Parent Perspectives of Neonatal Intensive Care at the End-of-Life.
This descriptive qualitative study explored parent experiences related to their infant's neonatal intensive care unit (NICU) hospitalization, end-of-life care, and palliative care consultation. "Life and death in the NICU environment" emerged as the primary theme with the following categories: ups and downs of parenting in the NICU, decision-making challenges in the NICU, and parent support. Parents encountered challenges with areas for improvement for end-of-life and palliative care in the NICU. Further research is necessary to understand barriers with integrating palliative care and curative care in the NICU, and how NICU care affects bereavement and coping outcomes after infant death.
University of Alabama at Birmingham School of Nursing, Birmingham, AL. Electronic address: ecurrie@uab.edu.
Erin R
ER
Currie
University of Louisville School of Nursing, Louisville, KY. Electronic address: becky.christian@louisville.edu.
Becky J
BJ
Christian
Nursing Research and Quality Outcomes, Children's National Health System, Washington, DC. Electronic address: PSHinds@childrensational.org.
Pamela S
PS
Hinds
University of Alabama at Birmingham School of Medicine, Birmingham, AL. Electronic address: sperna@uabmc.edu.
Samuel J
SJ
Perna
University of Alabama at Birmingham School of Nursing, Birmingham, AL. Electronic address: cdr18@uab.edu.
Cheryl
C
Robinson
St. Jude Children's Research Hospital, Memphis, TN. Electronic address: sara.day@st.jude.org.
Sara
S
Day
University of Alabama at Birmingham School of Nursing, Birmingham, AL. Electronic address: menesesk@uab.edu.
Karen
K
Meneses
D000223:Adaptation, Psychological; D000328:Adult; D001601:Bereavement; D003657:Decision Making; D005260:Female; D006801:Humans; D007231:Infant, Newborn; D007363:Intensive Care Units, Neonatal; D015931:Intensive Care, Neonatal / Q000592:standards* / Q000639:trends; D007407:Interviews as Topic; D008297:Male; D010166:Palliative Care / Q000379:methods* / Q000523:psychology; D010290:Parents / Q000523:psychology*; D010465:Perception; D011368:Professional-Family Relations; D036301:Qualitative Research; D013315:Stress, Psychological; D013727:Terminal Care / Q000379:methods / Q000523:psychology*; D014481:United States
Bereavement and coping; End-of-life care; Neonatal intensive care; Parental stress; Pediatric palliative care