title: 'Haematological cancers, they're a funny bunch': A qualitative study of non-Hodgkin's lymphoma patient experiences of unmet supportive care needs.
abstract: Despite high levels of psychological distress, there is a scarcity of research on unmet supportive care needs in haematological cancer patients. This qualitative study used an in-depth interpretative phenomenological approach to investigate the needs reported by six non-Hodgkin's lymphoma patients and explored how these needs consequently shaped the patient experience. Emergent themes included the following: concerns for family, information needs and the need for psychological support. Participants reported feeling different to other cancer patients. Lack of understanding of their diagnosis by friends and family and lack of access to relevant support services are notable unmet needs that differ from previous findings.
authors.affiliation: 1 University of Chester, UK.|2 University of Cambridge, UK.
authors.forename: Brooke
authors.initials: B
authors.lastname: Swash
authors.affiliation: 1 University of Chester, UK.
authors.forename: Nick
authors.initials: N
authors.lastname: Hulbert-Williams
authors.affiliation: 1 University of Chester, UK.
authors.forename: Ros
authors.initials: R
authors.lastname: Bramwell
mesh_terms: D000328:Adult; D005260:Female; D006801:Humans; D007398:Interpersonal Relations; D008228:Lymphoma, Non-Hodgkin / Q000523:psychology* / Q000628:therapy*; D008297:Male; D036301:Qualitative Research; D012944:Social Support; D013315:Stress, Psychological / Q000523:psychology*
keywords: cancer; clinical health psychology; healthcare; psychological distress; qualitative methods