title: Initial Validation of the Sleep Disturbances in Pediatric Cancer Model.
abstract: OBJECTIVE : The current study evaluates content validity of the Sleep Disturbance in Pediatric Cancer (SDPC) model using qualitative and quantitative stakeholder input.  METHODS : Parents of children (aged: 3-12 years) with acute lymphoblastic leukemia (n = 20) and medical providers (n = 6) participated in semi-structured interviews about child sleep during cancer treatment. They also rated SDPC model component importance on a 0-4 scale and selected the most relevant sleep-related intervention targets.  RESULTS : Qualitatively, parents and providers endorsed that changes in the child's psychosocial, environmental, and biological processes affect sleep. Stakeholders rated most model components (parent: 32 of 40; provider: 39 of 41) as important (>2) to child sleep. Parents were most interested in interventions targeting difficulty falling asleep and providers selected irregular sleep habits/scheduling, though groups did not differ significantly. CONCLUSIONS : Stakeholders supported SDPC content validity. The model will inform subsequent measure and intervention development focusing on biological and behavioral factors most salient to sleep disturbances in pediatric cancer.
authors.affiliation: Division of Oncology, The Children's Hospital of Philadelphia, daniell@email.chop.edu.
authors.forename: Lauren C
authors.initials: LC
authors.lastname: Daniel
authors.affiliation: Division of Oncology, The Children's Hospital of Philadelphia, Department of Pediatrics, Perelman School of Medicine of the University of Pennsylvania.
authors.forename: Lisa A
authors.initials: LA
authors.lastname: Schwartz
authors.affiliation: Department of Pediatrics, Perelman School of Medicine of the University of Pennsylvania, Division of Pulmonary Medicine, The Children's Hospital of Philadelphia, Department of Psychology, Saint Joseph's University, and.
authors.forename: Jodi A
authors.initials: JA
authors.lastname: Mindell
authors.affiliation: College of Public Health, Departments of Physical Therapy and Electrical and Computer Engineering, Temple University.
authors.forename: Carole A
authors.initials: CA
authors.lastname: Tucker
authors.affiliation: Division of Oncology, The Children's Hospital of Philadelphia, Department of Pediatrics, Perelman School of Medicine of the University of Pennsylvania.
authors.forename: Lamia P
authors.initials: LP
authors.lastname: Barakat
mesh_terms: D002648:Child; D002675:Child, Preschool; D005260:Female; D005500:Follow-Up Studies; D006801:Humans; D008297:Male; D008954:Models, Biological; D054198:Precursor Cell Lymphoblastic Leukemia-Lymphoma / Q000503:physiopathology* / Q000523:psychology* / Q000628:therapy; D012893:Sleep Wake Disorders / Q000209:etiology* / Q000503:physiopathology / Q000523:psychology / Q000628:therapy
keywords: cancer; qualitative data; sleep