title: A Website Intervention to Increase Knowledge About Living Kidney Donation and Transplantation Among Hispanic/Latino Dialysis Patients.
abstract: BACKGROUND
  Hispanic dialysis patients often encounter barriers to learning about living kidney donation and transplantation. Effective culturally targeted interventions to increase knowledge are lacking. We developed a culturally targeted educational website to enhance informed treatment decision making for end-stage kidney disease.
  
  
  METHODS
  A pretest/posttest intervention study was conducted among adult Hispanic patients undergoing dialysis at 5 dialysis centers in Chicago, Illinois. Surveys included a 31-item, multiple-choice pretest/posttest of knowledge about kidney transplantation and living donation, attitudes about the website, Internet use, and demographics. The intervention entailed viewing 3 of 6 website sections for a total of 30 minutes. The pretest/posttest was administered immediately before and after the intervention. Participants completed a second posttest via telephone 3 weeks thereafter to assess knowledge retention, attitudes, and use of the website.
  
  
  RESULTS
  Sixty-three patients participated (96% participation rate). Website exposure was associated with a mean 17.1% same day knowledge score increase between pretest and posttest (P < .001). At 3 weeks, participants' knowledge scores remained 11.7% above pretest (P < .001). The greatest knowledge gain from pretest to 3-week follow-up occurred in the Treatment Options (P < .0001) and Cultural Beliefs and Myths (P < .0001) website sections. Most participants (95%) "agreed" or "strongly agreed" that they would recommend the website to other Hispanics.
  
  
  CONCLUSIONS
  Web-based education for patients undergoing dialysis can effectively increase Hispanics' knowledge about transplantation and living kidney donation. Study limitations include small sample size and single geographic region study. Dialysis facilities could enable website access as a method of satisfying policy requirements to provide education about kidney transplantation.
authors.affiliation: Center for Healthcare Studies, Feinberg School of Medicine, Northwestern University, Chicago, IL, USA Comprehensive Transplant Center, Feinberg School of Medicine, Northwestern University, Chicago, IL, USA e-gordon@northwestern.edu.
authors.forename: Elisa J
authors.initials: EJ
authors.lastname: Gordon
authors.affiliation: Division of General Internal Medicine and Geriatrics, Department of Medicine, Feinberg School of Medicine, Northwestern University, Chicago, IL, USA.
authors.forename: Joe
authors.initials: J
authors.lastname: Feinglass
authors.affiliation: Department of Health Sciences, Chicago State University, Chicago, IL, USA.
authors.forename: Paula
authors.initials: P
authors.lastname: Carney
authors.affiliation: Center for Healthcare Studies, Feinberg School of Medicine, Northwestern University, Chicago, IL, USA.
authors.forename: Karina
authors.initials: K
authors.lastname: Vera
authors.affiliation: Feinberg School of Medicine, Northwestern University, Chicago, IL, USA.
authors.forename: Maria
authors.initials: M
authors.lastname: Olivero
authors.affiliation: Feinberg School of Medicine, Northwestern University, Chicago, IL, USA.
authors.forename: Anne
authors.initials: A
authors.lastname: Black
authors.affiliation: Grant Healthcare Foundation, Lake Forest, IL, USA.
authors.forename: Kate Grubbs
authors.initials: KG
authors.lastname: O'Connor
authors.affiliation: Robert H. Lurie Comprehensive Cancer Center, Feinberg School of Medicine, Northwestern University, Chicago, IL, USA.
authors.forename: Jessica MacLean
authors.initials: JM
authors.lastname: Baumgart
authors.affiliation: Division of General Internal Medicine and Geriatrics, Department of Medicine, Feinberg School of Medicine, Northwestern University, Chicago, IL, USA Hispanic Transplant Program, Northwestern Memorial Hospital, Chicago, IL, USA.
authors.forename: Juan Carlos
authors.initials: JC
authors.lastname: Caicedo
mesh_terms: D000328:Adult; D000068456:Clinical Studies as Topic; D003194:Computer-Assisted Instruction / Q000379:methods*; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006630:Hispanic or Latino / Q000193:education*; D006801:Humans; D020407:Internet; D007676:Kidney Failure, Chronic / Q000628:therapy*; D016030:Kidney Transplantation; D019520:Living Donors; D008297:Male; D008875:Middle Aged; D006435:Renal Dialysis
keywords: eHealth intervention; ethics; ethnicity; kidney transplantation; living donation; undocumented immigrant