title: [Caregiver intervention studies : Recommendations on endpoints and outcome measures for cognitively impaired care recipients].
abstract: BACKGROUND
  Even though the intervention effects on cognitively impaired care recipients are of interest, the evaluation in dementia caregiver studies on caregiver outcomes is often limited. Furthermore, the comparison of studies and interventions is difficult because of the large variance of endpoints and assessments used in this field.
  
  
  OBJECTIVE
  The aim of this study was to give an overview on the most prevalent outcomes for cognitively impaired care recipients and expert based recommendations for assessment.
  
  
  METHODS
  A written Delphi survey was carried out on 16 assessments from 5 dimensions with 14 experts working in different disciplines in German healthcare and research institutes.
  
  
  RESULTS
  The most important outcomes and best rated assessments were 1) for problem behavior: revised memory and behavior problem checklist and neuropsychiatric inventory Q, 2) for depressive symptoms: geriatric depression scale, 3) for quality of life: quality of life in Alzheimer's disease, 4) for cognition: mini mental state examination and 5) for ADL/IADL: Katz activities of daily living and Lawton instrumental activities of daily living.
  
  
  CONCLUSIONS
  Due to the varying experiences of the experts with particular assessments, the ratings were in some cases relatively heterogeneous. Overall previous international recommendations could be confirmed. There is particular need of German validation studies on internationally used instruments within the dimensions of problem behavior and quality of life.
authors.affiliation: Klinik für Geriatrische Rehabilitation, Robert-Bosch-Krankenhaus, Auerbachstr. 110, 70376, Stuttgart, Deutschland. diana.albrecht@rbk.de.|Klinische Psychologie und Psychotherapie, Fachbereich Psychologie, Eberhard Karls Universität, Tübingen, Deutschland. diana.albrecht@rbk.de.
authors.forename: D
authors.initials: D
authors.lastname: Albrecht
authors.affiliation: Zentrum für Medizinische Versorgungsforschung, Psychiatrische und Psychotherapeutische Klinik, Universitätsklinikum Erlangen, Erlangen, Deutschland.
authors.forename: A
authors.initials: A
authors.lastname: Pendergrass
authors.affiliation: Klinik für Geriatrische Rehabilitation, Robert-Bosch-Krankenhaus, Auerbachstr. 110, 70376, Stuttgart, Deutschland.
authors.forename: C
authors.initials: C
authors.lastname: Becker
authors.affiliation: Klinische Psychologie und Psychotherapie, Fachbereich Psychologie, Eberhard Karls Universität, Tübingen, Deutschland.
authors.forename: M
authors.initials: M
authors.lastname: Hautzinger
authors.affiliation: Klinik für Geriatrische Rehabilitation, Robert-Bosch-Krankenhaus, Auerbachstr. 110, 70376, Stuttgart, Deutschland.
authors.forename: K
authors.initials: K
authors.lastname: Pfeiffer
mesh_terms: D000203:Activities of Daily Living; D000368:Aged; D000544:Alzheimer Disease / Q000451:nursing; D017028:Caregivers; D006801:Humans; D017063:Outcome Assessment, Health Care; D011788:Quality of Life
keywords: Dementia; Evaluation; Informal care; Nursing assessment; Self-assessment