title: Patient-Reported Outcomes in Systemic Lupus Erythematosus.
abstract: Successful management of complex conditions such as systemic lupus erythematosus (SLE) and comorbid conditions benefit from patient-reported outcomes (PRO). Measuring health-related quality of life with PROs provides SLE patients with an opportunity to participate in their treatment and to facilitate better communication with the multidisciplinary team involved in their care. Health outcomes research has produced well-validated instruments that can be used across diseases; others have been specifically developed for SLE. The use of generic and SLE-specific PROs depends on needs, including population monitoring, treatment decision making, clinical trials research, and for evaluating and comparing the effect of therapies.
authors.affiliation: Division of Rheumatology/ Department of Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL.
authors.forename: Mary
authors.initials: M
authors.lastname: Mahieu
authors.affiliation: Department of Medicine Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL.
authors.forename: Susan
authors.initials: S
authors.lastname: Yount
authors.affiliation: Division of Rheumatology/ Department of Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL.
authors.forename: Rosalind
authors.initials: R
authors.lastname: Ramsey-Goldman
mesh_terms: D006801:Humans; D008180:Lupus Erythematosus, Systemic / Q000503:physiopathology*; D000071066:Patient Reported Outcome Measures; D011788:Quality of Life; D011795:Surveys and Questionnaires
keywords: Patient-reported outcomes (PROs); Quality of life (QoL); Systemic lupus erythematosus (SLE, lupus)