title: The Cystic Fibrosis Foundation Patient Registry. Design and Methods of a National Observational Disease Registry.
authors.affiliation: 1 Department of Respirology, St. Michael's Hospital, Toronto, Ontario, Canada.|2 Keenan Research Centre, Li Ka Shing Knowledge Institute, St. Michael's Hospital, Toronto, Ontario, Canada.|3 Department of Medicine, University of Toronto, Toronto, Ontario, Canada.
authors.forename: Anne L
authors.initials: AL
authors.lastname: Stephenson
authors.affiliation: 4 Lung Bacteria Group, QIMR Berghofer Medical Research Institute, Brisbane, Queensland, Australia.|5 School of Medicine, The University of Queensland, Brisbane, Australia; and.|6 Department of Thoracic Medicine, The Prince Charles Hospital, Brisbane, Australia.
authors.forename: Scott C
authors.identifier: 0000-0001-8651-7139
authors.initials: SC
authors.lastname: Bell
mesh_terms: D003550:Cystic Fibrosis; D005582:Foundations; D006801:Humans; D012042:Registries