title: Promoting participation of people with dementia in research.
abstract: Dementia is a neurodegenerative disorder that can have a severe effect on the quality of life of individuals with the condition, and can place considerable strain on informal carers and healthcare systems. Research is required to identify ways to prevent or delay the onset of dementia. The government is committed to dementia research, yet funding for dementia research is eclipsed by funding for research into other conditions. Moreover, dementia research can only progress if individuals with the condition participate in research studies. This article discusses barriers associated with research into dementia and describes a UK government initiative, Join Dementia Research, which supports research participation for people with dementia.
authors.affiliation: Clinical Research Network, East Midlands, England.
authors.forename: Goiz-Eder Aspe
authors.initials: GE
authors.lastname: Juaristi
authors.affiliation: Dementia UK, London, England.
authors.forename: Karen Harrison
authors.initials: KH
authors.lastname: Dening
mesh_terms: D035843:Biomedical Research / Q000191:economics*; D017028:Caregivers / Q000523:psychology; D003704:Dementia / Q000453:epidemiology*; D006801:Humans; D010358:Patient Participation / Q000523:psychology*; D006113:United Kingdom / Q000453:epidemiology
keywords: dementia; neurodegenerative disorder; older people; participation in research; research