title: Assessments of outcome in haemophilia - a patient perspective.
authors.affiliation: Irish Haemophilia Society Ltd., Dublin 8, Ireland.|European Haemophilia Consortium, Trinity College Dublin, Dublin 8, Ireland.
authors.forename: B
authors.initials: B
authors.lastname: O'Mahony
authors.affiliation: Institute for Policy Advancement Ltd., Washington, DC, USA.
authors.forename: M W
authors.initials: MW
authors.lastname: Skinner
authors.affiliation: Irish Haemophilia Society Ltd., Dublin 8, Ireland.
authors.forename: D
authors.initials: D
authors.lastname: Noone
authors.affiliation: Canadian Hemophilia Society, Montreal, QC, Canada.
authors.forename: D
authors.initials: D
authors.lastname: Page
authors.affiliation: The Innovation Centre, HCD Economics Ltd., Cheshire, UK.
authors.forename: J
authors.initials: J
authors.lastname: O'Hara
mesh_terms: D005164:Factor IX; D006467:Hemophilia A; D006801:Humans; D011788:Quality of Life
chemical_list: D005164:Factor IX