title: Challenges In Recruiting Patients For The Linguistic Validation Of Pro Instruments Developed For Rare Diseases: A Case Study With Alagille Syndrome.
authors.affiliation: Lumena, San Diego, CA, USA.
authors.forename: C
authors.initials: C
authors.lastname: Kennedy
authors.affiliation: Patient-Centred Outcomes Assessments LTD, Macclesfield, Cheshire, UK.
authors.forename: L
authors.initials: L
authors.lastname: Abetz-Webb
authors.affiliation: Mapi, Lyon, France.
authors.forename: J
authors.initials: J
authors.lastname: Lambe