title: Duration of benefit following completion of pulmonary rehabilitation in interstitial lung disease-an observational study.
abstract: BACKGROUND
  It remains unclear for how long the benefits of pulmonary rehabilitation (PR) last in interstitial lung disease (ILD). An increasing number of ILD patients complete PR and it is vital they be offered the most beneficial approaches.
  
  
  METHODS
  This is a retrospective, observational study of a cohort with ILD who had completed PR. Incremental shuttle walk (ISWT) and chronic respiratory disease questionnaire (CRDQ) were compared before PR, at course completion, and 6/12 months follow-up. Focus group discussions with ILD participants who had completed PR and their carers established qualitative views on existing and potential future PR provision.
  
  
  RESULTS
  79 participants with ILD were identified at course completion, with 39 followed to 12 months. 11 participants died during follow-up. Initial benefits from PR were not sustained at 6 months (ISWT change 0.0m (95% CI-23.2 to 23.2 m), CRDQ change 2.5 (95% CI-2.4 to 7.4)) and 12 months (ISWT change-0.7 m (95% CI-37.3 to 35.9 m), CRDQ change 4.0 (95% CI-2.2 to 10.2)). Continued home exercise gave longer lasting benefit in exercise capacity. Focus group discussions highlighted the value attached to PR and suggested areas for improvement.
  
  
  CONCLUSIONS
  Standard PR gives initial benefits in participants with ILD who complete the course, however these are not sustained. Tailored approaches to this group would be appreciated by this group and should be explored.
authors.affiliation: From the North Bristol Lung Centre, Southmead Hospital, Bristol BS10 5NB, UK.|Academic Respiratory Group, University of Bristol, Learning and Research Building, Southmead Hospital, Bristol BS10 5NB, UK.
authors.forename: C
authors.initials: C
authors.lastname: Sharp
authors.affiliation: Department of Geography, London School of Economics, Houghton Street, London WC2A 2AE, UK.
authors.forename: M
authors.initials: M
authors.lastname: McCabe
authors.affiliation: From the North Bristol Lung Centre, Southmead Hospital, Bristol BS10 5NB, UK.
authors.forename: M J
authors.initials: MJ
authors.lastname: Hussain
authors.affiliation: Academic Respiratory Group, University of Bristol, Learning and Research Building, Southmead Hospital, Bristol BS10 5NB, UK.
authors.forename: J W
authors.initials: JW
authors.lastname: Dodd
authors.affiliation: From the North Bristol Lung Centre, Southmead Hospital, Bristol BS10 5NB, UK.
authors.forename: H
authors.initials: H
authors.lastname: Lamb
authors.affiliation: From the North Bristol Lung Centre, Southmead Hospital, Bristol BS10 5NB, UK.
authors.forename: H
authors.initials: H
authors.lastname: Adamali
authors.affiliation: Academic Respiratory Group, University of Bristol, Learning and Research Building, Southmead Hospital, Bristol BS10 5NB, UK ann.millar@bristol.ac.uk.
authors.forename: A B
authors.initials: AB
authors.lastname: Millar
authors.affiliation: From the North Bristol Lung Centre, Southmead Hospital, Bristol BS10 5NB, UK.
authors.forename: D
authors.initials: D
authors.lastname: Smith
mesh_terms: D000368:Aged; D000369:Aged, 80 and over; D005081:Exercise Therapy / Q000379:methods*; D017079:Exercise Tolerance; D005260:Female; D006801:Humans; D016014:Linear Models; D017563:Lung Diseases, Interstitial / Q000534:rehabilitation*; D008297:Male; D008875:Middle Aged; D011788:Quality of Life; D012129:Respiratory Function Tests; D012189:Retrospective Studies; D016896:Treatment Outcome; D016138:Walking