title: A Mobile Care Coordination System for the Management of Complex Chronic Disease.
abstract: There is global concern about healthcare cost, quality, and access as the prevalence of complex and chronic diseases, such as heart disease, continues to grow. Care for patients with complex chronic disease involves diverse practitioners and multiple transitions between medical centers, physician practices, clinics, community resources, and patient homes. There are few systems that provide the flexibility to manage these varied and complex interactions. Participatory and user-centered design methodology was applied to the first stage of building a mobile platform for care coordination for complex, chronic heart disease. Key informant interviews with patients, caregivers, clinicians, and care coordinators were conducted. Thematic analysis led to identification of priority user functions including shared care plan, medication management, symptom management, nutrition, physical activity, appointments, personal monitoring devices, and integration of data and workflow. Meaningful stakeholder engagement contributes to a person-centered system that enhances health and efficiency.
authors.affiliation: University of California Davis, Betty Irene Moore School of Nursing.
authors.forename: Sarah
authors.initials: S
authors.lastname: Haynes
authors.affiliation: University of California Davis, Betty Irene Moore School of Nursing.
authors.forename: Katherine K
authors.initials: KK
authors.lastname: Kim
mesh_terms: D040421:Cell Phone / Q000706:statistics & numerical data; D002908:Chronic Disease / Q000628:therapy*; D006301:Health Services Needs and Demand / Q000458:organization & administration*; D006331:Heart Diseases / Q000175:diagnosis / Q000628:therapy*; D006801:Humans; D063731:Mobile Applications / Q000706:statistics & numerical data*; D019114:Remote Consultation / Q000706:statistics & numerical data*; D012648:Self Care / Q000706:statistics & numerical data*; D014584:User-Computer Interface