title: Privacy, Security, and Patient Engagement: The Changing Health Data Governance Landscape.
abstract: BACKGROUND
  The rapid emergence of new technologies support collection and use of a wide variety of data from clinical, genomic, social and behavioral, environmental, and financial sources, and have a great impact on the governance of personal health information.
  The papers in this special issue on governance touch on the topic from a variety of focuses, including leadership perspectives, local and federal case studies, and the future importance of patient engagement.
  This special issue focuses on three major themes-that data governance is growing in importance and presenting new challenges that must be addressed, that health care organizations must prioritize governance design, implementation, and functions as a priority, and that governance seems to be naturally converging on an archetype as described by this set of papers.
  In order to deal with issues such as data de- and re-identification, data governance must be studied as its own field.
authors.affiliation: Perelman School of Medicine, University of Pennsylvania.
authors.forename: John H
authors.initials: JH
authors.lastname: Holmes
keywords: Mini Sentinel; Open Data; PCORnet; data governance; data policy; distributed research network; learning healthcare system