title: Community-based participatory research: understanding a promising approach to addressing knowledge gaps in palliative care.
abstract: Concern over the need for effective and accessible healthcare for individuals with advanced chronic illness has drawn attention to the significant gaps in our knowledge of palliative medicine. To advance our understanding of this field, community-based participatory research (CBPR) is proposed as a tool for future research initiatives. This paper offers a rationale for how CBPR may be employed to address specific gaps in palliative care research. Several examples where this approach has been used previously are described, and potential obstacles to implementing this research method are delineated. Despite challenges to incorporating CBPR to palliative care research, this approach holds substantial potential to advance our current understanding of the field and promote sensitivity for future programs, practices and policies.
authors.affiliation: Department of Human Development, College of Human Ecology, Ithaca, NY, USA. Catherine.Riffin@yale.edu.
authors.forename: Catherine
authors.initials: C
authors.lastname: Riffin
authors.affiliation: Division of Geriatrics and Palliative Medicine, Weill Cornell Medical College, New York, NY, USA.
authors.forename: Cara
authors.initials: C
authors.lastname: Kenien
authors.affiliation: Brookdale Center for Healthy Aging, Hunter College of the City University of New York, New York, NY, USA.
authors.forename: Angela
authors.initials: A
authors.lastname: Ghesquiere
authors.affiliation: Northeast Business Group on Health, New York, NY, USA.
authors.forename: Ashley
authors.initials: A
authors.lastname: Dorime
authors.affiliation: University of California, Irvine, California, USA.
authors.forename: Carolina
authors.initials: C
authors.lastname: Villanueva
authors.affiliation: Brookdale Center for Healthy Aging, Hunter College of the City University of New York, New York, NY, USA.
authors.forename: Daniel
authors.initials: D
authors.lastname: Gardner
authors.affiliation: Legal Aid Society, Brooklyn Neighborhood Office, New York, NY, USA.
authors.forename: Jean
authors.initials: J
authors.lastname: Callahan
authors.affiliation: Hunter College School of Nursing of the City University of New York, New York, NY, USA.
authors.forename: Elizabeth
authors.initials: E
authors.lastname: Capezuti
authors.affiliation: Division of Geriatrics and Palliative Medicine, Weill Cornell Medical College, New York, NY, USA.
authors.forename: M Carrington
authors.initials: MC
authors.lastname: Reid
mesh_terms: D055812:Community-Based Participatory Research / Q000191:economics / Q000941:ethics / Q000379:methods*; D032984:Ethics, Research; D006297:Health Services Accessibility / Q000941:ethics / Q000458:organization & administration; D061889:Healthcare Financing; D006801:Humans; D010166:Palliative Care / Q000191:economics / Q000941:ethics / Q000379:methods*; D018579:Patient Selection; D058996:Quality Improvement; D012108:Research Personnel; D012109:Research Support as Topic
keywords: Community-based participatory research (CBPR); palliative care