title: Patient-Reported Outcomes in Axial Spondyloarthritis.
abstract: Axial spondyloarthritis (axSpA), a subtype of spondyloarthritis, is a debilitating inflammatory condition involving the spinal and sacroiliac joints, contributing to a significant diminution in quality of life. Historically, characterization of patient outcomes in axSpA has been a challenge due to the lack of data from longitudinal epidemiologic studies and the nonspecific nature of inflammatory laboratory markers to monitor disease activity. In this review, measures developed to address these clinical domains are discussed and compared, of which 3 are commonly used in diagnosis and therapeutic planning. Provider data regarding utilization of these measures are also included to clarify current clinical practice trends.
authors.affiliation: Veterans Affairs Medical Center (VAMC), Denver, CO, USA; University of Colorado School of Medicine, Aurora, CO, USA.
authors.forename: Derek T
authors.initials: DT
authors.lastname: Nhan
authors.affiliation: Veterans Affairs Medical Center (VAMC), Denver, CO, USA; University of Colorado School of Medicine, Aurora, CO, USA. Electronic address: liron.caplan@ucdenver.edu.
authors.forename: Liron
authors.initials: L
authors.lastname: Caplan
mesh_terms: D000203:Activities of Daily Living; D006801:Humans; D000071066:Patient Reported Outcome Measures; D011788:Quality of Life; D015203:Reproducibility of Results; D012720:Severity of Illness Index; D025242:Spondylarthropathies / Q000503:physiopathology; D013167:Spondylitis, Ankylosing / Q000503:physiopathology*; D011795:Surveys and Questionnaires
keywords: Ankylosing spondylitis; Axial spondyloarthritis; Patient outcome assessment