A snapshot of the adult spina bifida patient - high incidence of urologic procedures.
BACKGROUND
To describe the urologic outcomes of contemporary adult spina bifida patients managed in a multidisciplinary clinic.


METHODS
A retrospective chart review of patients seen in our adult spina bifida clinic from January 2004 to November 2011 was performed to identify urologic management, urologic surgeries, and co-morbidities.


RESULTS
225 patients were identified (57.8% female, 42.2% male). Current median age was 30 years (IQR 27, 36) with a median age at first visit of 25 years (IQR 22, 30). The majority (70.7%) utilized clean intermittent catheterization, and 111 patients (49.3%) were prescribed anticholinergic medications. 65.8% had urodynamics performed at least once, and 56% obtained appropriate upper tract imaging at least every other year while under our care. 101 patients (44.9%) underwent at least one urologic surgical procedure during their lifetime, with a total of 191 procedures being performed, of which stone procedures (n = 51, 26.7%) were the most common. Other common procedures included continence procedures (n = 35, 18.3%) and augmentation cystoplasty (n = 29, 15.2%). Only 3.6% had a documented diagnosis of chronic kidney disease and 0.9% with end-stage renal disease.


CONCLUSIONS
Most adult spina bifida patient continue on anticholinergic medications and clean intermittent catheterization. A large percentage of patients required urologic procedures in adulthood. Patients should be encouraged to utilize conservative and effective bladder management strategies to reduce their risk of renal compromise.
Department of Urology, Northwestern University Feinberg School of Medicine, Chicago, USA.
Joceline S
JS
Liu
Department of Urology, Northwestern University Feinberg School of Medicine, Chicago, USA.
Alyssa
A
Greiman
Department of Urology, Northwestern University Feinberg School of Medicine, Chicago, USA.
Jessica T
JT
Casey
Department of Urology, Northwestern University Feinberg School of Medicine, Chicago, USA.
Shubhra
S
Mukherjee
Department of Urology, Northwestern University Feinberg School of Medicine, Chicago, USA.
Stephanie J
SJ
Kielb
adult; lithotripsy; neurogenic bladder; spina bifida; transitional care