title: The Youth Health Care measure-satisfaction, utilization, and needs (YHC-SUN)-development of a self-report version of the Child Health Care (CHC-SUN) proxy-measure.
abstract: The transition of health care of youth (age 15-25) with chronic conditions requires the assessment of adolescents' access, use and needs as well as satisfaction with the health services they use. The aim of this study was to test the adolescent adaptation of the parent version "Child Health Care Questionnaire - Satisfaction, Utilization and Needs" (CHC-SUN) concerning its psychometric performance and appropriateness for adolescents and young adults.
  
  
  
  The Youth Health Care Measure (YHC-SUN) was designed to allow self-report of youth and it was pilot-tested in a small sample using cognitive debriefing. A cross-sectional survey in a sample of youth with chronic conditions in the transition period was carried out.
  
  
  
  One hundred eighty-two ambulatory care patients with three conditions participated in the survey. The subscales of the section on satisfaction with care showed excellent internal consistencies, uni-dimensionality and fit to the model of the parent version. There was no impact of gender and education on satisfaction with care. Associations with age, diagnosis, experiences with care and health literacy affecting the satisfaction with care indicate discriminatory and content validity.
  
  
  
  Potential applications of the new instrument are evaluations of health care services for adolescents and young adults using self-reports and evaluations of transition programs and interventions such as patient education.
authors.affiliation: Department Health and Prevention, Institute of Psychology, Ernst-Moritz-Arndt-University of Greifswald, Robert-Blum-Str. 13, 17489, Greifswald, Germany. Silke.Schmidt@uni-greifswald.de.
authors.forename: Silke
authors.initials: S
authors.lastname: Schmidt
authors.affiliation: Department of Child and Adolescent Medicine, University of Lübeck, Ratzeburger Allee 160, 23538, Lübeck, Germany.
authors.forename: Ute
authors.initials: U
authors.lastname: Thyen
authors.affiliation: Department Health and Prevention, Institute of Psychology, Ernst-Moritz-Arndt-University of Greifswald, Robert-Blum-Str. 13, 17489, Greifswald, Germany.
authors.forename: Carsten
authors.initials: C
authors.lastname: Herrmann-Garitz
authors.affiliation: Department of Child and Adolescent Medicine, University of Lübeck, Ratzeburger Allee 160, 23538, Lübeck, Germany.
authors.forename: Franziska
authors.initials: F
authors.lastname: Bomba
authors.affiliation: Department Health and Prevention, Institute of Psychology, Ernst-Moritz-Arndt-University of Greifswald, Robert-Blum-Str. 13, 17489, Greifswald, Germany.
authors.forename: Holger
authors.initials: H
authors.lastname: Muehlan
mesh_terms: D000293:Adolescent; D016497:Adolescent Health Services / Q000458:organization & administration; D000328:Adult; D000553:Ambulatory Care / Q000592:standards; D002648:Child; D002662:Child Health Services / Q000458:organization & administration; D002908:Chronic Disease / Q000628:therapy*; D003430:Cross-Sectional Studies; D005260:Female; D006801:Humans; D008297:Male; D010290:Parents / Q000523:psychology; D017060:Patient Satisfaction; D010549:Personal Satisfaction; D019727:Proxy; D011594:Psychometrics; D057566:Self Report; D011795:Surveys and Questionnaires / Q000592:standards*; D060305:Transition to Adult Care / Q000592:standards*; D055815:Young Adult
keywords: Pediatric health service research, Coordination of care, Transition, Adolescents with chronic conditions, CHC; SUN (= Child Health Care; SUN (= Youth Health Care; Satisfaction, Utilization and Needs); Satisfaction, Utilization and Needs), YHC