title: Improving accuracy of prognosis in patients with myelodysplastic syndromes using self-reported quality of life data. Opportunities for a new research agenda in developing prognostic models.
authors.affiliation: a Hematology Unit , Sant'Eugenio Hospital , Rome , Italy.
authors.forename: Pasquale
authors.initials: P
authors.lastname: Niscola
authors.affiliation: b Data Center and Health Outcomes Research Unit , Italian Group for Adult Hematologic Diseases (GIMEMA) , Rome , Italy.
authors.forename: Franco
authors.initials: F
authors.lastname: Mandelli
authors.affiliation: b Data Center and Health Outcomes Research Unit , Italian Group for Adult Hematologic Diseases (GIMEMA) , Rome , Italy.
authors.forename: Fabio
authors.initials: F
authors.lastname: Efficace
mesh_terms: D006801:Humans; D009190:Myelodysplastic Syndromes; D011379:Prognosis; D011788:Quality of Life; D057566:Self Report
keywords: Myelodysplasia; patient-reported outcomes; prognosis; quality of life; survival