title: Nutritional pathway for people with motor neurone disease.
abstract: This paper provides an overview of the nutritional management and care of people living with motor neurone disease (MND) in a specialist nutrition clinic. A specialist pathway of care has been developed to enable people living with MND to undergo a percutaneous endoscopic gastrostomy (PEG) procedure in a safe way; the pathway incorporates attendance at a dedicated nutrition clinic, a stratification tool to identify patients with a high periprocedural risk and a PEG insertion team with significant experience in the MND population. Since this pathway has been in place, gastrostomies have been successfully placed in patients with a forced vital capacity (FVC) of less than 50%; previously, this would not have been possible.
authors.affiliation: Motor Neurone Disease Advanced Nurse Practitioner and Care Centre Coordinator.
authors.forename: Rachael
authors.initials: R
authors.lastname: Marsden
authors.affiliation: Consultant Gastroenterologist and Endoscopist Gastroenterology Unit, Oxford University Hospitals NHS Foundation Trust.
authors.forename: Philip
authors.initials: P
authors.lastname: Allan
authors.affiliation: Nutrition Advanced Training Fellow, Oxford University Hospitals NHS Foundation Trust.
authors.forename: Victoria
authors.initials: V
authors.lastname: Blackwell
authors.affiliation: Consultant Gastroenterologist and Endoscopist Gastroenterology Unit, Oxford University Hospitals NHS Foundation Trust.
authors.forename: James
authors.initials: J
authors.lastname: East
authors.affiliation: Nurse Practitioner-Nutrition, Oxford University Hospitals NHS Foundation Trust.
authors.forename: Clare
authors.initials: C
authors.lastname: Lawson
authors.affiliation: Consultant in Respiratory Medicine, Sleep and Ventilation Lead, Oxford Centre for Respiratory Medicine Oxford University Hospitals NHS Foundation Trust.
authors.forename: Annabel H
authors.initials: AH
authors.lastname: Nickol
authors.affiliation: Neurosciences Dietitian, Oxford Health NHS Foundation Trust; Oxford University Hospitals NHS Foundation Trust.
authors.forename: Emma
authors.initials: E
authors.lastname: Millard
authors.affiliation: Consultant Neurologist, Oxford University Nuffield Department of Clinical Neurosciences, John Radcliffe Hospital, Oxford.
authors.forename: Kevin
authors.initials: K
authors.lastname: Talbot
authors.affiliation: Clinical Research Fellow, Nuffield Department of Clinical Neurosciences, University of Oxford.
authors.forename: Alexander G
authors.initials: AG
authors.lastname: Thompson
authors.affiliation: Consultant Neurologist, Oxford University Nuffield Department of Clinical Neurosciences, John Radcliffe Hospital, Oxford.
authors.forename: Martin R
authors.initials: MR
authors.lastname: Turner
mesh_terms: D000553:Ambulatory Care / Q000458:organization & administration*; D005774:Gastrostomy / Q000379:methods*; D006801:Humans; D016472:Motor Neuron Disease / Q000503:physiopathology / Q000628:therapy*; D018529:Nutritional Support / Q000379:methods*; D010342:Patient Acceptance of Health Care; D010348:Patient Care Team; D014797:Vital Capacity
keywords: Motor neuron disease; PEG; nutrition; pathway