title: Interoperability Architecture for a Paediatric Oncology European Reference Network.
abstract: With the Directive 2011/24/EU on patients' rights in cross-border healthcare and the related delegated decisions, the European Commission defined a legal framework on how healthcare shall be organised by European Union (EU) member states (MS) where patients can move beyond the borders of their home country. Among other aspects, Article 12 of the directive is concerned with supporting MS with the development of so called European Reference Networks (ERN), dedicated to the treatment of "patients with a medical condition requiring a particular concentration of expertise in medical domains where expertise is rare". In the "European Expert Paediatric Oncology Reference Network for Diagnostics and Treatment" (ExPO-r-Net) project, the establishment of such an ERN in the domain of Paediatric Oncology is currently piloted. The present paper describes the high level use cases, the main requirements and a corresponding interoperability architecture capable to serve as the necessary IT platform to facilitate cross-border health data exchange.
authors.affiliation: AIT Austrian Institute of Technology GmbH, Austria.
authors.forename: Michael
authors.initials: M
authors.lastname: Nitzlnader
authors.affiliation: Hospital Universitari i Politècnic La Fe, Valencia, Spain.
authors.forename: Adela
authors.initials: A
authors.lastname: Canete Nieto
authors.affiliation: Hospital Universitari i Politècnic La Fe, Valencia, Spain.
authors.forename: Antonio Juan
authors.initials: AJ
authors.lastname: Ribelles
authors.affiliation: CCRI, Children's Cancer Research Institute, Vienna, Austria.
authors.forename: Barbara
authors.initials: B
authors.lastname: Brunmair
authors.affiliation: CCRI, Children's Cancer Research Institute, Vienna, Austria.
authors.forename: Ruth
authors.initials: R
authors.lastname: Ladenstein
authors.affiliation: AIT Austrian Institute of Technology GmbH, Austria.
authors.forename: Günter
authors.initials: G
authors.lastname: Schreier
mesh_terms: D002648:Child; D005062:European Union; D006801:Humans; D033181:Information Dissemination / Q000379:methods; D007391:International Cooperation; D008490:Medical Informatics / Q000458:organization & administration; D008495:Medical Oncology / Q000458:organization & administration*; D035583:Rare Diseases / Q000175:diagnosis / Q000473:pathology / Q000628:therapy