title: Provider and Patient Attitudes Regarding Sexual Health in Young Women With Cystic Fibrosis.
abstract: To explore the attitudes, preferences, and experiences of patients with cystic fibrosis (CF) and CF providers toward sexual and reproductive health (SRH) care for young women with CF.
  
  
  
  Young women with CF aged 18 to 30 years from a US CF care center and pediatric and adult CF program directors from a national sample participated in qualitative interviews investigating their experiences regarding SRH care and their attitudes and preferences toward SRH care provision in the CF setting. Interviews were audio-recorded, transcribed, and coded by using a thematic analysis approach.
  
  
  
  Twenty-two patient participants and 16 CF program directors were interviewed. Themes shared by both groups included the importance of SRH discussion in the CF care setting, patient and provider discomfort as a barrier to SRH care, and the need for SRH educational resources and provider training to improve SRH care. Providers highlighted the lack of standardization around SRH care in the current CF care model. Patients desired SRH educational resources coupled with early SRH discussions initiated by their CF provider.
  
  
  
  Both CF providers and patients agree that the CF provider has a fundamental role in providing CF-specific SRH care. Educational resources coupled with individualized SRH discussions may facilitate improved SRH care for young women with CF. Investigation into the implementation of SRH education and services into pediatric-onset chronic disease care models is needed.
authors.affiliation: Department of Pediatrics, Children's Hospital of Pittsburgh of UPMC, Center for Women's Health Research and Innovation (CWHRI), University of Pittsburgh School of Medicine, and traci.kazmerski@chp.edu.
authors.forename: Traci M
authors.initials: TM
authors.lastname: Kazmerski
authors.affiliation: Center for Women's Health Research and Innovation (CWHRI), University of Pittsburgh School of Medicine, and Department of Medicine, University of Pittsburgh Medical Center, University of Pittsburgh, Pittsburgh, Pennsylvania; VA Pittsburgh Center for Health Equity Research and Promotion, Pittsburgh, Pennsylvania; and.
authors.forename: Sonya
authors.initials: S
authors.lastname: Borrero
authors.affiliation: Division of Adolescent and Young Adult Medicine, Children's National Health System, Washington, District of Columbia.
authors.forename: Lisa K
authors.initials: LK
authors.lastname: Tuchman
authors.affiliation: Department of Pediatrics, Children's Hospital of Pittsburgh of UPMC.
authors.forename: Daniel J
authors.initials: DJ
authors.lastname: Weiner
authors.affiliation: Department of Medicine, University of Pittsburgh Medical Center, University of Pittsburgh, Pittsburgh, Pennsylvania;
authors.forename: Joseph M
authors.initials: JM
authors.lastname: Pilewski
authors.affiliation: Department of Pediatrics, Children's Hospital of Pittsburgh of UPMC.
authors.forename: David M
authors.initials: DM
authors.lastname: Orenstein
authors.affiliation: Department of Pediatrics, Children's Hospital of Pittsburgh of UPMC, Center for Women's Health Research and Innovation (CWHRI), University of Pittsburgh School of Medicine, and.
authors.forename: Elizabeth
authors.initials: E
authors.lastname: Miller
mesh_terms: D000293:Adolescent; D000328:Adult; D001291:Attitude of Health Personnel; D001294:Attitude to Health; D003376:Counseling; D003550:Cystic Fibrosis / Q000503:physiopathology* / Q000628:therapy; D005260:Female; D006801:Humans; D007407:Interviews as Topic; D010817:Physician-Patient Relations; D060728:Reproductive Health; D012725:Sexual Behavior; D055815:Young Adult