The psychological impact of dependency in adults with chronic fatigue syndrome/myalgic encephalomyelitis: A qualitative exploration.
Chronic fatigue syndrome/myalgic encephalomyelitis can limit functional capacity, producing various degrees of disability and psychological distress. Semi-structured interviews explored the experiences of adults with chronic fatigue syndrome/myalgic encephalomyelitis being physically dependent on other people for help in daily life, and whether physical dependency affects their psychological well-being. Thematic analysis generated six themes: loss of independence and self-identity, an invisible illness, anxieties of today and the future, catch-22, internalised anger, and acceptance of the condition. The findings provide insight into the psychological impact of dependency. Implications for intervention include better education relating to chronic fatigue syndrome/myalgic encephalomyelitis for family members, carers, and friends; ways to communicate their needs to others who may not understand chronic fatigue syndrome/myalgic encephalomyelitis; and awareness that acceptance of the condition could improve psychological well-being.
University of the West of England, UK.
Ashley Mai
AM
Williams
University of the West of England, UK.
Gary
G
Christopher
University of the West of England, UK.
Elizabeth
E
Jenkinson
D000328:Adult; D017028:Caregivers / Q000523:psychology; D003858:Dependency, Psychological; D004185:Disability Evaluation; D015673:Fatigue Syndrome, Chronic / Q000523:psychology*; D005260:Female; D033062:Friends; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D008875:Middle Aged; D036301:Qualitative Research; D011788:Quality of Life / Q000523:psychology
adults; chronic fatigue syndrome; psychological distress; qualitative methods; well-being