title: Conversations about Community-Based Participatory Research and Trust: "We Are Explorers Together".
abstract: BACKGROUND
  This paper describes a study circle and a series of conversations with a community partner that were part of a project that grew out of a partnership between Native People for Cancer Control, a research program at the University of Washington, and five tribes in Washington, Idaho, and Montana.
  
  
  METHODS
  Researchers undertook a study circle to build bioethics capacity and, specifically, to better understand the values that should guide community-based participatory research (CBPR).
  
  
  RESULTS
  Study circle members identified five action guiding principles for CBPR: respect tribal sovereignty, promote transparency, hear community priorities, learn from each other, and take collective action. This activity led to a series of conversations between researchers and the chair of Shoalwater Bay Tribe, Charlene Nelson. Nelson suggests the metaphor of "exploration" as a way to think about what good CBPR looks like. Exploration reframes the research enterprise, from a systematic scientific inquiry conducted by academic investigators to a less predictable activity that reaches into the uncontrolled and unknown. We used this metaphor to explore three features of CBPR we believe to be essential to building trust: ongoing commitment and time, direct collaboration with community members and new learning for all involved, and candid and cautious action.
  
  
  CONCLUSIONS
  The CBPR literature underscores many of these same points; however, we found the metaphorical language offered by Nelson enriched their meaning and deepened study circle members' appreciation of them.
authors.forename: Erika
authors.initials: E
authors.lastname: Blacksher
authors.forename: Charlene
authors.initials: C
authors.lastname: Nelson
authors.forename: Emily
authors.initials: E
authors.lastname: Van Dyke
authors.forename: Abigail
authors.initials: A
authors.lastname: Echo-Hawk
authors.forename: Deborah
authors.initials: D
authors.lastname: Bassett
authors.forename: Dedra
authors.initials: D
authors.lastname: Buchwald
mesh_terms: D001675:Bioethics; D057191:Capacity Building; D003142:Communication; D055812:Community-Based Participatory Research / Q000941:ethics*; D003159:Community-Institutional Relations; D054624:Health Status Disparities; D006801:Humans; D007061:Idaho; D007198:Indians, North American; D009009:Montana; D009369:Neoplasms / Q000517:prevention & control*; D035502:Trust; D014861:Washington