title: Translation and Testing of the Swedish Version of Iceland-Family Perceived Support Questionnaire With Parents of Children With Congenital Heart Defects.
abstract: There is a need for a suitable instrument for the Swedish context that could measure family members' perceptions of cognitive and emotional support received from nurses. The purpose of this study was to translate and test the psychometric properties of the Swedish version of the Iceland-Family Perceived Support Questionnaire (ICE-FPSQ) and, further, to report perceptions of support from nurses by family members of children with congenital heart defects (CHDs). A sample of 97 parents of children with CHD, living in Sweden, completed the Swedish translation of ICE-FPSQ. The Swedish version of ICE-FPSQ was found to be reliable and valid in this context. Parents scored perceived family support provided by nurses working in pediatric outpatient clinics as low, which suggests that nurses in these outpatient contexts in Sweden offered family nursing only sparingly.
authors.affiliation: Umeå Uniersity, Örnsköldsvik, Sweden elisabeth.bruce@umu.se.
authors.forename: Elisabeth
authors.initials: E
authors.lastname: Bruce
authors.affiliation: Umeå Uniersity, Örnsköldsvik, Sweden.
authors.forename: Åsa
authors.initials: Å
authors.lastname: Dorell
authors.affiliation: Umeå University, Umeå, Sweden.
authors.forename: Viveca
authors.initials: V
authors.lastname: Lindh
authors.affiliation: Linnaeus University, Kalmar, Sweden.
authors.forename: Christen
authors.initials: C
authors.lastname: Erlingsson
authors.affiliation: Umeå University, Umeå, Sweden.
authors.forename: Marie
authors.initials: M
authors.lastname: Lindkvist
authors.affiliation: Umeå Uniersity, Örnsköldsvik, Sweden.
authors.forename: Karin
authors.initials: K
authors.lastname: Sundin
mesh_terms: D002648:Child; D005192:Family Health; D006330:Heart Defects, Congenital; D006801:Humans; D007055:Iceland; D007802:Language; D010290:Parents; D012944:Social Support; D011795:Surveys and Questionnaires; D013548:Sweden
keywords: Iceland-Family Perceived Support Questionnaire (ICE-FPSQ); Sweden; family nursing; family–nurse relationship; pediatric cardiac care; perceived support; psychometric testing