title: Patient-reported outcome measures in arthroplasty registries.
abstract: The International Society of Arthroplasty Registries (ISAR) Steering Committee established the Patient-Reported Outcome Measures (PROMs) Working Group to convene, evaluate, and advise on best practices in the selection, administration, and interpretation of PROMs and to support the adoption and use of PROMs for hip and knee arthroplasty in registries worldwide. The 2 main types of PROMs include generic (general health) PROMs, which provide a measure of general health for any health state, and specific PROMs, which focus on specific symptoms, diseases, organs, body regions, or body functions. The establishment of a PROM instrument requires the fulfillment of methodological standards and rigorous testing to ensure that it is valid, reliable, responsive, and acceptable to the intended population. A survey of the 41 ISAR member registries showed that 8 registries administered a PROMs program that covered all elective hip or knee arthroplasty patients and 6 registries collected PROMs for sample populations; 1 other registry had planned but had not started collection of PROMs. The most common generic instruments used were the EuroQol 5 dimension health outcome survey (EQ-5D) and the Short Form 12 health survey (SF-12) or the similar Veterans RAND 12-item health survey (VR-12). The most common specific PROMs were the Hip disability and Osteoarthritis Outcome Score (HOOS), the Knee injury and Osteoarthritis Outcome Score (KOOS), the Oxford Hip Score (OHS), the Oxford Knee Score (OKS), the Western Ontario and McMaster Universities Arthritis Index (WOMAC), and the University of California at Los Angeles Activity Score (UCLA).
authors.affiliation: a Swedish Hip Arthroplasty Register and Sahlgrenska Academy , University of Gothenburg , Gothenburg , Sweden ;
authors.forename: Ola
authors.initials: O
authors.lastname: Rolfson
authors.affiliation: b California Joint Replacement Registry , San Francisco , CA , USA ;
authors.forename: Kate
authors.initials: K
authors.lastname: Eresian Chenok
authors.affiliation: c Canadian Joint Replacement Registry and University of Manitoba , Winnipeg , Manitoba , Canada ;
authors.forename: Eric
authors.initials: E
authors.lastname: Bohm
authors.affiliation: d Geneva Arthroplasty Registry, Division of Orthopaedic Surgery , Geneva University Hospitals , Geneva , Switzerland ;
authors.forename: Anne
authors.initials: A
authors.lastname: Lübbeke
authors.affiliation: e Dutch Arthroplasty Register , Hertogenbosch , the Netherlands ;
authors.forename: Geke
authors.initials: G
authors.lastname: Denissen
authors.affiliation: f New Zealand Joint Registry and University of Otago , Christchurch , New Zealand ;
authors.forename: Jennifer
authors.initials: J
authors.lastname: Dunn
authors.affiliation: g Hospital for Special Surgery and Weill Cornell Medical College , New York , NY , USA ;
authors.forename: Stephen
authors.initials: S
authors.lastname: Lyman
authors.affiliation: h FORCE-TJR and University of Massachusetts Medical School , Worcester , MA , USA ;
authors.forename: Patricia
authors.initials: P
authors.lastname: Franklin
authors.affiliation: i Canadian Joint Replacement Registry and Dalhousie University , Halifax , Nova Scotia , Canada ;
authors.forename: Michael
authors.initials: M
authors.lastname: Dunbar
authors.affiliation: j Danish Hip Arthroplasty Register and University of Southern Denmark , Odense , Denmark ;
authors.forename: Søren
authors.initials: S
authors.lastname: Overgaard
authors.affiliation: a Swedish Hip Arthroplasty Register and Sahlgrenska Academy , University of Gothenburg , Gothenburg , Sweden ;
authors.forename: Göran
authors.initials: G
authors.lastname: Garellick
authors.affiliation: k Nuffield Department of Population Health and University of Oxford , Oxford , UK.
authors.forename: Jill
authors.initials: J
authors.lastname: Dawson
mesh_terms: D019645:Arthroplasty, Replacement, Knee; D006801:Humans; D000071066:Patient Reported Outcome Measures; D017060:Patient Satisfaction; D011788:Quality of Life; D012042:Registries; D011795:Surveys and Questionnaires; D016896:Treatment Outcome