title: Parenting while living with advanced cancer: A qualitative study.
abstract: Patients with advanced cancer who have dependent children are an important population with a life-limiting illness and high levels of psychological distress. Few studies have addressed the experience of being a parent with advanced cancer and their potential palliative needs.
  
  
  
  To describe the experience of living with advanced cancer as a parent, including illness experience, parental concerns, and treatment decision making and to explore whether these experiences differ by their functional status.
  
  
  
  We conducted a cross-sectional, qualitative study using in-depth, semi-structured interviews. Data were analyzed using thematic content analysis.
  
  
  
  A total of 42 participants with metastatic cancer and with at least one child under the age of 18 years were recruited from a comprehensive cancer center. 25 participants were rated as having high functional status (the Eastern Cooperative Oncology Group (ECOG) Performance Status Scale = 0-1) and 17 with low functional status (ECOG=2-4).
  
  
  
  We identified four themes regarding the experience of being a parent with advanced cancer: (1) parental concerns about the impact of their illness and death on their children, (2) "missing out" and losses of parental role and responsibilities, (3) maintaining parental responsibilities despite life-limiting illness, and (4) parental identity influencing decision making about treatment. Parental functional status influenced not only physical responsibilities but also intensified parenting psychological concerns.
  
  
  
  Parents with metastatic cancer may have unique palliative care needs as they experience parenting concerns while managing the psychological and physical demands of advanced cancer.
authors.affiliation: 1 Department of Psychiatry, The University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
authors.forename: Eliza M
authors.initials: EM
authors.lastname: Park
authors.affiliation: 2 Division of Health Policy and Management, The University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
authors.forename: Devon K
authors.initials: DK
authors.lastname: Check
authors.affiliation: 3 Center for Nursing Excellence in Palliative Care, Nell Hodgson Woodruff School of Nursing, Emory University, Atlanta, GA, USA.
authors.forename: Mi-Kyung
authors.initials: MK
authors.lastname: Song
authors.affiliation: 4 Division of Hematology-Oncology, Department of Medicine, The University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
authors.forename: Katherine E
authors.initials: KE
authors.lastname: Reeder-Hayes
authors.affiliation: 5 Palliative Care Program, Division of Geriatrics, Department of Medicine, The University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
authors.forename: Laura C
authors.initials: LC
authors.lastname: Hanson
authors.affiliation: 1 Department of Psychiatry, The University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
authors.forename: Justin M
authors.initials: JM
authors.lastname: Yopp
authors.affiliation: 1 Department of Psychiatry, The University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.|6 Department of Medicine, The University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
authors.forename: Donald L
authors.initials: DL
authors.lastname: Rosenstein
authors.affiliation: 7 School of Nursing, The University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
authors.forename: Deborah K
authors.initials: DK
authors.lastname: Mayer
mesh_terms: D000293:Adolescent; D000328:Adult; D002648:Child; D002675:Child, Preschool; D003430:Cross-Sectional Studies; D005260:Female; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D008297:Male; D008875:Middle Aged; D009362:Neoplasm Metastasis; D009369:Neoplasms / Q000523:psychology*; D010166:Palliative Care / Q000523:psychology*; D010287:Parent-Child Relations; D016487:Parenting / Q000523:psychology*; D010290:Parents / Q000523:psychology*; D036301:Qualitative Research
keywords: Parents; cancer; neoplasm; parenting