title: The anticipated and the lived experience of home and in-centre haemodialysis: Is there a disconnect?
abstract: This qualitative study aimed to explore home haemodialysis and in-centre haemodialysis patients' experience, to illuminate barriers and facilitators in the uptake and maintenance of home haemodialysis. Thirty-two semi-structured interviews with patients receiving home haemodialysis or in-centre haemodialysis were analysed using framework analysis. Four themes emerged: 'perceptions of self'; 'impact of haemodialysis on family'; 'perceived advantages and disadvantages of home haemodialysis and in-centre haemodialysis' and 'practical issues and negotiating haemodialysis'. The lived experience of home haemodialysis was in contrast to the lived experience of in-centre haemodialysis and to the anticipated experience of home haemodialysis, highlighting patient factors that contributed to under-usage of home haemodialysis.
authors.affiliation: 1 University of Manchester, UK.
authors.forename: Rabiya
authors.initials: R
authors.lastname: Majeed-Ariss
authors.affiliation: 2 Central Manchester Foundation Trust, UK.
authors.forename: A
authors.initials: A
authors.lastname: Jayanti
authors.affiliation: 3 University of Groningen, The Netherlands.
authors.forename: T
authors.initials: T
authors.lastname: Schulz
authors.affiliation: 1 University of Manchester, UK.
authors.forename: A
authors.initials: A
authors.lastname: Wearden
authors.affiliation: 2 Central Manchester Foundation Trust, UK.
authors.forename: S
authors.initials: S
authors.lastname: Mitra
mesh_terms: D000328:Adult; D000368:Aged; D001294:Attitude to Health; D005195:Family Relations; D005260:Female; D006437:Hemodialysis, Home / Q000523:psychology; D006801:Humans; D008297:Male; D008875:Middle Aged; D036301:Qualitative Research; D006435:Renal Dialysis / Q000379:methods* / Q000523:psychology*; D012649:Self Concept
keywords: chronic illness; health education; inequalities; kidney; qualitative methods; self-efficacy