title: Definition of a COPD self-management intervention: International Expert Group consensus.
abstract: There is an urgent need for consensus on what defines a chronic obstructive pulmonary disease (COPD) self-management intervention. We aimed to obtain consensus regarding the conceptual definition of a COPD self-management intervention by engaging an international panel of COPD self-management experts using Delphi technique features and an additional group meeting.In each consensus round the experts were asked to provide feedback on the proposed definition and to score their level of agreement (1=totally disagree; 5=totally agree). The information provided was used to modify the definition for the next consensus round. Thematic analysis was used for free text responses and descriptive statistics were used for agreement scores.In total, 28 experts participated. The consensus round response rate varied randomly over the five rounds (ranging from 48% (n=13) to 85% (n=23)), and mean definition agreement scores increased from 3.8 (round 1) to 4.8 (round 5) with an increasing percentage of experts allocating the highest score of 5 (round 1: 14% (n=3); round 5: 83% (n=19)).In this study we reached consensus regarding a conceptual definition of what should be a COPD self-management intervention, clarifying the requisites for such an intervention. Operationalisation of this conceptual definition in the near future will be an essential next step.
authors.affiliation: Dept of Respiratory Medicine, Southern Adelaide Local Health Network, Adelaide, Australia School of Medicine, Flinders University, Adelaide, Australia tanja.effing@health.sa.gov.au.
authors.forename: Tanja W
authors.initials: TW
authors.lastname: Effing
authors.affiliation: Dept of Medical Psychology and Dept of Pulmonary Diseases, Radboud University Medical Center, Nijmegen, The Netherlands.
authors.forename: Jan H
authors.initials: JH
authors.lastname: Vercoulen
authors.affiliation: Respiratory Epidemiology and Clinical Research Unit, Research Institute of the McGill University Health Centre, McGill University, Montreal, QC, Canada.
authors.forename: Jean
authors.initials: J
authors.lastname: Bourbeau
authors.affiliation: Dept of Rehabilitation, Nursing Science & Sports, University Medical Center Utrecht, Utrecht, The Netherlands.
authors.forename: Jaap
authors.initials: J
authors.lastname: Trappenburg
authors.affiliation: Dept of Pulmonary Medicine, Medisch Spectrum Twente, Enschede, The Netherlands.
authors.forename: Anke
authors.initials: A
authors.lastname: Lenferink
authors.affiliation: Dept of Respiratory Medicine, Southern Adelaide Local Health Network, Adelaide, Australia School of Medicine, Flinders University, Adelaide, Australia.
authors.forename: Paul
authors.initials: P
authors.lastname: Cafarella
authors.affiliation: VA Portland Health Care System and Dept of Medicine, Oregon Health & Science University, Portland, OR, USA.
authors.forename: David
authors.initials: D
authors.lastname: Coultas
authors.affiliation: University of Colorado College of Nursing, Aurora, CO, USA.
authors.forename: Paula
authors.initials: P
authors.lastname: Meek
authors.affiliation: Dept of Pulmonary Medicine, Medisch Spectrum Twente, Enschede, The Netherlands.
authors.forename: Paul
authors.initials: P
authors.lastname: van der Valk
authors.affiliation: Dept of Primary and Community Care, Radboud University Medical Center, Nijmegen, The Netherlands.
authors.forename: Erik W M A
authors.initials: EW
authors.lastname: Bischoff
authors.affiliation: Dept of Respiratory Medicine, Glasgow Royal Infirmary, Glasgow, UK.
authors.forename: Christine
authors.initials: C
authors.lastname: Bucknall
authors.affiliation: Division of Pulmonary Critical Care and Sleep Medicine, Creighton University and Omaha Veterans Affairs Medical Centre, Omaha, NE, USA.
authors.forename: Naresh A
authors.initials: NA
authors.lastname: Dewan
authors.affiliation: Centre for Self-Management Support, Cambridge University Hospitals NHS Foundation Trust, Addenbrooke's Hospital, Cambridge, UK.
authors.forename: Frances
authors.initials: F
authors.lastname: Early
authors.affiliation: VA Puget Sound Health Care System, Seattle, WA, USA Dept of Medicine, University of Washington, Seattle, WA, USA.
authors.forename: Vincent
authors.initials: V
authors.lastname: Fan
authors.affiliation: Dept of Respiratory Medicine, Southern Adelaide Local Health Network, Adelaide, Australia School of Medicine, Flinders University, Adelaide, Australia.
authors.forename: Peter
authors.initials: P
authors.lastname: Frith
authors.affiliation: Dept of Research & Education, CIRO, Centre of Expertise for Chronic Organ Failure, Horn, The Netherlands.
authors.forename: Daisy J A
authors.initials: DJ
authors.lastname: Janssen
authors.affiliation: Centre for Exercise and Rehabilitation Science, University Hospitals of Leicester, Leicester, UK.
authors.forename: Katy
authors.initials: K
authors.lastname: Mitchell
authors.affiliation: Dept of Respiratory Medicine, Glenfield Hospital, University Hospitals of Leicester NHS Trust, Leicester, UK.
authors.forename: Mike
authors.initials: M
authors.lastname: Morgan
authors.affiliation: Dept of Pulmonary and Critical Care, Providence Veterans Administration Medical Center, Providence, RI, USA.
authors.forename: Linda
authors.initials: L
authors.lastname: Nici
authors.affiliation: Dept of Respiratory Medicine, King's College Hospital NHS Trust, London, UK.
authors.forename: Irem
authors.initials: I
authors.lastname: Patel
authors.affiliation: CRE for Chronic Respiratory Disease, School of Medicine, University of Tasmania, Hobart, Australia.
authors.forename: Haydn
authors.initials: H
authors.lastname: Walters
authors.affiliation: Pulmonary Section, Dept of Medicine, VA Medical Center, Minneapolis, MN, USA Dept of Medicine, University of Minnesota, Minneapolis, MN, USA.
authors.forename: Kathryn L
authors.initials: KL
authors.lastname: Rice
authors.affiliation: Centre for Exercise and Rehabilitation Science, University Hospitals of Leicester, Leicester, UK.
authors.forename: Sally
authors.initials: S
authors.lastname: Singh
authors.affiliation: Dept of Pulmonary and Critical Care, St. Francis Hospital and Medical Center, Hartford, CT, USA.
authors.forename: Richard
authors.initials: R
authors.lastname: Zuwallack
authors.affiliation: Mindful Breathing Lab, Mayo Clinic, Rochester, MN, USA.
authors.forename: Roberto
authors.initials: R
authors.lastname: Benzo
authors.affiliation: West Park Healthcare, University of Toronto, Toronto, ON, Canada.
authors.forename: Roger
authors.initials: R
authors.lastname: Goldstein
authors.affiliation: National Heart and Lung Institute, Imperial College, London, UK.
authors.forename: Martyn R
authors.initials: MR
authors.lastname: Partridge
authors.affiliation: Dept of Pulmonary Medicine, Medisch Spectrum Twente, Enschede, The Netherlands Dept of Research Methodology, Measurement and Data Analysis, University of Twente, Enschede, The Netherlands.
authors.forename: Job
authors.initials: J
authors.lastname: van der Palen
mesh_terms: D000328:Adult; D003697:Delphi Technique; D005260:Female; D006801:Humans; D007391:International Cooperation; D008297:Male; D008875:Middle Aged; D029424:Pulmonary Disease, Chronic Obstructive / Q000534:rehabilitation*; D000073278:Self-Management / Q000379:methods*