title: Using Patient Avatars to Promote Health Data Sharing Applications: Perspectives and Regulatory Challenges.
abstract: The potential of ICT to address problems in modern healthcare is considerable, and an ICT-driven revolution in healthcare appears imminent. Such developments maybe viewed largely in positive terms. Thus they should result in enhanced treatment and care options, empowering patients--including by permitting greater self-management of illness outside hospital, while offering economic benefits and costs savings over traditional healthcare provision. However, the new possibilities also present manifold risks, such as of data breaches, encroachments on subject autonomy, as well as of other harms. This article considers some of the key regulatory challenges against the background of the progress of the current EU Commission-sponsored 'MyHealthAvatar' project.
authors.forename: Alan
authors.initials: A
authors.lastname: Dahi
authors.forename: Nikolaus
authors.initials: N
authors.lastname: Forgó
authors.forename: Sarah
authors.initials: S
authors.lastname: Jensen
authors.forename: Marc
authors.initials: M
authors.lastname: Stauch
mesh_terms: D055991:Health Records, Personal; D006801:Humans; D033181:Information Dissemination; D008490:Medical Informatics; D057285:Precision Medicine