Restrictions and satisfaction with participation in patients who are ADL-independent after an aneurysmal subarachnoid hemorrhage.
Most survivors of an aneurysmal subarachnoid hemorrhage (aSAH) are ADL-independent, but they often experience restrictions in (social) activities and, therefore, cannot regain their pre-morbid level of participation.



In this study, participation restrictions and participation satisfaction experienced after aSAH were assessed. Moreover, possible predictors of participation after aSAH were examined to identify goals for rehabilitation.



Participation restrictions experienced by a series of 67 patients visiting our SAH outpatient clinic were assessed as part of standard clinical care using the Participation Restrictions and Satisfaction sections of the Utrecht Scale for Evaluation of Rehabilitation Participation (USER-Participation) 6 months after aSAH. Cognitive impairments, cognitive and emotional complaints, and symptoms of depression and anxiety, assessed 10 weeks after aSAH, were examined as possible predictors of participation by means of linear regression analysis.



Although patients were ADL-independent, 64% reported one or more participation restrictions and 60% were dissatisfied in one or more participation domains. Most commonly experienced restrictions concerned housekeeping, chores in and around the house, and physical exercise. Dissatisfaction was most often reported about outdoor activities, mobility, and work/housekeeping. The main predictors of participation restrictions as well as satisfaction with participation were cognitive complaints (subjective) (β = -.30, p = .03 and β = -.40, p = .002, respectively) and anxiety (β = .32, p = .02 and β = -.34, p = .007, respectively).



Almost two-thirds of the ADL-independent patients experienced problems of participation 6 months after aSAH. Cognitive complaints (subjective) and anxiety symptoms showed the strongest association with participation restrictions and satisfaction. Cognitive rehabilitation and anxiety-reducing interventions may help to optimize rehabilitation and increase participation after aSAH.
a Department of Neurology and Neurosurgery, Rudolf Magnus Institute for Neuroscience , University Medical Center Utrecht , Utrecht , The Netherlands.
Irene M C
IM
Huenges Wajer
b Center of Excellence in Rehabilitation Medicine, Rehabilitation Center De Hoogstraat and Rudolf Magnus Institute for Neuroscience , University Medical Center Utrecht , Utrecht , The Netherlands.
Johanna M A
JM
Visser-Meily
a Department of Neurology and Neurosurgery, Rudolf Magnus Institute for Neuroscience , University Medical Center Utrecht , Utrecht , The Netherlands.
Paut
P
Greebe
b Center of Excellence in Rehabilitation Medicine, Rehabilitation Center De Hoogstraat and Rudolf Magnus Institute for Neuroscience , University Medical Center Utrecht , Utrecht , The Netherlands.
Marcel W M
MW
Post
a Department of Neurology and Neurosurgery, Rudolf Magnus Institute for Neuroscience , University Medical Center Utrecht , Utrecht , The Netherlands.
Gabriel J E
GJ
Rinkel
a Department of Neurology and Neurosurgery, Rudolf Magnus Institute for Neuroscience , University Medical Center Utrecht , Utrecht , The Netherlands.|c Experimental Psychology, Helmholtz Institute , Utrecht University , Utrecht , The Netherlands.
Martine J E
MJ
van Zandvoort
D000203:Activities of Daily Living / Q000523:psychology*; D000328:Adult; D000342:Affective Symptoms / Q000209:etiology; D001007:Anxiety / Q000175:diagnosis / Q000209:etiology; D003072:Cognition Disorders / Q000209:etiology; D003863:Depression / Q000175:diagnosis / Q000209:etiology; D005260:Female; D005500:Follow-Up Studies; D006801:Humans; D008297:Male; D008875:Middle Aged; D010358:Patient Participation / Q000523:psychology*; D010549:Personal Satisfaction; D011237:Predictive Value of Tests; D011569:Psychiatric Status Rating Scales; D013345:Subarachnoid Hemorrhage / Q000150:complications / Q000523:psychology* / Q000534:rehabilitation*
Anxiety; Cognition; Depression; Participation; Subarachnoid Hemorrhage