title: A Personal Health Network for Chemotherapy Care Coordination: Evaluation of Usability Among Patients.
abstract: Cancer is a top concern globally. Cancer care suffers from lack of coordination, silos of information, and high cost. Interest is emerging in person-centered technology to assist with coordination to address these challenges. This study evaluates the usability of the "personal health network" (PHN), a novel solution leveraging social networking and mobile technologies, among individuals undergoing chemotherapy and receiving care coordination. Early results from interviews of 12 participants in a randomized pragmatic trial suggest that they feel more connected to the healthcare team using the PHN, find value in access to the patient education library, and are better equipped to organize the many activities that occur during chemotherapy. Improvements are needed in navigation, connectivity, and integration with electronic health records. Findings contribute to improvements in the PHN and informs a roadmap for potentially greater impact in technology-enabled cancer care coordination.
authors.affiliation: Betty Irene Moore School of Nursing, University of California Davis, United States.
authors.forename: Katherine K
authors.initials: KK
authors.lastname: Kim
authors.affiliation: Betty Irene Moore School of Nursing, University of California Davis, United States.
authors.forename: Janice F
authors.initials: JF
authors.lastname: Bell
authors.affiliation: Comprehensive Cancer Center, University of California Davis, United States.
authors.forename: Richard
authors.initials: R
authors.lastname: Bold
authors.affiliation: College of Nursing, Washington State University.
authors.forename: Andra
authors.initials: A
authors.lastname: Davis
authors.affiliation: Betty Irene Moore School of Nursing, University of California Davis, United States.
authors.forename: Victoria
authors.initials: V
authors.lastname: Ngo
authors.affiliation: Betty Irene Moore School of Nursing, University of California Davis, United States.
authors.forename: Sarah C
authors.initials: SC
authors.lastname: Reed
authors.affiliation: Betty Irene Moore School of Nursing, University of California Davis, United States.
authors.forename: Jill G
authors.initials: JG
authors.lastname: Joseph
mesh_terms: D000368:Aged; D000369:Aged, 80 and over; D003266:Continuity of Patient Care / Q000706:statistics & numerical data; D016903:Drug Monitoring / Q000523:psychology / Q000706:statistics & numerical data; D006801:Humans; D008875:Middle Aged; D020380:Needs Assessment; D009369:Neoplasms / Q000188:drug therapy* / Q000523:psychology; D017060:Patient Satisfaction / Q000706:statistics & numerical data*; D018802:Patient-Centered Care / Q000706:statistics & numerical data*; D010548:Personal Health Services / Q000706:statistics & numerical data*; D012944:Social Support; D014481:United States