title: An Inventory of Publicly Funded Participant-Directed Long-Term Services and Supports Programs in the United States.
abstract: After a decade of changes in federal law, regulation, and policy designed to promote the growth of publicly funded participant-directed long-term services and supports (PD-LTSS) programs, the number of these programs has grown considerably. The National Resource Center for Participant-Directed Services (NRCPDS) at Boston College started developing an inventory of these programs in 2010-2011 to determine the number and characteristics of publicly funded PD- LTSS programs in the United States. The 2010-2011 NRCPDS inventory provides baseline data for future research efforts in gauging the growth and expansion of this service delivery model. This article details the process for developing this data resource, some of the major characteristics of PD-LTSS programs in the United States, and discusses possible implications and areas for future research.
authors.affiliation: Department of Health Policy and Administration, The Pennsylvania State University, University Park, PA.
authors.forename: Mark
authors.initials: M
authors.lastname: Sciegaj
authors.affiliation: National Resource Center for Participant--Directed Services, Boston College Chestnut Hill, MA.
authors.forename: Kevin J
authors.initials: KJ
authors.lastname: Mahoney
authors.affiliation: Center for the Study of Aging and Human Development, Duke University, Durham, NC.
authors.forename: Abby J
authors.initials: AJ
authors.lastname: Schwartz
authors.affiliation: School of Public Health, University of Maryland, College Park, MD.
authors.forename: Lori
authors.initials: L
authors.lastname: Simon-Rusinowitz
authors.affiliation: Ankissam Cambridge, MA.
authors.forename: Isaac
authors.initials: I
authors.lastname: Selkow
authors.affiliation: School of Public Health, University of Maryland, College Park, MD.
authors.forename: Dawn M
authors.initials: DM
authors.lastname: Loughlin
keywords: Long-Term Services and Supports; Medicaid; Self-direction