Review of patient registries in dermatology.
BACKGROUND
Patient registries are datasets containing information on patients with a particular disease or patients who are undergoing a specific treatment.


OBJECTIVE
Our objective was to search for and catalog the types of registries being used in dermatology and investigate their characteristics and uses.


METHODS
We searched Google, the Registry of Patient Registries, Orphanet, and ClinicalTrials.gov to compile a list of dermatology disease registries. We also conducted a literature review on the uses of dermatology registries using PubMed.


RESULTS
We identified 48 dermatology patient registries, with 23 distinct diseases represented. We also identified 11 registries used for postmarketing surveillance of skin disease.


CONCLUSIONS
Our search was limited to registries in English.


CONCLUSIONS
Registries are commonly used for the study of rare dermatologic diseases and for postsurveillance monitoring of systemic therapies in more common dermatologic diseases, such as psoriasis.
Center for Dermatology Research, Department of Dermatology, Wake Forest School of Medicine, Winston-Salem, North Carolina.
Gabriella
G
DiMarco
Center for Dermatology Research, Department of Dermatology, Wake Forest School of Medicine, Winston-Salem, North Carolina.
Dane
D
Hill
Center for Dermatology Research, Department of Dermatology, Wake Forest School of Medicine, Winston-Salem, North Carolina; Department of Pathology, Wake Forest School of Medicine, Winston-Salem, North Carolina; Department of Public Health Sciences, Wake Forest School of Medicine, Winston-Salem, North Carolina. Electronic address: sfeldman@wakehealth.edu.
Steven R
SR
Feldman
D002986:Clinical Trials as Topic; D016208:Databases, Factual; D000072085:Dermatologists / Q000706:statistics & numerical data; D003880:Dermatology / Q000592:standards* / Q000639:trends; D005260:Female; D006801:Humans; D008297:Male; D011786:Quality Control; D012042:Registries; D012871:Skin Diseases / Q000175:diagnosis* / Q000628:therapy*; D014481:United States
clinical trial; international; postmarketing surveillance; psoriasis; rare dermatologic disease; research