title: Community Involvement in Development of Evidence-Informed Recommendations for Rehabilitation for Older Adults Living With HIV.
abstract: BACKGROUND
  Involving community in development of clinical practice guidelines (CPGs) can decrease the gap between patient preferences and research evidence.
  
  
  OBJECTIVE
  To incorporate meaningful participation of people living with human immunodeficiency virus (HIV; people living with HIV [PHAs]) in the development of evidence informed recommendations for rehabilitation practice.
  
  
  METHODS
  PHAs were involved in a process to develop practice recommendations internally as members of a project team and externally through formal endorsement of the recommendations.
  
  
  CONCLUSIONS
  Lessons learned include 1) providing time to develop as a team and understand the roles, biases, and expertise of each member, 2) engaging community in initial discussions to determine the most meaningful involvement, 3) realizing that participation in research may trigger anxiety and stress in community members, 4) developing terms of reference to clarify roles and expectations, 5) providing opportunities for skill development, and 6) conducting formal evaluation of the process and satisfaction of community.
  
  
  CONCLUSIONS
  Meaningful inclusion of community can improve the quality of practice guidelines.
authors.forename: Patricia
authors.initials: P
authors.lastname: Solomon
authors.forename: Kelly K
authors.initials: KK
authors.lastname: O'Brien
authors.forename: Larry
authors.initials: L
authors.lastname: Baxter
authors.forename: Duncan
authors.initials: D
authors.lastname: MacLachlan
authors.forename: Greg
authors.initials: G
authors.lastname: Robinson
mesh_terms: D000368:Aged; D003256:Community Participation / Q000379:methods*; D055812:Community-Based Participatory Research / Q000379:methods*; D055317:Evidence-Based Practice / Q000379:methods*; D015658:HIV Infections / Q000534:rehabilitation*; D006801:Humans; D017410:Practice Guidelines as Topic; D015397:Program Evaluation / Q000379:methods*