title: The association between caregiver well-being and care provided to persons with Alzheimer's disease and related disorders.
abstract: BACKGROUND
  Alzheimer's disease and related disorders (ADRD) are some of the leading causes of morbidity in developed nations. Unpaid family caregivers are primarily responsible for providing the care and support needed by persons with ADRD. In the process of caring for their loved ones with ADRD, caregivers often have to deal with multiple challenges, including their own deteriorating well-being and overall quality-of-life (QoL). A recent systematic review showed that very little research has been undertaken to study the relationship between AD caregiver QoL and the level or quality of care that caregivers provide to their loved ones. In this study, we investigate the relationships between caregiver well-being and the care provided to persons with ADRD.
  
  
  METHODS
  We used 12-month follow-up data from the Philadelphia site (n = 125) of the National Institutes of Health (NIH) multi-site study, Resources for Enhancing Alzheimer's Caregiver Health (REACH I) to examine the relationship between caregiver well-being and the level or quality of care provided while adjusting for important covariates (e.g., age, income, and years since caregiving). Caregivers who participated in REACH I had to be at least 21 years of age and they had to be providing at least 4 h of care per day for 6 months or more to a live-in loved one with ADRD. Linear regression analysis was used to examine the relationships between well-being and the level or quality of care provided to persons with ADRD.
  
  
  RESULTS
  Of the 255 caregivers who participated in the REACH I study, 125 (49.0 %) remained after 12 months of follow-up. Comparisons of participants at the 12-month follow-up and participants who were lost to follow-up showed that these two sets of participants were not statistically significantly different on any of the variables examined in this study. Linear regression analysis showed that there was no statistically significant association between caregiver well-being and level or quality of care provided.
  
  
  CONCLUSIONS
  Further research is required to investigate the factors associated with level and quality of care provided to persons with ADRD, and whether caregiver well-being (or QoL in general) is a contributor.
authors.affiliation: Department of Medicine, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada. aahazzan@gmail.com.|Department of Clinical Epidemiology and Biostatistics, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada. aahazzan@gmail.com.
authors.forename: Afeez Abiola
authors.initials: AA
authors.lastname: Hazzan
authors.affiliation: Department of Clinical Epidemiology and Biostatistics, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.
authors.forename: Harry
authors.initials: H
authors.lastname: Shannon
authors.affiliation: School of Nursing, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.
authors.forename: Jenny
authors.initials: J
authors.lastname: Ploeg
authors.affiliation: Department of Clinical Epidemiology and Biostatistics, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.
authors.forename: Parminder
authors.initials: P
authors.lastname: Raina
authors.affiliation: Department of Community-Public Health, Center for Innovative Care in Aging, Johns Hopkins School of Nursing, Baltimore, MD, 21205, USA.
authors.forename: Laura N
authors.initials: LN
authors.lastname: Gitlin
authors.affiliation: Department of Clinical Epidemiology and Biostatistics, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.|School of Public Health and Health Sciences, University of Waterloo, 200 University Avenue West, Waterloo, ON, N2L 3G1, Canada.
authors.forename: Mark
authors.initials: M
authors.lastname: Oremus
mesh_terms: D000367:Age Factors; D000544:Alzheimer Disease / Q000503:physiopathology*; D017028:Caregivers / Q000523:psychology*; D003704:Dementia / Q000503:physiopathology*; D005260:Female; D005500:Follow-Up Studies; D006304:Health Status; D006801:Humans; D007182:Income; D016014:Linear Models; D008297:Male; D011594:Psychometrics / Q000379:methods; D011787:Quality of Health Care / Q000706:statistics & numerical data*; D011788:Quality of Life / Q000523:psychology*
keywords: Aging; Alzheimer’s disease and related disorders; Caregiving; Dementia; Level of care; Quality of care; Quality-of-life; Well-being