title: The Down Syndrome Information Act: Balancing the Advances of Prenatal Testing Through Public Policy.
abstract: Since the dawn of prenatal testing in the 1970s, concerns have been raised over its administration to respect a mother's autonomy as well as the expressive critique against those with the tested-for condition. Advances in prenatal testing have made it such that more mothers than ever are given a test result of Down syndrome, yet are not provided the rest of the information recommended by professional guidelines. In response, first federal legislation and then, increasingly, state legislation is requiring that this information be provided to expectant mothers. Though receiving broad bipartisan support in passage, some of the statutes have received criticism. These public policy measures will be surveyed and evaluated as to their relative merits and limitations.
authors.affiliation: Mark W. Leach, University of Kentucky, Lexington, KY.
authors.forename: Mark W
authors.initials: MW
authors.lastname: Leach
mesh_terms: D004314:Down Syndrome / Q000175:diagnosis* / Q000235:genetics*; D005260:Female; D005817:Genetic Counseling / Q000941:ethics* / Q000331:legislation & jurisprudence; D006801:Humans; D026684:Personal Autonomy; D011247:Pregnancy; D011296:Prenatal Diagnosis / Q000941:ethics* / Q000379:methods; D011640:Public Policy / Q000331:legislation & jurisprudence; D014481:United States
keywords: Down syndrome; ethics; legislation; prenatal testing