title: Ethical issues in rare diseases.
abstract: Scientific, technical and medical advances continue to raise consequential ethical questions and dilemmas also in the field of rare diseases. Difficult and complex issues of medical ethics in rare diseases are presented and several different ethical problems, like those regarding inborn errors of metabolism, are discussed.
authors.affiliation: University of Life Sciences Poznań, ul. Wojska Polskiego 31, 60-624 Poznań, tel./fax (61) 848-73-32, e-mail: krzysztofpiotr@interia.pl.
authors.forename: Krzysztof
authors.initials: K
authors.lastname: Borski
mesh_terms: D035843:Biomedical Research / Q000941:ethics*; D004992:Ethics, Medical; D005820:Genetic Testing / Q000941:ethics; D006801:Humans; D007258:Informed Consent / Q000941:ethics; D010344:Patient Advocacy / Q000941:ethics*; D035583:Rare Diseases / Q000175:diagnosis*; D014342:Truth Disclosure / Q000941:ethics