title: "Whenever they cry, I cry with them": Reciprocal relationships and the role of ethics in a verbal autopsy study in Papua New Guinea.
abstract: Verbal autopsy (VA) methods usually involve an interview with a recently bereaved individual to ascertain the most probable cause of death when a person dies outside of a hospital and/or did not receive a reliable death certificate. A number of concerns have arisen around the ethical and social implications of the use of these methods. In this paper we examine these concerns, looking specifically at the cultural factors surrounding death and mourning in Papua New Guinea, and the potential for VA interviews to cause emotional distress in both the bereaved respondent and the VA fieldworker. Thirty one semi-structured interviews with VA respondents, the VA team and community relations officers as well as observations in the field and team discussions were conducted between June 2013 and August 2014. While our findings reveal that VA participants were often moved to cry and feel sad, they also expressed a number of ways they benefited from the process, and indeed welcomed longer transactions with the VA interviewers. Significantly, this paper highlights the ways in which VA interviewers, who have hitherto been largely neglected in the literature, navigate transactions with the participants and make everyday decisions about their relationships with them in order to ensure that they and VA interviews are accepted by the community. The role of the VA fieldworker should be more carefully considered, as should the implications for training and institutional support that follow.
authors.affiliation: School of Public Health, University of Queensland, Brisbane, Queensland, Australia. Electronic address: h.gouda@uq.edu.au.
authors.forename: H N
authors.initials: HN
authors.lastname: Gouda
authors.affiliation: Kirby Institute, University of New South Wales, Sydney, New South Wales, Australia; Papua New Guinea Institute of Medical Research, Goroka, Eastern Highlands, Papua New Guinea.
authors.forename: A
authors.initials: A
authors.lastname: Kelly-Hanku
authors.affiliation: School of Political Science and International Studies, University of Queensland, Brisbane, Queensland, Australia.
authors.forename: L
authors.initials: L
authors.lastname: Wilson
authors.affiliation: Papua New Guinea Institute of Medical Research, Goroka, Eastern Highlands, Papua New Guinea.
authors.forename: S
authors.initials: S
authors.lastname: Maraga
authors.affiliation: School of Public Health, University of Queensland, Brisbane, Queensland, Australia.
authors.forename: I D
authors.initials: ID
authors.lastname: Riley
mesh_terms: D001344:Autopsy / Q000941:ethics* / Q000379:methods; D001601:Bereavement; D002399:Catharsis; D002423:Cause of Death; D005190:Family / Q000523:psychology; D006282:Health Personnel / Q000523:psychology*; D006801:Humans; D007398:Interpersonal Relations; D010219:Papua New Guinea; D036301:Qualitative Research
keywords: Everyday ethics; Mortality surveillance; Papua New Guinea; Reciprocity and exchange; Verbal autopsy