title: The family experience of care in chronic situation.
abstract: An essay that aims to reflect on the family experience of care in chronic situation, increasing the understanding of the family as the primary caregiver. It is based on comprehensive approach in studies conducted in three matrix searches from family care experiences. We have taken three axes to organize our reflections: a) conformation of family care in chronic situation, highlighting the multiple costs incurred to the family, which can exhaust the potential of care and establish or increase its vulnerability if it is not backed by networks support and sustenance; b) family rearrangements for the care, giving visibility to care cores in which many loved family members share the care, dynamic, plural and changeable way; c) self care modeling family care, pointing to the range of possibilities of the person taking care of diseased conditions supported by people close to them. We learn that the family takes care of itself in everyday life and in the illness experience, creating networks that can provide you support and sustenance. Thus, professionals in health practices should shape up in a longitudinal and very personal way, by reference to the family care, supporting him in what is his own. Ensaio que tem por objetivo refletir sobre a experiência familiar de cuidado na situação crônica, ampliando a compreensão da família como cuidadora primária. Embasa-se em estudos de abordagem compreensiva realizados em três pesquisas matriciais que abordaram experiências familiares de cuidado. Tomamos três eixos para organizar nossas reflexões: a) conformação do cuidado familiar na situação crônica, destacando os múltiplos custos gerados à família, que podem exaurir seus potenciais de cuidado, instaurando ou ampliando sua vulnerabilidade se não for amparada por redes de apoio e sustentação; b) rearranjos familiares para o cuidado, dando visibilidade aos núcleos de cuidado compartilhados pelos diversos entes familiares, de modo dinâmico, plural e mutável; c) cuidado próprio modelando o cuidado familiar, apontando a gama de condições de possibilidades da pessoa adoecida se cuidar apoiada pelas pessoas que lhe são próximas. Compreendemos que a família cuida de si e de seus entes no bojo da vida, assim como na experiência de adoecimento, tecendo redes que a sustentem ao longo do tempo. As práticas profissionais em saúde precisam modelar-se, então, tendo por referência o cuidado familiar, amparando-o naquilo que lhe seja próprio.
authors.affiliation: Faculdade de Enfermagem. Universidade Federal de Mato Grosso, Cuiabá, MT, Brazil.
authors.forename: Roseney
authors.initials: R
authors.lastname: Bellato
authors.affiliation: Faculdade de Enfermagem. Universidade Federal de Mato Grosso, Cuiabá, MT, Brazil.
authors.forename: Laura Filomena Santos de
authors.initials: LF
authors.lastname: Araújo
authors.affiliation: Nurse. Masters in Nursing. Member of Research Group "Nursing, Health and Citizenship" in University Federal of Mato Grosso, Cuiabá, MT, Brazil.
authors.forename: Janderléia Valéria
authors.initials: JV
authors.lastname: Dolina
authors.affiliation: Nurse. Masters in Nursing. Member of Research Group "Nursing, Health and Citizenship" in University Federal of Mato Grosso, Cuiabá, MT, Brazil.
authors.forename: Cleciene Dos Anjos
authors.initials: Cdos A
authors.lastname: Musquim
authors.affiliation: Nurse. Masters in Nursing. Member of Research Group "Nursing, Health and Citizenship" in University Federal of Mato Grosso, Cuiabá, MT, Brazil.
authors.forename: Geovana Hagata de Lima Souza Thaines
authors.initials: GH
authors.lastname: Corrêa
mesh_terms: D001938:Brazil; D017028:Caregivers / Q000523:psychology*; D002908:Chronic Disease / Q000451:nursing*; D003365:Costs and Cost Analysis; D005190:Family; D005195:Family Relations / Q000523:psychology*; D006801:Humans