"It is always HIV/AIDS and TB": Home-based carers' perspectives on epilepsy in Cape Town, South Africa.
The study highlights the complex cultural religious factors affecting epilepsy and a need for integrated home-based care services. Two focus group discussions exploring home-based carers' (HBCs) perspectives on epilepsy were conducted using a semi-structured focus group interview guide, which was based on Kleinman's explanatory model framework. The audio-recorded data were transcribed verbatim, and a thematic analysis was done. The three main themes were epilepsy names and metaphors, religious beliefs about the cause and treatment of epilepsy, and HBCs' perceived roles and strategies for engaging in epilepsy care. Findings provide some insights for research, policy, and practice.
Primary Health Care Directorate, Faculty of Health Sciences, University of Cape Town, Cape Town, South Africa.|Department of Psychology, Stellenbosch University, Stellenbosch, South Africa; johannah.keikelame@uct.ac.za.
Mpoe Johannah
MJ
Keikelame
Department of Psychology, Stellenbosch University, Stellenbosch, South Africa.
Leslie
L
Swartz
D000163:Acquired Immunodeficiency Syndrome; D000328:Adult; D001291:Attitude of Health Personnel; D017028:Caregivers; D003150:Community Health Workers; D003469:Culture; D004827:Epilepsy / Q000209:etiology / Q000628:therapy; D005006:Ethnicity; D005260:Female; D017144:Focus Groups; D006699:Home Care Services; D006801:Humans; D008297:Male; D036301:Qualitative Research; D012068:Religion and Medicine; D013019:South Africa; D014376:Tuberculosis
Epilepsy; South Africa; focus groups; home-based carers; religious beliefs