Parental Decision Making Regarding the Disclosure or Nondisclosure of a Mutation-Positive BRCA1/2 Test Result to Minors.
To gain insight into parental decision making regarding the disclosure or nondisclosure of a mutation-positive BRCA1/2 test result to minors. .



A qualitative study based on Heidegger hermeneutic phenomenology was undertaken to explore the lived experience of parental decision making regarding high-risk BRCA1/2 disclosure. .



The study's recruitment site was a western Canadian hereditary breast and ovarian cancer clinic. .



Fifteen female mutation-positive BRCA1/2 carriers who had at least one child aged 6-18 years. .



The use of a demographic questionnaire, semistructured interviews, and conversation summaries were employed to gain an understanding of participants' lived experience. van Manen's selective approach was used to conduct a thematic analysis. .



Collectively, parents wanted clinicians to discuss implications of disclosing and not disclosing a mutation-positive BRCA1/2 test result to minors in greater detail. The findings were categorized under the following emergent themes.



Participants' stories identified the need for auxiliary support pertaining to the decision-making process and suggested ways in which parental support may be coordinated. .



Oncology nurses with advanced genetics training should assist mutation-positive BRCA1/2 carriers in meeting their genetic risk information needs; this requires nurses to stay informed about a multitude of issues that affect this population of patients.
Minneapolis Community and Technical College.
Kendra-Ann I
KA
Seenandan-Sookdeo
Faculty of Nursing, University of Manitoba, Winnipeg, Canada.
Thomas F
TF
Hack
University of Manitoba.
Michelle
M
Lobchuk
University of Manitoba.
Leigh
L
Murphy
Health Sciences Centre.
Sandra
S
Marles
D000293:Adolescent; D000328:Adult; D001943:Breast Neoplasms / Q000235:genetics*; D002170:Canada; D003657:Decision Making / Q000941:ethics*; D030881:Disclosure / Q000941:ethics*; D005260:Female; D019398:Genes, BRCA1; D024522:Genes, BRCA2; D020022:Genetic Predisposition to Disease / Q000523:psychology*; D006801:Humans; D008875:Middle Aged; D033242:Minors; D010051:Ovarian Neoplasms / Q000235:genetics*; D010290:Parents / Q000523:psychology*; D036301:Qualitative Research; D055815:Young Adult
BRCA1/2; breast; cancer; hereditary; minors; oncology; ovarian