title: Carers of people affected by cancer and other long-term conditions at end of life: A qualitative study of providing a bespoke package of support in a rural setting.
abstract: A UK charity, Macmillan Cancer Support has funded a local intervention, whereby carers of people affected by cancer and other long-term conditions at end of life are offered a bespoke package of support.
  
  
  
  This short report describes the qualitative experiences of carers in receipt of the intervention.
  
  
  
  Qualitative research utilising in-depth interviews. Discussions were digitally recorded and transcribed verbatim. Data were analysed using thematic analysis.
  
  
  
  Participants were carers ( n = 10) in receipt of the intervention. Interviews were conducted between August and September 2014 in Lincolnshire (England).
  
  
  
  Five themes from the interviews were identified: (1) Awareness and advertising, (2) focus of support on the carer, (3) modes of communication, (4) personal attributes and skills of the support worker (5) streamlining and signposting.
  
  
  
  The intervention was successful within a social care setting. The participants had no overtly negative opinions on the service in its current format and all held it in high regard. Carers felt a sense of reassurance from having background support and maintained that their situation would have been worse had this support not been there.
authors.affiliation: School of Health and Social Care, University of Lincoln, Lincoln, UK.
authors.forename: David
authors.initials: D
authors.lastname: Nelson
authors.affiliation: School of Health and Social Care, University of Lincoln, Lincoln, UK.
authors.forename: Paul
authors.initials: P
authors.lastname: Mansfield
authors.affiliation: School of Health and Social Care, University of Lincoln, Lincoln, UK.
authors.forename: Roslyn
authors.initials: R
authors.lastname: Kane
mesh_terms: D000328:Adult; D000368:Aged; D017028:Caregivers; D005260:Female; D006699:Home Care Services; D006801:Humans; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000451:nursing*; D010166:Palliative Care; D036301:Qualitative Research; D019035:Rural Health Services; D012944:Social Support; D013727:Terminal Care; D006113:United Kingdom
keywords: Carer; cancer; caregiver; end of life; palliative care; qualitative research; social support