title: Coping with Pain in the Face of Healthcare Injustice in Patients with Sickle Cell Disease.
abstract: To evaluate the pain coping strategies of patients with sickle cell disease (SCD) who experience healthcare injustice from either physicians or nurses during medical visits for pain management. It is unknown how patients' coping with pain relates to their experiences of healthcare injustice from physicians or nurses. This descriptive comparative study included adult outpatients with SCD who completed the PAINReportIt®, Healthcare Justice Questionnaire©, and Coping Strategies Questionnaire-SCD. Data were analyzed using independent t tests. Frequent coping strategies of patients who experienced healthcare justice from physicians were praying-hoping and from nurses were praying-hoping, calming self-statements, diverting attention, and increasing behavioral activity. In contrast, frequent coping strategies of patients who experienced healthcare injustice from physicians were catastrophizing and isolation and from nurses were isolation. Patients who experienced healthcare justice used different sets of pain coping strategies than those who experienced healthcare injustice during medical visits for pain management.
authors.affiliation: Department of Biobehavioral Nursing Science, College of Nursing, University of Florida, 1225 Center Drive, Room 3221, Gainesville, FL, 32610, USA. moezenwa@ufl.edu.
authors.forename: Miriam O
authors.initials: MO
authors.lastname: Ezenwa
authors.affiliation: Department of Biobehavioral Nursing Science, College of Nursing, University of Florida, 1225 Center Drive, Room 3221, Gainesville, FL, 32610, USA.
authors.forename: Yingwei
authors.initials: Y
authors.lastname: Yao
authors.affiliation: College of Medicine, College of Pharmacy, and Comprehensive Sickle Cell Center, University of Illinois at Chicago, Chicago, IL, USA.
authors.forename: Robert E
authors.initials: RE
authors.lastname: Molokie
authors.affiliation: Department of Biopharmaceutical Sciences, Cancer Center and Comprehensive Sickle Cell Center, University of Illinois at Chicago, Chicago, IL, USA.
authors.forename: Zaijie Jim
authors.initials: ZJ
authors.lastname: Wang
authors.affiliation: Division of Hematology/Oncology, Department of Medicine, University of Florida, Gainesville, FL, USA.
authors.forename: Molly W
authors.initials: MW
authors.lastname: Mandernach
authors.affiliation: Department of Biobehavioral Health Science (MC 802), College of Nursing, University of Illinois at Chicago, Chicago, IL, USA.
authors.forename: Marie L
authors.initials: ML
authors.lastname: Suarez
authors.affiliation: Department of Biobehavioral Nursing Science, College of Nursing, University of Florida, 1225 Center Drive, Room 3221, Gainesville, FL, 32610, USA.
authors.forename: Diana J
authors.initials: DJ
authors.lastname: Wilkie
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D000368:Aged; D000755:Anemia, Sickle Cell / Q000150:complications* / Q000523:psychology*; D001291:Attitude of Health Personnel; D003430:Cross-Sectional Studies; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D010146:Pain / Q000209:etiology* / Q000523:psychology*; D059408:Pain Management / Q000523:psychology*; D012959:Socioeconomic Factors; D055815:Young Adult
keywords: Healthcare injustice; Model of perceived unfairness; Pain coping strategies; Sickle cell disease