title: Identifying Barriers Among Childhood Cancer Survivors Transitioning to Adult Health Care.
abstract: The aim of this study was to identify and describe barriers of young adult childhood cancer survivors transitioning to adult health care within 5 years of leaving a pediatric oncology practice. Several barriers have been identified in the literature, but other obstacles as to why this vulnerable population may be avoiding health care are unknown. This is a descriptive pilot study of a convenience sample of childhood cancer survivors, currently 20 to 25 years of age, who were diagnosed at less than 21 years of age. The Transition to Adult Care Survey assessing survivor barriers is an online survey consisting of 15 questions, with a drop-down menu for answers and 2 open-ended questions. The survey was accessible by smartphone or computer. Standard descriptive statistics were used to describe variables of interest. Our population consisted of 48 childhood cancer survivors. Their mean age was 23.21 years. Only 74% reported following through with annual preventive screening, and 57% reported that they consider themselves at risk for further medical problems as a result of their cancer treatment. Lack of knowledge of the importance of health screening may be a potential barrier to consistent follow-up care.
authors.affiliation: 1 Nemours/Alfred I. duPont Hospital for Children, Wilmington, DE, USA.
authors.forename: Joanne
authors.initials: J
authors.lastname: Quillen
authors.affiliation: 1 Nemours/Alfred I. duPont Hospital for Children, Wilmington, DE, USA.
authors.forename: Holli
authors.initials: H
authors.lastname: Bradley
authors.affiliation: 1 Nemours/Alfred I. duPont Hospital for Children, Wilmington, DE, USA.
authors.forename: Christina
authors.initials: C
authors.lastname: Calamaro
keywords: cancer; long-term survivors; pediatric; survivorship