title: Home care for children with multiple complex chronic conditions at the end of life: The choice of hospice versus home health.
abstract: Families desire to bring their children home at end of life, and this creates a variety of unique care needs at home. This study analyzed the child and family factors associated with hospice versus home health care use in the last year of life among children with multiple complex chronic conditions. Using the Andersen Behavioral Healthcare Utilization Model, the predisposing, enabling, and need factors of the child and family were shown to be significant predictors of hospice and home health care use. Hospice and home health care have advantages, and families may wish to use the service that best fits their needs.
authors.affiliation: a College of Nursing , University of Tennessee , Knoxville , Tennessee , USA.
authors.forename: Lisa C
authors.initials: LC
authors.lastname: Lindley
authors.affiliation: a College of Nursing , University of Tennessee , Knoxville , Tennessee , USA.
authors.forename: Sandra J
authors.initials: SJ
authors.lastname: Mixer
authors.affiliation: b Department of Pediatric Oncology and the Division of Population Science's Center for Outcomes and Policy Research, Harvard Medical School , Dana-Farber Cancer Institute , Boston , Massachusetts , USA.|c Division of Pediatric Hematology/Oncology , Children's Hospital Boston , Boston , Massachusetts , USA.
authors.forename: Jennifer W
authors.initials: JW
authors.lastname: Mack
mesh_terms: D000293:Adolescent; D016009:Chi-Square Distribution; D002648:Child; D002675:Child, Preschool; D002755:Choice Behavior; D002908:Chronic Disease / Q000628:therapy; D015331:Cohort Studies; D005260:Female; D006699:Home Care Services / Q000592:standards*; D006738:Hospices / Q000592:standards*; D006801:Humans; D007223:Infant; D008297:Male; D010372:Pediatrics / Q000379:methods*; D012044:Regression Analysis; D012189:Retrospective Studies; D013727:Terminal Care / Q000379:methods*; D019452:Terminally Ill; D055815:Young Adult
keywords: Clinical practice: community and home care hospice programs; death and dying; home health care clinical practice