title: "Teaches People That I'm More Than a Disability": Using Nominal Group Technique in Patient-Oriented Research for People With Intellectual and Developmental Disabilities.
abstract: Individuals with intellectual and developmental disabilities (IDD) have complex healthcare needs, which are often unmet. Nominal group technique (NGT) uses a mixed-methods approach, which may engage the IDD population in the research process in a person-centered manner and address the shortcomings of traditional research methods with this population. NGT was used with a group of 10 self-advocates to evaluate a series of healthcare tools created by and for individuals with IDD. Participants provided helpful input about the strengths of these tools and suggestions to improve them. NGT was found to be an effective way to engage all participants in the research process.
authors.affiliation: Natasha A. Spassiani, Department of Psychiatry, University of Toronto, Centre for Addiction and Mental Health (CAMH), Toronto, Canada;
authors.forename: Natasha A
authors.initials: NA
authors.lastname: Spassiani
authors.affiliation: Amanda R. Sawyer, Megan S. Abou Chacra, Kimberley Koch, Yasmin A. Muñoz, and Yona Lunsky, Centre for Addiction and Mental Health, University of Toronto, Toronto, Canada.
authors.forename: Amanda R
authors.initials: AR
authors.lastname: Sawyer
authors.affiliation: Amanda R. Sawyer, Megan S. Abou Chacra, Kimberley Koch, Yasmin A. Muñoz, and Yona Lunsky, Centre for Addiction and Mental Health, University of Toronto, Toronto, Canada.
authors.forename: Megan S Abou
authors.initials: MS
authors.lastname: Chacra
authors.affiliation: Amanda R. Sawyer, Megan S. Abou Chacra, Kimberley Koch, Yasmin A. Muñoz, and Yona Lunsky, Centre for Addiction and Mental Health, University of Toronto, Toronto, Canada.
authors.forename: Kimberley
authors.initials: K
authors.lastname: Koch
authors.affiliation: Amanda R. Sawyer, Megan S. Abou Chacra, Kimberley Koch, Yasmin A. Muñoz, and Yona Lunsky, Centre for Addiction and Mental Health, University of Toronto, Toronto, Canada.
authors.forename: Yasmin A
authors.initials: YA
authors.lastname: Muñoz
authors.affiliation: Amanda R. Sawyer, Megan S. Abou Chacra, Kimberley Koch, Yasmin A. Muñoz, and Yona Lunsky, Centre for Addiction and Mental Health, University of Toronto, Toronto, Canada.
authors.forename: Yona
authors.initials: Y
authors.lastname: Lunsky
mesh_terms: D035843:Biomedical Research / Q000379:methods*; D002658:Developmental Disabilities / Q000453:epidemiology / Q000523:psychology / Q000628:therapy*; D005260:Female; D006297:Health Services Accessibility; D006801:Humans; D008607:Intellectual Disability / Q000453:epidemiology / Q000523:psychology / Q000628:therapy*; D008297:Male; D009864:Ontario; D010344:Patient Advocacy / Q000523:psychology; D010358:Patient Participation / Q000379:methods / Q000523:psychology; D018802:Patient-Centered Care / Q000379:methods*
keywords: healthcare tools; intellectual and developmental disabilities; nominal group technique; patient-oriented research