacy , Baltimore , MD , USA.
authors.forename: C Daniel
authors.initials: CD
authors.lastname: Mullins
mesh_terms: D002318:Cardiovascular Diseases / Q000401:mortality / Q000517:prevention & control*; D057186:Comparative Effectiveness Research / Q000458:organization & administration*; D019317:Evidence-Based Medicine; D006801:Humans; D063868:Patient Outcome Assessment; D010358:Patient Participation
keywords: cardiovascular disease; clinical comparative effectiveness research; engagement rubric; patient engagement; patient-centered outcomes research