title: Perspectives of family members of people with an intellectual disability to a major reconfiguration of living arrangements for people with intellectual disability in Ireland.
abstract: OBJECTIVE
  To document the views of family members of people with an intellectual disability regarding implementation of a personalized model of social support in Ireland.
  
  
  METHODS
  Forty family members participated in six focus groups. Data were thematically analysed.
  
  
  RESULTS
  Family members' preference for particular types of living arrangements were highly reflective of their lived experience. Facilitators to community living included timely information on proposed moves, adequate staffing, suitable properties and locations and consideration of the characteristics of individuals who share a property. Barriers included high support needs, advanced age, a fear of relinquishing current supports, a fear of the sustainability of newer models of residential support and concerns about community opposition.
  
  
  CONCLUSIONS
  The family perspective to reform is characterized by fear and suspicion of the motivation behind these reforms, with cost efficiencies being perceived as a main driver. Greater information is required to empower families to make informed decisions.
authors.affiliation: Trinity College Dublin, Ireland; Maynooth University, Ireland.
authors.forename: Siobhain
authors.initials: S
authors.lastname: O'Doherty
authors.affiliation: Trinity College Dublin, Ireland; University College Dublin, Ireland; Kent University, UK christine.linehan@ucd.ie.
authors.forename: Christine
authors.initials: C
authors.lastname: Linehan
authors.affiliation: Trinity College Dublin, Ireland.
authors.forename: Mimi
authors.initials: M
authors.lastname: Tatlow-Golden
authors.affiliation: Health Research Board, Ireland.
authors.forename: Sarah
authors.initials: S
authors.lastname: Craig
authors.affiliation: Cardiff University, UK.
authors.forename: Mike
authors.initials: M
authors.lastname: Kerr
authors.affiliation: KARE, Ireland.
authors.forename: Christy
authors.initials: C
authors.lastname: Lynch
authors.affiliation: Dublin City University, Ireland.
authors.forename: Anthony
authors.initials: A
authors.lastname: Staines
mesh_terms: D000328:Adult; D003688:Deinstitutionalization; D005190:Family / Q000523:psychology*; D017144:Focus Groups; D006801:Humans; D057187:Independent Living; D008607:Intellectual Disability / Q000534:rehabilitation*; D007494:Ireland; D019989:Persons with Intellectual Disabilities / Q000523:psychology*; D012111:Residence Characteristics; D012944:Social Support
keywords: Ireland; community living; deinstitutionalization; family