title: A Viewpoint on Wearable Technology-Enabled Measurement of Wellbeing and Health-Related Quality of Life in Parkinson's Disease.
abstract: In this viewpoint, we discuss how several aspects of Parkinson's disease (PD) - known to be correlated with wellbeing and health-related quality of life-could be measured using wearable devices ('wearables'). Moreover, three people with PD (PwP) having exhaustive experience with using such devices write about their personal understanding of wellbeing and health-related quality of life, building a bridge between the true needs defined by PwP and the available methods of data collection. Rapidly evolving new technologies develop wearables that probe function and behaviour in domestic environments of people with chronic conditions such as PD and have the potential to serve their needs. Gathered data can serve to inform patient-driven management changes, enabling greater control by PwP and enhancing likelihood of improvements in wellbeing and health-related quality of life. Data can also be used to quantify wellbeing and health-related quality of life. Additionally these techniques can uncover novel more sensitive and more ecologically valid disease-related endpoints. Active involvement of PwP in data collection and interpretation stands to provide personally and clinically meaningful endpoints and milestones to inform advances in research and relevance of translational efforts in PD.
authors.affiliation: Hertie Institute for Clinical Brain Research, Department of Neurodegeneration, Center of Neurology, University of Tuebingen, Tuebingen, Germany.|DZNE, German Center for Neurodegenerative Diseases, Tuebingen, Germany.
authors.forename: Janet M T
authors.initials: JM
authors.lastname: van Uem
authors.affiliation: The Cure Parkinson's Trust, London, UK.
authors.forename: Tom
authors.initials: T
authors.lastname: Isaacs
authors.affiliation: The Cure Parkinson's Trust, London, UK.
authors.forename: Alan
authors.initials: A
authors.lastname: Lewin
authors.affiliation: The Cure Parkinson's Trust, London, UK.
authors.forename: Eros
authors.initials: E
authors.lastname: Bresolin
authors.affiliation: Hertie Institute for Clinical Brain Research, Department of Neurodegeneration, Center of Neurology, University of Tuebingen, Tuebingen, Germany.|DZNE, German Center for Neurodegenerative Diseases, Tuebingen, Germany.
authors.forename: Dina
authors.initials: D
authors.lastname: Salkovic
authors.affiliation: Gardner Center for Parkinson's disease and Movement Disorders, University of Cincinnati, Cincinnati, Ohio, USA.
authors.forename: Alberto J
authors.initials: AJ
authors.lastname: Espay
authors.affiliation: The Cure Parkinson's Trust, London, UK.
authors.forename: Helen
authors.initials: H
authors.lastname: Matthews
authors.affiliation: Hertie Institute for Clinical Brain Research, Department of Neurodegeneration, Center of Neurology, University of Tuebingen, Tuebingen, Germany.|DZNE, German Center for Neurodegenerative Diseases, Tuebingen, Germany.
authors.forename: Walter
authors.initials: W
authors.lastname: Maetzler
mesh_terms: D000223:Adaptation, Psychological; D000369:Aged, 80 and over; D015444:Exercise; D006801:Humans; D008297:Male; D008875:Middle Aged; D063731:Mobile Applications; D018670:Monitoring, Ambulatory; D010300:Parkinson Disease / Q000523:psychology*; D011788:Quality of Life; D012890:Sleep
keywords: Body fixed sensors; Parkinson’s disease; health-related quality of life; wearable devices; wellbeing