title: [Needs of parents in bereavement care after perinatal loss of their preterm infant in the NICU].
abstract: BACKGROUND
  In Germany, 9% of babies are born preterm, 32 % of them die. A neonatal death is a challenge for both parents and neonatal health care professionals alike. In 1994 the Department of pediatric nursing of the Klinik für Neonatologie/Charité launched an initiative to offer bereavement care for parents who have experienced a perinatal death.
  
  
  OBJECTIVE
  The aim of this study was to determine the needs of parents after the perinatal loss of their child from the perspective of health care professionals (HCP).
  
  
  METHODS
  Six interviews were conducted with the HCP in Neonatology, Charité – University of Medicine in Berlin and analyzed using qualitative content analysis according to Mayring.
  
  
  RESULTS
  The results show the differing needs of the parents and are focused on five main points: “Avoid and protection of overtaxing”, “express emotions”, “safety and family support”, “bonding with the child” and “give understanding and meaning”.
  
  
  CONCLUSIONS
  The parents needs connected with the Caring Theory of Swanson show that they mostly correspond with the dimension of “Being with”. It underlines the importance of the emotional and educational support of parents in bereavement care during the perimortal period. A major requirement here is to “get to know” the parents and their needs and to accompany them individually. Offering compassionate care and interaction between nurses and bereaved parents complys with the “doing for” and “enabling” from Swanson's model.
authors.affiliation: 1 Institut für Gesundheits- und Pflegewissenschaft, Human- und Gesundheitswissenschaften, Charité - Universitätsmedizin Berlin CC1.|2 Schule für Gesundheits- und Krankenpflege, HELIOS Klinikum Gifhorn.
authors.forename: Ingrid
authors.initials: I
authors.lastname: Rehfeldt
authors.affiliation: 3 Zentrum für Palliativmedizin, Uniklinik Köln.
authors.forename: Axel
authors.initials: A
authors.lastname: Doll
authors.affiliation: 1 Institut für Gesundheits- und Pflegewissenschaft, Human- und Gesundheitswissenschaften, Charité - Universitätsmedizin Berlin CC1.
authors.forename: Ina
authors.initials: I
authors.lastname: Thierfelder
authors.affiliation: 1 Institut für Gesundheits- und Pflegewissenschaft, Human- und Gesundheitswissenschaften, Charité - Universitätsmedizin Berlin CC1.
authors.forename: Dorothea
authors.initials: D
authors.lastname: Tegethoff
mesh_terms: D001291:Attitude of Health Personnel; D001604:Berlin; D006117:Grief; D006301:Health Services Needs and Demand; D017051:Hospice Care / Q000458:organization & administration / Q000523:psychology*; D006785:Hospitals, University; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D007234:Infant, Premature; D007363:Intensive Care Units, Neonatal; D010290:Parents / Q000523:psychology*; D066087:Perinatal Death; D011368:Professional-Family Relations; D036301:Qualitative Research
keywords: Elternberatung; NICU; Neonatologie; Nursing Counseling; Trauerbegleitung; Unterstützungsbedarf; bereaved parents; bereavement care; needs; perinatal loss; perinataler Kindstod; verwaiste Eltern