title: [Emotions and bodily experience in Hidradenitis Suppurative-Acne Inversa].
abstract: Hidradenitis Suppurative-Acne Inversa is one of the most debilitating chronic skin diseases. It seriously affects the emotional and relational life of the patient, it has a significant psychiatric comorbidity and it impairs the quality of life. We present the report of a clinical situation with onset of the illness in a young woman during pregnancy, a case characterized by particular evolution, severe systemic involvement, strong psycho-emotional impact on the patient and impairment of subjective well-being of the caregiver. The clinical evaluation highlights mainly the relevance of the bodily experience, that stands out as a central issue in the sufference of the patient. She feels an uncanny foreignness to herself and a lacerating wound of her identity, related to her desirability, her femininity and her motherhood. Specific personality factors, which are likely to have influenced and guided the experience of illness and the quality of the relationship with the treatment team, are also evaluated. This case exemplifies, at different levels, the clinical complexity of Hidradenitis Suppurative-Acne Inversa and its impact on individual subjectivity. This disease requires an integrated intervention by a multidisciplinary team, providing for the assessment, the treatment and the evaluation of outcomes. It is necessary an effective operational link between different competences, in order to promote the patient compliance and to activate and develop the best care and the right psychological support.
authors.affiliation: Sezione di Scienze Neurologiche Psichiatriche e Psicologiche. Dipartimento di Scienze Biomediche e Chirurgico Specialistiche. Università degli Studi di Ferrara.
authors.forename: S
authors.initials: S
authors.lastname: Tugnoli
authors.affiliation: U.O. Dermatologia Azienda Ospedaliero-Universitaria di Ferrara.
authors.forename: V
authors.initials: V
authors.lastname: Bettoli
authors.affiliation: Sezione di Scienze Neurologiche Psichiatriche e Psicologiche. Dipartimento di Scienze Biomediche e Chirurgico Specialistiche. Università degli Studi di Ferrara.
authors.forename: C
authors.initials: C
authors.lastname: Agnoli
authors.affiliation: Sezione di Scienze Neurologiche Psichiatriche e Psicologiche. Dipartimento di Scienze Biomediche e Chirurgico Specialistiche. Università degli Studi di Ferrara.
authors.forename: S
authors.initials: S
authors.lastname: Caracciolo
mesh_terms: D000328:Adult; D015897:Comorbidity; D004644:Emotions; D005260:Female; D017497:Hidradenitis Suppurativa / Q000503:physiopathology* / Q000523:psychology*; D006801:Humans; D011247:Pregnancy; D011788:Quality of Life
keywords: Bodily; Caregiver; Emotions; Hidradenitis suppurative-acne inversa; Intervention; Personality