title: Inherited genetic conditions.
abstract: Background While it is known that early diagnosis leads to better health outcomes for children with inherited genetic conditions (IGCs) ( UK Newborn Screening Programme Centre 2012 , Bush 2008 ), families affected by IGCs face difficulties, including those associated with complex treatment regimens.
mesh_terms: D000293:Adolescent; D002648:Child; D003142:Communication; D017144:Focus Groups; D030342:Genetic Diseases, Inborn / Q000451:nursing*; D006801:Humans; D009723:Nurse-Patient Relations; D010290:Parents; D010865:Pilot Projects; D011368:Professional-Family Relations; D012306:Risk