How Do People With COPD Value Different Activities? An Adapted Meta-Ethnography of Qualitative Research.
Chronic Obstructive Pulmonary Disease (COPD) is a long-term condition where activities of daily living (ADLs) may be very restricted; people with COPD need to prioritize what is important to them. We conducted a meta-ethnography to understand which ADLs are valued and why, systematically searching for articles including experiences of ADLs and organizing themes from the articles into five linked concepts: (a) caring for the body, (b) caring for the personal environment, (c) moving between spaces, (d) interacting with others, and (e) selfhood across time. In addition, we identified three key aspects of personal integrity: effectiveness, connectedness, and control. We found that ADLs were valued if they increased integrity; however, this process was also informed by gendered roles and social values. People whose sense of control depended on effectiveness often found accepting help very difficult to bear; therefore, redefining control as situational and relational may help enjoyment of activities that are possible.
University of Birmingham, Birmingham, United Kingdom A.Lindenmeyer@bham.ac.uk.
Antje
A
Lindenmeyer
University of Birmingham, Birmingham, United Kingdom.
Sheila M
SM
Greenfield
Guy's and St Thomas' NHS Foundation Trust, London, United Kingdom.
Charlotte
C
Greenfield
University of Birmingham, Birmingham, United Kingdom.
Kate
K
Jolly
D000203:Activities of Daily Living / Q000523:psychology*; D000884:Anthropology, Cultural; D006801:Humans; D007398:Interpersonal Relations; D028723:Personhood; D029424:Pulmonary Disease, Chronic Obstructive / Q000523:psychology*; D036301:Qualitative Research; D012107:Research Design; D012648:Self Care / Q000523:psychology*; D012944:Social Support
illness and disease, chronic; illness and disease, experiences; meta-ethnography; qualitative research; respiratory disorders