title: Information needs of family caregivers regarding liver transplant candidates.
abstract: Objective To assess the information needs of family caregivers of candidates on the waiting list for a liver transplant. Methods It is a cross-sectional study conducted in a transplant center in São Paulo State in the period between April and October of 2012. For the assessment of information needed, an instrument submitted to face and content value was used. The caregivers put 10 subjects in order according to their importance and the amount of interest they had in learning about each, prior to the transplant their family member would be subjected to. Sociodemographic characteristics were also recorded. For data analysis, descriptive statistics were used. Results 42 families participated in the study. The information need about liver disease complications, complications after transplantation and care needed after surgery had higher averages. Conclusions Knowing the information needs of caregivers is important to plan teaching-learning strategies aimed at improving assistance to patients and families in transplant programs.
authors.affiliation: Departamento de Enfermagem Geral e Especializada, Escola de Enfermagem de Ribeirão Preto, Universidade de São Paulo, Ribeirão Preto, São Paulo, Brasil.
authors.forename: Amanda Silva
authors.initials: AS
authors.lastname: Sá
authors.affiliation: Centro de Transplantes de Órgãos Sólidos, Hospital das Clínicas da Faculdade de Medicina de Ribeirão Preto, Universidade de São Paulo, Ribeirão Preto, São Paulo, Brasil.
authors.forename: Luciana Costa
authors.initials: LC
authors.lastname: Ziviani
authors.affiliation: Centro de Transplantes de Órgãos Sólidos, Hospital das Clínicas da Faculdade de Medicina de Ribeirão Preto, Universidade de São Paulo, Ribeirão Preto, São Paulo, Brasil.
authors.forename: Orlando
authors.initials: O
authors.lastname: Castro-E-Silva
authors.affiliation: Departamento de Enfermagem Geral e Especializada, Escola de Enfermagem de Ribeirão Preto, Universidade de São Paulo, Ribeirão Preto, São Paulo, Brasil.
authors.forename: Cristina Maria
authors.initials: CM
authors.lastname: Galvão
authors.affiliation: Departamento de Enfermagem Geral e Especializada, Escola de Enfermagem de Ribeirão Preto, Universidade de São Paulo, Ribeirão Preto, São Paulo, Brasil.
authors.forename: Karina Dal Sasso
authors.initials: KD
authors.lastname: Mendes
mesh_terms: D000328:Adult; D017028:Caregivers; D054626:Consumer Health Information; D003430:Cross-Sectional Studies; D005190:Family; D005260:Female; D006301:Health Services Needs and Demand; D006801:Humans; D057226:Information Seeking Behavior; D016031:Liver Transplantation; D008297:Male; D008875:Middle Aged; D012959:Socioeconomic Factors; D011795:Surveys and Questionnaires; D014850:Waiting Lists