Parental perception of treatment and medical care in children with craniosynostosis.
Surgery for craniosynostosis implies a relevant strain on the child and the parents. The development of the child's self-perception and self-confidence is mainly influenced by parental attitudes. The outcomes of 46 patients were analysed, taking into consideration parental perceptions. Parents were asked to indicate their satisfaction with the medical care and treatment provided using a questionnaire. Aesthetics were evaluated by the parents and doctors using a score (1=perfect, 5=deficient). Major surgical complications (2.2%) were reported only in the case of complex synostosis. Reoperation was necessary in 2.9% of isolated cases and 45.5% of complex cases. In general, parents were satisfied with the medical (1.3) and nursing (1.6) inpatient care. Aesthetic assessments differed between parents and surgeons, although not significantly (P=0.27). The surgeons perceived the results to be better than the parents, especially for complex synostosis (1.3 vs. 2.7). Alopecia and persistent asymmetry led to a worse perception of aesthetics. Persistent bone defects did not influence parental satisfaction. All participating parents would opt for surgery again. Surgery led to satisfactory results with a low risk of severe complications. Nevertheless, the outcomes and limits of the surgical procedure must be communicated effectively to parents, especially in complex cases, to avoid a mismatch in expectations. It would be desirable to implement structured interviews with parents during regular treatment management.
Department of Oral and Maxillofacial Surgery, University Hospital Tübingen, Tübingen, Germany. Electronic address: susanne.kluba@med.uni-tuebingen.de.
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S
Kluba
Department of Oral and Maxillofacial Surgery, University Hospital Tübingen, Tübingen, Germany.
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S
Rohleder
Department of Paediatric Neurology, University Children's Hospital Tübingen, Tübingen, Germany.
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M
Wolff
Department of Paediatric Neurology, University Children's Hospital Tübingen, Tübingen, Germany.
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K
Haas-Lude
Department of Neurosurgery, University Hospital Tübingen, Tübingen, Germany.
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MU
Schuhmann
Department of Neurosurgery, University Hospital Tübingen, Tübingen, Germany.
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BE
Will
Department of Oral and Maxillofacial Surgery, University Hospital Tübingen, Tübingen, Germany.
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S
Reinert
Department of Oral and Maxillofacial Surgery, University Hospital Tübingen, Tübingen, Germany.
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M
Krimmel
D002648:Child; D003142:Communication; D003398:Craniosynostoses / Q000523:psychology* / Q000601:surgery*; D004955:Esthetics, Dental; D006801:Humans; D010290:Parents / Q000523:psychology*; D017060:Patient Satisfaction; D011183:Postoperative Complications / Q000523:psychology; D012086:Reoperation / Q000706:statistics & numerical data; D012649:Self Concept; D011795:Surveys and Questionnaires; D016896:Treatment Outcome
aesthetic outcome; craniosynostosis; parental satisfaction