Health promotion for young patients with haemophilia. Counselling, adjuvant exercise therapy and school sports.
The haemophilia treatment centre of the Clinic for Children and Youth Medicine in Jena extends medical care by health-promotion measures, namely: health counselling, adjuvant exercise therapy and school sports. In addition to the regular medical checks at the treatment centre patients are examined regarding physical fitness, joint situation, quality of life in general and disease-specific manner, as well as psycho-social and nutritional behaviour. Findings and medical results of the examinations are integrated into an individual advice on therapy, school sports, and health recommendations. This aimed at strengthening health-related resources and minimizing potential injuries. First long-term evaluation shows an increase of activity behaviour and physical fitness without increasing bleeding rate and maintained joint function.


CONCLUSIONS
Combining functional prevention diagnostics and individual health counselling shows signs of improved patient's health knowledge, self-competence and physical fitness.
Judith
J
Sondermann
Dr. Marco Herbsleb, Department of Sports Medicine and Health Promotion, Friedrich-Schiller-University of Jena, Wöllnitzer Street 42, 07749 Jena, Germany, Tel. 036 41/94 56 63, Fax 036 41/94 56 52, E-mail: marco.herbsleb@uni-jena.de.
Marco
M
Herbsleb
Frank-Detlef
FD
Stanek
Holger
H
Gabriel
Karim
K
Kentouche
D000293:Adolescent; D002648:Child; D002675:Child, Preschool; D003131:Combined Modality Therapy / Q000379:methods / Q000706:statistics & numerical data; D037001:Directive Counseling / Q000706:statistics & numerical data*; D005081:Exercise Therapy / Q000706:statistics & numerical data*; D005260:Female; D005858:Germany; D006293:Health Promotion / Q000706:statistics & numerical data*; D006467:Hemophilia A / Q000175:diagnosis* / Q000453:epidemiology / Q000628:therapy*; D006801:Humans; D008137:Longitudinal Studies; D008297:Male; D010865:Pilot Projects; D015995:Prevalence; D012572:School Health Services / Q000706:statistics & numerical data; D013177:Sports / Q000706:statistics & numerical data*; D013334:Students; D016896:Treatment Outcome
Haemophilia; exercise therapy; health counselling; self-competence