title: CAREST--Multilingual Regional Integration for Health Promotion and Research on Sickle Cell Disease and Thalassemia.
abstract: Sickle cell disease (SCD) is a significant problem in the Caribbean, where many individuals have African and Asian forebears. However, reliable prevalence data and specific health care programs for SCD are often missing in this region. Closer collaboration between Caribbean territories initiated in 2006 to set up strategies to promote better equity in the health care system for SCD patients led to the formation of CAREST: the Caribbean Network of Researchers on Sickle Cell Disease and Thalassemia. We present the effectiveness of collaborations established by CAREST to promote SCD newborn screening programs and early childhood care, to facilitate health worker training and approaches for prevention and treatment of SCD complications, and to carry out inter-Caribbean research studies.
authors.affiliation: All of the authors are with the Caribbean Network of Researchers on Sickle Cell Disease and Thalassemia, Pointe-à-Pitre, Guadeloupe.
authors.forename: Jennifer
authors.initials: J
authors.lastname: Knight-Madden
authors.affiliation: All of the authors are with the Caribbean Network of Researchers on Sickle Cell Disease and Thalassemia, Pointe-à-Pitre, Guadeloupe.
authors.forename: Marc
authors.initials: M
authors.lastname: Romana
authors.affiliation: All of the authors are with the Caribbean Network of Researchers on Sickle Cell Disease and Thalassemia, Pointe-à-Pitre, Guadeloupe.
authors.forename: Rinaldo
authors.initials: R
authors.lastname: Villaescusa
authors.affiliation: All of the authors are with the Caribbean Network of Researchers on Sickle Cell Disease and Thalassemia, Pointe-à-Pitre, Guadeloupe.
authors.forename: Marvin
authors.initials: M
authors.lastname: Reid
authors.affiliation: All of the authors are with the Caribbean Network of Researchers on Sickle Cell Disease and Thalassemia, Pointe-à-Pitre, Guadeloupe.
authors.forename: Maryse
authors.initials: M
authors.lastname: Etienne-Julan
authors.affiliation: All of the authors are with the Caribbean Network of Researchers on Sickle Cell Disease and Thalassemia, Pointe-à-Pitre, Guadeloupe.
authors.forename: Laurence
authors.initials: L
authors.lastname: Boutin
authors.affiliation: All of the authors are with the Caribbean Network of Researchers on Sickle Cell Disease and Thalassemia, Pointe-à-Pitre, Guadeloupe.
authors.forename: Gisèle
authors.initials: G
authors.lastname: Elana
authors.affiliation: All of the authors are with the Caribbean Network of Researchers on Sickle Cell Disease and Thalassemia, Pointe-à-Pitre, Guadeloupe.
authors.forename: Narcisse
authors.initials: N
authors.lastname: Elenga
authors.affiliation: All of the authors are with the Caribbean Network of Researchers on Sickle Cell Disease and Thalassemia, Pointe-à-Pitre, Guadeloupe.
authors.forename: Gillian
authors.initials: G
authors.lastname: Wheeler
authors.affiliation: All of the authors are with the Caribbean Network of Researchers on Sickle Cell Disease and Thalassemia, Pointe-à-Pitre, Guadeloupe.
authors.forename: Ketty
authors.initials: K
authors.lastname: Lee
authors.affiliation: All of the authors are with the Caribbean Network of Researchers on Sickle Cell Disease and Thalassemia, Pointe-à-Pitre, Guadeloupe.
authors.forename: Rosa
authors.initials: R
authors.lastname: Nieves
authors.affiliation: All of the authors are with the Caribbean Network of Researchers on Sickle Cell Disease and Thalassemia, Pointe-à-Pitre, Guadeloupe.
authors.forename: Althea
authors.initials: A
authors.lastname: Jones Lecointe
authors.affiliation: All of the authors are with the Caribbean Network of Researchers on Sickle Cell Disease and Thalassemia, Pointe-à-Pitre, Guadeloupe.
authors.forename: Marie-Laure
authors.initials: ML
authors.lastname: Lalanne-Mistrih
authors.affiliation: All of the authors are with the Caribbean Network of Researchers on Sickle Cell Disease and Thalassemia, Pointe-à-Pitre, Guadeloupe.
authors.forename: Gylna
authors.initials: G
authors.lastname: Loko
authors.affiliation: All of the authors are with the Caribbean Network of Researchers on Sickle Cell Disease and Thalassemia, Pointe-à-Pitre, Guadeloupe.
authors.forename: Lisiane
authors.initials: L
authors.lastname: Keclard-Christophe
authors.affiliation: All of the authors are with the Caribbean Network of Researchers on Sickle Cell Disease and Thalassemia, Pointe-à-Pitre, Guadeloupe.
authors.forename: Marie-Dominique
authors.initials: MD
authors.lastname: Hardy-Dessources
mesh_terms: D000755:Anemia, Sickle Cell / Q000208:ethnology*; D017691:Caribbean Region / Q000453:epidemiology; D003299:Cooperative Behavior; D054521:Cultural Competency; D006282:Health Personnel / Q000193:education; D006293:Health Promotion / Q000458:organization & administration*; D006801:Humans; D007231:Infant, Newborn; D007318:Inservice Training; D007802:Language; D015997:Neonatal Screening; D015995:Prevalence; D012106:Research / Q000458:organization & administration*; D013789:Thalassemia / Q000208:ethnology*