Living with an adult who has diabetes: Qualitative insights from the second Diabetes Attitudes, Wishes and Needs (DAWN2) study.
OBJECTIVE
The second Diabetes Attitudes, Wishes and Needs (DAWN2) study identified the experiences of family members who support adults living with diabetes.


METHODS
Participants were 2057 adult family members living with the person with diabetes from 17 countries. Qualitative data were responses to open-ended survey questions about how living with a person with diabetes has impacted family members and the ways they choose to be involved in the diabetes care for the person with whom they live. Emergent coding with input from multinational collaborators identified thematic content about psychosocial aspects.


RESULTS
Family members wanted to do what was best for the person with diabetes and help in whatever way possible. Four themes branched from that principle: (1) family members worry about day-to-day struggles of the person with diabetes, such as hypoglycemia and employment stability; (2) diabetes negatively affects the person with diabetes-family member relationship, creating an emotional strain and shift in relationship; (3) family members have some support resources to deal with the burdens and lifestyle changes of diabetes, but would like more; and (4) the person with diabetes has provided inspiration to the family member, and helped the family member make positive life changes in eating healthier.


CONCLUSIONS
These data provide insight into the ways that family members experience living with diabetes, including their challenges, motivations and intentions in supporting their person with diabetes. Family members speak eloquently and with emotion about their role in a family with diabetes.
Department of Medicine, College of Medicine, Pennsylvania State University, Hershey, PA, USA. Electronic address: hstuckey@hmc.psu.edu.
Heather L
HL
Stuckey
Spark Market Research, Dublin, Ireland.
Christine
C
Mullan-Jensen
Department of Endocrinology, Bharti Hospital & B.R.I.D.E., Karnal, India.
Sanjay
S
Kalra
Department of Medicine, College of Medicine, Pennsylvania State University, Hershey, PA, USA.
Jean
J
Reading
Department of Medicine and Health Sciences, Primary and Interdisciplinary Care Antwerp, University of Antwerp, Antwerp, Belgium.
Johan
J
Wens
Departments of Family Medicine and Psychiatry, Dalhousie University, Halifax, Nova Scotia, Canada.
Michael
M
Vallis
II Department of Psychiatry, Medical University of Warsaw, Warsaw, Poland.
Andrzej
A
Kokoszka
Department of Internal Medicine, Setif University Hospital, Algeria.
Rachid
R
Malek
Interdisciplinary Health Research Academy, Edmonton Clinic Health Academy, University of Alberta, Edmonton, Alberta, Canada.
Katharina
K
Kovacs Burns
Healthy Lifestyle Institute, (C.U.R.I.A.MO.: Centro Universitario di Ricerca Interdipartimentale Attività Motoria), University of Perugia, Perugia, Italy.
Natalia
N
Piana
Spark Market Research, Dublin, Ireland.
Søren E
SE
Skovlund
Department of Sociology, Loyola University Maryland, Baltimore, MD, USA.
Mark
M
Peyrot
D000328:Adult; D001007:Anxiety; D003920:Diabetes Mellitus / Q000523:psychology*; D004644:Emotions; D004651:Employment / Q000523:psychology; D005190:Family / Q000523:psychology*; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006301:Health Services Needs and Demand; D006801:Humans; D008297:Male; D008875:Middle Aged; D011340:Problem Solving; D011788:Quality of Life; D012944:Social Support; D013315:Stress, Psychological / Q000209:etiology; D011795:Surveys and Questionnaires
Diabetes self-management; Education; Family members; Motivation; Psychosocial; Qualitative