Using Cognitive Testing to Develop Items for Surveying Asian American Cancer Patients and Their Caregivers as a Pathway to Culturally Competent Care.
We report the results from cognitive interviews with Asian American patients and their caregivers. We interviewed seven caregivers and six patients who were all bilingual Asian Americans. The main goal of the cognitive interviews was to test a survey instrument developed for a study about perspectives of Asian American patients with advanced cancer who are facing decisions around end-of-life care. We were particularly interested to see whether items commonly used in White and Black populations are culturally meaningful and equivalent in Asian populations, primarily those of Chinese and Vietnamese ethnicity. Our exploration shows that understanding respondents' language proficiency, degree of acculturation, and cultural context of receiving, processing, and communicating information about medical care can help design questions that are appropriate for Asian American patients and caregivers, and therefore can help researchers obtain quality data about the care Asian American cancer patients receive.
University of Massachusetts Boston, USA dragana.bjankovic@umb.edu.
Dragana
D
Bolcic-Jankovic
Beth Israel Deaconess Medical Center, Boston, USA.
Fengxin
F
Lu
University of Massachusetts Boston, USA.
Mary Ellen
ME
Colten
Beth Israel Deaconess Medical Center, Boston, USA.
Ellen P
EP
McCarthy
D000069:Acculturation; D000328:Adult; D001213:Asian; D017028:Caregivers; D002681:China; D003071:Cognition; D003142:Communication; D054521:Cultural Competency; D065246:Culturally Competent Care; D003695:Delivery of Health Care; D005260:Female; D006801:Humans; D007802:Language; D008297:Male; D008875:Middle Aged; D009369:Neoplasms; D011795:Surveys and Questionnaires / Q000592:standards*; D014744:Vietnam; D055815:Young Adult
Asian American; caregiver; cultural context; medical decisions; patient