title: From Nonissue to Healthcare Crisis: A Historical Review of Aging and Dying With an Intellectual and Developmental Disability.
abstract: Individuals with intellectual and developmental disabilities are living unprecedentedly longer lives primarily due to the long-term benefits of the deinstitutionalization movement and widespread improvements in health outcomes. However, the consequences of this protracted aging process are significant, complex, and often poor not only for the individuals and their caregivers but for the mainstream healthcare community. This article will explore, utilizing a constructionist perspective, how these challenges evolved from a nonissue to an impending crisis in less than 25 years. Additionally, present-day efforts by researchers, policymakers, and practitioners to address these challenges will be explored and recommendations will be made for future directions.
authors.affiliation: Jacqueline M. McGinley, School of Social Work, University at Buffalo, Buffalo, NY.
authors.forename: Jacqueline M
authors.initials: JM
authors.lastname: McGinley
mesh_terms: D000375:Aging / Q000473:pathology / Q000523:psychology*; D001293:Attitude to Death; D017028:Caregivers / Q000523:psychology / Q000639:trends; D002658:Developmental Disabilities / Q000401:mortality / Q000523:psychology* / Q000628:therapy; D006301:Health Services Needs and Demand; D006801:Humans; D008607:Intellectual Disability / Q000401:mortality / Q000523:psychology* / Q000628:therapy; D013727:Terminal Care / Q000379:methods* / Q000523:psychology / Q000639:trends
keywords: aging; constructionist perspective; end-of-life; healthcare