title: [Transition from pediatric to adult rheumatological care].
abstract: Childhood onset rheumatic and musculoskeletal diseases often continue into adulthood. These diseases are associated with a high risk of permanent disability and impairment in the quality of life of people affected. Adolescence and young adulthood represent a particular risk phase for an unfavorable long-term outcome. During this challenging and future health-determining phase at least one in three patients stops seeking regular specialized healthcare and the health status of these people deteriorates after having left pediatric care. The key principles of transitional care have been defined, are generally accepted and are presented in this article. There is emerging evidence of the effectiveness of transitional care programs. The implementation of a structured transition into the routine care of adolescents and young adults with rheumatic diseases is necessary.
authors.affiliation: Programmbereich Epidemiologie, Deutsches Rheuma-Forschungszentrum Berlin, Berlin, Deutschland. minden@drfz.de.|Klinik mit Schwerpunkt Rheumatologie und Klinische Immunologie, Charité, Universitätsmedizin Berlin, Charitéplatz 1, 10117, Berlin, Deutschland. minden@drfz.de.
authors.forename: K
authors.initials: K
authors.lastname: Minden
authors.affiliation: Rheumatologische Jugend- und Transitionssprechstunde im integrierten Sozialpädagogischen Zentrum am Dr. von Haunerschen Kinderspital, LMU München, München, Deutschland.|MVZ Rheumatologie Dr. Welcker, Planegg, Deutschland.
authors.forename: S
authors.initials: S
authors.lastname: Schalm
mesh_terms: D000293:Adolescent; D000328:Adult; D002648:Child; D002675:Child, Preschool; D019317:Evidence-Based Medicine; D005260:Female; D005858:Germany; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D008297:Male; D010352:Patient Dropouts; D018802:Patient-Centered Care / Q000379:methods*; D010372:Pediatrics / Q000458:organization & administration*; D012216:Rheumatic Diseases / Q000175:diagnosis* / Q000628:therapy*; D012219:Rheumatology / Q000458:organization & administration*; D060305:Transition to Adult Care / Q000458:organization & administration*; D055815:Young Adult
keywords: Healthcare; Musculoskeletal diseases; Outcome; Quality of life; Rheumatic diseases