Internet-Based Survivorship Care Plans for Adult Survivors of Childhood Cancer: A Pilot Study.
Survivorship care plans (SCPs) provide health information to survivors and providers. An existing internet-based SCP generator was adapted to incorporate guidelines for adult survivors of pediatric leukemia and lymphoma. Survivors created an SCP online and completed a survey. Survivors (N = 30) took an average of 10 minutes to complete the SCP. The majority (95%) found the platform easy to use, would recommend it to others (85%), and intended to share SCP with their healthcare team (90%). Thus, a patient-generated internet-based SCP for adult survivors of childhood cancer may be a feasible tool to improve consistency of information for survivors and their providers.
1 The Children's Hospital of Philadelphia , Philadelphia, Pennsylvania.|2 The University of Pennsylvania , Philadelphia, Pennsylvania.|3 Abramson Cancer Center , Philadelphia, Pennsylvania.
Dava
D
Szalda
1 The Children's Hospital of Philadelphia , Philadelphia, Pennsylvania.|2 The University of Pennsylvania , Philadelphia, Pennsylvania.
Lisa
L
Schwartz
1 The Children's Hospital of Philadelphia , Philadelphia, Pennsylvania.|2 The University of Pennsylvania , Philadelphia, Pennsylvania.|3 Abramson Cancer Center , Philadelphia, Pennsylvania.|4 Center for Health Equity Research & Promotion, Philadelphia VA Medical Center , Philadelphia, Pennsylvania.
Marilyn M
MM
Schapira
1 The Children's Hospital of Philadelphia , Philadelphia, Pennsylvania.|2 The University of Pennsylvania , Philadelphia, Pennsylvania.|3 Abramson Cancer Center , Philadelphia, Pennsylvania.
Linda
L
Jacobs
2 The University of Pennsylvania , Philadelphia, Pennsylvania.
Esther
E
Kim
3 Abramson Cancer Center , Philadelphia, Pennsylvania.
Carolyn
C
Vachani
2 The University of Pennsylvania , Philadelphia, Pennsylvania.|3 Abramson Cancer Center , Philadelphia, Pennsylvania.
James
J
Metz
1 The Children's Hospital of Philadelphia , Philadelphia, Pennsylvania.|2 The University of Pennsylvania , Philadelphia, Pennsylvania.|3 Abramson Cancer Center , Philadelphia, Pennsylvania.
Christine
C
Hill-Kayser
D000328:Adult; D000073116:Cancer Survivors; D005260:Female; D006801:Humans; D020407:Internet; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000401:mortality*; D010865:Pilot Projects; D000073859:Survivorship; D055815:Young Adult
care plans; internet; pediatric; survivorship