title: Stanford Chronic Disease Self-Management Program in myotonic dystrophy: New opportunities for occupational therapists: Stanford Chronic Disease Self-Management Program dans la dystrophie myotonique : De nouvelles opportunités pour les ergothérapeutes.
abstract: BACKGROUND
  Chronic disease self-management is a priority in health care. Personal and environmental barriers for populations with neuromuscular disorders might diminish the efficacy of self-management programs, although they have been shown to be an effective intervention in many populations. Owing to their occupational expertise, occupational therapists might optimize self-management program interventions.
  
  
  OBJECTIVE
  This study aimed to adapt the Stanford Chronic Disease Self-Management Program (CDSMP) for people with myotonic dystrophy type 1 (DM1) and assess its acceptability and feasibility in this population.
  
  
  METHODS
  Using an adapted version of the Stanford CDSMP, a descriptive pilot study was conducted with 10 participants (five adults with DM1 and their caregivers). A semi-structured interview and questionnaires were used.
  
  
  RESULTS
  The Stanford CDSMP is acceptable and feasible for individuals with DM1. However, improvements are required, such as the involvement of occupational therapists to help foster concrete utilization of self-management strategies into day-to-day tasks using their expertise in enabling occupation.
  
  
  CONCLUSIONS
  Although adaptations are needed, the Stanford CDSMP remains a relevant intervention with populations requiring the application of self-management strategies.
authors.forename: Kateri
authors.initials: K
authors.lastname: Raymond
authors.forename: Mélanie
authors.initials: M
authors.lastname: Levasseur
authors.forename: Maud-Christine
authors.initials: MC
authors.lastname: Chouinard
authors.forename: Jean
authors.initials: J
authors.lastname: Mathieu
authors.forename: Cynthia
authors.initials: C
authors.lastname: Gagnon
mesh_terms: D000328:Adult; D002908:Chronic Disease; D005240:Feasibility Studies; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D009223:Myotonic Dystrophy / Q000628:therapy*; D009788:Occupational Therapy / Q000379:methods*; D010342:Patient Acceptance of Health Care; D010353:Patient Education as Topic; D011446:Prospective Studies; D012648:Self Care; D020377:Self Efficacy
keywords: Feasibility studies; Intervention studies; Neuromuscular disorder; Occupational therapy; Self-care