title: Women's Educational Needs and Perceptions About Survivorship Following Bilateral Mastectomy.
abstract: BACKGROUND
  More women are choosing to have a bilateral mastectomy to treat unilateral breast cancer despite it not being considered the standard of care. Women are making this choice for various reasons, including anxiety of follow-up screening of the other breast, risk of cancer recurrence for the rest of their lives, and desire to maintain control over the localized cancer. Currently, evidence-based information is lacking regarding this treatment choice. In addition, the concept of survivorship has yet to be examined in this population of women.
  
  
  OBJECTIVE
  This study aimed to explore women's educational needs and perceptions about survivorship following bilateral mastectomy as a treatment for unilateral breast cancer.
  
  
  METHODS
  In-depth interviews were conducted with 23 women using a semistructured interview guide. Data were elicited, coded, and analyzed using thematic analysis.
  
  
  RESULTS
  Two themes were identified that addressed education and survivorship.
authors.affiliation: Rutgers University.
authors.forename: Patricia D
authors.initials: PD
authors.lastname: Suplee
authors.affiliation: Rutgers University.
authors.forename: Bonnie
authors.initials: B
authors.lastname: Jerome-D'Emilia
authors.affiliation: Rutgers University.
authors.forename: Jennifer L K
authors.initials: JL
authors.lastname: Boiler
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001943:Breast Neoplasms / Q000523:psychology / Q000601:surgery*; D005260:Female; D006801:Humans; D015409:Mastectomy, Radical / Q000193:education / Q000523:psychology*; D008875:Middle Aged; D010353:Patient Education as Topic; D000072036:Prophylactic Mastectomy / Q000193:education / Q000523:psychology*; D013534:Survival / Q000523:psychology*; D014930:Women / Q000193:education* / Q000523:psychology*
keywords: bilateral mastectomy; breast cancer education; decision making; survivorship