title: Problems experienced by informal caregivers with older care recipients with and without cognitive impairment.
abstract: The care of older persons can have negative impact on the caregiver. The objective of this population-based observational study is to identify problems experienced by informal caregivers, and the extent of related difficulties, in their care of older care-dependent recipients with and without cognitive impairment. Caregivers (n = 2,704) caring for a home-dwelling person aged ≥ 75 years responded to a questionnaire with 23 questions on problems and related difficulties by mail. Prevalence of self-reported problems and related difficulties was calculated. The impact of the problem was estimated by weighing the percentage of problems reported as being difficult against the prevalence of problems. The median number of problems was 12 (range 0-23), with 5 (range 0-23) reported as difficult. Informal caregivers experience a variety of problems, with the impossibility to engage in joint social activities having the highest impact. The impact of problems increased when the care recipient had a cognitive problem.
authors.affiliation: a Department of Public Health and Primary Care , Leiden University Medical Center , Leiden , The Netherlands.
authors.forename: Sytske
authors.initials: S
authors.lastname: Van Bruggen
authors.affiliation: a Department of Public Health and Primary Care , Leiden University Medical Center , Leiden , The Netherlands.
authors.forename: Jacobijn
authors.initials: J
authors.lastname: Gussekloo
authors.affiliation: b Department of Psychology, Health, and Technology , University of Twente , Enschede , The Netherlands.
authors.forename: Christina
authors.initials: C
authors.lastname: Bode
authors.affiliation: c Department of Health Ethics and Health Law , Leiden University Medical Center , Leiden , The Netherlands.
authors.forename: Dorothea P
authors.initials: DP
authors.lastname: Touwen
authors.affiliation: c Department of Health Ethics and Health Law , Leiden University Medical Center , Leiden , The Netherlands.
authors.forename: Dick P
authors.initials: DP
authors.lastname: Engberts
authors.affiliation: a Department of Public Health and Primary Care , Leiden University Medical Center , Leiden , The Netherlands.
authors.forename: Jeanet W
authors.initials: JW
authors.lastname: Blom
mesh_terms: D000368:Aged; D017028:Caregivers / Q000523:psychology*; D003072:Cognition Disorders / Q000150:complications* / Q000523:psychology; D003430:Cross-Sectional Studies; D005260:Female; D005853:Geriatrics; D006801:Humans; D008297:Male; D008875:Middle Aged; D009426:Netherlands; D005791:Patient Care / Q000523:psychology*; D015995:Prevalence; D011795:Surveys and Questionnaires; D000078329:Workforce
keywords: Care issues of persons with dementia; cognition; community and home care; family geriatrics