title: Educating children and families about growth hormone deficiency and its management: part 2.
abstract: Growth hormone deficiency (GHD) is a long-term condition, therefore creating ongoing partnerships with families is a fundamental part of the role of a paediatric endocrine nurse specialist (PENS). Teaching children, young people and their families about GHD and exploring what it means to them and how they can manage their ongoing treatment is central to building positive relationships. Educating children about the management of their growth hormone treatment (GHT) is an ongoing process and professionals must respond to the changing needs for that information children may have as they grow and develop. Long-term relationships with families are strengthened by recognising and respecting the developing expertise of families as they gain confidence and competence to manage GHT. This article is the second of two parts. Part one was published in the February issue of Nursing Children and Young People and covered an overview of growth hormone, causes and clinical presentation of GHD, development and availability of GHT and the role of the PENS in building partnerships with parents. The focus of this article is the education role of the PENS and the importance of providing information that is appropriate to the child or young person's developmental age.
authors.affiliation: King's College London.
authors.forename: Jacqueline
authors.initials: J
authors.lastname: Collin
authors.affiliation: Leeds Teaching Hospitals NHS Trust.
authors.forename: Amanda
authors.initials: A
authors.lastname: Whitehead
authors.affiliation: Leeds Teaching Hospitals NHS Trust.
authors.forename: Jenny
authors.initials: J
authors.lastname: Walker
mesh_terms: D002648:Child; D004704:Endocrinology; D006130:Growth Disorders / Q000188:drug therapy; D020249:Hormone Replacement Therapy; D019382:Human Growth Hormone / Q000172:deficiency* / Q000627:therapeutic use; D006801:Humans; D055118:Medication Adherence; D000072184:Nurse Specialists; D024802:Nurse's Role; D009723:Nurse-Patient Relations; D000072222:Nurses, Pediatric; D010290:Parents / Q000193:education*; D010353:Patient Education as Topic; D011368:Professional-Family Relations; D011994:Recombinant Proteins / Q000627:therapeutic use
chemical_list: D011994:Recombinant Proteins; D019382:Human Growth Hormone
keywords: child development; child health; endocrine nurse specialist; growth hormone deficiency; growth hormone therapy; paediatrics; parents