title: Translating translational medicine into global health equity: What is needed?
abstract: While genomics, and other omics, research is rapidly advancing in the US and Europe, progress has been slower in less resourced countries. The imbalance has given rise to concern about whether the benefits of these advances, namely new and better tests, treatments, risk identification, and prevention strategies, will be shared and available to those living in less resourced reaches of the globe. In effort to give voice to researchers, an informal survey about barriers to advancing translational medicine was administered to attendees of the 11th Asia Pacific Conference on Human Genetics, 2015, Hanoi. The overall goal of the survey was to identify unmet needs and rank their importance. Most attendees completed the survey. Not surprisingly funding is indicated as a major need. Respondents reported that lack of bioinformatics and computational tools, trained data scientists and access to datasets is creating a significant lag behind better resourced regions. Results are intended to inform efforts to create a regional consensus statement of need. Such a regional statement could help funding organizations and policy makers seeking to promote global genomics benefit sharing.
authors.affiliation: Helix Health Advisors, 317 Lamartine Street, Suite 200, Boston, MA, USA.
authors.forename: Carol
authors.initials: C
authors.lastname: Isaacson Barash
keywords: Bioinformatics; Data access; Data scientists; Ethical issues; Low resourced countries; Patient engagement; Standardized data; Translational medicine