Low quality of life and psychological wellbeing contrast with moderate perceived burden in carers of people with severe multiple sclerosis.
Unit of Neuroepidemiology, Foundation IRCCS Neurological Institute C. Besta, via Celoria 11, 20133 Milan, Italy. Electronic address: andrea.giordano@istituto-besta.it.
Andrea
A
Giordano
MS Centre, Neurology Clinic, University Hospital Policlinico Vittorio Emanuele, via S. Sofia, 78, 95123 Catania, Italy. Electronic address: nzinoci@inwind.it.
Vincenzo
V
Cimino
Scientific Direction, Foundation IRCCS Neurological Institute C. Besta, via Celoria 11, 20133 Milan, Italy. Electronic address: angela.campanella@istituto-besta.it.
Angela
A
Campanella
Multiple Sclerosis Unit, IRCCS S. Lucia Foundation, Via Ardeatina 306, 00142 Rome, Italy. Electronic address: g.morone@hsantalucia.it.
Giovanni
G
Morone
Multiple Sclerosis Unit, IRCCS S. Lucia Foundation, Via Ardeatina 306, 00142 Rome, Italy. Electronic address: a.fusco@hsantalucia.it.
Augusto
A
Fusco
Unit of Neuroepidemiology, Foundation IRCCS Neurological Institute C. Besta, via Celoria 11, 20133 Milan, Italy. Electronic address: mariangela.farinotti@istituto-besta.it.
Mariangela
M
Farinotti
Department of Therapeutic Research and Medicine Evaluation, Istituto Superiore di Sanità, Viale Regina Elena 299, 00161 Rome, Italy. Electronic address: lucia.palmisano@iss.it.
Lucia
L
Palmisano
Unit of Neuroimmunology, and Neuromuscular Diseases, Foundation IRCCS Neurological Institute C. Besta, via Celoria 11, 20133 Milan, Italy. Electronic address: paolo.confalonieri@istituto-besta.it.
Paolo
P
Confalonieri
Department of Neuroscience, Imaging and Clinical Sciences, G. d'Annunzio University of Chieti-Pescara, Via dei Vestini 31, 66013 Chieti, Italy. Electronic address: lugaresi@unich.it.
Alessandra
A
Lugaresi
Multiple Sclerosis Unit, IRCCS S. Lucia Foundation, Via Ardeatina 306, 00142 Rome, Italy. Electronic address: mg.grasso@hsantalucia.it.
Maria Grazia
MG
Grasso
Department of Research, Fondazione Italiana Sclerosi Multipla (FISM), Via Operai 40, 16149 Genoa, Italy. Electronic address: michela.ponzio@aism.it.
Michela
M
Ponzio
FARO Charitable Foundation, Via Oddino Morgari 12, 10125 Turin, Italy. Electronic address: simone.veronese@fondazionefaro.it.
Simone
S
Veronese
MS Centre, Neurology Clinic, University Hospital Policlinico Vittorio Emanuele, via S. Sofia, 78, 95123 Catania, Italy. Electronic address: patti@unict.it.
Francesco
F
Patti
Unit of Neuroepidemiology, Foundation IRCCS Neurological Institute C. Besta, via Celoria 11, 20133 Milan, Italy. Electronic address: alessandra.solari@istituto-besta.it.
Alessandra
A
Solari
D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D017028:Caregivers / Q000523:psychology*; D017281:Cost of Illness; D003430:Cross-Sectional Studies; D004651:Employment / Q000523:psychology; D005260:Female; D006801:Humans; D016014:Linear Models; D008297:Male; D008875:Middle Aged; D009103:Multiple Sclerosis / Q000628:therapy*; D015999:Multivariate Analysis; D010166:Palliative Care / Q000379:methods; D010465:Perception; D011569:Psychiatric Status Rating Scales; D011788:Quality of Life / Q000523:psychology*; D012720:Severity of Illness Index; D012959:Socioeconomic Factors; D011795:Surveys and Questionnaires; D055815:Young Adult
Caregivers; Illness burden; Outcome measure; Palliative care; Primary progressive multiple sclerosis; Quality of life; Secondary progressive multiple sclerosis