title: Psychiatric Patients Tracking Through a Private Social Network for Relatives: Development and Pilot Study.
abstract: The treatment of psychiatric patients requires different health care from that of patients from other medical specialties. In particular, in the case of Department of Psychiatry from the Zamora Hospital (Spain), the period of time which patients require institutionalized care is a tiny part of their treatment. A large part of health care provided to the patient is aimed at his/her rehabilitation and social integration through day-care centres, supervised flats or activities. Conversely, several reports reveal that approximately 50 % of Internet users use the network as a source of health information, which has led to the emergence of virtual communities where patients, relatives or health professionals share their knowledge concerning an illness, health problem or specific health condition. In this context, we have identified that the relatives have a lack of information regarding the daily activities of patients under psychiatric treatment. The social networks or the virtual communities regarding health problems do not provide a private space where relatives can follow the patient's progress, despite being in different places. The goal of the study was to use technologies to develop a private social network for being used by severe mental patients (mainly schizophrenic patients). SocialNet is a pioneer social network in the health sector because it provides a social interaction context restricted to persons authorized by the patient or his/her legal guardian in such a way that they can track his/her daily activity. Each patient has a private area only accessible to authorized persons and their caregivers, where they can share pictures, videos or texts regarding his/her progress. A preliminary study of usability of the system has been made for increasing the usefulness and usability of SocialNet. SocialNet is the first system for promoting personal interactions among formal caregivers, family, close friends and patient, promoting the recovery of schizophrenic patients. Future studies should study the network's potential usefulness for improving the prognosis and recovery of schizophrenia.
authors.affiliation: Computer Sciences Department, Research Institute for Educational Sciences, GRIAL Research Group, University of Salamanca, Salamanca, Spain.
authors.forename: Francisco J
authors.initials: FJ
authors.lastname: García-Peñalvo
authors.affiliation: Department of Psychiatry, Zamora Hospital, Zamora, Spain.
authors.forename: Manuel Franco
authors.initials: MF
authors.lastname: Martín
authors.affiliation: Computer Sciences Department, Research Institute for Educational Sciences, GRIAL Research Group, University of Salamanca, Salamanca, Spain. aliciagh@usal.es.
authors.forename: Alicia
authors.initials: A
authors.lastname: García-Holgado
authors.affiliation: Iberian Institute for Research in Psychosciences, INTRAS Foundation, Zamora, Spain.
authors.forename: José Miguel Toribio
authors.initials: JM
authors.lastname: Guzmán
authors.affiliation: Computer Sciences Department, Research Institute for Educational Sciences, GRIAL Research Group, University of Salamanca, Salamanca, Spain.
authors.forename: Jesús Largo
authors.initials: JL
authors.lastname: Antón
authors.affiliation: Department of Didactics, Organization and Research Methods, University of Salamanca, Salamanca, Spain.
authors.forename: Ma Cruz
authors.initials: MC
authors.lastname: Sánchez-Gómez
mesh_terms: D017028:Caregivers; D003142:Communication; D054626:Consumer Health Information / Q000458:organization & administration*; D005190:Family; D005260:Female; D033062:Friends; D006801:Humans; D008297:Male; D001523:Mental Disorders / Q000534:rehabilitation*; D010865:Pilot Projects; D018907:Privacy; D012559:Schizophrenia / Q000534:rehabilitation; D012720:Severity of Illness Index; D061108:Social Media / Q000458:organization & administration*; D012944:Social Support; D013030:Spain
keywords: Information system; Mental health; Patient care system; Social network; Usability