title: Inequalities and Barriers to the Use of Supportive Care Among Young Breast Cancer Survivors: a Qualitative Understanding.
abstract: The development of supportive care for cancer patients has been shown to have a positive impact on both mortality rates and many aspects of life after cancer, particularly in young women. Meanwhile, there are still numerous inequalities in terms of cancer mortalities and quality of life among cancer survivors in France. The processes leading to unequal access to supportive care services, and the impact this has on the post-treatment period, have been poorly documented, however. The goal of this study was to understand the barriers to using supportive care services among young women breast cancer survivors under the age of 50 and to find out how this can contribute to inequalities. Thirty-six young breast cancer survivors, one third of which deemed socially deprived, were interviewed using a qualitative, inductive approach at two comprehensive care centres in France. Our findings primarily show that there are still a number of barriers to accessing supportive care for a large number of patients. The way information about supportive services is delivered is a major cause of inequalities in the use of these services. The guidance provided does not take into account either the patients' needs or their capacity to integrate the information and anticipate problems. Certain specific post-treatment issues have yet to be addressed. Some systemic barriers could be lifted by changing the way information on supportive care services is currently organised and thereby prevent the survivorship plans now being implemented in cancer care settings from reinforcing health inequalities.
authors.affiliation: HYGEE-ICLN, Université de Lyon, EA HESPER 7425, F-69003, Lyon, France. veronique.regnier@icloire.fr.
authors.forename: Veronique
authors.initials: V
authors.lastname: Regnier Denois
authors.affiliation: REVeSS (Recherches et Etudes sur les Vulnérabilités Sociales et la Santé), Bordeaux, France.
authors.forename: Madina
authors.initials: M
authors.lastname: Querre
authors.affiliation: Decision & Information Sciences for Production Systems laboratory, INSA, Lyon, France.
authors.forename: Linjie
authors.initials: L
authors.lastname: Chen
authors.affiliation: Institut Bergonié, 229 cours de l'Argonne, F-33000, Bordeaux, France.
authors.forename: Marion
authors.initials: M
authors.lastname: Barrault
authors.affiliation: HYGEE-ICLN, Université de Lyon, EA HESPER 7425, F-69003, Lyon, France.
authors.forename: Franck
authors.initials: F
authors.lastname: Chauvin
mesh_terms: D000328:Adult; D000367:Age Factors; D001943:Breast Neoplasms / Q000523:psychology* / Q000534:rehabilitation*; D000073116:Cancer Survivors / Q000523:psychology*; D003142:Communication; D003266:Continuity of Patient Care; D005260:Female; D005602:France; D006297:Health Services Accessibility; D006801:Humans; D007407:Interviews as Topic; D008875:Middle Aged; D036301:Qualitative Research; D011788:Quality of Life; D012959:Socioeconomic Factors
keywords: Breast cancer; Organisation; Qualitative; Rehabilitation; Supportive care; Young women