title: Using others' experiences. Cancer patients' expectations and navigation of a website providing narratives on prostate, breast and colorectal cancer.
abstract: To understand what cancer patients expect and may learn from other patients' experiences, as analyzed and sorted for presentation on a website called krankheitserfahrungen.de (meaning "illness experiences").
  
  
  
  Mixed methods approach including log file analyses, survey data analyses and thematic analysis of focus group discussions.
  
  
  
  Users highly valued the wide range of patient experiences presented. The academic leadership of krankheitserfahrungen.de made them trust the information quality. Reading, watching and listening to other cancer patients' experiences gave users a feeling of hope and confidence. Searching for persons with similar experiences was a major way of navigating the website.
  
  
  
  Patient narratives as presented on krankheitserfahrungen.de provide a helpful resource, supporting cancer patients' engagement with their disease. Having access to such research-informed accounts of everyday cancer experiences was seen as a great contribution to existing available patient information.
  
  
  
  When health information websites include experiences, they should adhere to quality standards of qualitative research and encompass a wide range, so that users are able to find patients similar to themselves. Filter options are a helpful tool. A mix of written text and videos is beneficial, as users have different preferences. The inclusion of patient photographs and video interviews facilitates authenticity and closeness.
authors.affiliation: Institute of Public Health, Charité-Universitätsmedizin Berlin, Berlin, Germany. Electronic address: jennifer.engler@charite.de.
authors.forename: Jennifer
authors.initials: J
authors.lastname: Engler
authors.affiliation: Department of Psychology, University of Freiburg, Freiburg im Breisgau, Germany.
authors.forename: Sandra
authors.initials: S
authors.lastname: Adami
authors.affiliation: Institute of Public Health, Charité-Universitätsmedizin Berlin, Berlin, Germany.
authors.forename: Yvonne
authors.initials: Y
authors.lastname: Adam
authors.affiliation: Institute of Public Health, Charité-Universitätsmedizin Berlin, Berlin, Germany.
authors.forename: Bettina
authors.initials: B
authors.lastname: Keller
authors.affiliation: Institute of Public Health, Charité-Universitätsmedizin Berlin, Berlin, Germany.
authors.forename: Tim
authors.initials: T
authors.lastname: Repke
authors.affiliation: Institute of Public Health, Charité-Universitätsmedizin Berlin, Berlin, Germany.
authors.forename: Hella
authors.initials: H
authors.lastname: Fügemann
authors.affiliation: Department of Psychology, University of Freiburg, Freiburg im Breisgau, Germany.
authors.forename: Gabriele
authors.initials: G
authors.lastname: Lucius-Hoene
authors.affiliation: Institute of Public Health, Charité-Universitätsmedizin Berlin, Berlin, Germany.
authors.forename: Jacqueline
authors.initials: J
authors.lastname: Müller-Nordhorn
authors.affiliation: Institute of Public Health, Charité-Universitätsmedizin Berlin, Berlin, Germany.
authors.forename: Christine
authors.initials: C
authors.lastname: Holmberg
mesh_terms: D000368:Aged; D001943:Breast Neoplasms / Q000523:psychology*; D015179:Colorectal Neoplasms / Q000523:psychology*; D005260:Female; D017144:Focus Groups; D006801:Humans; D020407:Internet; D008297:Male; D008875:Middle Aged; D033262:Narration; D017060:Patient Satisfaction; D011471:Prostatic Neoplasms / Q000523:psychology*; D036301:Qualitative Research
keywords: Cancer; Coping; Health information; Illness experiences; Patient narratives