The first Team Haemophilia Education meeting, 2015, Amsterdam, The Netherlands.
Haemophilia remains a complex disorder to diagnose and manage, requiring close cooperation between multidisciplinary healthcare professionals. There are still many unmet challenges in haemophilia care. The first Team Haemophilia Education (THE) meeting, held on 7-8 May 2015 in Amsterdam, The Netherlands, aimed to promote the optimal care of haemophilia patients through education of the multidisciplinary treatment team. This was achieved by reviewing the latest developments in haemophilia management, considering how these can be implemented in the clinic to improve patient care and providing a platform for networking and debate for all haemophilia treatment team members. Haemophilia treatment centres from several countries were asked to complete a premeeting online questionnaire to establish the biggest challenges that they face when managing patients. The concerns expressed were used to develop the agenda, which comprised a combination of formal presentations, case studies and informal workshops covering such topics as pharmacokinetics, laboratory assays and tailoring of treatment to individual patients. This report is a summary of the key developments in haemophilia care presented by various investigators and healthcare professionals at THE meeting 2015.
Skåne University Hospital, Lund University, Malmö, Sweden.
Erik
E
Berntorp
Barts and the London School of Medicine and Dentistry, Queen Mary University of London, London, UK.
Daniel
D
Hart
Angelo Bianchi Bonomi Haemophilia and Thrombosis Centre, Fondazione IRCCS Ca' Granda, Ospedale Maggiore Policlinico, Milan, Italy.
Maria Elisa
ME
Mancuso
Centre for Haemophilia and Rare Congenital Bleeding Disorders, University Hospitals Paris-Sud, AP-HP Bicêtre Hospital, Le Kremlin-Bicêtre, France.
Roseline
R
d'Oiron
Addenbrooke's Hospital, University of Cambridge, Cambridge, UK.
David
D
Perry
Irish Haemophilia Society, Dublin, Ireland.
Brian
B
O'Mahony
Polish Haemophilia Society, Warsaw, Poland.
Radoslaw
R
Kaczmarek
Portuguese Haemophilia Society, Lisbon, Portugal.
Miguel
M
Crato
Barts and the London School of Medicine and Dentistry, Queen Mary University of London, London, UK.
John
J
Pasi
London School of Hygiene and Tropical Medicine, London, UK.
Alec
A
Miners
Swedish Institute for Health Economics, Lund, Sweden.
Katarina Steen
KS
Carlsson
Department of Coagulation, Royal Hallamshire Hospital, Sheffield, UK.
Steve
S
Kitchen
Haemostasis Unit, University Hospitals of Geneva, Geneva, Switzerland.
Françoise
F
Boehlen
Oxford Haemophilia & Thrombosis Centre, Oxford University Hospitals, Oxford, UK.
Paul
P
Giangrande
Haemophilia Treatment Centre, University Children's Hospital, Riga, Latvia.
Elizabete
E
Cebura
Van Creveldkliniek, University Medical Centre, Utrecht, The Netherlands.
Nanda
N
Uitslager
Skåne University Hospital, Lund University, Malmö, Sweden.
Mehdi
M
Osooli
Haemophilia Treatment Centre, University Hospital Motol, Prague, Czech Republic.
Daniela
D
Janeckova
Katharine Dormandy Haemophilia Centre and Thrombosis Unit, Royal Free Hospital, London, UK.
Rosie
R
Haldon
Regional Reference Centre for Inherited Bleeding Disorders, University Hospital of Parma, Parma, Italy.
Gianna Franca
GF
Rivolta
D003695:Delivery of Health Care; D019468:Disease Management; D004502:Education, Medical, Continuing; D017048:Health Care Costs; D006467:Hemophilia A / Q000517:prevention & control / Q000628:therapy*; D002836:Hemophilia B / Q000517:prevention & control / Q000628:therapy*; D006801:Humans; D009426:Netherlands; D010348:Patient Care Team; D011292:Premedication; D016896:Treatment Outcome
clotting factor concentrates; haemophilia; laboratory assays; multidisciplinary; pharmacoeconomics; pharmacokinetics