title: Patient Education: Identifying Risks and Self-Management Approaches for Adherence and Sudden Unexpected Death in Epilepsy.
abstract: Patient education in epilepsy is one part of quality epilepsy care and is an evolving and growing field. Health outcomes, patient satisfaction, safety, patient/provider communication, and quality of life may all be affected by what people are taught (or not taught), what they understand, and how they use this information to make decisions and manage their health. Data regarding learning needs and interventions to address medication adherence and sudden unexpected death in epilepsy education can be used to guide clinicians in health care or community settings.
authors.affiliation: Beth Israel Deaconess Medical Center, 330 Brookline Avenue KS 457, Boston, MA 02215, USA; Epilepsy Foundation, Landover, MD 20785-2353, USA. Electronic address: pshafe@comcast.net.
authors.forename: Patricia Osborne
authors.initials: PO
authors.lastname: Shafer
authors.affiliation: Comprehensive Children's Epilepsy Centre, Alberta Children's Hospital, Cumming School of Medicine, University of Calgary, 2888 Shaganappi Trail Northwest, Calgary, Alberta T3B 6A8, Canada.
authors.forename: Jeffrey
authors.initials: J
authors.lastname: Buchhalter
mesh_terms: D003645:Death, Sudden / Q000453:epidemiology*; D004827:Epilepsy / Q000453:epidemiology / Q000523:psychology / Q000628:therapy; D006801:Humans; D010353:Patient Education as Topic / Q000379:methods*; D011788:Quality of Life; D018570:Risk Assessment; D012648:Self Care / Q000379:methods*
keywords: Adherence; Epilepsy; Epilepsy self-management; Patient education; SUDEP; Sudden unexpected death in epilepsy