title: Economic aspects of rare diseases.
abstract: Economic problems related to the prevention, diagnosis and treatment of rare diseases are presented paying particular attention to the costs of financing treatment, including the issue of its refund, which is a fundamental and difficult to solve economic problem of the health care system. Rare diseases, despite the low frequency of occurrence, together cover a large group of diseases being a serious medical, social and economic problem. The adoption of Polish National Plan for Rare Diseases resulting from the recommendations of the Council of the European Union, the extension of institutional activities related to the area of public health and social initiatives seeking innovative solutions to create a model of social support for patients and their families, with very high complexity of the issues regarding rare diseases, results in the need for a coherent, comprehensive, system operations and adoption of comprehensive solutions.
authors.affiliation: Department of Nutrition Hygiene, University of Life Sciences, Poznań, ul. Wojska Polskiego 31, 60-624 Poznań, e-mail: krzysztofpiotr@interia.pl.
authors.forename: Krzysztof
authors.initials: K
authors.lastname: Borski
mesh_terms: D005062:European Union; D017048:Health Care Costs / Q000706:statistics & numerical data*; D005102:Health Expenditures / Q000706:statistics & numerical data*; D006801:Humans; D009313:National Health Programs / Q000191:economics; D011044:Poland / Q000453:epidemiology; D011634:Public Health / Q000191:economics*; D035583:Rare Diseases / Q000191:economics* / Q000453:epidemiology; D012308:Risk Management