title: Barriers and Facilitators to Patient-Provider Communication When Discussing Breast Cancer Risk to Aid in the Development of Decision Support Tools.
abstract: The purpose of this study was to identify barriers and facilitators to patient-provider communication when discussing breast cancer risk to aid in the development of decision support tools. Four patient focus groups (N=34) and eight provider focus groups (N=10) took place in Northern Manhattan. A qualitative analysis was conducted using Atlas.ti software. The coding yielded 62.3%-94.5% agreement. The results showed that 1) barriers are time constraints, lack of knowledge, low health literacy, and language barriers, and 2) facilitators are information needs, desire for personalization, and autonomy when communicating risk in patient-provider encounters. These results will inform the development of a patient-centered decision aid (RealRisks) and a provider-facing breast cancer risk navigation (BNAV) tool, which are designed to facilitate patient-provider risk communication and shared decision-making about breast cancer prevention strategies, such as chemoprevention.
authors.affiliation: Columbia University, New York, NY.
authors.forename: Haeseung
authors.initials: H
authors.lastname: Yi
authors.affiliation: Columbia University, New York, NY.
authors.forename: Tong
authors.initials: T
authors.lastname: Xiao
authors.affiliation: MD Anderson Cancer Center, Houston, TX.
authors.forename: Parijatham S
authors.initials: PS
authors.lastname: Thomas
authors.affiliation: Columbia University, New York, NY.
authors.forename: Alejandra N
authors.initials: AN
authors.lastname: Aguirre
authors.affiliation: Columbia University, New York, NY.
authors.forename: Cindy
authors.initials: C
authors.lastname: Smalletz
authors.affiliation: Sassafras Tech Collective, Ann Arbor, MI.
authors.forename: Jill
authors.initials: J
authors.lastname: Dimond
authors.affiliation: Columbia University, New York, NY.
authors.forename: Joseph
authors.initials: J
authors.lastname: Finkelstein
authors.affiliation: Columbia University, New York, NY.
authors.forename: Katherine
authors.initials: K
authors.lastname: Infante
authors.affiliation: Columbia University, New York, NY.
authors.forename: Meghna
authors.initials: M
authors.lastname: Trivedi
authors.affiliation: Columbia University, New York, NY.
authors.forename: Raven
authors.initials: R
authors.lastname: David
authors.affiliation: Columbia University, New York, NY.
authors.forename: Jennifer
authors.initials: J
authors.lastname: Vargas
authors.affiliation: Columbia University, New York, NY.
authors.forename: Katherine D
authors.initials: KD
authors.lastname: Crew
authors.affiliation: Columbia University, New York, NY.
authors.forename: Rita
authors.initials: R
authors.lastname: Kukafka
mesh_terms: D001943:Breast Neoplasms / Q000453:epidemiology*; D003144:Communication Barriers; D003657:Decision Making; D003661:Decision Support Techniques; D005260:Female; D017144:Focus Groups; D006801:Humans