title: Testing of a tethered personal health record framework for early end-of-life discussions.
abstract: The process of planning for end-of life decisions, also known as advance care planning (ACP), is associated with numerous positive outcomes, including improved patient satisfaction with care and improved patient quality of life in terminal illness. In this study, we sought to test a novel personal health record (PHR)-delivered ACP framework through a small-scale randomized trial of usual care practices versus PHR-delivered ACP.
  
  
  
  Randomized controlled pilot intervention.
  
  
  
  A novel PHR-ACP tool was tested using data and feedback collected in a randomized controlled pilot intervention (n = 50). Participants in the control group received standard care for ACP conversations while participants randomized to the intervention group received a novel ACP framework through the electronic health record.
  
  
  
  The pilot study testing the ACP framework found that its use resulted in improved ACP documentation rates (P = .001) and quality (P = .007) compared with usual care.
  
  
  
  Tethered PHR use as an initial ACP communication tool can improve outpatient documentation rates and quality. Future studies obtaining patient feedback on a revised framework and testing in a larger setting are needed to determine reproducibility of findings.
authors.affiliation: Ohio State University, 895 Yard St, Columbus, OH 43212. E-mail: Seuli.Brill@osumc.edu.
authors.forename: Seuli
authors.initials: S
authors.lastname: Bose-Brill
authors.forename: Matthew
authors.initials: M
authors.lastname: Kretovics
authors.forename: Taylor
authors.initials: T
authors.lastname: Ballenger
authors.forename: Gabriella
authors.initials: G
authors.lastname: Modan
authors.forename: Albert
authors.initials: A
authors.lastname: Lai
authors.forename: Lindsay
authors.initials: L
authors.lastname: Belanger
authors.forename: Stephen
authors.initials: S
authors.lastname: Koesters
authors.forename: Taylor
authors.initials: T
authors.lastname: Pressler-Vydra
authors.forename: Christopher
authors.initials: C
authors.lastname: Holloman
authors.forename: Celia
authors.initials: C
authors.lastname: Wills
mesh_terms: D032722:Advance Care Planning; D016223:Advance Directives; D057286:Electronic Health Records; D005260:Female; D055991:Health Records, Personal; D006801:Humans; D008297:Male; D017060:Patient Satisfaction; D010865:Pilot Projects; D015397:Program Evaluation; D011785:Quality Assurance, Health Care; D019452:Terminally Ill; D014481:United States