title: Patient-Reported Outcome Measures in Systemic Sclerosis (Scleroderma).
abstract: Scleroderma (systemic sclerosis) is a rare autoimmune connective tissue disease that can damage multiple organs and reduce quality of life. Patient-reported outcome measures capture the patient's perspective. Some measures are specific to systemic sclerosis and others are general. Patient-reported outcomes in systemic sclerosis are important to aid in understanding the impact of systemic sclerosis on patients.
authors.affiliation: Faculty of Medicine, SJHC, Schulich School of Medicine and Dentistry, University of Western Ontario, c/o Rheumatology, 268 Grosvenor Street, London, Ontario N6A 4V2, Canada.
authors.forename: Russell E
authors.initials: RE
authors.lastname: Pellar
authors.affiliation: Faculty of Medicine, SJHC, Schulich School of Medicine and Dentistry, University of Western Ontario, c/o Rheumatology, 268 Grosvenor Street, London, Ontario N6A 4V2, Canada.
authors.forename: Theresa M
authors.initials: TM
authors.lastname: Tingey
authors.affiliation: University of Western Ontario, London, Ontario, Canada; Rheumatology, Department of Medicine, St. Joseph's Health Care, 268 Grosvenor Street, London, Ontario N6A 4V2, Canada. Electronic address: janet.pope@sjhc.london.on.ca.
authors.forename: Janet Elizabeth
authors.initials: JE
authors.lastname: Pope
mesh_terms: D000203:Activities of Daily Living; D006801:Humans; D008603:Mental Health; D000071066:Patient Reported Outcome Measures; D011788:Quality of Life; D012595:Scleroderma, Systemic / Q000503:physiopathology*; D058992:Social Participation; D011795:Surveys and Questionnaires
keywords: Health-related quality of life; Patient-reported outcome measures; Patient-reported outcomes; Scleroderma; Systemic sclerosis