title: Development and Validation of a Short Form of the Social Role Participation Questionnaire in Patients with Ankylosing Spondylitis.
abstract: The Social Role Participation Questionnaire (SRPQ) assesses the influence of health on 11 specific roles and 1 general role along 4 dimensions. In this study, a shortened version of the SRPQ (s-SRPQ) was developed in patients with ankylosing spondylitis (AS) to facilitate data collection in clinical studies and practice.
  
  
  
  Using data from 246 patients with AS and population controls, the fit of each role to the different participation dimensions, the contribution of each role to the measurement precision, and the correlation between dimensions were evaluated using item response theory. Representation of the 3 participation chapters of the International Classification of Functioning, Disability, and Health was ensured. Reliability of each dimension of both versions of the SRPQ was compared by correlating scores to the Medical Outcomes Study Short Form-36 (SF-36) and the Satisfaction With Life Scale (SWLS), and by comparing ability to discriminate between patients and controls and between patients with low and high disease activity (Bath Ankylosing Spondylitis Disease Activity Index ≥ 4).
  
  
  
  The s-SRPQ, which assesses participation across 6 social roles along 2 dimensions (physical difficulty and satisfaction with performance), was proposed. Both dimensions of the s-SRPQ were highly reliable (r ≥ 0.86) and were shown to have construct validity as indicated by a similar pattern of correlations with the SF-36 and SWLS as the original SRPQ dimensions. Both versions discriminated well between patients and controls and between patients with high versus low disease activity (relative validity ≥ 0.72).
  
  
  
  The s-SRPQ retains the measurement properties of the original SRPQ and seems useful for measuring the effect of AS on participation.
authors.affiliation: From the Arthritis Centre Twente; Department of Psychology, Health and Technology, University of Twente, Enschede; Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre; School for Public Health and Primary Care (CAPHRI), Maastricht University, Maastricht; Rheumatology, Leiden University Medical Center; Department of Rheumatology, Sint Laurentius hospital Roermond, Roermond; Sint Jans Gasthuis Weert, Weert; Department of Rheumatology, University Medical Center Groningen, Groningen; Department of Rheumatology, Medical Center Leeuwarden, Leeuwarden; Department of Rheumatology, Erasmus Medical Center Rotterdam, Rotterdam, the Netherlands; Institute for Work and Health; Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada.M. Oude Voshaar*, PhD, Arthritis Centre Twente, and Department of Psychology, Health and Technology, University of Twente; M. van Onna*, MD, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, CAPHRI, Maastricht University; S. van Genderen, MSc, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, and CAPHRI, Maastricht University; M. van de Laar, MD, PhD, Arthritis Centre Twente, and University of Twente; D. van der Heijde, MD, PhD, Professor of Rheumatology, Rheumatology, Leiden University Medical Center; L. Heuft, MD, PhD, Department of Rheumatology, Sint Laurentius Hospital Roermond, and Sint Jans Gasthuis Weert; A. Spoorenberg, MD, PhD, Department of Rheumatology, University Medical Center Groningen, and Department of Rheumatology, Medical Center Leeuwarden; J. Luime, PhD, Department of Rheumatology, Erasmus Medical Center Rotterdam; M. Gignac, PhD, Institute for Work and Health, and the Dalla Lana School of Public Health, University of Toronto; A. Boonen, MD, PhD, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, and CAPHRI, Maastricht University. *Equal contribution. a.h.oude
authors.forename: Martijn
authors.initials: M
authors.lastname: Oude Voshaar
authors.affiliation: From the Arthritis Centre Twente; Department of Psychology, Health and Technology, University of Twente, Enschede; Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre; School for Public Health and Primary Care (CAPHRI), Maastricht University, Maastricht; Rheumatology, Leiden University Medical Center; Department of Rheumatology, Sint Laurentius hospital Roermond, Roermond; Sint Jans Gasthuis Weert, Weert; Department of Rheumatology, University Medical Center Groningen, Groningen; Department of Rheumatology, Medical Center Leeuwarden, Leeuwarden; Department of Rheumatology, Erasmus Medical Center Rotterdam, Rotterdam, the Netherlands; Institute for Work and Health; Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada.M. Oude Voshaar*, PhD, Arthritis Centre Twente, and Department of Psychology, Health and Technology, University of Twente; M. van Onna*, MD, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, CAPHRI, Maastricht University; S. van Genderen, MSc, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, and CAPHRI, Maastricht University; M. van de Laar, MD, PhD, Arthritis Centre Twente, and University of Twente; D. van der Heijde, MD, PhD, Professor of Rheumatology, Rheumatology, Leiden University Medical Center; L. Heuft, MD, PhD, Department of Rheumatology, Sint Laurentius Hospital Roermond, and Sint Jans Gasthuis Weert; A. Spoorenberg, MD, PhD, Department of Rheumatology, University Medical Center Groningen, and Department of Rheumatology, Medical Center Leeuwarden; J. Luime, PhD, Department of Rheumatology, Erasmus Medical Center Rotterdam; M. Gignac, PhD, Institute for Work and Health, and the Dalla Lana School of Public Health, University of Toronto; A. Boonen, MD, PhD, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, and CAPHRI, Maastricht University. *Equal contribution.
authors.forename: Marloes
authors.initials: M
authors.lastname: van Onna
authors.affiliation: From the Arthritis Centre Twente; Department of Psychology, Health and Technology, University of Twente, Enschede; Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre; School for Public Health and Primary Care (CAPHRI), Maastricht University, Maastricht; Rheumatology, Leiden University Medical Center; Department of Rheumatology, Sint Laurentius hospital Roermond, Roermond; Sint Jans Gasthuis Weert, Weert; Department of Rheumatology, University Medical Center Groningen, Groningen; Department of Rheumatology, Medical Center Leeuwarden, Leeuwarden; Department of Rheumatology, Erasmus Medical Center Rotterdam, Rotterdam, the Netherlands; Institute for Work and Health; Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada.M. Oude Voshaar*, PhD, Arthritis Centre Twente, and Department of Psychology, Health and Technology, University of Twente; M. van Onna*, MD, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, CAPHRI, Maastricht University; S. van Genderen, MSc, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, and CAPHRI, Maastricht University; M. van de Laar, MD, PhD, Arthritis Centre Twente, and University of Twente; D. van der Heijde, MD, PhD, Professor of Rheumatology, Rheumatology, Leiden University Medical Center; L. Heuft, MD, PhD, Department of Rheumatology, Sint Laurentius Hospital Roermond, and Sint Jans Gasthuis Weert; A. Spoorenberg, MD, PhD, Department of Rheumatology, University Medical Center Groningen, and Department of Rheumatology, Medical Center Leeuwarden; J. Luime, PhD, Department of Rheumatology, Erasmus Medical Center Rotterdam; M. Gignac, PhD, Institute for Work and Health, and the Dalla Lana School of Public Health, University of Toronto; A. Boonen, MD, PhD, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, and CAPHRI, Maastricht University. *Equal contribution.
authors.forename: Simon
authors.initials: S
authors.lastname: van Genderen
authors.affiliation: From the Arthritis Centre Twente; Department of Psychology, Health and Technology, University of Twente, Enschede; Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre; School for Public Health and Primary Care (CAPHRI), Maastricht University, Maastricht; Rheumatology, Leiden University Medical Center; Department of Rheumatology, Sint Laurentius hospital Roermond, Roermond; Sint Jans Gasthuis Weert, Weert; Department of Rheumatology, University Medical Center Groningen, Groningen; Department of Rheumatology, Medical Center Leeuwarden, Leeuwarden; Department of Rheumatology, Erasmus Medical Center Rotterdam, Rotterdam, the Netherlands; Institute for Work and Health; Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada.M. Oude Voshaar*, PhD, Arthritis Centre Twente, and Department of Psychology, Health and Technology, University of Twente; M. van Onna*, MD, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, CAPHRI, Maastricht University; S. van Genderen, MSc, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, and CAPHRI, Maastricht University; M. van de Laar, MD, PhD, Arthritis Centre Twente, and University of Twente; D. van der Heijde, MD, PhD, Professor of Rheumatology, Rheumatology, Leiden University Medical Center; L. Heuft, MD, PhD, Department of Rheumatology, Sint Laurentius Hospital Roermond, and Sint Jans Gasthuis Weert; A. Spoorenberg, MD, PhD, Department of Rheumatology, University Medical Center Groningen, and Department of Rheumatology, Medical Center Leeuwarden; J. Luime, PhD, Department of Rheumatology, Erasmus Medical Center Rotterdam; M. Gignac, PhD, Institute for Work and Health, and the Dalla Lana School of Public Health, University of Toronto; A. Boonen, MD, PhD, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, and CAPHRI, Maastricht University. *Equal contribution.
authors.forename: Mart
authors.initials: M
authors.lastname: van de Laar
authors.affiliation: From the Arthritis Centre Twente; Department of Psychology, Health and Technology, University of Twente, Enschede; Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre; School for Public Health and Primary Care (CAPHRI), Maastricht University, Maastricht; Rheumatology, Leiden University Medical Center; Department of Rheumatology, Sint Laurentius hospital Roermond, Roermond; Sint Jans Gasthuis Weert, Weert; Department of Rheumatology, University Medical Center Groningen, Groningen; Department of Rheumatology, Medical Center Leeuwarden, Leeuwarden; Department of Rheumatology, Erasmus Medical Center Rotterdam, Rotterdam, the Netherlands; Institute for Work and Health; Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada.M. Oude Voshaar*, PhD, Arthritis Centre Twente, and Department of Psychology, Health and Technology, University of Twente; M. van Onna*, MD, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, CAPHRI, Maastricht University; S. van Genderen, MSc, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, and CAPHRI, Maastricht University; M. van de Laar, MD, PhD, Arthritis Centre Twente, and University of Twente; D. van der Heijde, MD, PhD, Professor of Rheumatology, Rheumatology, Leiden University Medical Center; L. Heuft, MD, PhD, Department of Rheumatology, Sint Laurentius Hospital Roermond, and Sint Jans Gasthuis Weert; A. Spoorenberg, MD, PhD, Department of Rheumatology, University Medical Center Groningen, and Department of Rheumatology, Medical Center Leeuwarden; J. Luime, PhD, Department of Rheumatology, Erasmus Medical Center Rotterdam; M. Gignac, PhD, Institute for Work and Health, and the Dalla Lana School of Public Health, University of Toronto; A. Boonen, MD, PhD, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, and CAPHRI, Maastricht University. *Equal contribution.
authors.forename: Désirée
authors.initials: D
authors.lastname: van der Heijde
authors.affiliation: From the Arthritis Centre Twente; Department of Psychology, Health and Technology, University of Twente, Enschede; Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre; School for Public Health and Primary Care (CAPHRI), Maastricht University, Maastricht; Rheumatology, Leiden University Medical Center; Department of Rheumatology, Sint Laurentius hospital Roermond, Roermond; Sint Jans Gasthuis Weert, Weert; Department of Rheumatology, University Medical Center Groningen, Groningen; Department of Rheumatology, Medical Center Leeuwarden, Leeuwarden; Department of Rheumatology, Erasmus Medical Center Rotterdam, Rotterdam, the Netherlands; Institute for Work and Health; Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada.M. Oude Voshaar*, PhD, Arthritis Centre Twente, and Department of Psychology, Health and Technology, University of Twente; M. van Onna*, MD, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, CAPHRI, Maastricht University; S. van Genderen, MSc, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, and CAPHRI, Maastricht University; M. van de Laar, MD, PhD, Arthritis Centre Twente, and University of Twente; D. van der Heijde, MD, PhD, Professor of Rheumatology, Rheumatology, Leiden University Medical Center; L. Heuft, MD, PhD, Department of Rheumatology, Sint Laurentius Hospital Roermond, and Sint Jans Gasthuis Weert; A. Spoorenberg, MD, PhD, Department of Rheumatology, University Medical Center Groningen, and Department of Rheumatology, Medical Center Leeuwarden; J. Luime, PhD, Department of Rheumatology, Erasmus Medical Center Rotterdam; M. Gignac, PhD, Institute for Work and Health, and the Dalla Lana School of Public Health, University of Toronto; A. Boonen, MD, PhD, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, and CAPHRI, Maastricht University. *Equal contribution.
authors.forename: Liesbeth
authors.initials: L
authors.lastname: Heuft
authors.affiliation: From the Arthritis Centre Twente; Department of Psychology, Health and Technology, University of Twente, Enschede; Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre; School for Public Health and Primary Care (CAPHRI), Maastricht University, Maastricht; Rheumatology, Leiden University Medical Center; Department of Rheumatology, Sint Laurentius hospital Roermond, Roermond; Sint Jans Gasthuis Weert, Weert; Department of Rheumatology, University Medical Center Groningen, Groningen; Department of Rheumatology, Medical Center Leeuwarden, Leeuwarden; Department of Rheumatology, Erasmus Medical Center Rotterdam, Rotterdam, the Netherlands; Institute for Work and Health; Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada.M. Oude Voshaar*, PhD, Arthritis Centre Twente, and Department of Psychology, Health and Technology, University of Twente; M. van Onna*, MD, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, CAPHRI, Maastricht University; S. van Genderen, MSc, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, and CAPHRI, Maastricht University; M. van de Laar, MD, PhD, Arthritis Centre Twente, and University of Twente; D. van der Heijde, MD, PhD, Professor of Rheumatology, Rheumatology, Leiden University Medical Center; L. Heuft, MD, PhD, Department of Rheumatology, Sint Laurentius Hospital Roermond, and Sint Jans Gasthuis Weert; A. Spoorenberg, MD, PhD, Department of Rheumatology, University Medical Center Groningen, and Department of Rheumatology, Medical Center Leeuwarden; J. Luime, PhD, Department of Rheumatology, Erasmus Medical Center Rotterdam; M. Gignac, PhD, Institute for Work and Health, and the Dalla Lana School of Public Health, University of Toronto; A. Boonen, MD, PhD, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, and CAPHRI, Maastricht University. *Equal contribution.
authors.forename: Anneke
authors.initials: A
authors.lastname: Spoorenberg
authors.affiliation: From the Arthritis Centre Twente; Department of Psychology, Health and Technology, University of Twente, Enschede; Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre; School for Public Health and Primary Care (CAPHRI), Maastricht University, Maastricht; Rheumatology, Leiden University Medical Center; Department of Rheumatology, Sint Laurentius hospital Roermond, Roermond; Sint Jans Gasthuis Weert, Weert; Department of Rheumatology, University Medical Center Groningen, Groningen; Department of Rheumatology, Medical Center Leeuwarden, Leeuwarden; Department of Rheumatology, Erasmus Medical Center Rotterdam, Rotterdam, the Netherlands; Institute for Work and Health; Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada.M. Oude Voshaar*, PhD, Arthritis Centre Twente, and Department of Psychology, Health and Technology, University of Twente; M. van Onna*, MD, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, CAPHRI, Maastricht University; S. van Genderen, MSc, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, and CAPHRI, Maastricht University; M. van de Laar, MD, PhD, Arthritis Centre Twente, and University of Twente; D. van der Heijde, MD, PhD, Professor of Rheumatology, Rheumatology, Leiden University Medical Center; L. Heuft, MD, PhD, Department of Rheumatology, Sint Laurentius Hospital Roermond, and Sint Jans Gasthuis Weert; A. Spoorenberg, MD, PhD, Department of Rheumatology, University Medical Center Groningen, and Department of Rheumatology, Medical Center Leeuwarden; J. Luime, PhD, Department of Rheumatology, Erasmus Medical Center Rotterdam; M. Gignac, PhD, Institute for Work and Health, and the Dalla Lana School of Public Health, University of Toronto; A. Boonen, MD, PhD, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, and CAPHRI, Maastricht University. *Equal contribution.
authors.forename: Jolanda
authors.initials: J
authors.lastname: Luime
authors.affiliation: From the Arthritis Centre Twente; Department of Psychology, Health and Technology, University of Twente, Enschede; Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre; School for Public Health and Primary Care (CAPHRI), Maastricht University, Maastricht; Rheumatology, Leiden University Medical Center; Department of Rheumatology, Sint Laurentius hospital Roermond, Roermond; Sint Jans Gasthuis Weert, Weert; Department of Rheumatology, University Medical Center Groningen, Groningen; Department of Rheumatology, Medical Center Leeuwarden, Leeuwarden; Department of Rheumatology, Erasmus Medical Center Rotterdam, Rotterdam, the Netherlands; Institute for Work and Health; Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada.M. Oude Voshaar*, PhD, Arthritis Centre Twente, and Department of Psychology, Health and Technology, University of Twente; M. van Onna*, MD, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, CAPHRI, Maastricht University; S. van Genderen, MSc, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, and CAPHRI, Maastricht University; M. van de Laar, MD, PhD, Arthritis Centre Twente, and University of Twente; D. van der Heijde, MD, PhD, Professor of Rheumatology, Rheumatology, Leiden University Medical Center; L. Heuft, MD, PhD, Department of Rheumatology, Sint Laurentius Hospital Roermond, and Sint Jans Gasthuis Weert; A. Spoorenberg, MD, PhD, Department of Rheumatology, University Medical Center Groningen, and Department of Rheumatology, Medical Center Leeuwarden; J. Luime, PhD, Department of Rheumatology, Erasmus Medical Center Rotterdam; M. Gignac, PhD, Institute for Work and Health, and the Dalla Lana School of Public Health, University of Toronto; A. Boonen, MD, PhD, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, and CAPHRI, Maastricht University. *Equal contribution.
authors.forename: Monique
authors.initials: M
authors.lastname: Gignac
authors.affiliation: From the Arthritis Centre Twente; Department of Psychology, Health and Technology, University of Twente, Enschede; Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre; School for Public Health and Primary Care (CAPHRI), Maastricht University, Maastricht; Rheumatology, Leiden University Medical Center; Department of Rheumatology, Sint Laurentius hospital Roermond, Roermond; Sint Jans Gasthuis Weert, Weert; Department of Rheumatology, University Medical Center Groningen, Groningen; Department of Rheumatology, Medical Center Leeuwarden, Leeuwarden; Department of Rheumatology, Erasmus Medical Center Rotterdam, Rotterdam, the Netherlands; Institute for Work and Health; Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada.M. Oude Voshaar*, PhD, Arthritis Centre Twente, and Department of Psychology, Health and Technology, University of Twente; M. van Onna*, MD, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, CAPHRI, Maastricht University; S. van Genderen, MSc, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, and CAPHRI, Maastricht University; M. van de Laar, MD, PhD, Arthritis Centre Twente, and University of Twente; D. van der Heijde, MD, PhD, Professor of Rheumatology, Rheumatology, Leiden University Medical Center; L. Heuft, MD, PhD, Department of Rheumatology, Sint Laurentius Hospital Roermond, and Sint Jans Gasthuis Weert; A. Spoorenberg, MD, PhD, Department of Rheumatology, University Medical Center Groningen, and Department of Rheumatology, Medical Center Leeuwarden; J. Luime, PhD, Department of Rheumatology, Erasmus Medical Center Rotterdam; M. Gignac, PhD, Institute for Work and Health, and the Dalla Lana School of Public Health, University of Toronto; A. Boonen, MD, PhD, Department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, and CAPHRI, Maastricht University. *Equal contribution.
authors.forename: Annlies
authors.initials: A
authors.lastname: Boonen
mesh_terms: D000203:Activities of Daily Living; D000328:Adult; D000368:Aged; D004185:Disability Evaluation; D005260:Female; D006304:Health Status; D006801:Humans; D007398:Interpersonal Relations; D008297:Male; D008875:Middle Aged; D010549:Personal Satisfaction; D012720:Severity of Illness Index; D058992:Social Participation; D013167:Spondylitis, Ankylosing / Q000523:psychology*; D011795:Surveys and Questionnaires; D055815:Young Adult
keywords: ANKYLOSING SPONDYLITIS; OUTCOME ASSESSMENT; SOCIAL ROLE PARTICIPATION