title: Haemophilia registries to complement clinical trial data: a pious hope or an urgent necessity?: Reflections on a possible way forward.
authors.affiliation: Hematology and Transfusion Medicine, Paul-Ehrlich-Institut, Langen, Germany. christine.keipert@pei.de.
authors.forename: C
authors.initials: C
authors.lastname: Keipert
authors.affiliation: University Medical Center Utrecht, Utrecht, The Netherlands.
authors.forename: H M
authors.initials: HM
authors.lastname: van den Berg
authors.affiliation: Safety of Medicinal Products and Medical Devices, Paul-Ehrlich-Institut, Langen, Germany.
authors.forename: B
authors.initials: B
authors.lastname: Keller-Stanislawski
authors.affiliation: Hematology and Transfusion Medicine, Paul-Ehrlich-Institut, Langen, Germany.
authors.forename: A
authors.initials: A
authors.lastname: Hilger
mesh_terms: D002986:Clinical Trials as Topic; D003029:Coagulants / Q000627:therapeutic use; D005164:Factor IX / Q000627:therapeutic use; D005169:Factor VIII / Q000627:therapeutic use; D006467:Hemophilia A / Q000188:drug therapy / Q000473:pathology*; D002836:Hemophilia B / Q000188:drug therapy / Q000473:pathology*; D006801:Humans; D012042:Registries
chemical_list: D003029:Coagulants; D005169:Factor VIII; D005164:Factor IX