title: Challenges and Opportunities in Using Patient-reported Outcomes in Quality Measurement in Rheumatology.
abstract: Use of patient-reported outcome measures (PROs) in rheumatology research is widespread, but use of PRO data to evaluate the quality of rheumatologic care delivered is less well established. This article reviews the use of PROs in assessing health care quality, and highlights challenges and opportunities specific to their use in rheumatology quality measurement. It first explores other countries' experiences collecting and evaluating national PRO data to assess quality of care. It describes the current use of PROs as quality measures in rheumatology, and frames an agenda for future work supporting development of meaningful quality measures based on PROs.
authors.affiliation: VA Quality Scholars Program, Division of Rheumatology, San Francisco Veterans Affairs Medical Center, 4150 Clement Street, Building 1, Room 207-1, San Francisco, CA 94121, USA.
authors.forename: Elizabeth R
authors.initials: ER
authors.lastname: Wahl
authors.affiliation: Division of Rheumatology, Department of Internal Medicine, University of California, San Francisco, 1001 Potrero Avenue, Building SFGH 30, Room 3301, Box 0811, San Francisco, CA 94110, USA. Electronic address: jinoos.yazdany@ucsf.edu.
authors.forename: Jinoos
authors.initials: J
authors.lastname: Yazdany
mesh_terms: D003625:Data Collection; D006801:Humans; D008490:Medical Informatics; D010043:Outcome and Process Assessment, Health Care; D000071066:Patient Reported Outcome Measures; D019984:Quality Indicators, Health Care; D011787:Quality of Health Care; D015203:Reproducibility of Results; D012219:Rheumatology / Q000592:standards*; D013548:Sweden; D006113:United Kingdom; D014481:United States
keywords: Health care quality; Outcome measures; Patient-reported outcomes; Performance measures; Quality measures; Rheumatology