title: Registry of Youth Onset Diabetes in India (YDR): Rationale, Recruitment, and Current Status.
abstract: With the aim of addressing the relative scarcity of information on youth-onset diabetes in India, the Indian Council of Medical Research (ICMR) decided to establish the Registry of People with Diabetes with Young Age at Onset (YDR) in 2006. The major objectives of YDR are to generate information on disease pattern or types of youth-onset diabetes including their geographical variations within India and to estimate the burden of diabetes complications.
  
  
  
  YDR is an observational multicenter clinic based registry enlisting physician diagnosed diabetes in individuals below 25 years of age. Diabetes was classified using symptom based clinical criteria. YDR data collection is coordinated through regional collaborating centers and their interacting reporting centers across India. A baseline and an annual follow-up proformas are used to obtain information on sociodemographic details, clinical profile, and anthropometric and laboratory measurements of the patients.
  
  
  
  In phase 1, the registry has enrolled 5546 patients, in which type 1 diabetes mellitus (T1DM) was the most prevalent (63.9%), followed by youth-onset type 2 diabetes mellitus (T2DM) (25.3%).
  
  
  
  This registry provides a unique opportunity to study the natural history of youth-onset diabetes in India.
authors.affiliation: All India Institute of Medical Sciences, New Delhi, India.
authors.forename: Pradeep A
authors.initials: PA
authors.lastname: Praveen
authors.affiliation: University College of Medical Sciences, Delhi, India.
authors.forename: Sri Venkata
authors.initials: SV
authors.lastname: Madhu
authors.affiliation: Madras Diabetes Research Foundation, Chennai, India.
authors.forename: Viswanathan
authors.initials: V
authors.lastname: Mohan
authors.affiliation: SCB Medical College and Hospital, Cuttuck, India.
authors.forename: Siddhartha
authors.initials: S
authors.lastname: Das
authors.affiliation: Assam Medical College, Dibrugarh, Assam, India.
authors.forename: Sanjeeb
authors.initials: S
authors.lastname: Kakati
authors.affiliation: Seth G S Medical College & K.E.M. Hospital, Mumbai, India.
authors.forename: Nalini
authors.initials: N
authors.lastname: Shah
authors.affiliation: PD Hinduja Hospital and Medical Research Centre, Mumbai, India.
authors.forename: Manoj
authors.initials: M
authors.lastname: Chaddha
authors.affiliation: Post Graduate Institute of Medical Education and Research, Chandigarh, India.
authors.forename: Sanjay Kumar
authors.initials: SK
authors.lastname: Bhadada
authors.affiliation: Pondicherry Institute of Medical Sciences, Puducherry, India.
authors.forename: Ashok Kumar
authors.initials: AK
authors.lastname: Das
authors.affiliation: Indian Council of Medical Research, New Delhi, India.
authors.forename: Deepak Kumar
authors.initials: DK
authors.lastname: Shukla
authors.affiliation: Indian Council of Medical Research, New Delhi, India.
authors.forename: Tanvir
authors.initials: T
authors.lastname: Kaur
authors.affiliation: All India Institute of Medical Sciences, New Delhi, India nikhil_tandon@hotmail.com.
authors.forename: Nikhil
authors.initials: N
authors.lastname: Tandon
mesh_terms: D003922:Diabetes Mellitus, Type 1 / Q000453:epidemiology*; D003924:Diabetes Mellitus, Type 2 / Q000453:epidemiology*; D005260:Female; D006801:Humans; D007194:India / Q000453:epidemiology; D008297:Male; D012042:Registries
keywords: diabetes registry; type 1 diabetes; type 2 diabetes; youth-onset diabetes