title: Frailty as a Predictor of Institutionalization Among Adults With Intellectual and Developmental Disabilities.
abstract: Adults with intellectual and developmental disabilities (IDD) frequently become frail earlier than the general population, resulting in higher care needs. This population is at risk for institutionalization, or re-institutionalization, into long-term care (LTC). Using a retrospective cohort design to follow 3,034 individuals (18-99 years) living in Ontario, Canada, and assessed with the Resident Assessment Instrument-Home Care, individuals were characterized with a frailty index (FI) for persons with IDD. Survival analyses determined differences in rates of admission to LTC and survival in the community. Frail individuals had greater rates of admission than non-frail individuals, adjusted HR = 2.19, 95% CI [1.81, 2.64]. The FI predicts institutionalization.
authors.affiliation: Katherine McKenzie, Department of Public Health Sciences, Queen's University, Kingston, Ontario, Canada;
authors.forename: Katherine
authors.initials: K
authors.lastname: McKenzie
authors.affiliation: Hélène Ouellette-Kuntz, Department of Public Health Sciences, Queen's University & Ongwanada, Kingston, Ontario, Canada; and.
authors.forename: Hélène
authors.initials: H
authors.lastname: Ouellette-Kuntz
authors.affiliation: Lynn Martin, Department of Health Sciences, Lakehead University, Thunder Bay, Ontario, Canada.
authors.forename: Lynn
authors.initials: L
authors.lastname: Martin
mesh_terms: D000203:Activities of Daily Living; D000368:Aged; D015331:Cohort Studies; D002658:Developmental Disabilities / Q000175:diagnosis* / Q000453:epidemiology / Q000628:therapy; D005260:Female; D005500:Follow-Up Studies; D016330:Frail Elderly; D006297:Health Services Accessibility / Q000639:trends; D006699:Home Care Services / Q000639:trends*; D006801:Humans; D007326:Institutionalization / Q000639:trends*; D008607:Intellectual Disability / Q000175:diagnosis* / Q000453:epidemiology / Q000628:therapy; D008297:Male; D008875:Middle Aged; D011237:Predictive Value of Tests; D012112:Residential Facilities / Q000639:trends*; D012189:Retrospective Studies
keywords: RAI-HC; aging; developmental disabilities; frailty; institutionalization; intellectual disabilities; long-term care