title: Oral histories of HIV/AIDS support group members, NGO workers and home-based carers in KwaZulu-Natal.
abstract: The purpose of this paper is to bring to the attention of the AIDS research community the existence of an oral history project known as the Memories of AIDS Project. The project focused on HIV/AIDS support group members, non-governmental organisation (NGO) workers and home-based carers in the Umgungundlovu (Pietermaritzburg) District Municipality, South Africa. The project was carried out by the Sinomlando Centre for Oral History and Memory Work, a research and community development centre of the University of KwaZulu-Natal, over a period of three years (2011-2013). Sixty-five individual oral history interviews of 1 to 4 hours duration and 11 focus group sessions were recorded, transcribed and translated from isiZulu into English when necessary. The life stories of community workers and support group members documented in the interviews show, on the part of the informants, a remarkable degree of agency and assertiveness in matters of sexuality, gender relations and religious beliefs. They found innovative ways of navigating through the conflicting claims of biomedicine, Christianity and African traditional religion. As much as the epidemic caused grief and suffering, it opened the door to new knowledge and new opportunities.
authors.affiliation: a School of Religion, Philosophy and Classics , University of KwaZulu-Natal , Scottsville , South Africa.
authors.forename: Philippe
authors.initials: P
authors.lastname: Denis
mesh_terms: D000163:Acquired Immunodeficiency Syndrome / Q000453:epidemiology*; D005260:Female; D017144:Focus Groups; D015658:HIV Infections / Q000453:epidemiology*; D006801:Humans; D008297:Male; D009938:Organizations; D012067:Religion; D012657:Self-Help Groups; D013019:South Africa / Q000453:epidemiology
keywords: Christianity; agency; faith; gender; home-based care; oral history; stigma