title: "I'm taking control": how people living with HIV/AIDS manage stigma in health interactions.
abstract: Despite international efforts, stigma is still a significant issue for people living with HIV/AIDS (PLWHA). This paper explores the stigma encountered in health interactions, focusing on strategies PLWHA use to manage and reduce it. It is hoped that our findings will improve future interactions by contributing towards a more understanding practitioner-patient relationship. The data have been drawn from a small qualitative study conducted in Christchurch, New Zealand. Fourteen participants took part in semi-structured face-to-face interviews in 2013 and 11 of these participants were then interviewed again in 2014. Codes and themes were developed through inductive thematic analysis of the interview transcripts. Our findings identified that whilst the majority of participants had positive experiences, nearly all had faced stigma during their health interactions. Most of these encounters were due to healthcare workers holding exaggerated fears of transmission or not maintaining confidentiality and privacy. The main way that participants managed this stigma was through seeking control in their interactions. This overarching strategy could be further divided into three key themes: selective disclosure of their HIV status, self-advocacy and developing their HIV knowledge. We discuss these findings in the context of the current literature, comparing our results to strategies that have been previously identified in social settings.
authors.affiliation: a Department of Population Health , University of Otago , Christchurch , New Zealand.
authors.forename: Annastaisha
authors.initials: A
authors.lastname: Brinsdon
authors.affiliation: a Department of Population Health , University of Otago , Christchurch , New Zealand.
authors.forename: Gillian
authors.initials: G
authors.lastname: Abel
authors.affiliation: a Department of Population Health , University of Otago , Christchurch , New Zealand.
authors.forename: Jennifer
authors.initials: J
authors.lastname: Desrosiers
mesh_terms: D000163:Acquired Immunodeficiency Syndrome / Q000523:psychology / Q000635:transmission; D000328:Adult; D000368:Aged; D003219:Confidentiality; D005239:Fear; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006282:Health Personnel / Q000523:psychology*; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D008875:Middle Aged; D009520:New Zealand; D011369:Professional-Patient Relations; D036301:Qualitative Research; D057545:Social Stigma; D014342:Truth Disclosure
keywords: HIV; healthcare; resistance; stigma; strategies