title: Impact of inflammatory bowel disease on Japanese patients' quality of life: results of a patient questionnaire survey.
abstract: BACKGROUND
  Inflammatory bowel disease (IBD) has a significant negative impact on quality of life (QOL); however, the direct impact of IBD on several aspects of patients' lives is unknown. The IMPACT survey was conducted in Europe in 2010-2011 to determine this impact. We conducted the IMPACT survey in Japan and compared the results between subgroups of patients with ulcerative colitis (UC) and Crohn's disease (CD).
  
  
  METHODS
  The 52-item IMPACT survey questionnaire assessing treatment and the impact of IBD on patients' lives was translated into Japanese and administered to IBD patients recruited through patient advocacy groups.
  
  
  RESULTS
  Between June 2013 and January 2014, 172 Japanese IBD patients completed the questionnaire (including 84 UC and 83 CD patients). Half of all patients (84/172, 48.8 %) were satisfied with their treatment plan, and half of those who had undergone surgery were satisfied with the outcome (46/87, 52.9 %). Although 34.9 % (60/172) of patients had not been hospitalized in 5 years, 50.0 % (86/172) had been hospitalized for more than 10 days. During the most recent flare, 49.4 % (85/172) of patients had to reschedule appointments because of IBD. Moreover, 32.0 % (55/172) of patients had to make adjustments such as working part-time or at home to avoid taking sick days; 35.5 % (61/172) of patients felt that they had lost a job because of IBD.
  
  
  CONCLUSIONS
  Our survey results indicate that IBD patients' lives and social activities are affected by the deterioration of QOL due to IBD and its symptoms.
authors.affiliation: Center for Gastroenterology and Inflammatory Bowel Disease, Ofuna Chuo Hospital, Ofuna 6-2-24, Kamakura, Kanagawa, Japan. ueno@i-hope.jp.
authors.forename: Fumiaki
authors.initials: F
authors.lastname: Ueno
authors.affiliation: IBD Network, C/O IBD Kaikan, Ringokouen HOUSE #308, Hiragishi 3-jo 5-7-20, Toyohira-ku, Sapporo, 062-0933, Japan.
authors.forename: Yasuo
authors.initials: Y
authors.lastname: Nakayama
authors.affiliation: IBD Network, C/O IBD Kaikan, Ringokouen HOUSE #308, Hiragishi 3-jo 5-7-20, Toyohira-ku, Sapporo, 062-0933, Japan.
authors.forename: Eiji
authors.initials: E
authors.lastname: Hagiwara
authors.affiliation: AbbVie GK, Mita 3-5-27, Minato-ku, Tokyo, 108-6302, Japan.
authors.forename: Sarina
authors.initials: S
authors.lastname: Kurimoto
authors.affiliation: Center for Advanced IBD Research and Treatment, Kitasato Institute Hospital, Kitasato University, Shirokane 5-9-1, Minato-ku, Tokyo, 108-8642, Japan.
authors.forename: Toshifumi
authors.initials: T
authors.lastname: Hibi
mesh_terms: D000293:Adolescent; D000328:Adult; D017677:Age Distribution; D000368:Aged; D002648:Child; D003093:Colitis, Ulcerative / Q000175:diagnosis / Q000534:rehabilitation / Q000628:therapy; D003424:Crohn Disease / Q000175:diagnosis / Q000534:rehabilitation / Q000628:therapy; D005260:Female; D006306:Health Surveys; D006801:Humans; D015212:Inflammatory Bowel Diseases / Q000175:diagnosis / Q000534:rehabilitation* / Q000628:therapy; D007564:Japan; D008297:Male; D008875:Middle Aged; D017060:Patient Satisfaction; D011369:Professional-Patient Relations; D011594:Psychometrics; D011788:Quality of Life; D017678:Sex Distribution; D011795:Surveys and Questionnaires; D055815:Young Adult
keywords: Crohn’s disease; Inflammatory bowel disease; Patient organization; Quality of life; Ulcerative colitis