title: The psychosocial impact of exercising with epilepsy: A narrative analysis.
abstract: Research has presented the benefits of and barriers to exercise for people with epilepsy through quantitative means. However, individual experiences through qualitative investigations have been absent. This research will present the narratives of people with epilepsy exercising over time and, as a result, develop further understanding of the psychosocial impact of exercising with epilepsy. Four interviews were conducted over the course of one year (one every three to four months) with four participants (aged 23-38years) who varied in seizure type and control (16 interviews in total). A narrative analysis was used to analyze their exercise experiences. Results showed that exercise creates a positive effect on psychological and physical well-being. However, prevention from exercise as a result of medical advice or recurrent seizures can create negative effects such as social isolation, anxiety, lack of confidence, frustration, and anger. Adaptations of decreasing exercise intensity level and partaking in different physical activities are techniques used to lessen the negative impact and maintain an exercise routine. Time was shown to be an important factor in this adaptation as well as portrayed the cyclical responses of negative and positive emotions in regard to their exercise life. These findings provide valuable insight into the psychosocial benefits of and barriers to exercising with epilepsy and draw attention to the individual differences in how a person with epilepsy copes with uncontrolled seizures and their impact on his/her exercise routine. This knowledge can lead to future research in exploring how a person with epilepsy can overcome these barriers to exercise and encourage more people with epilepsy to enjoy the benefits of exercise.
authors.affiliation: University of Roehampton, Whitelands College, Holybourne Avenue, London SW15 4JD, England, United Kingdom. Electronic address: scollard@bournemouth.ac.uk.
authors.forename: Sarah S
authors.initials: SS
authors.lastname: Collard
authors.affiliation: University of Roehampton, Whitelands College, Holybourne Avenue, London SW15 4JD, England, United Kingdom. Electronic address: caroline@landmconsulting.co.uk.
authors.forename: Caroline
authors.initials: C
authors.lastname: Marlow
mesh_terms: D000328:Adult; D000786:Anger; D001007:Anxiety / Q000523:psychology*; D004827:Epilepsy / Q000523:psychology*; D015444:Exercise / Q000523:psychology*; D005260:Female; D005639:Frustration; D006801:Humans; D008297:Male; D036301:Qualitative Research; D012640:Seizures / Q000523:psychology*; D012934:Social Isolation; D012944:Social Support; D055815:Young Adult
keywords: Adaptation; Epilepsy; Exercise; Psychological; Qualitative; Quality of life