title: [Regional Dementia Care Networks in Germany--results from the DemNet-D-Study regarding the quality of life of their users].
abstract: BACKGROUND
  Regional dementia care networks become more and more important in the care for community-dwelling persons with dementia (PwD). However, the quality of life of PwD, served by dementia care networks, has not been investigated yet. It also remains unclear if there are differences between urban and rural dementia care networks. This study therefore aims at investigating the quality of life of PwD using this care model, also regarding possible regional differences.
  
  
  METHODS
  Within the DemNet-D-Study, PwD and their primary caregivers were interviewed using typical outcome parameters (quality of life: QoL-AD, depression: GDS, challenging behaviour: CMAI, capacities of daily living: IADL, caregiver burden: BIZA-D). In addition to these parameters, regional differences were analysed using multi-level-analysis.
  
  
  RESULTS
  In total, 560 PwD (79.7 years; 57.0 % female) and their caregivers participated in the study. Both self- and proxy-rated quality of life is on a moderate level. The analysis shows a sufficient explanation of the quality of life. (self: p<0.001, R2=0.493; proxy: p<0.001, R2=0.406). Higher quality of life was found for PwD living together with their care givers and for those PwD with higher capacities of daily living. Regional (urban vs. rural) differences could not be found.
  
  
  CONCLUSIONS
  The quality of life of community-dwelling PwD using regional dementia care networks is comparable to those in other studies of outpatient dementia care. Further investigation should be carried out regarding different types of dementia care networks.
authors.affiliation: 1 Institut für Public Health und Pflegeforschung (IPP), Universität Bremen.
authors.forename: Johannes
authors.initials: J
authors.lastname: Gräske
authors.affiliation: 1 Institut für Public Health und Pflegeforschung (IPP), Universität Bremen.
authors.forename: Saskia
authors.initials: S
authors.lastname: Meyer
authors.affiliation: 1 Institut für Public Health und Pflegeforschung (IPP), Universität Bremen.
authors.forename: Annika
authors.initials: A
authors.lastname: Schmidt
authors.affiliation: 2 Kompetenzzentrum für Klinische Studien, Universität Bremen.
authors.forename: Sylvia
authors.initials: S
authors.lastname: Schmidt
authors.affiliation: 3 Deutsches Zentrum für Neurodegenerative Erkrankungen e. V. (DZNE) Witten.
authors.forename: Franziska
authors.initials: F
authors.lastname: Laporte Uribe
authors.affiliation: 4 Deutsches Zentrum für Neurodegenerative Erkrankungen e. V. (DZNE) Rostock/Greifswald.
authors.forename: Jochen René
authors.initials: JR
authors.lastname: Thyrian
authors.affiliation: 5 Institut für angewandte Sozialwissenschaften (IfaS) an der DHBW Stuttgart.
authors.forename: Susanne
authors.initials: S
authors.lastname: Schäfer-Walkmann
authors.affiliation: 1 Institut für Public Health und Pflegeforschung (IPP), Universität Bremen.
authors.forename: Karin
authors.initials: K
authors.lastname: Wolf-Ostermann
mesh_terms: D000203:Activities of Daily Living / Q000145:classification / Q000523:psychology; D000544:Alzheimer Disease / Q000451:nursing* / Q000523:psychology*; D000553:Ambulatory Care; D017028:Caregivers / Q000523:psychology*; D019058:Community Networks; D017281:Cost of Illness; D003866:Depressive Disorder / Q000451:nursing / Q000523:psychology; D004185:Disability Evaluation; D005260:Female; D006801:Humans; D057187:Independent Living; D008297:Male; D001523:Mental Disorders / Q000451:nursing / Q000523:psychology; D008875:Middle Aged; D010348:Patient Care Team / Q000458:organization & administration*; D011788:Quality of Life / Q000523:psychology*; D012424:Rural Population; D014505:Urban Population
keywords: Demenz; Lebensqualität; dementia; häusliche Versorgung; outpatient dementia care; quality of life; regional dementia care networks; regionale Demenznetzwerke