title: A Systematic Review on Confidentiality, Disclosure, and Stigma in the United States: Lessons for HIV Care in Pregnancy From Reproductive Genetics.
abstract: The fields of HIV care in pregnancy and reproductive genetics have always been 'exceptional' in that patients are highly concerned about the potential for stigma and the corresponding need for privacy and confidentiality. However, the two fields have diverged in how they have addressed these concerns. The systematic review analyzed 61 manuscripts for similarities and differences between the fields of HIV care in pregnancy and reproductive genetics in the United States, with respect to privacy, confidentiality, disclosure, and stigma. The systematic review revealed that the field of HIV care in pregnancy has insufficiently addressed patient concerns about privacy, confidentiality, and stigma compared to the field of reproductive genetics. Failure to adequately protect confidentiality of HIV-positive patients, and failure to reduce stigma associated with HIV testing and treatment are deficiencies in the delivery of care to HIV-positive pregnant woman and barriers to reducing vertical transmission of HIV. Improvements in care and policy should mirror the field of reproductive genetics.
authors.forename: Barbara
authors.initials: B
authors.lastname: Wilkinson
authors.forename: Kavita Shah
authors.initials: KS
authors.lastname: Arora
mesh_terms: D000328:Adult; D003219:Confidentiality / Q000941:ethics* / Q000639:trends; D030881:Disclosure / Q000941:ethics* / Q000639:trends; D005260:Female; D005826:Genetics, Medical / Q000941:ethics* / Q000592:standards / Q000639:trends; D015658:HIV Infections / Q000175:diagnosis / Q000628:therapy; D006801:Humans; D018445:Infectious Disease Transmission, Vertical / Q000517:prevention & control*; D011247:Pregnancy; D011251:Pregnancy Complications, Infectious / Q000175:diagnosis / Q000628:therapy; D057545:Social Stigma; D014481:United States