title: REDLetr: Workflow and tools to support the migration of legacy clinical data capture systems to REDCap.
abstract: A memory clinic at an academic medical center has relied on several ad hoc data capture systems including Microsoft Access and Excel for cognitive assessments over the last several years. However these solutions are challenging to maintain and limit the potential of hypothesis-driven or longitudinal research. REDCap, a secure web application based on PHP and MySQL, is a practical solution for improving data capture and organization. Here, we present a workflow and toolset to facilitate legacy data migration and real-time clinical research data collection into REDCap as well as challenges encountered.
  
  
  
  Legacy data consisted of neuropsychological tests stored in over 4000 Excel workbooks. Functions for data extraction, norm scoring, converting to REDCap-compatible formats, accessing the REDCap API, and clinical report generation were developed and executed in Python.
  
  
  
  Over 400 unique data points for each workbook were migrated and integrated into our REDCap database. Moving forward, our REDCap-based system replaces the Excel-based data collection method as well as eases the integration into the standard clinical research workflow and Electronic Health Record.
  
  
  
  In the age of growing data, efficient organization and storage of clinical and research data is critical for advancing research and providing efficient patient care. We believe that the workflow and tools described in this work to promote legacy data integration as well as real time data collection into REDCap ultimately facilitate these goals.
authors.affiliation: Department of Neurology, Emory University, Atlanta, GA, USA; Department of Biomedical Informatics, Emory University, Atlanta, GA, USA.
authors.forename: William D
authors.initials: WD
authors.lastname: Dunn
authors.affiliation: College of Computing, Georgia Institute of Technology, Atlanta, GA, USA.
authors.forename: Jake
authors.initials: J
authors.lastname: Cobb
authors.affiliation: Department of Neurology, Emory University, Atlanta, GA, USA.
authors.forename: Allan I
authors.initials: AI
authors.lastname: Levey
authors.affiliation: Department of Neurology, Emory University, Atlanta, GA, USA; Department of Biomedical Informatics, Emory University, Atlanta, GA, USA. Electronic address: dgutman@emory.edu.
authors.forename: David A
authors.initials: DA
authors.lastname: Gutman
mesh_terms: D035843:Biomedical Research; D002986:Clinical Trials as Topic; D003625:Data Collection / Q000379:methods*; D003628:Database Management Systems; D016208:Databases, Factual; D057286:Electronic Health Records; D006801:Humans; D020407:Internet; D008490:Medical Informatics / Q000379:methods*; D012984:Software; D014584:User-Computer Interface; D057188:Workflow
keywords: Biomedical informatics; Clinical informatics; Clinical research informatics; ETL; Electronic health record; REDCap