title: What motivates individuals with sickle cell disease to talk with others about their illness? Reasons for and against sickle cell disease disclosure.
abstract: This interview study documented how individuals with sickle cell disease make decisions about who to talk with concerning their illness based on psychological and interpersonal issues that are important to them. Reasons for sickle cell disease disclosure to specific persons were self-related (receiving support, venting feelings), other-related (educating others about sickle cell disease, forewarning others about sickle cell disease-related problems, someone asked for information about the disease), or situational (mostly focusing on another person being physically close or available to talk to). Reasons for sickle cell disease nondisclosure to specific persons were self-related (fear of rejection, being stereotyped, maintaining privacy) or other-related (lack of support, not worrying someone).
authors.affiliation: 1 Old Dominion University, USA.
authors.forename: Valerian J
authors.initials: VJ
authors.lastname: Derlega
authors.affiliation: 1 Old Dominion University, USA.
authors.forename: Ralitsa S
authors.initials: RS
authors.lastname: Maduro
authors.affiliation: 1 Old Dominion University, USA.
authors.forename: Louis H
authors.initials: LH
authors.lastname: Janda
authors.affiliation: 2 Eastern Virginia Medical School, USA.
authors.forename: Ian A
authors.initials: IA
authors.lastname: Chen
authors.affiliation: 2 Eastern Virginia Medical School, USA.
authors.forename: Benjamin M
authors.initials: BM
authors.lastname: Goodman
mesh_terms: D000328:Adult; D001741:Black or African American; D000755:Anemia, Sickle Cell / Q000523:psychology*; D001007:Anxiety; D005239:Fear; D005260:Female; D006266:Health Education; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D009042:Motivation; D018907:Privacy; D012650:Self Disclosure; D012944:Social Support; D013240:Stereotyping
keywords: self-disclosure; sickle cell disease; sickle cell disease disclosure; sickle cell disease disclosure-decision-making