title: Non-Biological (Fictive Kin and Othermothers): Embracing the Need for a Culturally Appropriate Pedigree Nomenclature in African-American Families.
abstract: Although the Family Health History (FHH) is the most cost-effective tool in the staratification of disense risk, it is not designed to collect information from non-biological family members (NBFM). Significant NBFM, defined as "fictive kin and othermothers," tend to play a major role in the transmission of culture, health promotion, and decision-making; yet, their influence cannot be captured using the standard FHH. Participants attending the National Black Nurses Association (NBNA) 2012 genetic workshop were divided into groups to role-play FHH. All participants (N = 50) indicated difficulties with the standard FHH, ranking collection of sensitive data as the number 1 challenge. Consequently, a new symbol was developed with support from NBNA genetics workshop participants. Having such a symbol afforts an apportunity for inclusion of all NBFM to help guide risk-specific recommendations for disense management, prevention, and health promotion of common chronic diseases. This report will describe the process, presentation, and adoption of the symbol.
authors.affiliation: Medical University of South Carolina, College of Nursing, Charleston, SC.
authors.forename: Ida J
authors.initials: IJ
authors.lastname: Spruill
authors.affiliation: Nursing Research and Development, Nurse Practitioner, Heart Transplant and Mechanical Assist Device Programs, Heart Institute at Cedars Sinai Medical Center, Los Angeles, CA.
authors.forename: Bernice L
authors.initials: BL
authors.lastname: Coleman
authors.affiliation: Alcorn State University, School of Nursing, Natchez Campus, Natchez, MS.
authors.forename: Yolanda M
authors.initials: YM
authors.lastname: Powell-Young
authors.affiliation: Medical University of South Carolina, College of Nursing, Charleston, SC.
authors.forename: Tiffany H
authors.initials: TH
authors.lastname: Williams
authors.affiliation: Medical University of South Carolina, College of Nursing, Charleston, SC.
authors.forename: Gayenell
authors.initials: G
authors.lastname: Magwood
keywords: community mothers; culture; epigenetics; family history; nurses