title: Pediatric Coccidioidomycosis Patients: Perceptions, Quality of Life and Psychosocial Factors.
abstract: Research investigating the effects of coccidioidomycosis (valley fever) on children and the psychosocial implications of this disease in general is lacking. This study reviews what is known about pediatric coccidioidomycosis patients. It documents the psychological functioning, quality of life, and illness perceptions of a sample of coccidioidomycosis patient families. Primary caregivers of pediatric patients and patients from a major hospital in the San Joaquin Valley of California were interviewed regarding their perceptions of disease detection, access to care and the patient/family experience.
authors.affiliation: Health Sciences Research Institute, University of California, Merced, CA 95343, USA. egaab@ucmerced.edu.
authors.forename: Erin Mary
authors.initials: EM
authors.lastname: Gaab
authors.affiliation: Valley Children's Hospital, 9300 Valley Children's Pl, Madera, CA 93636, USA. fnaeem@VALLEYCHILDRENS.ORG.
authors.forename: Fouzia
authors.initials: F
authors.lastname: Naeem
keywords: children; coccidioidomycosis; coping; families; healthcare; pediatrics; quality of life; valley fever