Interpreting Quality of Life after Brain Injury Scores: Cross-Walk with the Short Form-36.
The Quality of Life after Brain Injury (QOLIBRI) instruments are traumatic brain injury (TBI)-specific assessments of health-related quality of life (HRQoL), with established validity and reliability. The purpose of the study is to help improve the interpretability of the two QOLIBRI summary scores (the QOLIBRI Total score and the QOLBRI Overall Scale [OS] score). An analysis was conducted of 761 patients with TBI who took part in the QOLIBRI validation studies. A cross-walk between QOLIBRI scores and the SF-36 Mental Component Summary norm-based scoring system was performed using geometric mean regression analysis. The exercise supports a previous suggestion that QOLIBRI Total scores <60 indicate low or impaired HRQoL and indicate that the corresponding score on the QOLIBRI-OS is <52. The percentage of cases in the sample that fell into the "impaired HRQoL" category was 36% for the Mental Component Summary, 38% for the QOLIBRI Total, and 39% for the QOLIBRI-OS. Relationships between the QOLIBRI scales and the Glasgow Outcome Scale-Extended (GOSE), as a measure of global function, are presented in the form of means and standard deviations that allow comparison with other studies, and data on age and sex are presented for the QOLIBRI-OS. While bearing in mind the potential imprecision of the comparison, the findings provide a framework for evaluating QOLIBRI summary scores in relation to generic HRQoL that improves their interpretability.
1 Division of Psychology, University of Stirling , Stirling, United Kingdom .
Lindsay
L
Wilson
1 Division of Psychology, University of Stirling , Stirling, United Kingdom .
Isaac
I
Marsden-Loftus
2 Institute of Behavioural Sciences, University of Helsinki , Helsinki, Finland .
Sanna
S
Koskinen
3 Adelante Adult Rehabilitation, Department of Brain Injury, Hoensbroek and Maastricht University , Maastricht, The Netherlands .
Wilbert
W
Bakx
4 Department of Medical Psychology, University Hospital Eppendorf , Hamburg, Germany .
Monika
M
Bullinger
5 IRCCS, Rehabilitation Hospital , Santa Lucia Foundation, Rome, Italy .
Rita
R
Formisano
6 Department of Neurosurgery, Antwerp University Hospital and University of Antwerp , Antwerp, Belgium .
Andrew
A
Maas
7 Witten-Herdecke University-Campus , Köln, Germany .
Edmund
E
Neugebauer
8 Department of Psychology, Goldsmiths College , London, United Kingdom .
Jane
J
Powell
9 Department of Clinical Neuropsychology and Psychology, Validia Rehabilitation Helsinki, Finland .
Jaana
J
Sarajuuri
10 Department of Medical Psychology and Medical Sociology, Georg-August-University , Goettingen, Germany .
Nadine
N
Sasse
10 Department of Medical Psychology and Medical Sociology, Georg-August-University , Goettingen, Germany .
Nicole
N
von Steinbuechel
11 Department of Neurosurgery and Early Neurotraumatological Rehabilitation, Clemens Hospital, Westfalian Wilhelms University of Münster , Münster, Germany .
Klaus
K
von Wild
12 Service de Medicine physique et réadaption , C.H.U. Raymond-Poincaré, Garches, France .
Jean-Luc
JL
Truelle
D000328:Adult; D001930:Brain Injuries / Q000175:diagnosis* / Q000523:psychology*; D010054:Brief Psychiatric Rating Scale / Q000592:standards*; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D011788:Quality of Life / Q000523:psychology*; D011795:Surveys and Questionnaires / Q000592:standards
GOSE; QOLIBRI; SF-36; TBI; health-related quality of life; outcome measures