title: Development of a Spanish-Language Hospice Video.
abstract: The nation faces a persistent issue of delayed access to hospice care. Even though hospice enrollment is considered to be one of the most difficult medical decisions, physician clinics and hospitals lack tools for helping patients/families faced with making decisions about enrollment. Health-care literature lacks discussion of development of decision-making aids in the context of hospice decisions for minority ethnic groups, even though those groups have decisional needs that may differ from those of non-Hispanic whites. To fill the gap, we developed a video of a Latino hospice patient with footages showing how the patient was being taken care of by her family with support from a hospice disciplinary team. A primary objective of this article is to describe how focus groups, existing decision aids, and individual interviews were used to develop and improve a Spanish-language hospice educational video targeting Latino subgroups with linguistic, cultural, and educational barriers. These steps may provide guidelines for developing and revising health-related videos targeting other minority ethnic groups.
authors.affiliation: 1 Department of Health Sciences, Health Administration Program, College of Health and Human Development, California State University, Northridge, CA, USA.
authors.forename: Kyusuk
authors.initials: K
authors.lastname: Chung
authors.affiliation: 1 Department of Health Sciences, Health Administration Program, College of Health and Human Development, California State University, Northridge, CA, USA.
authors.forename: Frankline
authors.initials: F
authors.lastname: Augustin
authors.affiliation: 1 Department of Health Sciences, Health Administration Program, College of Health and Human Development, California State University, Northridge, CA, USA.
authors.forename: Salvador
authors.initials: S
authors.lastname: Esparza
mesh_terms: D054521:Cultural Competency; D003661:Decision Support Techniques; D017144:Focus Groups; D006266:Health Education / Q000379:methods*; D006630:Hispanic or Latino; D017051:Hospice Care / Q000458:organization & administration* / Q000523:psychology; D006801:Humans; D007802:Language; D016730:Program Development; D036301:Qualitative Research; D014743:Videotape Recording
keywords: Latino population; Spanish language; end of life; hospice; hospice knowledge; video