title: A gap between the intention of the Swedish law and interactions between nurses and children of patients in the field of palliative oncology - The perspective of nurses.
abstract: OBJECTIVE
  Children who have a parent with incurable cancer are in a vulnerable situation and the Swedish law tries to protect them. This article aims to explore the interactions between nurses and children of patients with incurable cancer from the nurses' perspective.
  
  
  METHODS
  Semi-structured interviews with nine nurses in palliative oncology in Southern Sweden. Latent content analysis was carried out, inspired by Lundmann and Graneheim.
  
  
  RESULTS
  Parents are gatekeepers to the children's involvement and meetings with the healthcare professionals. Therefore the nurses were dependent on the parents for contact with their children. Additionally, nurses were subject to the structural frame of their working environment in terms of time, economy, resources and the medical logic ruling the priorities for nursing during their daily working day. The opportunities to pay attention to the children of patients were limited, despite good intentions, willingness and a favourable legal framework. Teenagers were regarded as a challenge, and per se they challenged the nurses' opportunities to gain control of the meetings and situations around the families.
  
  
  CONCLUSIONS
  Often nurses did not see and acknowledge the children of the palliative patient. They knew that the children were there and that it was important that they were there, but they challenged the order in the working environment in relation to time-allocated tasks and working flow. In the working environment patients were prioritised over relatives. From the perspective of nurses, there is a gap between the intentions of the Swedish law and the interactions between nurses and children.
authors.affiliation: Palliative and Advanced Homecare (ASIH) Lund, Sankt Lars väg 81 221 85 Lund, Sweden. Electronic address: hakima.karidar@skane.se.
authors.forename: Hakima
authors.initials: H
authors.lastname: Karidar
authors.affiliation: Home Nursing, Spaljegatan 10, 271 52 Ystad, Sweden. Electronic address: Helene.akesson@live.se.
authors.forename: Helene
authors.initials: H
authors.lastname: Åkesson
authors.affiliation: Integrative Health Research, Department of Health Sciences, Lund University, Box 157, 22100 Lund, Sweden. Electronic address: Stinne.Glasdam@med.lu.se.
authors.forename: Stinne
authors.initials: S
authors.lastname: Glasdam
mesh_terms: D000293:Adolescent; D000328:Adult; D001291:Attitude of Health Personnel; D002648:Child; D016241:Child of Impaired Parents / Q000331:legislation & jurisprudence*; D064946:Hospice and Palliative Care Nursing; D006801:Humans; D033182:Intention; D009369:Neoplasms / Q000451:nursing*; D009859:Oncology Nursing; D010290:Parents; D011368:Professional-Family Relations; D013548:Sweden
keywords: Children; Interactions; Interview study; Nurses; Palliative oncology; Teenagers