title: Design of a Community-Engaged Health Informatics Platform with an Architecture of Participation.
abstract: Community-engaged health informatics (CEHI) applies information technology and participatory approaches to improve the health of communities. Our objective was to translate the concept of CEHI into a usable and replicable informatics platform that will facilitate community-engaged practice and research. The setting is a diverse urban neighborhood in New York City. The methods included community asset mapping, stakeholder interviews, logic modeling, analysis of affordances in open-source tools, elicitation of use cases and requirements, and a survey of early adopters. Based on synthesis of data collected, GetHealthyHeigths.org (GHH) was developed using open-source LAMP stack and Drupal content management software. Drupal's organic groups module was used for novel participatory functionality, along with detailed user roles and permissions. Future work includes evaluation of GHH and its impact on agency and service networks. We plan to expand GHH with additional functionality to further support CEHI by combining informatics solutions with community engagement to improve health.
authors.affiliation: Columbia University Department of Biomedical Informatics, New York, NY.
authors.forename: Mari
authors.initials: M
authors.lastname: Millery
authors.affiliation: Columbia University Department of Biomedical Informatics, New York, NY.
authors.forename: Wilson
authors.initials: W
authors.lastname: Ramos
authors.affiliation: Columbia University Department of Biomedical Informatics, New York, NY.
authors.forename: Chueh
authors.initials: C
authors.lastname: Lien
authors.affiliation: Irving Institute for Clinical and Translational Research, Columbia University Medical Center, New York, NY.
authors.forename: Alejandra N
authors.initials: AN
authors.lastname: Aguirre
authors.affiliation: Columbia University Department of Biomedical Informatics, New York, NY.
authors.forename: Rita
authors.initials: R
authors.lastname: Kukafka
mesh_terms: D003199:Computer Systems; D006801:Humans; D008490:Medical Informatics; D009519:New York City; D010358:Patient Participation; D011634:Public Health; D012984:Software; D014505:Urban Population