title: Limitations to providing adult cystic fibrosis care in Europe: Results of a care centre survey.
abstract: There are a growing number of adults in Europe with a projected increase of 75% over the next decade. There is concern that provision of care will not be sufficient to meet needs. We aimed to establish the level of CF service throughout Europe.
  
  
  
  An online survey designed by clinicians and patient representatives to explore level of service.
  
  
  
  Training opportunities for clinicians and resources (physical and manpower) to provide care to adults with CF are limited in Europe. Although specific adult CF care has been identified, teams continue to be supported by paediatric colleagues and many adults are still being admitted to paediatric wards. In some centres, service delivery, particularly infection control and access to some CF medication is insufficient and in many places poor personnel resources limits access to comprehensive multidisciplinary teams.
  
  
  
  This survey shows an urgent need for the development of resources for adult CF care, in both physical space and appropriately trained clinicians.
authors.affiliation: Department of Cystic Fibrosis, Royal Brompton Hospital, London, UK. Electronic address: s.madge@rbht.nhs.uk.
authors.forename: Susan
authors.initials: S
authors.lastname: Madge
authors.affiliation: Department of Thoracic Medicine, The Prince Charles Hospital, Brisbane, Australia; Lung Bacteria Group, QIMR Berghofer Medical Research Institute, Brisbane, Australia; School of Medicine, University of Queensland, Brisbane, Australia.
authors.forename: Scott C
authors.initials: SC
authors.lastname: Bell
authors.affiliation: Department of Respiratory Medicine and Adult Cystic Fibrosis, Assistance Publique Hôpitaux de Paris, Paris, France; Université Paris Descartes, Sorbonne Paris Cité, Paris, France.
authors.forename: Pierre-Régis
authors.initials: PR
authors.lastname: Burgel
authors.affiliation: Cystic Fibrosis Europe, Brussels, Belgium.
authors.forename: Karleen
authors.initials: K
authors.lastname: De Rijcke
authors.affiliation: Department of Pathophysiology and Transplantation, Università degli Studi di Milano, Fondazione IRCCS Cà Granda Ospedale Maggiore Policlinico Milan, Italy; Cardio-thoracic unit, IRCCS Fondazione Ospedale Maggiore, Milan, Italy.
authors.forename: Francesco
authors.initials: F
authors.lastname: Blasi
authors.affiliation: Queen's University Belfast, BT9 Room G.16, Health Sciences Building, 97 Lisburn Road, Belfast, UK.
authors.forename: J Stuart
authors.initials: JS
authors.lastname: Elborn
mesh_terms: D000328:Adult; D002648:Child; D003550:Cystic Fibrosis / Q000453:epidemiology / Q000628:therapy; D003695:Delivery of Health Care / Q000379:methods / Q000458:organization & administration / Q000592:standards; D005060:Europe / Q000453:epidemiology; D005260:Female; D015276:Health Care Rationing / Q000592:standards / Q000706:statistics & numerical data; D019538:Health Care Surveys; D006801:Humans; D017053:Infection Control / Q000458:organization & administration; D008297:Male; D020380:Needs Assessment; D011787:Quality of Health Care; D060305:Transition to Adult Care / Q000458:organization & administration
keywords: Adults; Cystic fibrosis; Eastern Europe; Service provision; Western Europe