title: Priorities for Patient-Centered Outcomes Research: The Views of Minority and Underserved Communities.
abstract: To learn how minority and underserved communities would set priorities for patient-centered outcomes research (PCOR).
  
  
  
  Sixteen groups (n = 183) from minority and underserved communities in two states deliberated about PCOR priorities using the simulation exercise CHoosing All Together (CHAT). Most participants were minority, one-third reported income <$10,000, and one-fourth reported fair/poor health.
  
  
  
  Academic-community partnerships adapted CHAT for PCOR priority setting using existing research agendas and interviews with community leaders, clinicians, and key informants.
  
  
  
  Tablet-based CHAT collected demographic information, individual priorities before and after group deliberation, and groups' priorities.
  
  
  
  Individuals and groups prioritized research on Quality of Life, Patient-Doctor, Access, Special Needs, and (by total resources spent) Compare Approaches. Those with less than a high school education were less likely to prioritize New Approaches, Patient-Doctor, Quality of Life, and Families/Caregivers. Blacks were less likely to prioritize research on Causes of Disease, New Approaches, and Compare Approaches than whites. Compare Approaches, Special Needs, Access, and Families/Caregivers were significantly more likely to be selected by individuals after compared to before deliberation.
  
  
  
  Members of underserved communities, in informed deliberations, prioritized research on Quality of Life, Patient-Doctor, Special Needs, Access, and Compare Approaches.
authors.affiliation: Center for Bioethics and Social Sciences in Medicine, University of Michigan, Ann Arbor, MI.
authors.forename: Susan Dorr
authors.initials: SD
authors.lastname: Goold
authors.affiliation: Department of Political Science, University of Minnesota, Minneapolis, MN.
authors.forename: C Daniel
authors.initials: CD
authors.lastname: Myers
authors.affiliation: Center for Bioethics and Social Sciences in Medicine, University of Michigan, Ann Arbor, MI.
authors.forename: Lisa
authors.initials: L
authors.lastname: Szymecko
authors.affiliation: Mark Twain Regional Health Alliance, Van Buren, MO.
authors.forename: Carla
authors.initials: C
authors.lastname: Cunningham Collins
authors.affiliation: Community Renewal and Development, Inc., St. Louis, MO.
authors.forename: Sal
authors.initials: S
authors.lastname: Martinez
authors.affiliation: Acción Buenos Vecinos, Ann Arbor, MI.
authors.forename: Charo
authors.initials: C
authors.lastname: Ledón
authors.affiliation: Wayne State University College of Education VAC Program, YOUR Center, Flint, MI.
authors.forename: Terrance R
authors.initials: TR
authors.lastname: Campbell
authors.affiliation: Department of Bioethics, National Institutes of Health, Bethesda, MD.
authors.forename: Marion
authors.initials: M
authors.lastname: Danis
authors.affiliation: Department of Health Care Ethics, Albert Gnaegi Center for Health Care Ethics, Saint Louis University, St. Louis, MO.
authors.forename: Stephanie Solomon
authors.initials: SS
authors.lastname: Cargill
authors.affiliation: Center for Statistical Consultation and Research, University of Michigan, Ann Arbor, MI.
authors.forename: Hyungjin Myra
authors.initials: HM
authors.lastname: Kim
authors.affiliation: Friends of Parkside, Detroit, MI.
authors.forename: Zachary
authors.initials: Z
authors.lastname: Rowe
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001294:Attitude to Health; D005260:Female; D017144:Focus Groups; D006297:Health Services Accessibility; D006301:Health Services Needs and Demand; D006302:Health Services Research / Q000458:organization & administration / Q000592:standards; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D008875:Middle Aged; D008913:Minority Groups; D017063:Outcome Assessment, Health Care / Q000458:organization & administration / Q000592:standards; D018802:Patient-Centered Care / Q000458:organization & administration / Q000592:standards; D010817:Physician-Patient Relations; D011788:Quality of Life; D012106:Research; D035862:Vulnerable Populations; D055815:Young Adult
keywords: Patient-centered outcomes research; decision making; minority groups; research priorities; resource allocation