title: Assessing Transplant Attitudes: Understanding Minority Men's Perspectives on the Multifarious Barriers to Organ Donation.
abstract: African Americans comprise 11 % of living organ donors, yet constitute 34 % of the kidney transplant waiting list. There are many barriers to organ donation among minorities that include decreased awareness of transplantation, cultural mistrust of the medical community, financial concerns, and fear of the transplant operation. This study investigates the societal misconceptions and demographic health factors that correlate with minority participation in organ and tissue donation. A 57 question Health and Wellness survey was designed to assess participants' demographic information, medical history, professional background, and opinions regarding organ transplantation. Participants were also asked to complete Quality Metric's Short Form-8 (SF-8) survey to assess physical health, mental health, and quality-of-life. Three hundred twenty-six surveys were administered to minority men. The majority of men were identified as African American, and 55 % were below the age of 40. Though 44 % of participants were willing to donate, only 27 % were registered as organ and tissue donors. Minorities who held misconceptions about organ donation-including the belief that they were too old or unhealthy to donate, for example-had lower general, physical, and mental health scores than those who did not (p = <0.0001). Minorities aware of the shortage for organs or who know a registered donor, an organ recipient, a dialysis patient, or someone on the waiting list were more willing to donate organs. Improving the general, physical, and mental health of minorities, coupled with an active educational outreach program, could result in a greater percentage of minorities registering and willing to be organ and tissue donors.
authors.affiliation: Glickman Urologic and Kidney Institute, Minority Men's Health Center, Cleveland Clinic, 9500 Euclid Ave, Q10-1, Cleveland, OH, 44195, USA. bryanhinck@gmail.com.
authors.forename: Bryan D
authors.initials: BD
authors.lastname: Hinck
authors.affiliation: Glickman Urologic and Kidney Institute, Minority Men's Health Center, Cleveland Clinic, 9500 Euclid Ave, Q10-1, Cleveland, OH, 44195, USA.
authors.forename: Bryan D
authors.initials: BD
authors.lastname: Naelitz
authors.affiliation: Glickman Urologic and Kidney Institute, Minority Men's Health Center, Cleveland Clinic, 9500 Euclid Ave, Q10-1, Cleveland, OH, 44195, USA.
authors.forename: Brielle
authors.initials: B
authors.lastname: Jackson
authors.affiliation: Glickman Urologic and Kidney Institute, Minority Men's Health Center, Cleveland Clinic, 9500 Euclid Ave, Q10-1, Cleveland, OH, 44195, USA.
authors.forename: Mariah
authors.initials: M
authors.lastname: Howard
authors.affiliation: Department of Biostatistics, Cleveland Clinic, Cleveland, OH, 44195, USA.
authors.forename: Amy
authors.initials: A
authors.lastname: Nowacki
authors.affiliation: Glickman Urologic and Kidney Institute, Minority Men's Health Center, Cleveland Clinic, 9500 Euclid Ave, Q10-1, Cleveland, OH, 44195, USA.
authors.forename: Charles S
authors.initials: CS
authors.lastname: Modlin
mesh_terms: D000293:Adolescent; D000328:Adult; D001741:Black or African American / Q000523:psychology / Q000706:statistics & numerical data; D000368:Aged; D000369:Aged, 80 and over; D001294:Attitude to Health / Q000208:ethnology*; D006801:Humans; D016030:Kidney Transplantation / Q000706:statistics & numerical data; D008297:Male; D008875:Middle Aged; D008913:Minority Groups / Q000523:psychology* / Q000706:statistics & numerical data; D011788:Quality of Life / Q000523:psychology; D012959:Socioeconomic Factors; D011795:Surveys and Questionnaires; D009927:Tissue and Organ Procurement / Q000706:statistics & numerical data*; D014180:Transplantation / Q000523:psychology*; D055815:Young Adult
keywords: Health disparities; Kidney donor; Kidney transplant; Minority Men’s Health; Transplantation