title: Administration of Home Intravenous Chemotherapy to Children by their Parents.
abstract: Caring for a child with cancer can disrupt family life and financial stability, in addition to affecting the child's social, emotional, and educational development. Health care providers must consider ways to minimize the negative impact of illness and hospitalization on the child and family. This study evaluates a nationwide initiative to educate and support parents to administer chemotherapy to their child in their home.
  
  
  
  A questionnaire was circulated to parents participating in a home chemotherapy program from 2009 to 2014 (n = 140), seeking their perspective on the education program, and the benefits and concerns associated with administering home chemotherapy. Data analysis was conducted using a combination of descriptive statistics and content analysis.
  
  
  
  Questionnaires were received from 108 parents (response rate = 77%). Overall, the program was positively evaluated with 100% of parents (n = 108) reporting that the training met their needs. More than one-third of parents (41%, n = 44) initially felt nervous about home chemotherapy but reported that the education program helped assuage their concerns. Benefits included reduced financial costs, reduced travel time to hospital, less disruption to family life, and less stress for the child and family. No medication errors were reported during the evaluation period.
  
  
  
  An important feature of the program is the partnership approach, which ensures that parents' decision to enter the program is informed, appropriate for their situation, and centered on the needs of the child.
authors.affiliation: 1 Our Lady's Children's Hospital Crumlin, Dublin, Ireland.
authors.forename: Claire
authors.initials: C
authors.lastname: McCall
authors.affiliation: 1 Our Lady's Children's Hospital Crumlin, Dublin, Ireland.
authors.forename: Michelle
authors.initials: M
authors.lastname: Mannion
authors.affiliation: 1 Our Lady's Children's Hospital Crumlin, Dublin, Ireland.
authors.forename: Carol
authors.initials: C
authors.lastname: Hilliard
authors.affiliation: 1 Our Lady's Children's Hospital Crumlin, Dublin, Ireland.
authors.forename: Pamela
authors.initials: P
authors.lastname: Lannon
authors.affiliation: 1 Our Lady's Children's Hospital Crumlin, Dublin, Ireland.
authors.forename: Fiona
authors.initials: F
authors.lastname: McKenna
authors.affiliation: 1 Our Lady's Children's Hospital Crumlin, Dublin, Ireland.
authors.forename: Aengus
authors.initials: A
authors.lastname: O'Marcaigh
authors.affiliation: 1 Our Lady's Children's Hospital Crumlin, Dublin, Ireland.
authors.forename: Teresa
authors.initials: T
authors.lastname: Slevin
authors.affiliation: 1 Our Lady's Children's Hospital Crumlin, Dublin, Ireland.
authors.forename: Owen
authors.initials: O
authors.lastname: Smith
authors.affiliation: 1 Our Lady's Children's Hospital Crumlin, Dublin, Ireland.
authors.forename: Lorna
authors.initials: L
authors.lastname: Storey
mesh_terms: D000328:Adult; D000970:Antineoplastic Agents / Q000008:administration & dosage*; D002648:Child; D002675:Child, Preschool; D005260:Female; D006282:Health Personnel; D018718:Home Infusion Therapy / Q000379:methods* / Q000523:psychology*; D006701:Home Nursing / Q000379:methods*; D006801:Humans; D008297:Male; D009369:Neoplasms / Q000451:nursing* / Q000523:psychology; D010287:Parent-Child Relations; D010290:Parents / Q000523:psychology*; D011795:Surveys and Questionnaires
chemical_list: D000970:Antineoplastic Agents
keywords: children; home chemotherapy; medication safety; oncology; parents; pediatric