title: Perceptions of Health and Healthcare of People With Intellectual and Developmental Disabilities in Medicaid Managed Care.
abstract: This study examined perceptions of health and healthcare of people with intellectual and developmental disabilities (IDD) receiving Medicaid Managed Care. Exploratory, semistructured interviews were conducted with 23 participants. Findings indicate that participants generally expressed being in good health and defined good health as (a) absence of pain, disease, and symptoms; (b) adherence to or not requiring treatment; (c) physical self-care; (d) mental or spiritual self-care; and (e) ability to perform the activities one wants to do. Participants conceptualized healthcare as (a) ensuring needs are met through access to services, (b) obtaining quality services, (c) navigating the healthcare system successfully, and (d) receiving humanizing healthcare. This study has implications for improving healthcare and communications between people with IDD and healthcare providers.
authors.affiliation: Hailee Marie Gibbons, Disability and Human Development, University of Illinois at Chicago, IL USA;
authors.forename: Hailee M
authors.initials: HM
authors.lastname: Gibbons
authors.affiliation: Randall Owen, Disability and Human Development, University of Illinois at Chicago, IL USA; and.
authors.forename: Randall
authors.initials: R
authors.lastname: Owen
authors.affiliation: Tamar Heller, Disability and Human Development, University of Illinois at Chicago, IL USA.
authors.forename: Tamar
authors.initials: T
authors.lastname: Heller
mesh_terms: D000328:Adult; D002658:Developmental Disabilities / Q000523:psychology* / Q000628:therapy; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006297:Health Services Accessibility; D006301:Health Services Needs and Demand / Q000706:statistics & numerical data; D006801:Humans; D008607:Intellectual Disability / Q000523:psychology* / Q000628:therapy; D008297:Male; D008329:Managed Care Programs; D008484:Medicaid / Q000706:statistics & numerical data; D008875:Middle Aged; D010465:Perception; D011795:Surveys and Questionnaires; D014481:United States
keywords: Medicaid; developmental disability; health; healthcare; inclusion in research; intellectual disability; managed care