title: Experiences and preferences of care among Swedish immigrants following a prenatal diagnosis of congenital heart defect in the fetus: a qualitative interview study.
abstract: Immigrants experience significant challenges when in contact with healthcare and report less satisfaction with maternity care compared to native Swedes. Research that gives voice to pregnant immigrant women and their partners following a prenatal diagnosis of a fetal anomaly is scarce. Thus, the aim of this study was to explore experiences and preferences of care following a prenatal diagnosis of congenital heart defect among Swedish immigrants.
  
  
  
  Pregnant immigrants and their partners were consecutively recruited following a prenatal diagnosis of a congenital heart defect in the fetus. Nine respondents were interviewed in five interviews, four with the aid of a professional interpreter. The material was analyzed using manifest qualitative content analysis.
  
  
  
  The analysis resulted in five categories: 1) "Trustworthy information", 2) "Language barriers", 3) "Psychosocial situation", 4) "Peer support", and 5) "Religious positions".
  
  
  
  The potential need for interpreter services, visual information, psychosocial support, coordination with welfare officers, and respect for religious positions about termination of pregnancy are all important aspects for health professionals to consider when consulting immigrants faced with a prenatal diagnosis of fetal anomaly in the fetus. Peer support within this context needs to be further explored in future studies.
authors.affiliation: Department of Public Health and Caring Sciences, Uppsala University, BMC Husargatan 3, Box 564, S-75122, Uppsala, Sweden. tommy.carlsson@pubcare.uu.se.
authors.forename: Tommy
authors.initials: T
authors.lastname: Carlsson
authors.affiliation: Department of Scandinavian Languages, Uppsala University, Uppsala, Sweden.
authors.forename: Ulla Melander
authors.initials: UM
authors.lastname: Marttala
authors.affiliation: Department of Public Health and Caring Sciences, Uppsala University, BMC Husargatan 3, Box 564, S-75122, Uppsala, Sweden.|Department of Health Care Sciences, Ersta Sköndal University College, Stockholm, Sweden.
authors.forename: Elisabet
authors.initials: E
authors.lastname: Mattsson
authors.affiliation: Department of Nursing, Umeå University, Umeå, Sweden.
authors.forename: Anders
authors.initials: A
authors.lastname: Ringnér
mesh_terms: D000328:Adult; D003144:Communication Barriers; D054242:Emigrants and Immigrants / Q000523:psychology*; D005260:Female; D006330:Heart Defects, Congenital / Q000196:embryology / Q000523:psychology*; D006801:Humans; D057240:Patient Preference / Q000523:psychology*; D011247:Pregnancy; D037841:Pregnant People / Q000523:psychology*; D011296:Prenatal Diagnosis / Q000523:psychology*; D036301:Qualitative Research; D012069:Religion and Psychology; D012944:Social Support; D013548:Sweden; D035502:Trust
keywords: Immigrants; Interview; Life change events; Pregnancy; Prenatal diagnosis