title: Managing Your Loved One's Health: Development of a New Care Management Measure for Dementia Family Caregivers.
abstract: The National Alzheimer's Plan calls for improving health care for people living with dementia and supporting their caregivers as capable health care partners. Clinically useful measurement tools are needed to monitor caregivers' knowledge and skills for managing patients' often complex health care needs as well as their own self-care. We created and validated a comprehensive, caregiver-centered measure, Managing Your Loved One's Health (MYLOH), based on a core set of health care management domains endorsed by both providers and caregivers. In this article, we describe its development and preliminary cultural tailoring. MYLOH is a questionnaire containing 29 items, grouped into six domains, which requires <20 min to complete. MYLOH can be used to guide conversations between clinicians and caregivers around health care management of people with dementia, as the basis for targeted health care coaching, and as an outcome measure in comprehensive dementia care management interventions.
authors.affiliation: 1 University of Washington, Seattle, WA, USA.
authors.forename: Tatiana
authors.initials: T
authors.lastname: Sadak
authors.affiliation: 2 Dementia Care Research and Consulting, Palm Springs, CA, USA.
authors.forename: Jacob
authors.initials: J
authors.lastname: Wright
authors.affiliation: 1 University of Washington, Seattle, WA, USA.
authors.forename: Soo
authors.initials: S
authors.lastname: Borson
mesh_terms: D017028:Caregivers / Q000523:psychology; D003704:Dementia / Q000628:therapy*; D005190:Family; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D008875:Middle Aged; D010346:Patient Care Management; D011594:Psychometrics; D011795:Surveys and Questionnaires
keywords: MYLOH; Managing Your Loved One’s Health; PBH-LCI:D; Partnering for Better Health–Living With Chronic Illness: Dementia; activation; complex illness; engagement; multimorbidity